Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Kate, Yes if it were me I would call my primary dr. Continued prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Anxiety Depression and Breast Cancerhttp://health.group.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomerwww.angelfeatherloomer.blogspot.com Check out my other ornaments atwww.geocities.com/chucky5741/bcornament.html The Cancer Clubwww.cancerclub.com Re: headaches Kate, I must have missed the original post. PLEASE go to the dr or ER. Our daughter has gotten migraines since she was in her early teens and has never had one last more that a few days. You are in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html .. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.22/1013 - Release Date: 9/17/2007 1:29 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I would expect more of a reaction or at least more of a conversation about such an important topic. It IS an important topic--both the headaches and the Tysabri report. I can't imagine why the Cymbalta would make you have the reaction you did on the road the other day. Cymbalta doesn't make me "feel" anything odd--no drowsiness, confusion, etc. But I know every person is different. Is this the neuro who does the Tysabri infusion? Maybe you should call Tysabri about the headaches to see if it's a side effect? When was your last Tysabri infusion?hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. headaches Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something... All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated.. .would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I would expect more of a reaction or at least more of a conversation about such an important topic. It IS an important topic--both the headaches and the Tysabri report. I can't imagine why the Cymbalta would make you have the reaction you did on the road the other day. Cymbalta doesn't make me "feel" anything odd--no drowsiness, confusion, etc. But I know every person is different. Is this the neuro who does the Tysabri infusion? Maybe you should call Tysabri about the headaches to see if it's a side effect? When was your last Tysabri infusion?hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. headaches Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something... All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated.. .would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I would expect more of a reaction or at least more of a conversation about such an important topic. It IS an important topic--both the headaches and the Tysabri report. I can't imagine why the Cymbalta would make you have the reaction you did on the road the other day. Cymbalta doesn't make me "feel" anything odd--no drowsiness, confusion, etc. But I know every person is different. Is this the neuro who does the Tysabri infusion? Maybe you should call Tysabri about the headaches to see if it's a side effect? When was your last Tysabri infusion?hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. headaches Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something... All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated.. .would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Kate, I think the Tysabri information needs to be taken a bit more seriously. If he's not heard of it yet, I can understand needing to research it. This needs to be done quickly, of course. <g> Perhaps you could print articles on it and give them to him? I think that might be a good idea. I do get headaches which cause nausea, though aren't the migraines which cause nausea. It seems more from the intense pain, as it happens with other pain, too. I'm sorry you didn't get a response you were happy with and I sure hope those headaches ease off soon. Ten days (still going?) is a long time to deal with that. HUGS, Challis Kate Rothschild wrote: Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something...All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated...would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hi Kate, I think the Tysabri information needs to be taken a bit more seriously. If he's not heard of it yet, I can understand needing to research it. This needs to be done quickly, of course. <g> Perhaps you could print articles on it and give them to him? I think that might be a good idea. I do get headaches which cause nausea, though aren't the migraines which cause nausea. It seems more from the intense pain, as it happens with other pain, too. I'm sorry you didn't get a response you were happy with and I sure hope those headaches ease off soon. Ten days (still going?) is a long time to deal with that. HUGS, Challis Kate Rothschild wrote: Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something...All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated...would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 There was a Tysabri rep that came to a local MS group I attend sometimes and I couldn't wait to see his information. I left not as excited about it when I left. I told him I was on Copaxone and he told me if I was happy with what I am on keep with it. I also told him I was diabetic and took insulin. The info he gave made it sound like Tysabri can cause trouble while taking some meds. I was also concerned about