Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child.Best,Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child.Best,Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child.Best,Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex >Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex >Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex >Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 Please, enough on Dr. Goldberg and his protocol. There is a separate group for that.sallyTo: mb12 valtrex Sent: Sat, December 4, 2010 10:26:14 AMSubject: Re: Supplements are not necessarily safer than prescription medication Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex >Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 Dome people need to here there are other alternatives to DAN and may not know about NIDS. I think that comment was rude! She needs help for her son and apparently DAN isn't helping. I know how she feels! I am currently doing both protocols and feel Dr. Goldberg's is relevant here as it is an anti-viral protocol. If you don't want to hear about Dr. Goldberg, then don't read the post! You comment was very offensive!Rhonda Masengale Please, enough on Dr. Goldberg and his protocol. There is a separate group for that.sallyTo: mb12 valtrex Sent: Sat, December 4, 2010 10:26:14 AMSubject: Re: Supplements are not necessarily safer than prescription medication Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex >Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him...Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (4) Recent Activity: New Members 20 New Files 1 Visit Your Group MARKETPLACE Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. Hobbies & Activities Zone: Find others who share your passions! Explore new interests. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 Very Rude! Dr Goldberg has helped so many children what is your problem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 I think the comment that *people are practicing medicine without a license* probably sensitized the situation.But while I believe this comment to be true, AND I sometimes feel like this ABOUT myself.... I WILL say that a-western medicine is merely *practicing medicine* itself and b-most of us know our kids better than the doctor does. An MD after your name does not make you an expert. One MD might have graduated at the top of his class, the other might have cheated on tests, drank thru school and graduated bottom of his class... do you know which MD is which? Sometimes consulting the list is better medical advice than the physician! We are in fact seeing a DAN doctor but I am asking him to follow NIDS testing recommendations... so I am using both.It isn't helpful to start drawing lines in the sand. :-)Peace on Earth people. :-) We need to stick together... both protocols are outside the norms of treatment and fighting amongst ourselves just makes it easier to " defeat us. " Let's just be thankful that Margo caught the problem and is working on helping her child, undoing the Vit A tox issue. Dome people need to here there are other alternatives to DAN and may not know about NIDS. I think that comment was rude! She needs help for her son and apparently DAN isn't helping. I know how she feels! I am currently doing both protocols and feel Dr. Goldberg's is relevant here as it is an anti-viral protocol. If you don't want to hear about Dr. Goldberg, then don't read the post! You comment was very offensive! Rhonda Masengale Please, enough on Dr. Goldberg and his protocol. There is a separate group for that.sally To: mb12 valtrex Sent: Sat, December 4, 2010 10:26:14 AM Subject: Re: Supplements are not necessarily safer than prescription medication Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: " mb12 valtrex " <mb12 valtrex > Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him... Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (4) Recent Activity: New Members 20 New Files 1 Visit Your Group MARKETPLACE Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. Hobbies & Activities Zone: Find others who share your passions! Explore new interests. -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 I would like to apologize for my rude behavior. It's bad enough we have to fight the whole world, we don't need to fight each other. But I will say that no one protocol will help every child with autism. Dan won't help all kids but neither will NIDS. BUT, if one protocol isn't helping, I feel there should be more options presented. If Dan was all there was, i would have no hope for recovery for my youngest. He's been helped by Dan, but still pretty impaired. I would never have known about NIDS had I not read about it here. I feel there is a lot to gain from both protocols. I am just happy there us more protocols to choose from and I feel Margo has a right to choose for her child without being criticized for it. Or anyone else for that matter. I pray we can all talk about the different protocols without being attacked by another person.Rhonda Masengale I think the comment that *people are practicing medicine without a license* probably