Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Valeri, Just curious. How long have you been detoxing your daughter? and what protocol.... [ ] Tardive Dyskinesia on Risperdal - case report. sen sent me the following message privately and gave me permission to forward it to the list: Hello, my name is and I have a 5 year old son on this drug who has developed Tardive Dyskensia. We discovered it when we stopped the drug. He was on for a year and did have slight signs before the drug was stopped but I didn't of TD, just thought it was autism traits. I have had to put my son back on this drug and chances are he will be on a maintenance dose for life or another drug substituted. I am going to be weaning him off slowly to see if that helps any with the TD. I do not want my child to be on this med. This is a very serious side effect and has now robbed my sons ability with fine motor, like he didn't have trouble before. It is life long with no cure or treatment other then more drugs which will do more harm to the system. This is not the miracle it is said to be! Speak to a child psch and get a proper schedule for weaning, it is very important you do this correctly or you can cause the neurological system damage. Good luck to you and to your child. I hope you can avoid what my son is now going through. It has devastated u ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 Jenna has only gone 1 round of chelating (last month). Using Andy's protocol. I was thrilled w/ her results (more social and playful). She has a problem now w/ her blood and I am not going to do anymore chelating until this gets cleared up. Valeri Re: [ ] Risperdal Our Miracle Valeri, Just curious. How long have you been detoxing your daughter? and what protocol.... [ ] Tardive Dyskinesia on Risperdal - case report. sen sent me the following message privately and gave me permission to forward it to the list: Hello, my name is and I have a 5 year old son on this drug who has developed Tardive Dyskensia. We discovered it when we stopped the drug. He was on for a year and did have slight signs before the drug was stopped but I didn't of TD, just thought it was autism traits. I have had to put my son back on this drug and chances are he will be on a maintenance dose for life or another drug substituted. I am going to be weaning him off slowly to see if that helps any with the TD. I do not want my child to be on this med. This is a very serious side effect and has now robbed my sons ability with fine motor, like he didn't have trouble before. It is life long with no cure or treatment other then more drugs which will do more harm to the system. This is not the miracle it is said to be! Speak to a child psch and get a proper schedule for weaning, it is very important you do this correctly or you can cause the neurological system damage. Good luck to you and to your child. I hope you can avoid what my son is now going through. It has devastated u ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 I think this highlights the real issue. Risperdahl (or many medications, or supplements) can in certain specific instances be absolutely wonderful stuff. Risperdahl (or many medications, or supplements) does in fact have risks which are generally understated. The real issue is simply do the potential benefits justify taking the poorly understood risks? In some cases, as below, they clearly do. In others, not. Mostly this is an individual decision that the people most intimately involved have to make due to their greater understanding of the situation than anyone else. Andy . .. . . . . . . . . . . . . > My 4 1/2 year old daughter Jenna (ASD) has been on Risperdal since 5/31/02. > We gave her this drug as a last resort before sending her to live in what > was basically an institution. Jenna started SIB on Valentines Day of this > year. She woke up screaming like she was on fire at 2:00 a.m., scratching > and clawing her legs hands and face bloody. Her father and I were both > trying to restrain her and barely managed to do so until we could get her > doctor to prescribe a tranquilizer several hours later. Let me add that my > husband is 6'4 " and a competitive distance swimmer. I am 5'9 " and in > reasonably good shape. Jenna weighs 35 lbs. We were both shocked at Jenna's > strength. She bite me so hard it drew blood and left a welt for over a > week. > > A couple of days later Jenna bit one of her teachers who then had to go to > the emergency room. Jenna also became physically aggressive to her 2 > younger sisters. At the time the baby wasn't walking, making her an easy > target. Jenna also continued her night waking. Every night she would wake > up around 11:00 p.m. and begin screaming the same desperate scream and > SIB's, all the while looking right through anyone who tried to comfort or > consol her. Around 6:00 a.m. she would drift off to sleep. The whole house > was disrupted. My husband (sole income provider) was going to work w/ no > sleep. My 2 younger children were afraid to go to sleep at night and they > were more afraid of Jenna who was physically attacking them by biting, > pushing, hitting and pulling out their hair. > > Jenna was recommended twice for Psychiatric Hospital admission because her > behavior was so out of control. Once during a check-up visit for the baby > Jenna had an " episode " in the doctors office. 