getting into it since they had all that trouble from people dieing from it. They say they had the trouble figured out. I decided I want to see more test results now that they returned it to the market. His telling me it doesn't work we with some meds made me decide Tysabri wasn't for me. Bill Re: headaches Hi Kate, I think the Tysabri information needs to be taken a bit more seriously. If he's not heard of it yet, I can understand needing to research it. This needs to be done quickly, of course. <g> Perhaps you could print articles on it and give them to him? I think that might be a good idea. I do get headaches which cause nausea, though aren't the migraines which cause nausea. It seems more from the intense pain, as it happens with other pain, too. I'm sorry you didn't get a response you were happy with and I sure hope those headaches ease off soon. Ten days (still going?) is a long time to deal with that. HUGS, Challis Kate Rothschild <katelloydkidzoptonline (DOT) net> wrote: Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something...All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs..Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated...would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Hey Sharon~That's kind of what I thought. I can't recall the last infusion, but fairly sure it was towards the end of August. I'm thinking I will call the makers of Tysabri and 'chat' with them on the phone...I will run by the headache--I don't recall seeing it in any of the literature I've read about Tysabri. I had my neuropsych results reviewed today. Nothing too earth-shattering--some 'lack or loss' of executive function-- which I think is front--lobal involvement. Pretty severe diminish- ment in motor skill in both right (dominant) and left hand-- individually, and together. Her recommendations: to have therapy (psychiatric/talk); to have a sleep study, and to have visual and congitive training with a qualified neuro psych--one who specializes in MS. I wish these darn headaches would just cease! They seem to be growing both in duration and intensity! I've missed you Sharon! love, kate I would expect more of a reaction or at least more of a conversation about such an important topic. It IS an important topic--both the headaches and the Tysabri report. I can't imagine why the Cymbalta would make you have the reaction you did on the road the other day. Cymbalta doesn't make me "feel" anything odd--no drowsiness, confusion, etc. But I know every person is different. Is this the neuro who does the Tysabri infusion? Maybe you should call Tysabri about the headaches to see if it's a side effect? When was your last Tysabri infusion?hugs))Sharon .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I used to get frequent headaches. Some migraines and some so bad that I got sick to my stomach. Sometimes I would get so bad that I had to go home and sleep it off, a couple that took up to three days to get totallly rid of. Then when we found out about the kidney disease (bartters syndrom) and that I had low potassium and magnesium levels. Since I got my magnesuim levels back up, I rarely get headaches any more. Those time that I feel a headache coming on I take one or two magonate pills Magonate 27 mg of Mg in tablet (also available in liquid) http://www.medichest.com/Magonate.html Made by fleming and company Fenton, Mo 63026 Can also have pharmacy order, over the counter. That's how I get mine. Locally it's $26 for a bottle of l00. I keep it on hand for emergencies, not the mag that I use everyday. I keep this one on hand for those times when I have the flu and am throwing up or having the runs. Or when I am trying to loose weight and don't want the extra snacks to take maginex. It is the one formula of Magnesuim that can be taken on an empty stomach. It uses the glucose uptakes for absorption. I also use this one when I am getting a migrane headache. Though since I got my magnesium levels back up I rarely get migranes any more. I take MagTabSr it is a l2 hour sustained-release tablet. My local Graves pharmacy can order it for me. It is over the counter 1) MagTabSR 84 mg of Mg in sustained-released tablet http://www.niche-inc.com/niche/magtab.html 2) Maginex 61 mg of Mg in tablet , I also take this type of mag. Also my pharmacy at Graves can order this for me it is also over the counter Mag oxide it the easiest to get at local stores off the shelf without special ordering. I don't use it much because it is a smaller amount of elimental Mag than the others and can easily give you Diarrhea in moderate amounts Debbie and Ian McKinley (13 yrs BMD)no litters from Kansas http://home.hit.net/~dimck/ Brighteye Bushy Tail Gretchen CD,CGC 11/11/92 - 10/07/03. Swiss Stars Harvest Moon CD,CGC, DD 6/l8/93- 5/9/04 Swiss Star's Maximum Risk 09/15/02 Sammy (rescue/rehome) (rescue) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I used to get frequent headaches. Some migraines and some so bad that I got sick to my stomach. Sometimes I would get so bad that I had to go home and sleep it off, a couple that took up to three days to get totallly rid of. Then when we found out about the kidney disease (bartters syndrom) and that I had low potassium and magnesium levels. Since I got my magnesuim levels back up, I rarely get headaches any more. Those