sensitized the situation.But while I believe this comment to be true, AND I sometimes feel like this ABOUT myself.... I WILL say that a-western medicine is merely *practicing medicine* itself and b-most of us know our kids better than the doctor does. An MD after your name does not make you an expert. One MD might have graduated at the top of his class, the other might have cheated on tests, drank thru school and graduated bottom of his class... do you know which MD is which? Sometimes consulting the list is better medical advice than the physician! We are in fact seeing a DAN doctor but I am asking him to follow NIDS testing recommendations... so I am using both.It isn't helpful to start drawing lines in the sand. :-)Peace on Earth people. :-) We need to stick together... both protocols are outside the norms of treatment and fighting amongst ourselves just makes it easier to "defeat us." Let's just be thankful that Margo caught the problem and is working on helping her child, undoing the Vit A tox issue. Dome people need to here there are other alternatives to DAN and may not know about NIDS. I think that comment was rude! She needs help for her son and apparently DAN isn't helping. I know how she feels! I am currently doing both protocols and feel Dr. Goldberg's is relevant here as it is an anti-viral protocol. If you don't want to hear about Dr. Goldberg, then don't read the post! You comment was very offensive! Rhonda Masengale Please, enough on Dr. Goldberg and his protocol. There is a separate group for that.sally To: mb12 valtrex Sent: Sat, December 4, 2010 10:26:14 AM Subject: Re: Supplements are not necessarily safer than prescription medication Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex > Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him... Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (4) Recent Activity: New Members 20 New Files 1 Visit Your Group MARKETPLACE Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 I never feel criticized when I am on this site. I beat myself up but everyone here makes me feel as if they have been where I am. I appreciate you so much.Sent from my iPhone I would like to apologize for my rude behavior. It's bad enough we have to fight the whole world, we don't need to fight each other. But I will say that no one protocol will help every child with autism. Dan won't help all kids but neither will NIDS. BUT, if one protocol isn't helping, I feel there should be more options presented. If Dan was all there was, i would have no hope for recovery for my youngest. He's been helped by Dan, but still pretty impaired. I would never have known about NIDS had I not read about it here. I feel there is a lot to gain from both protocols. I am just happy there us more protocols to choose from and I feel Margo has a right to choose for her child without being criticized for it. Or anyone else for that matter. I pray we can all talk about the different protocols without being attacked by another person.Rhonda Masengale I think the comment that *people are practicing medicine without a license* probably sensitized the situation.But while I believe this comment to be true, AND I sometimes feel like this ABOUT myself.... I WILL say that a-western medicine is merely *practicing medicine* itself and b-most of us know our kids better than the doctor does. An MD after your name does not make you an expert. One MD might have graduated at the top of his class, the other might have cheated on tests, drank thru school and graduated bottom of his class... do you know which MD is which? Sometimes consulting the list is better medical advice than the physician! We are in fact seeing a DAN doctor but I am asking him to follow NIDS testing recommendations... so I am using both.It isn't helpful to start drawing lines in the sand. :-)Peace on Earth people. :-) We need to stick together... both protocols are outside the norms of treatment and fighting amongst ourselves just makes it easier to "defeat us." Let's just be thankful that Margo caught the problem and is working on helping her child, undoing the Vit A tox issue. Dome people need to here there are other alternatives to DAN and may not know about NIDS. I think that comment was rude! She needs help for her son and apparently DAN isn't helping. I know how she feels! I am currently doing both protocols and feel Dr. Goldberg's is relevant here as it is an anti-viral protocol. If you don't want to hear about Dr. Goldberg, then don't read the post! You comment was very offensive! Rhonda Masengale Please, enough on Dr. Goldberg and his protocol. There is a separate group for that.sally To: mb12 valtrex Sent: Sat, December 4, 2010 10:26:14 AM Subject: Re: Supplements are not necessarily safer than prescription medication Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex > Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him... Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (4) Recent Activity: New Members 20 New Files 1 Visit Your Group MARKETPLACE Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2010 Report Share Posted December 4, 2010 One thing I have Rhonda Masengale learned from this group is if something's not working try something else. But don't give up! Leave no stone unturned! I have felt the way you do, but then I pray and get back on track to helping my children. You can do it! Don't be afraid to change docs or have several on board. Do whatever it takes. It's hard, and my kid is having some scary die-off right now. I wonder if what I am doing is right, but then he starts doing new things and I know it's right. We are here for you! I never feel criticized when I am on this site. I beat myself up but everyone here makes me feel as if they have been where I am. I appreciate you so much.Sent from my iPhone I would like to apologize for my rude behavior. It's bad enough we have to fight the whole world, we don't need to fight each other. But I will say that no one protocol will help every child with autism. Dan won't help all kids but neither will NIDS. BUT, if one protocol isn't helping, I feel there should be more options presented. If Dan was all there was, i would have no hope for recovery for my youngest. He's been helped by Dan, but still pretty impaired. I would never have known about NIDS had I not read about it here. I feel there is a lot to gain from both protocols. I am just happy there us more protocols to choose from and I feel Margo has a right to choose for her child without being criticized for it. Or anyone else for that matter. I pray we can all talk about the different protocols without being attacked by another person.Rhonda Masengale I think the comment that *people are practicing medicine without a license* probably sensitized the situation.But while I believe this comment to be true, AND I sometimes feel like this ABOUT myself.... I WILL say that a-western medicine is merely *practicing medicine* itself and b-most of us know our kids better than the doctor does. An MD after your name does not make you an expert. One MD might have graduated at the top of his class, the other might have cheated on tests, drank thru school and graduated bottom of his class... do you know which MD is which? Sometimes consulting the list is better medical advice than the physician! We are in fact seeing a DAN doctor but I am asking him to follow NIDS testing recommendations... so I am using both.It isn't helpful to start drawing lines in the sand. :-)Peace on Earth people. :-) We need to stick together... both protocols are outside the norms of treatment and fighting amongst ourselves just makes it easier to "defeat us." Let's just be thankful that Margo caught the problem and is working on helping her child, undoing the Vit A tox issue. Dome people need to here there are other alternatives to DAN and may not know about NIDS. I think that comment was rude! She needs help for her son and apparently DAN isn't helping. I know how she feels! I am currently doing both protocols and feel Dr. Goldberg's is relevant here as it is an anti-viral protocol. If you don't want to hear about Dr. Goldberg, then don't read the post! You comment was very offensive! Rhonda Masengale Please, enough on Dr. Goldberg and his protocol. There is a separate group for that.sally To: mb12 valtrex Sent: Sat, December 4, 2010 10:26:14 AM Subject: Re: Supplements are not necessarily safer than prescription medication Margo, Please do not give up. My son was diagnosed as severe autistic 7 months ago. He was totally in his own world. His sensitivity to food, environment and fabrics were rockety high.Till a doctor stepped back treating him because my son had super sensitive gut. I felt the same way like you too 7 months ago. I had suicidal thought, abused and almost killed my son. Out of desperation, I was introduced to Dr.Goldberg by Marcia. Then, My life has started turn the other side of the world, brighter. To cut my story short, a few days ago my son 's report wrote he is diagnosed as mild autistic. He can sing, dance, race, wrestle, read, comply and learn faster than ever. I can not describe how he was because I need three weeks to write about him.. His sleeping pattern and appetite suddenly turn to be much better. I do not need to buy tons of vitamins, expensive GFCF grocery ( cost me a bomb) and thousands of dollars of therapies. In fact, this protocol is much cheaper, very effective and life's saving. Ju Margo, I have been there where you are now. Please do not give up. I am a special needs teacher and have seen many of SPN students. Some do not even have any protocol, but eventually there is a breakthrough. We have better opportunity to recover our children than those without any treament. In fact I have many things to share with you, you can email me privately. I will be more than happy to share how my son has progressed so far. My love grow bigger each day for him. My heart is crying to see your post. I am begging you , please do not give up. You are not alone. We are fighting this disease together. Ju To: "mb12 valtrex " <mb12 valtrex > Sent: Sat, December 4, 2010 11:23:30 PMSubject: Re: Supplements are not necessarily safer than prescription medication I am just so tired ... I am ready to just accept him for who he is and stop all of