3 office personnel could not > restrain her and 2 of them were bitten. > > We worked with so many behaviorists that I cannot even remember how many. > Jenna attends one of the most highly thought of ABV schools in the country > and the staff was very dedicated to helping her. > > Nothing we tried worked until the Risperdal. Jenna takes 1.25 mg a day and > is a totally different child. She sleeps through the night (and has every > night since her first dose), has no more SIB's, is not physically aggressive > to anyone, is happy and compliant and a joy to be around. > > Risperdal WAS and IS a miracle for OUR family. No matter what happens > tomorrow or the next day, I got to keep my family together for at least a > little while longer and that means the world to me. Jenna has not had any > side effects. No weight gain, no extra sleep, no spacy-ness. Every child > is different but Risperdal did the job for our family. > > Anyone who has questions can email me privately or on list. > > Thanks, > > Valeri, mom to: > Jenna (4 1/2 ASD) > (3 1/2 NT) > LeeLee (1 1/2 NT) > > > [ ] Tardive Dyskinesia on Risperdal - case report. > > sen sent me the following message privately and gave me > permission to forward it to the list: > > Hello, my name is and I have a 5 year old son on this drug who > has developed Tardive Dyskensia. We discovered it when we stopped the > drug. He was on for a year and did have slight signs before the drug > was stopped but I didn't of TD, just thought it was autism traits. I > have had to put my son back on this drug and chances are he will be on > a maintenance dose for life or another drug substituted. I am going to > be weaning him off slowly to see if that helps any with the TD. I do > not want my child to be on this med. This is a very serious side > effect and has now robbed my sons ability with fine motor, like he > didn't have trouble before. It is life long with no cure or treatment > other then more drugs which will do more harm to the system. This is > not the miracle it is said to be! > > > > Speak to a child psch and get a proper schedule for weaning, it is > very important you do this correctly or you can cause the neurological > system damage. > > > > Good luck to you and to your child. I hope you can avoid what my son > is now going through. It has devastated u > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 HI this is from the message Andy wrote. I wanted to respond to you about my ds. Yes this drug changed our life as well. My son is more easily managed when he is on it. He is more social, less aggressive and his tantrums are fewer. When we first discovered this drug, I posted on a site this title, " my love for risperdal " and I meant it! What I didn't know is it was hurting my sons system. These kids cannot be on this drug for long periods of time, it is written in studies just that. When they are taken off, some will have the extra hurdle of Tardive Dyskensia, a non curable movement disorder. My son has involuntary movement in his arms, hands, neck and face. His legs also twitch and swing to and fro as he is sitting. His tongue is always pushing against his lips, he is lip smacking and puckering. What has all of this done to him? His fine motor skills are gone, he cannot hold a pencil, he cannot feed himself with a utencil without spilling food, he cannot keep his hands under water to wash them. This movement is affecting the normal sensory stimulation he was receiving from hand flapping since he is doing it differently. This had robbed him of what was left after autism struck, physical abilities. So yes, this drug helped to manage my son for a year, but now it has left us facing more and more each day, much more then I ever knew could happen. This is what Tardive Dyskensia did to my son and my family. It is a serious side effect of this drug and not one to take lightly. I am not in any way shape or form trying to get people to do what I think they should, but I also want others to know what it can do. I don't want to read a parent didn't know about this or it could happen to them. Thanks for reading, [ ] Tardive Dyskinesia on Risperdal - case report. sen sent me the following message privately and gave me permission to forward it to the list: Hello, my name is and I have a 5 year old son on this drug who has developed Tardive Dyskensia. We discovered it when we stopped the drug. He was on for a year and did have slight signs before the drug was stopped but I didn't of TD, just thought it was autism traits. I have had to put my son back on this drug and chances are he will be on a maintenance dose for life or another