time that I feel a headache coming on I take one or two magonate pills Magonate 27 mg of Mg in tablet (also available in liquid) http://www.medichest.com/Magonate.html Made by fleming and company Fenton, Mo 63026 Can also have pharmacy order, over the counter. That's how I get mine. Locally it's $26 for a bottle of l00. I keep it on hand for emergencies, not the mag that I use everyday. I keep this one on hand for those times when I have the flu and am throwing up or having the runs. Or when I am trying to loose weight and don't want the extra snacks to take maginex. It is the one formula of Magnesuim that can be taken on an empty stomach. It uses the glucose uptakes for absorption. I also use this one when I am getting a migrane headache. Though since I got my magnesium levels back up I rarely get migranes any more. I take MagTabSr it is a l2 hour sustained-release tablet. My local Graves pharmacy can order it for me. It is over the counter 1) MagTabSR 84 mg of Mg in sustained-released tablet http://www.niche-inc.com/niche/magtab.html 2) Maginex 61 mg of Mg in tablet , I also take this type of mag. Also my pharmacy at Graves can order this for me it is also over the counter Mag oxide it the easiest to get at local stores off the shelf without special ordering. I don't use it much because it is a smaller amount of elimental Mag than the others and can easily give you Diarrhea in moderate amounts Debbie and Ian McKinley (13 yrs BMD)no litters from Kansas http://home.hit.net/~dimck/ Brighteye Bushy Tail Gretchen CD,CGC 11/11/92 - 10/07/03. Swiss Stars Harvest Moon CD,CGC, DD 6/l8/93- 5/9/04 Swiss Star's Maximum Risk 09/15/02 Sammy (rescue/rehome) (rescue) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 I used to get frequent headaches. Some migraines and some so bad that I got sick to my stomach. Sometimes I would get so bad that I had to go home and sleep it off, a couple that took up to three days to get totallly rid of. Then when we found out about the kidney disease (bartters syndrom) and that I had low potassium and magnesium levels. Since I got my magnesuim levels back up, I rarely get headaches any more. Those time that I feel a headache coming on I take one or two magonate pills Magonate 27 mg of Mg in tablet (also available in liquid) http://www.medichest.com/Magonate.html Made by fleming and company Fenton, Mo 63026 Can also have pharmacy order, over the counter. That's how I get mine. Locally it's $26 for a bottle of l00. I keep it on hand for emergencies, not the mag that I use everyday. I keep this one on hand for those times when I have the flu and am throwing up or having the runs. Or when I am trying to loose weight and don't want the extra snacks to take maginex. It is the one formula of Magnesuim that can be taken on an empty stomach. It uses the glucose uptakes for absorption. I also use this one when I am getting a migrane headache. Though since I got my magnesium levels back up I rarely get migranes any more. I take MagTabSr it is a l2 hour sustained-release tablet. My local Graves pharmacy can order it for me. It is over the counter 1) MagTabSR 84 mg of Mg in sustained-released tablet http://www.niche-inc.com/niche/magtab.html 2) Maginex 61 mg of Mg in tablet , I also take this type of mag. Also my pharmacy at Graves can order this for me it is also over the counter Mag oxide it the easiest to get at local stores off the shelf without special ordering. I don't use it much because it is a smaller amount of elimental Mag than the others and can easily give you Diarrhea in moderate amounts Debbie and Ian McKinley (13 yrs BMD)no litters from Kansas http://home.hit.net/~dimck/ Brighteye Bushy Tail Gretchen CD,CGC 11/11/92 - 10/07/03. Swiss Stars Harvest Moon CD,CGC, DD 6/l8/93- 5/9/04 Swiss Star's Maximum Risk 09/15/02 Sammy (rescue/rehome) (rescue) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Debbie~ I don't know why did didn't think of that. My husband gets very bad charlie horses in his legs and breaks out with, what look like hickies. His Dr. told him it was because of low potassium. So, when we can afford it, I make sure we either have potassium supplements or some kind of potassium rich food available for him. I think I'm going to see if magnesium supplements might help my migraines. I used to take Topamax for the migraines, but they always made me feel foggy and my hand always felt like they were vibrating. Ewww....And then of course, the way it made food and drinks taste...disgusting. Thank you for the information. I am sorry to hear about all of the illnesses that you have to endure. I am lifting you in prayer. God bless... Valene Re: headaches I used to get frequent headaches. Some migraines and some so bad that I got sick to my stomach. Sometimes I would get so bad that I had to go home and sleep it off, a couple that took up to three days to get totallly rid of.Then when we found out about the kidney disease (bartters syndrom) and that I had low potassium and magnesium levels. Since I got my magnesuim levels back up, I rarely get headaches any more.Those time that I feel a headache coming on I take one or two magonate pillsMagonate 27 mg of Mg in tablet (also available in liquid)http://www.medichest.com/Magonate.html Made by fleming and company Fenton, Mo 63026Can also have pharmacy order, over the