Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Patty doesn't have thed sense of smell which is both bad and good. Once she once put perfume on and almost emptied the bottle on herself. It was hard to wash off too. There is the good in that she is the only one I know who can go in an outhouse with no problem! Really though, without the sense of smell she still has the sense of taste though I am sure it is different as well. This is good in that if there is a strong chemical odor, smoke or whatever, she sometimes can taste it. When she is trying to smell something she will take a deep breath through her mouth. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 sometimes i think i can tell if there is a very strong bad smell around but im not sure...like i know sometiems if ive gone to empy the bin in teh bathroom ill get this sensation in my nose and it feels all yuck..doesnt happen very often buti think i can smell occasionaly.. butr y i actually can only think of two times this actaully appening tho Belinda Re: sense of smell > Lacey - > I know that Aubrie can smell some things because she has reacted to smells > along the way. I can't recall what now, but I know there were times when > she'd ask about something that smelled and I'd think, " Ok, so she can smell > some thing after all. " These weren't necessarily strong odors either, cuz I > remember thinking about that too. She's only 6 yrs old, so we can't really > get a good eval of her smell by asking her about it. I'm not sure she gets > the idea well enough to tell us if she smells something or not. But I do > know that she has smelled some things. > > Michele W > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 like i posted earlier..i get this sensation in my nose rarely but i donno if its smell lol sense of smell > > Are there any " chargers " who CAN smell? What is the > best way to test if my son can smell. He SEEMS to > react to flowers and eucalyptus oil, but cometo think > of it, I am not really sure. Ideas? > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 like i posted earlier..i get this sensation in my nose rarely but i donno if its smell lol sense of smell > > Are there any " chargers " who CAN smell? What is the > best way to test if my son can smell. He SEEMS to > react to flowers and eucalyptus oil, but cometo think > of it, I am not really sure. Ideas? > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 i love food! sense of smell > > > > > > > > > > Are there any " chargers " who CAN smell? What is the > > > best way to test if my son can smell. He SEEMS to > > > react to flowers and eucalyptus oil, but cometo think > > > of it, I am not really sure. Ideas? > > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
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