drug substituted. I am going to be weaning him off slowly to see if that helps any with the TD. I do not want my child to be on this med. This is a very serious side effect and has now robbed my sons ability with fine motor, like he didn't have trouble before. It is life long with no cure or treatment other then more drugs which will do more harm to the system. This is not the miracle it is said to be! Speak to a child psch and get a proper schedule for weaning, it is very important you do this correctly or you can cause the neurological system damage. Good luck to you and to your child. I hope you can avoid what my son is now going through. It has devastated u ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2002 Report Share Posted October 11, 2002 I have to agree with valeri d. resperdal has helped us keep our son at home as well. he had spiraled out of control and was aggressive to himself and to us and his sister. he would even attack our dog. i could not keep any help at home as he would attack them too. my husband works long hours and i had to handle him myself. when my husband came home, he would get attacked. he has osteoporosis and we feared that one good kick would cause us to lose our income. i had kept him drug free for 6.5 years and it was a huge step and i did not take it lightly. The city wanted him to go residential. we use .5ml(liquid). it helped our family alot. I am not saying it is right for every child, but we have kept him home for another year so far. he has mellowed alot. He isn't perfect and still tantrums and attacks from time to time, but it is 90% better. the only side effect we have seen is weight gain. he even sleeps better now. Everyone has to wrestle with their own decisions. I don't regret it. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2002 Report Share Posted October 11, 2002 --- In @y..., " andrewhallcutler " <AndyCutler@a...> wrote: Hi, My heart goes out to you. I'm glad you found something that works for your daughter. Now that she's doing better are you going to test her for metals and yeast? My son was almost put on Risperdol, during our " horrible days " but the GFCF diet calmed him down a little and yeast control calmed him down even more, then his metals test came out high, so we're chelating him now, hopefully getting to the root of the problem. Best wishes, Kate > I think this highlights the real issue. > > Risperdahl (or many medications, or supplements) can in certain > specific instances be absolutely wonderful stuff. > > Risperdahl (or many medications, or supplements) does in fact have > risks which are generally understated. > > The real issue is simply do the potential benefits justify taking the > poorly understood risks? In some cases, as below, they clearly do. > In others, not. Mostly this is an individual decision that the people > most intimately involved have to make due to their greater > understanding of the situation than anyone else. > > Andy . .. . . . . . . . . . . . . > > > My 4 1/2 year old daughter Jenna (ASD) has been on Risperdal since > 5/31/02. > > We gave her this drug as a last resort before sending her to live in > what > > was basically an institution. Jenna started SIB on Valentines Day > of this > > year. She woke up screaming like she was on fire at 2:00 a.m., > scratching > > and clawing her legs hands and face bloody. Her father and I were > both > > trying to restrain her and barely managed to do so until we could > get her > > doctor to prescribe a tranquilizer several hours later. Let me add > that my > > husband is 6'4 " and a competitive distance swimmer. I am 5'9 " and > in > > reasonably good shape. Jenna weighs 35 lbs. We were both shocked at > Jenna's > > strength. She bite me so hard it drew blood and left a welt for > over a > > week. > > > > A couple of days later Jenna bit one of her teachers who then had to > go to > > the emergency room. Jenna also became physically aggressive to her > 2 > > younger sisters. At the time the baby wasn't walking, making her an > easy > > target. Jenna also continued her night waking. Every night she > would wake > > up around 11:00 p.m. and begin screaming the same desperate scream > and > > SIB's, all the while looking right through anyone who tried to > comfort or > > consol her. Around 6:00 a.m. she would drift off to sleep. The > whole house > > was disrupted. My husband (sole income provider) was going to work > w/ no > > sleep. My 2 younger children were afraid to go to sleep at night > and they > > were more afraid of Jenna who was physically attacking them by > biting, > > pushing, hitting and pulling out their hair. > > > > Jenna was recommended twice for Psychiatric Hospital admission > because her > > behavior was so out of control. Once during a check-up visit for > the baby > > Jenna had an " episode " in the doctors office. 