Re: Erma Bombeck on mothers of disabled children....

[Guest guest]

Wow, that one got me. But I didn't read it thinking of who I am. I read it

thinking and remembering who my children have made me. I was never very

brave, outspoken, patient, and I certainly didn't think I was the brightest in

the

world.

But I am so thankful I have had the wonderful experience to have a

daughter such as Patty who has to continually be brave, who has to make her

needs

and wants known, who is patient waiting for the world to be nice and who is

brighter than most imagine. She has taught me to be brave. So many times I

feared for her and yet swallowed and held her through things. She taught me

bravery. I have certainly become very outspoken (as my mother continues to

remind

me!) because I have had to fight for her. I have learned patience which is one

of the hardest things for me, yet life comes one day at a time and that is

good. I have also learned that I now know much more than many professionals. I

am smarter than I thought. How much medical information do I understand, how

many educational programs have I learned because of her and how many laws do

I know know. Who would have thought. I also have learned the balance of the

human body, both hers and mine. But most of all through watching her I have

learned how to be thankful and joyful for little things and not to fear the big

ones. Life is what it is.

And that is just the tip of the impact, the wonderful impact, Patty has had

on my life. I thank God for giving me HER.

I think Patty is the saint I have had in my life. She is more than my mirror.

Bonnie, mom to a who too taught me more than I could imagine 21, Patty

19 CHARGE and wife to who has more patience than most humans-he is

living in a house of girls!

[Guest guest]

Bonnie,

You said it so well. It's as if you read my mind after I read

Bombeck's comments. If you change Patty to and Bonnie to Lynn I

couldn't have said it better. Thanks for sharing you feelings ( and mine) so

freely.

's ear surgery is Friday, July 23rd. After that she and her

friend are moving into an apartment in Painsville, OH. (45 miles east of

us on the way to Cleveland.) She will attend Lakeland Communtity College in

Mentor, OH. The next city over.(15 min. drive) Doug and I have our

reservations. Many many of them, but she is bound and determined to " make it one

her own " .( Sounds like a CHARGE thing to me. : ) ) I have to stay out of

her way and just pray.

Lynn

Re: Erma Bombeck on mothers of disabled children....

Wow, that one got me. But I didn't read it thinking of who I am. I read it

thinking and remembering who my children have made me. I was never very

brave, outspoken, patient, and I certainly didn't think I was the brightest in

the

world.

But I am so thankful I have had the wonderful experience to have a

daughter such as Patty who has to continually be brave, who has to make her

needs

and wants known, who is patient waiting for the world to be nice and who is

brighter than most imagine. She has taught me to be brave. So many times I

feared for her and yet swallowed and held her through things. She taught me

bravery. I have certainly become very outspoken (as my mother continues to

remind

me!) because I have had to fight for her. I have learned patience which is

one

of the hardest things for me, yet life comes one day at a time and that is

good. I have also learned that I now know much more than many professionals.

I

am smarter than I thought. How much medical information do I understand, how

many educational programs have I learned because of her and how many laws do

I know know. Who would have thought. I also have learned the balance of the

human body, both hers and mine. But most of all through watching her I have

learned how to be thankful and joyful for little things and not to fear the

big

ones. Life is what it is.

And that is just the tip of the impact, the wonderful impact, Patty has had

on my life. I thank God for giving me HER.

I think Patty is the saint I have had in my life. She is more than my mirror.

Bonnie, mom to a who too taught me more than I could imagine 21, Patty

19 CHARGE and wife to who has more patience than most humans-he is

living in a house of girls!

[Guest guest]

KRISTA: that is a very wise for such a " young person " as you. I

don't say a " young soul " , as I've always said the children and young

adults with CHARGE seem " very old souls " . I bet they have been through

many challenges in lives before, passed through all those easily,and

are up there saying before they are born, " ok, this is now my next

challenge " .

One of my students who had Rubella used to draw pictures, costumes and

things from past era's, and things in history she just could not have

known about by her limited experiences. She used to love museums, and

would actually sign things she COULD NOT have know the sign for, and

she would laugh and point because she knew we didn't know.

So, I BELIEVE you!!

I just wanted to say that I felt very fortunate that you live so

close and that I got to meet you. You ARE beautiful in CHARGEland!

Ann Gloyn

Specialist Teacher

Canada

> If you're not equipped to handle a tearjerker save this one for later!

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