counter. That's how I get mine. Locally it's $26 for a bottle of l00. I keep it on hand for emergencies, not the mag that I use everyday.I keep this one on hand for those times when I have the flu and am throwing up or having the runs. Or when I am trying to loose weight and don't want the extra snacks to take maginex. It is the one formula of Magnesuim that can be taken on an empty stomach. It uses the glucose uptakes for absorption. I also use this one when I am getting a migrane headache. Though since I got my magnesium levels back up I rarely get migranes any more.I take MagTabSr it is a l2 hour sustained-release tablet. My local Graves pharmacy can order it for me. It is over the counter1) MagTabSR 84 mg of Mg in sustained-released tablethttp://www.niche-inc.com/niche/magtab.html2) Maginex 61 mg of Mg in tablet , I also take this type of mag. Also my pharmacy at Graves can order this for me it is also over the counterMag oxide it the easiest to get at local stores off the shelf without special ordering. I don't use it much because it is a smaller amount of elimental Mag than the others and can easily give you Diarrhea in moderate amountsDebbie and Ian McKinley (13 yrs BMD)no litters from Kansas http://home.hit.net/~dimck/ Brighteye Bushy Tail Gretchen CD,CGC11/11/92 - 10/07/03. Swiss Stars Harvest Moon CD,CGC, DD 6/l8/93-5/9/04 Swiss Star's Maximum Risk 09/15/02 Sammy (rescue/rehome) (rescue) No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.22/1015 - Release Date: 9/18/07 11:53 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Debbie~ I don't know why did didn't think of that. My husband gets very bad charlie horses in his legs and breaks out with, what look like hickies. His Dr. told him it was because of low potassium. So, when we can afford it, I make sure we either have potassium supplements or some kind of potassium rich food available for him. I think I'm going to see if magnesium supplements might help my migraines. I used to take Topamax for the migraines, but they always made me feel foggy and my hand always felt like they were vibrating. Ewww....And then of course, the way it made food and drinks taste...disgusting. Thank you for the information. I am sorry to hear about all of the illnesses that you have to endure. I am lifting you in prayer. God bless... Valene Re: headaches I used to get frequent headaches. Some migraines and some so bad that I got sick to my stomach. Sometimes I would get so bad that I had to go home and sleep it off, a couple that took up to three days to get totallly rid of.Then when we found out about the kidney disease (bartters syndrom) and that I had low potassium and magnesium levels. Since I got my magnesuim levels back up, I rarely get headaches any more.Those time that I feel a headache coming on I take one or two magonate pillsMagonate 27 mg of Mg in tablet (also available in liquid)http://www.medichest.com/Magonate.html Made by fleming and company Fenton, Mo 63026Can also have pharmacy order, over the counter. That's how I get mine. Locally it's $26 for a bottle of l00. I keep it on hand for emergencies, not the mag that I use everyday.I keep this one on hand for those times when I have the flu and am throwing up or having the runs. Or when I am trying to loose weight and don't want the extra snacks to take maginex. It is the one formula of Magnesuim that can be taken on an empty stomach. It uses the glucose uptakes for absorption. I also use this one when I am getting a migrane headache. Though since I got my magnesium levels back up I rarely get migranes any more.I take MagTabSr it is a l2 hour sustained-release tablet. My local Graves pharmacy can order it for me. It is over the counter1) MagTabSR 84 mg of Mg in sustained-released tablethttp://www.niche-inc.com/niche/magtab.html2) Maginex 61 mg of Mg in tablet , I also take this type of mag. Also my pharmacy at Graves can order this for me it is also over the counterMag oxide it the easiest to get at local stores off the shelf without special ordering. I don't use it much because it is a smaller amount of elimental Mag than the others and can easily give you Diarrhea in moderate amountsDebbie and Ian McKinley (13 yrs BMD)no litters from Kansas http://home.hit.net/~dimck/ Brighteye Bushy Tail Gretchen CD,CGC11/11/92 - 10/07/03. Swiss Stars Harvest Moon CD,CGC, DD 6/l8/93-5/9/04 Swiss Star's Maximum Risk 09/15/02 Sammy (rescue/rehome) (rescue) No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.22/1015 - Release Date: 9/18/07 11:53 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Well, there are those powders for broth (as in for soup, etc.) that are potassium chloride based, rather than sodium chloride based. The other thing is that prescription very low dose potassium chloride does not cost much and the physician can make it extremely low doseage. I take this for muscle cramps as well. I also take vitamin K in addition to a very good multi-vitamin. None of what I do might apply to anyone else, but it works for me, and my physician and I are happy--a rare phenomenon. I would like to know more about Bartter's Syndrome, too, though. Love to you, Val, and to you, Debbie and to all in our group, n --------- Re: headaches I used to get frequent headaches. Some migraines and some so bad that I got sick to my stomach. Sometimes