this... I don't want to hurt him anymore... The fact that I may have caused this hell we have been in for 3 months... I'm ready to let him eat the foods he likes.. No gfcf.. No low carbs... Let him be happy and stop being obsessed with fixing him... Sent from my iPhone Margo, When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. Even though I never gave my son Vitamin A, I was giving chapter and verse on how dangerous it can be if the body is given too much. I couldn’t get a word in edgewise to tell Dr Goldberg I never gave vitamin A. However, that’s when I realized supplements can be as harmful as prescription medications and more is not necessarily better. Supplements have the potential to be even more dangerous than prescription medications, because they are not regulated nor go through the rigorous testing required for prescription drugs. When I read this list I understand the desperation that makes moms try these things. Been there and done that. I was guilty also. We would do anything to help our kids. But sometimes it puzzles me when moms are afraid to try tested meds in favor of tons of supplements. Especially when these families don’t do regular blood tests to see the results of what they are doing. Some parents don’t keep track of liver functions to make sure that these supplements are not hurting their children. I worry that as moms and dads, we are practicing medicine without a license. I know I did. ( I used to secretly wish I had gone through medical school so I could have helped my son or find the cure. But I never would have passed.) The thing that makes me even more concerned is the way some of the DAN doctors throw thousands of supplements at our kids instead of treating this more scientifically with one medication change at time and the blood tests to measure the results. They as medical professionals should know better. Having said all that, I was desperate for help for and did the same when we were seeing Sidney Baker, the doctor who started the DAN protocol. And when Dr G said I needed to stop all the supplements, I secretly kept a few until the trust grew that this man knew what he was doing. Of course the trust never changed the fact that at times Dr G’s bedside manner needed help. His passion to help our kids sometimes makes him become too strident. (’s word for me that means too opinionated and overbearing.) But he saved my kid. In all fairness to Dr Baker, some of what he tried did help, but the results we saw were nowhere near those from Dr Goldberg’s protocol. In time, I learned to trust this doctor and follow most of his advice. (We still argue about the best way to do the behavioral and educational rehabilitation.) Please find a practitioner who knows what they are doing and follows the scientific method doctors are supposed to use. Good doctors are hard to find. (We all know where the bad ones are!!!) In addition, don’t do anything that might harm your child. Best, Marcia Hinds Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2010 Report Share Posted December 5, 2010 Marcia, In an earlier post, you said: " When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. " Why on earth would anyone put up with being yelled at by a doctor? Was that a figure of speech? Or is he the type of doctor that bullies parents? That is the kind of comment that would warn me away from a doctor. I don't need a dictator that yells at me. I am a grown woman and not in need of scoldings. Sylvia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2010 Report Share Posted December 5, 2010 I apologize, I just now read the post by the moderator asking that we drop the off topic discussion, but I posted before I saw that one. So please disregard my question. Sylvia > > Marcia, > > In an earlier post, you said: > > " When Dr. Goldberg thought I was giving vitamin A or cod liver oil because his blood tests showed elevated vitamin A, I got yelled at big time. " > > Why on earth would anyone put up with being yelled at by a doctor? Was that a figure of speech? Or is he the type of doctor that bullies parents? That is the kind of comment that would warn me away from a doctor. I don't need a dictator that yells at me. I am a grown woman and not in need of scoldings. > > Sylvia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 how ironic then Sally that this group was originally started in biggest part thanks to Dr Goldberg's protocol The whole discussion about valtrex/antivirals, here and elsewhere, in autism was originally started thanks to him. fyi Natasa x > > Please, enough on Dr. Goldberg and his protocol. There is a separate group for > that. > > sally > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 Hi everyone, I am new to this group and have actually found this thread quite interesting. One of the reasons I did join is because of the Valtrex part of the discussion board. Valtrex is intended for herpes viruses, and many are not commonly known such as HHv6, HHv7, HHv8, and so on. These are viruses that do not go away and therefore need long term treatment. None of the natural or herbal treatments for herpes have been tested or used to the same