Question about Tubes and Buttons

[Guest guest]

Hello;

I wanted to know more about what kind of Tubes and Buttons are out there, and

which ones are better.

Thanks; Sincerely yours; Krista Bach.

---------------------------------

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[Guest guest]

wes has a bard button we found with the ones that have balloons at

the end to keep them in place his stomach acid would pop them and we

would have to replace way too often. the bard button has a mushroom

at the end to hold it inplace. the Drs. said they didn't like to use

it much because it hurts a little when they put it in. but it does

stay in and so much fewer charges and visits. now we just change

when the little plug part brakes which was once a year when we used

it often its been longer then that with this one but we only use

it for venting any more. its also nice because there is not much

that shows and gets in the way with dressing and such. oh and

wesley always cries when they change it for just a sec. then thanks

the Dr for fixing it .

hope you find what works best for you.

KayRena mom of wesley charger 10 Jake 8 Tristen 6 Zachary 4

and KayLeigh 3 weeks

Krista Bach wrote:

> Hello;

>

> I wanted to know more about what kind of Tubes and Buttons are out

> there, and which ones are better.

>

> Thanks; Sincerely yours; Krista Bach.

>

>

>

> ---------------------------------

> Post your free ad now! Yahoo! Canada Personals

>

>

>

[Guest guest]

Oh Krista, I can lend you my charge syndrome manual there is a

section on tubes and buttons. Its short and only covers 2 types of

tubes and mentions one button. You may prefer the button as it

apperently allows for more mobility and stuff. I wont be able to

swing up the mountain today but I can next week and drop it off.

Chantelle

[Guest guest]

Oh Krista, I can lend you my charge syndrome manual there is a

section on tubes and buttons. Its short and only covers 2 types of

tubes and mentions one button. You may prefer the button as it

apperently allows for more mobility and stuff. I wont be able to

swing up the mountain today but I can next week and drop it off.

Chantelle

[Guest guest]

Oh Krista, I can lend you my charge syndrome manual there is a

section on tubes and buttons. Its short and only covers 2 types of

tubes and mentions one button. You may prefer the button as it

apperently allows for more mobility and stuff. I wont be able to

swing up the mountain today but I can next week and drop it off.

Chantelle

[Guest guest]

Krista, my charge manual is getting all out of order so you may want

to consider getting your own at some point. Its been a terrific

resorce for my doctors (I photocopy a couple pages here and there for

various doctors). I will also bring you a bunch of CHARGE canada

pamflets you can give to your doctor and maby your mom cold put some

where she works too at her hospital. I gave a bunch to the PNICU and

the ICU at Macmaster Children's hospital. I need to get a bunch more

as im down to my last handfull.

Hugs from your friend

Chantelle

[Guest guest]

My son who is 7 has a mic-key button and has had it for 7 years. I know

there was another company who makes a flatter button and I am trying to

remember the name of the company. They are the ones who make a device to

make sure the extension tube doesn't open, it is something like AMT I think

is the name. We are happy with the mic-key button though.

Debbie Matasker

[Guest guest]

My son who is 7 has a mic-key button and has had it for 7 years. I know

there was another company who makes a flatter button and I am trying to

remember the name of the company. They are the ones who make a device to

make sure the extension tube doesn't open, it is something like AMT I think

is the name. We are happy with the mic-key button though.

Debbie Matasker

[Guest guest]

My son who is 7 has a mic-key button and has had it for 7 years. I know

there was another company who makes a flatter button and I am trying to

remember the name of the company. They are the ones who make a device to

make sure the extension tube doesn't open, it is something like AMT I think

is the name. We are happy with the mic-key button though.

Debbie Matasker

[Guest guest]

Chantelle;

I have my own CHARGE Manual, and Ann dropped by yesterday and brought me some

CHARGE pamplets and a couple of shirts. She put the other stuff in her car, and

took the truck by mistake without realizing that the stuff was with her husband

in the car.

Thanks. Sincerely yours; Krista.

Chantelle McLaren wrote:

Krista, my charge manual is getting all out of order so you may want

to consider getting your own at some point. Its been a terrific

resorce for my doctors (I photocopy a couple pages here and there for

various doctors). I will also bring you a bunch of CHARGE canada

pamflets you can give to your doctor and maby your mom cold put some

where she works too at her hospital. I gave a bunch to the PNICU and

the ICU at Macmaster Children's hospital. I need to get a bunch more

as im down to my last handfull.

Hugs from your friend

Chantelle

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