I would get so bad that I had to go home and sleep it off, a couple that took up to three days to get totallly rid of.Then when we found out about the kidney disease (bartters syndrom) and that I had low potassium and magnesium levels. Since I got my magnesuim levels back up, I rarely get headaches any more.Those time that I feel a headache coming on I take one or two magonate pillsMagonate 27 mg of Mg in tablet (also available in liquid)http://www.medichest.com/Magonate.html Made by fleming and company Fenton, Mo 63026Can also have pharmacy order, over the counter. That's how I get mine. Locally it's $26 for a bottle of l00. I keep it on hand for emergencies, not the mag that I use everyday.I keep this one on hand for those times when I have the flu and am throwing up or having the runs. Or when I am trying to loose weight and don't want the extra snacks to take maginex. It is the one formula of Magnesuim that can be taken on an empty stomach. It uses the glucose uptakes for absorption. I also use this one when I am getting a migrane headache. Though since I got my magnesium levels back up I rarely get migranes any more.I take MagTabSr it is a l2 hour sustained-release tablet. My local Graves pharmacy can order it for me. It is over the counter1) MagTabSR 84 mg of Mg in sustained-released tablethttp://www.niche-inc.com/niche/magtab.html2) Maginex 61 mg of Mg in tablet , I also take this type of mag. Also my pharmacy at Graves can order this for me it is also over the counterMag oxide it the easiest to get at local stores off the shelf without special ordering. I don't use it much because it is a smaller amount of elimental Mag than the others and can easily give you Diarrhea in moderate amountsDebbie and Ian McKinley (13 yrs BMD)no litters from Kansas http://home.hit.net/~dimck/ Brighteye Bushy Tail Gretchen CD,CGC11/11/92 - 10/07/03. Swiss Stars Harvest Moon CD,CGC, DD 6/l8/93-5/9/04 Swiss Star's Maximum Risk 09/15/02 Sammy (rescue/rehome) (rescue) No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.22/1015 - Release Date: 9/18/07 11:53 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Post it notes are just one of those inventions that I can't live without! I save coupons even! I buy all kinds of colors, shapes and sizes! I love them! Sorry to hear, though, that you are having these ugly symptoms that I am dealing with. Fortunately, I am still working so I just don't have the time to dwell. Wanna hear something funny. I hired my girlfriend as a temp to come in and help me file. She looked at me today and said she had an appt on Wed this next week and wanted me to remind her so she wouldn't be late. It took her a minute and then we both busted out laughing. Me? Help her remember something? What a riot! My short term memory is gone! It was the highlight of my day! TammyClarence Bricker wrote: Tammy, I know this letter was not to me, but it helped me a lot. This list is helping know I a not actually loosing my mind. Some of the things you write here are happening to me. Especially like just not understanding things in the grocery store, forgetting what I am doing or calling and well, sticky notes are my best friend, lol. Love, Pegi in Indiana Only two defining forces have ever offered to die for you:1. Jesus Christ2. The American G.I. Re: headaches My Neuro would definitely be more concerned than yours seems to be. The problem with the headaches, from my neuro, is that if they are migraines, then they can cause lesions as well. When I had my first MRI, it showed several lesions that were dormant. My neuro said these were more likely to be caused by my migraines and not MS. So, as a precaution, he ordered a deeper set of MRI and not just of my head. He also ordered blood tests, eye tests, spinal tap.....I could go on. At first I felt like he was abusing my insurance. That is until the second set of MRI's with contrast. Boy did I have a bundle of glowing lesions on the brain and one significant one on my spine. Now I know he was concerned and didn't want to alarm me, although we had already discussed MS and even started the Rebif as a precaution. If it turned out that I didn't have MS, the Rebif wouldn't hurt me. Since then he has moved 65 miles away to my hospital's sister clinic. And yes! I followed him! He's kinda hot too! LOL But married. Darn. I guess what I'm trying to say is do what your neuro says until YOU don't feel comfortable with him/her. Then find another that makes you comfortable. As far as the things that have happened, welcome to MS. I turn my left blinker on to go right. I forget where I'm going when I'm driving. I keep a cell phone fully charged at all times and in my purse (God help should I ever forget my purse somewhere!) I'll make a call and forget who I'm calling, even after they have answered. Sometimes I don't recognize the voice. Tonight my typing is good. Some days I think the back button is gonna overheat and quit working! Hang in there. If I can get through standing in the middle of the grocery store and not understand what I'm reading on the label of items on the shelf, then start crying cause I feel so lost, so can you! I think I've cried more today than ever before. I have tears welling just telling you these things. You can post, ask, say, advise, anything here. I learned more with this group than