extent the pharmaceuticals have been. Often starting and stopping something that can be known to help will only exasperate and strengthen these stubborn and opportunistic viruses. Valtrex, along with Famvir and Zovirax are the only pharmaceuticals for herpes viruses. These cannot be given by someone that is not a licensed medical doctor, like Stan Kurtz. Dr. Goldberg, a paediatrician, has been working with kids in the spectrum for 20 years or so, successfully tackling the viral issues with these pharmaceuticals along with other safe medications to treat and therefore strengthen the body’s immune system. I don’t know how his name could not be brought up continuously on this board because he has been helping children successfully recover using prescribed antivirals like Valtrex for so long. Clearly, treating these complicated issues successfully for so long makes Dr. Goldberg THE expert. The symptoms that make our children appear Autistic are complex issues that result from inflammation that have damaged our children and they need a medical doctor to safely see them through to be the healthy and productive children they can and deserve to be. The goal for all of us is to have our children healthy and healed from this awful disease known as Autism. We need to share what has worked for us, but also first and foremost we must do no harm to our children’s sensitive systems and that cannot be done without real medical supervision and direction. Afterall, these are very serious issues and not some benign problem like a hangnail. I encourage posts from Marcia and others whose child has recovered and achieved what we are all working, hoping and praying for. They are informative and give me hope! Sincerely, Lori From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of natasa778 Sent: December-06-10 6:22 AM To: mb12 valtrex Subject: Re: Supplements are not necessarily safer than prescription medication how ironic then Sally that this group was originally started in biggest part thanks to Dr Goldberg's protocol The whole discussion about valtrex/antivirals, here and elsewhere, in autism was originally started thanks to him. fyi Natasa x > > Please, enough on Dr. Goldberg and his protocol. There is a separate group for > that. > > sally > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 Hi everyone, I am new to this group and have actually found this thread quite interesting. One of the reasons I did join is because of the Valtrex part of the discussion board. Valtrex is intended for herpes viruses, and many are not commonly known such as HHv6, HHv7, HHv8, and so on. These are viruses that do not go away and therefore need long term treatment. None of the natural or herbal treatments for herpes have been tested or used to the same extent the pharmaceuticals have been. Often starting and stopping something that can be known to help will only exasperate and strengthen these stubborn and opportunistic viruses. Valtrex, along with Famvir and Zovirax are the only pharmaceuticals for herpes viruses. These cannot be given by someone that is not a licensed medical doctor, like Stan Kurtz. Dr. Goldberg, a paediatrician, has been working with kids in the spectrum for 20 years or so, successfully tackling the viral issues with these pharmaceuticals along with other safe medications to treat and therefore strengthen the body’s immune system. I don’t know how his name could not be brought up continuously on this board because he has been helping children successfully recover using prescribed antivirals like Valtrex for so long. Clearly, treating these complicated issues successfully for so long makes Dr. Goldberg THE expert. The symptoms that make our children appear Autistic are complex issues that result from inflammation that have damaged our children and they need a medical doctor to safely see them through to be the healthy and productive children they can and deserve to be. The goal for all of us is to have our children healthy and healed from this awful disease known as Autism. We need to share what has worked for us, but also first and foremost we must do no harm to our children’s sensitive systems and that cannot be done without real medical supervision and direction. Afterall, these are very serious issues and not some benign problem like a hangnail. I encourage posts from Marcia and others whose child has recovered and achieved what we are all working, hoping and praying for. They are informative and give me hope! Sincerely, Lori From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of natasa778 Sent: December-06-10 6:22 AM To: mb12 valtrex Subject: Re: Supplements are not necessarily safer than prescription medication how ironic then Sally that this group was originally started in biggest part thanks to Dr Goldberg's protocol The whole discussion about valtrex/antivirals, here and elsewhere, in autism was originally started thanks to him. fyi Natasa x > > Please, enough on Dr. Goldberg and his protocol. There is a separate group for > that. > > sally > Quote Link to comment Share on other sites More sharing options...
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