Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Welcome back Kay We are BACK > FINALLY!!!! After being off here for WAY too long we are back. I > had to take a break from things and am now realizing that was not > the answer to my problems. I have tried to just go on with life and > try to be as normal as possible and not deal with all the issues we > face with Saleah. I know now that is not the smart thing to do. > LOL. She is doing good. Finally growing and gaining weight. She > turned 6 in May, just went to the Dr. on Monday and weighs 36 lbs > and is 41 in. Only took her 3 yrs to gain 6 lbs..lol wish i had > that trouble with weight gain sometimes...lol > > Well, to update you all on her a little, she is doing great. Ready > to start Kindergarten in August. Can't believe it's happening > already, seems like yesterday she was just sitting up. Her cochlear > implant is working good. Her speech is still very delayed but she > is getting some sound now so that's all i can ask for. Socially > she's great. Gets along with EVERYONE. Health wise she's been good > for about the last year, the occasional cold, but nothing major. > It's been nice to be out of hosipitals for awhile. We are having an > issue now though with behavior. I guess that is what made me come > back here. I knew that nobody knows what it's like but you guys. I > am trying to get a behavior eval to see what's going on and what we > can do about her tantrums and self destructive behavior. So, > hopefully soon we'll have some ideas that we can try and do at > home. Other than that, she is great. Loves sports right now. > Trying to play basketball with her older brother. She's actually > getting pretty good. > > Well, I just want you all to know that it feels great to be back and > I look forward to chatting with some of you again. > > Kim > mom to Devin 13 yrs. and Saleah 6 yrs. (CHARGE) > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 , I posted new pics of Saleah last night. They're in her folder. Kim mom to Devin 13 yrs. and Saleah 6 yrs. (CHARGE) > KIM!!!!!!!!!!!!!!! > It's so great to hear from you, I am so happy to hear about Saleah and how > well she is doing. Good luck with the behavior stuff, hopefully it will > come in time. > Love to see a picture of her now.... > Hugs, > Weir > Mom to Kennedy 6 yr old with CHARGE, 14, 13 and wife to Graeme. > New Brunswick, Canada > Weir homepage: http://personal.nbnet.nb.ca/gweir > CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca > > We are BACK > > > FINALLY!!!! After being off here for WAY too long we are back. I > had to take a break from things and am now realizing that was not > the answer to my problems. I have tried to just go on with life and > try to be as normal as possible and not deal with all the issues we > face with Saleah. I know now that is not the smart thing to do. > LOL. She is doing good. Finally growing and gaining weight. She > turned 6 in May, just went to the Dr. on Monday and weighs 36 lbs > and is 41 in. Only took her 3 yrs to gain 6 lbs..lol wish i had > that trouble with weight gain sometimes...lol > > Well, to update you all on her a little, she is doing great. Ready > to start Kindergarten in August. Can't believe it's happening > already, seems like yesterday she was just sitting up. Her cochlear > implant is working good. Her speech is still very delayed but she > is getting some sound now so that's all i can ask for. Socially > she's great. Gets along with EVERYONE. Health wise she's been good > for about the last year, the occasional cold, but nothing major. > It's been nice to be out of hosipitals for awhile. We are having an > issue now though with behavior. I guess that is what made me come > back here. I knew that nobody knows what it's like but you guys. I > am trying to get a behavior eval to see what's going on and what we > can do about her tantrums and self destructive behavior. So, > hopefully soon we'll have some ideas that we can try and do at > home. Other than that, she is great. Loves sports right now. > Trying to play basketball with her older brother. She's actually > getting pretty good. > > Well, I just want you all to know that it feels great to be back and > I look forward to chatting with some of you again. > > Kim > mom to Devin 13 yrs. and Saleah 6 yrs. (CHARGE) > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@c... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@c... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Wow, how she's grown...she looks good, Kim We are BACK > > > FINALLY!!!! After being off here for WAY too long we are back. I > had to take a break from things and am now realizing that was not > the answer to my problems. I have tried to just go on with life and > try to be as normal as possible and not deal with all the issues we > face with Saleah. I know now that is not the smart thing to do. > LOL. She is doing good. Finally growing and gaining weight. She > turned 6 in May, just went to the Dr. on Monday and weighs 36 lbs > and is 41 in. Only took her 3 yrs to gain 6 lbs..lol wish i had > that trouble with weight gain sometimes...lol > > Well, to update you all on her a little, she is doing great. Ready > to start Kindergarten in August. Can't believe it's happening > already, seems like yesterday she was just sitting up. Her cochlear > implant is working good. Her speech is still very delayed but she > is getting some sound now so that's all i can ask for. Socially > she's great. Gets along with EVERYONE. Health wise she's been good > for about the last year, the occasional cold, but nothing major. > It's been nice to be out of hosipitals for awhile. We are having an > issue now though with behavior. I guess that is what made me come > back here. I knew that nobody knows what it's like but you guys. I > am trying to get a behavior eval to see what's going on and what we > can do about her tantrums and self destructive behavior. So, > hopefully soon we'll have some ideas that we can try and do at > home. Other than that, she is great. Loves sports right now. > Trying to play basketball with her older brother. She's actually > getting pretty good. > > Well, I just want you all to know that it feels great to be back and > I look forward to chatting with some of you again. > > Kim > mom to Devin 13 yrs. and Saleah 6 yrs. (CHARGE) > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@c... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@c... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Wow, how she's grown...she looks good, Kim We are BACK > > > FINALLY!!!! After being off here for WAY too long we are back. I > had to take a break from things and am now realizing that was not > the answer to my problems. I have tried to just go on with life and > try to be as normal as possible and not deal with all the issues we > face with Saleah. I know now that is not the smart thing to do. > LOL. She is doing good. Finally growing and gaining weight. She > turned 6 in May, just went to the Dr. on Monday and weighs 36 lbs > and is 41 in. Only took her 3 yrs to gain 6 lbs..lol wish i had > that trouble with weight gain sometimes...lol > > Well, to update you all on her a little, she is doing great. Ready > to start Kindergarten in August. Can't believe it's happening > already, seems like yesterday she was just sitting up. Her cochlear > implant is working good. Her speech is still very delayed but she > is getting some sound now so that's all i can ask for. Socially > she's great. Gets along with EVERYONE. Health wise she's been good > for about the last year, the occasional cold, but nothing major. > It's been nice to be out of hosipitals for awhile. We are having an > issue now though with behavior. I guess that is what made me come > back here. I knew that nobody knows what it's like but you guys. I > am trying to get a behavior eval to see what's going on and what we > can do about her tantrums and self destructive behavior. So, > hopefully soon we'll have some ideas that we can try and do at > home. Other than that, she is great. Loves sports right now. > Trying to play basketball with her older brother. She's actually > getting pretty good. > > Well, I just want you all to know that it feels great to be back and > I look forward to chatting with some of you again. > > Kim > mom to Devin 13 yrs. and Saleah 6 yrs. (CHARGE) > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@c... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@c... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
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