any web site or book could tell me. Everyone here is compasionate and understanding. My second family! Ok, I'm rambling and my cat is patiently waiting for me to brush him. He is persian and picky! Hope this helps. Knowing I wasn't alone was the biggest help for me and got that from everyone on this group! Tammy, TxKate Rothschild <katelloydkidzoptonline (DOT) net> wrote: Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something...All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated...would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Need a relaxing massage and think you can't afford it? YES YOU CAN! Email me today and find out just how affordable it is! tamatha_tx Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/ Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Need a relaxing massage and think you can't afford it? YES YOU CAN! Email me today and find out just how affordable it is! tamatha_tx@... Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/ Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Post it notes are just one of those inventions that I can't live without! I save coupons even! I buy all kinds of colors, shapes and sizes! I love them! Sorry to hear, though, that you are having these ugly symptoms that I am dealing with. Fortunately, I am still working so I just don't have the time to dwell. Wanna hear something funny. I hired my girlfriend as a temp to come in and help me file. She looked at me today and said she had an appt on Wed this next week and wanted me to remind her so she wouldn't be late. It took her a minute and then we both busted out laughing. Me? Help her remember something? What a riot! My short term memory is gone! It was the highlight of my day! TammyClarence Bricker wrote: Tammy, I know this letter was not to me, but it helped me a lot. This list is helping know I a not actually loosing my mind. Some of the things you write here are happening to me. Especially like just not understanding things in the grocery store, forgetting what I am doing or calling and well, sticky notes are my best friend, lol. Love, Pegi in Indiana Only two defining forces have ever offered to die for you:1. Jesus Christ2. The American G.I. Re: headaches My Neuro would definitely be more concerned than yours seems to be. The problem with the headaches, from my neuro, is that if they are migraines, then they can cause lesions as well. When I had my first MRI, it showed several lesions that were dormant. My neuro said these were more likely to be caused by my migraines and not MS. So, as a precaution, he ordered a deeper set of MRI and not just of my head. He also ordered blood tests, eye tests, spinal tap.....I could go on. At first I felt like he was abusing my insurance. That is until the second set of MRI's with contrast. Boy did I have a bundle of glowing lesions on the brain and one significant one on my spine. Now I know he was concerned and didn't want to alarm me, although we had already discussed MS and even started the Rebif as a precaution. If it turned out that I didn't have MS, the Rebif wouldn't hurt me. Since then he has moved 65 miles away to my hospital's sister clinic. And yes! I followed him! He's kinda hot too! LOL But married. Darn. I guess what I'm trying to say is do what your neuro says until YOU don't feel comfortable with him/her. Then find another that makes you comfortable. As far as the things that have happened, welcome to MS. I turn my left blinker on to go right. I forget where I'm going when I'm driving. I keep a cell phone fully charged at all times and in my purse (God help should I ever forget my purse somewhere!) I'll make a call and forget who I'm calling, even after they have answered. Sometimes I don't recognize the voice. Tonight my typing is good. Some days I think the back button is gonna overheat and quit working! Hang in there. If I can get through standing in the middle of the grocery store and not understand what I'm reading on the label of items on the shelf, then start crying cause I feel so lost, so can you! I think I've cried more today than ever before. I have tears welling just telling you these things. You can post, ask, say, advise, anything here. I learned more with this group than any web site or book could tell me. Everyone here is compasionate and understanding. My second family! Ok, I'm rambling and my cat is patiently waiting for me to brush him. He is persian and picky! Hope this helps. Knowing I wasn't alone was the biggest help for me and got that from everyone on this group! Tammy, TxKate Rothschild <katelloydkidzoptonline (DOT) net> wrote: Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something...All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated...would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Need a relaxing massage and think you can't afford it? YES YOU CAN! Email me today and find out just how affordable it is! tamatha_tx Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/ Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Need a relaxing massage and think you can't afford it? YES YOU CAN! Email me today and find out just how affordable it is! tamatha_tx@... Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/ Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Post it notes are just one of those inventions that I can't live without! I save coupons even! I buy all kinds of colors, shapes and sizes! I love them! Sorry to hear, though, that you are having these ugly symptoms that I am dealing with. Fortunately, I am still working so I just don't have the time to dwell. Wanna hear something funny. I hired my girlfriend as a temp to come in and help me file. She looked at me today and said she had an appt on Wed this next week and wanted me to remind her so she wouldn't be late. It took her a minute and then we both busted out laughing. Me? Help her remember something? What a riot! My short term memory is gone! It was the highlight of my day! TammyClarence Bricker wrote: Tammy, I know this letter was not to me, but it helped me a lot. This list is helping know I a not actually loosing my mind. Some of the things you write here are happening to me. Especially like just not understanding things in the grocery store, forgetting what I am doing or calling and well, sticky notes are my best friend, lol. Love, Pegi in Indiana Only two defining forces have ever offered to die for you:1. Jesus Christ2. The American G.I. Re: headaches My Neuro would definitely be more concerned than yours seems to be. The problem with the headaches, from my neuro, is that if they are migraines, then they can cause lesions as well. When I had my first MRI, it showed several lesions that were dormant. My neuro said these were more likely to be caused by my migraines and not MS. So, as a precaution, he ordered a deeper set of MRI and not just of my head. He also ordered blood tests, eye tests, spinal tap.....I could go on. At first I felt like he was abusing my insurance. That is until the second set of MRI's with contrast. Boy did I have a bundle of glowing lesions on the brain and one significant one on my spine. Now I know he was concerned and didn't want to alarm me, although we had already discussed MS and even started the Rebif as a precaution. If it turned out that I didn't have MS, the Rebif wouldn't hurt me. Since then he has moved 65 miles away to my hospital's sister clinic. And yes! I followed him! He's kinda hot too! LOL But married. Darn. I guess what I'm trying to say is do what your neuro says until YOU don't feel comfortable with him/her. Then find another that makes you comfortable. As far as the things that have happened, welcome to MS. I turn my left blinker on to go right. I forget where I'm going when I'm driving. I keep a cell phone fully charged at all times and in my purse (God help should I ever forget my purse somewhere!) I'll make a call and forget who I'm calling, even after they have answered. Sometimes I don't recognize the voice. Tonight my typing is good. Some days I think the back button is gonna overheat and quit working! Hang in there. If I can get through standing in the middle of the grocery store and not understand what I'm reading on the label of items on the shelf, then start crying cause I feel so lost, so can you! I think I've cried more today than ever before. I have tears welling just telling you these things. You can post, ask, say, advise, anything here. I learned more with this group than any web site or book could tell me. Everyone here is compasionate and understanding. My second family! Ok, I'm rambling and my cat is patiently waiting for me to brush him. He is persian and picky! Hope this helps. Knowing I wasn't alone was the biggest help for me and got that from everyone on this group! Tammy, TxKate Rothschild <katelloydkidzoptonline (DOT) net> wrote: Hey all..do any of you get headaches? I mean bad ones, that make you nauseous? I've been having them now for about 10 days. Yesterday, I was turning my car around, to get back on the road. When I got back on the road, everything seemed backward or something...All of a sudden a car came driving right towards me--I was on the wrong side of the road! I called my neuro to report the headaches, nausea and this driving thing...He asked me what meds I was on...All he recommended was cutting back the Cymbalta from 40mgs to 20mgs...Besides that, he seemed unconcerned and said he hopes the headaches go away or get better. I also asked him what he thought of the Tysabri report. He asked me which one--I told him the one if you stop it, you get more lesions--rebound effect. He said well, the Tysabri doesn't do that. I said I know, it is if you stop. He said to just stay the course, and keep with it... I'm just a wee bit frustrated...would you all be? Would you have expected a bit more response from your neuro in terms of any of the above I mention here? Or am I just over-reacting? I need a reality check. I know he is a kind of low-key kind of doc, and is not an alarmist...I dunno...thanks love you all, kate Need a relaxing massage and think you can't afford it? YES YOU CAN! Email me today and find out just how affordable it is! tamatha_tx Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/ Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Need a relaxing massage and think you can't afford it? YES YOU CAN! Email me today and find out just how affordable it is! tamatha_tx@... Join Killeen Barter Trade For Sale at http://finance.groups.yahoo.com/group/KilleenBarterTradeForSale/ Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
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