3 office personnel > could not > > restrain her and 2 of them were bitten. > > > > We worked with so many behaviorists that I cannot even remember > how many. > > Jenna attends one of the most highly thought of ABV schools in the > country > > and the staff was very dedicated to helping her. > > > > Nothing we tried worked until the Risperdal. Jenna takes 1.25 mg a > day and > > is a totally different child. She sleeps through the night (and has > every > > night since her first dose), has no more SIB's, is not physically > aggressive > > to anyone, is happy and compliant and a joy to be around. > > > > Risperdal WAS and IS a miracle for OUR family. No matter what > happens > > tomorrow or the next day, I got to keep my family together for at > least a > > little while longer and that means the world to me. Jenna has not > had any > > side effects. No weight gain, no extra sleep, no spacy-ness. Every > child > > is different but Risperdal did the job for our family. > > > > Anyone who has questions can email me privately or on list. > > > > Thanks, > > > > Valeri, mom to: > > Jenna (4 1/2 ASD) > > (3 1/2 NT) > > LeeLee (1 1/2 NT) > > > > > > [ ] Tardive Dyskinesia on Risperdal - case > report. > > > > sen sent me the following message privately and gave me > > permission to forward it to the list: > > > > Hello, my name is and I have a 5 year old son on this drug > who > > has developed Tardive Dyskensia. We discovered it when we stopped > the > > drug. He was on for a year and did have slight signs before the drug > > was stopped but I didn't of TD, just thought it was autism traits. I > > have had to put my son back on this drug and chances are he will be > on > > a maintenance dose for life or another drug substituted. I am going > to > > be weaning him off slowly to see if that helps any with the TD. I do > > not want my child to be on this med. This is a very serious side > > effect and has now robbed my sons ability with fine motor, like he > > didn't have trouble before. It is life long with no cure or > treatment > > other then more drugs which will do more harm to the system. This is > > not the miracle it is said to be! > > > > > > > > Speak to a child psch and get a proper schedule for weaning, it is > > very important you do this correctly or you can cause the > neurological > > system damage. > > > > > > > > Good luck to you and to your child. I hope you can avoid what my son > > is now going through. It has devastated u > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2002 Report Share Posted October 11, 2002 Hi Phyliss, Have you been detoxing your son for mercury et al. and if so, for how long? Re: [ ] Risperdal Our Miracle I have to agree with valeri d. resperdal has helped us keep our son at home as well. he had spiraled out of control and was aggressive to himself and to us and his sister. he would even attack our dog. i could not keep any help at home as he would attack them too. my husband works long hours and i had to handle him myself. when my husband came home, he would get attacked. he has osteoporosis and we feared that one good kick would cause us to lose our income. i had kept him drug free for 6.5 years and it was a huge step and i did not take it lightly. The city wanted him to go residential. we use .5ml(liquid). it helped our family alot. I am not saying it is right for every child, but we have kept him home for another year so far. he has mellowed alot. He isn't perfect and still tantrums and attacks from time to time, but it is 90% better. the only side effect we have seen is weight gain. he even sleeps better now. Everyone has to wrestle with their own decisions. I don't regret it. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 , I would love to say that we have done chelating, but we have not even started yet. It is something that I really want to do, but at the last DAN conference i was told that i needed to clean up his severe gut issues first or it would be pointless. I am working hard on that. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2002 Report Share Posted October 12, 2002 > , > I would love to say that we have done chelating, but we have not even > started yet. It is something that I really want to do, but at the last > DAN conference i was told that i needed to clean up his severe gut issues > first or it would be pointless. This is one of the other things that DAN! does wrong. The exact opposite is true - chelate or you will never be able to control the dysbiosis. Also it is much less of a problem if you use an appropriate chelation protocol instead of the DAN! protocol that makes most people worse. >I am working hard on that. See discussion on list for how to do this using natural agents and adequate doses of probiotics (50-100 billion organisms per day, minimum). . . .. . . . .. . . . . . . . .. . . . . . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 , Happy to hear you to have had great results from Risperdal. It has saved my family. My child can now function and is happy. Quote Link to comment Share on other sites More sharing options...
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