Re: Meds to control OCD, multiple personalities and other stuff

[Guest guest]

Has your regular doctor referred you to a psychiatrist? I think that would

be very helpful! Psychiatric problems are related to physical happenings in

the body, just like other illnesses and they need treated accordingly. It

has nothing to do with willpower, faith, focusing on the positive etc. All

of those things are great to get us through the ordinary ups and downs of

life, but sometimes it is too much and we need to go get help. Please do

so. It is a positive step for your life, not a sign of weakness.

Kim L

Tucson

> Hey what meds have ppl or their chargers been on to control the " head

> voices " negative self talk and other dark thoughts that go through

> ppl's heads. I dont mean just when your under stress, I get this

> 24/7. Its too much and I cant take it. I cant just live in my bedroom

> for my entire life to avoid stress! Talking about it only helps for

> like a few hours then im back to my negitive stuff again. Sometimes

> its so bad I have to actulay tell my self to SHUT UP but it dosnt

> help. and it only makes me more annoied when ppl say have faith in

> the lord stuff. Fine you want to believe good for you, but i have my

> own believes and I am fine with it. UGH im getting myself worked up

> agian and all I wanted to do was ask a simple question. Well today im

> going to the doctor to talk about this. Its getting so extreem I just

> want to wack someone unless they say they understand. Its stupid I

> know. CHARGE, sigh, guess I got the emotional stuff bad!

>

> Chantelle

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

I think going to talk to a psyciatrist is a good idea. I will discuss

it with the doctor. I will see if Ontario Works (welfare) will fund

going to see a psyciatrist.

Chantelle

[Guest guest]

I think going to talk to a psyciatrist is a good idea. I will discuss

it with the doctor. I will see if Ontario Works (welfare) will fund

going to see a psyciatrist.

Chantelle

[Guest guest]

Hi Chantelle,

Totally agree with everything Kim said. Definitely get your doctor to refer

you to a psychiatrist. They will know which meds to prescribe for you to

help with your experiences of the moment. Seems to me that you have been

experiencing these voices for some time now and I understand from people I

work with that they can get very distressing and overwhelming. I do mental

health work and have met lots of people who hear voices in the way that you

describe. Various meds have helped them but different ones work differently

for different people. These things are not necessarily a CHARGE thing.

They are surprisingly common among the general population, but when they

happen to you, they can be very isolating. People don't necessarily share

the issues of voices so you don't usually get to meet or know of others who

have experienced them.

I hope your doctor does refer you to a psychiatrist who hopefully will be

able to help you. Let us know how you get on. You are an amazingly strong

woman and I am sure you will deal with this latest obstacle in the admirable

way you have dealth with your other trials and tribulations.

Wishing you all the best and please do come back for further support. Will

try to e-again when I feel more coherent (missing my sleep thanks to the

girls).

Flo

[Guest guest]

Hi Chantelle,

Totally agree with everything Kim said. Definitely get your doctor to refer

you to a psychiatrist. They will know which meds to prescribe for you to

help with your experiences of the moment. Seems to me that you have been

experiencing these voices for some time now and I understand from people I

work with that they can get very distressing and overwhelming. I do mental

health work and have met lots of people who hear voices in the way that you

describe. Various meds have helped them but different ones work differently

for different people. These things are not necessarily a CHARGE thing.

They are surprisingly common among the general population, but when they

happen to you, they can be very isolating. People don't necessarily share

the issues of voices so you don't usually get to meet or know of others who

have experienced them.

I hope your doctor does refer you to a psychiatrist who hopefully will be

able to help you. Let us know how you get on. You are an amazingly strong

woman and I am sure you will deal with this latest obstacle in the admirable

way you have dealth with your other trials and tribulations.

Wishing you all the best and please do come back for further support. Will

try to e-again when I feel more coherent (missing my sleep thanks to the

girls).

Flo

[Guest guest]

Hi Chantelle,

Totally agree with everything Kim said. Definitely get your doctor to refer

you to a psychiatrist. They will know which meds to prescribe for you to

help with your experiences of the moment. Seems to me that you have been

experiencing these voices for some time now and I understand from people I

work with that they can get very distressing and overwhelming. I do mental

health work and have met lots of people who hear voices in the way that you

describe. Various meds have helped them but different ones work differently

for different people. These things are not necessarily a CHARGE thing.

They are surprisingly common among the general population, but when they

happen to you, they can be very isolating. People don't necessarily share

the issues of voices so you don't usually get to meet or know of others who

have experienced them.

I hope your doctor does refer you to a psychiatrist who hopefully will be

able to help you. Let us know how you get on. You are an amazingly strong

woman and I am sure you will deal with this latest obstacle in the admirable

way you have dealth with your other trials and tribulations.

Wishing you all the best and please do come back for further support. Will

try to e-again when I feel more coherent (missing my sleep thanks to the

girls).

Flo

[Guest guest]

Flo,

If you think your response wasn't coherent, WOW! I can't imagine what the

message with sleep would be like!! Your response was brilliant and very clear

and Chantelle, I'd like to add my total support for you and hope that a good

referral can be made quickly so you can feel better.

pam

[Guest guest]

Flo,

If you think your response wasn't coherent, WOW! I can't imagine what the

message with sleep would be like!! Your response was brilliant and very clear

and Chantelle, I'd like to add my total support for you and hope that a good

referral can be made quickly so you can feel better.

pam

[Guest guest]

Flo,

If you think your response wasn't coherent, WOW! I can't imagine what the

message with sleep would be like!! Your response was brilliant and very clear

and Chantelle, I'd like to add my total support for you and hope that a good

referral can be made quickly so you can feel better.

pam

[Guest guest]

hi chantelle

when my voices where all neg. I used zoloft for a while. I

tried some other things but they didn't work as well and I didn't

handle the side effects with them well. there are other meds if it

happens to be more like scitzophenia. that is if the voices are

from the outside more. the inside voices its more of learning to

balance stuff. and work through the hard childhood . yours sounds

hard I can understand the troubles with it.

seeing a psych. dr is a very good idea. hope things go well for

you.

KayRena

Chantelle McLaren wrote:

> Hey what meds have ppl or their chargers been on to control the " head

>

> voices " negative self talk and other dark thoughts that go through

> ppl's heads. I dont mean just when your under stress, I get this

> 24/7. Its too much and I cant take it. I cant just live in my bedroom

> for my entire life to avoid stress! Talking about it only helps for

> like a few hours then im back to my negitive stuff again. Sometimes

> its so bad I have to actulay tell my self to SHUT UP but it dosnt

> help. and it only makes me more annoied when ppl say have faith in

> the lord stuff. Fine you want to believe good for you, but i have my

> own believes and I am fine with it. UGH im getting myself worked up

> agian and all I wanted to do was ask a simple question. Well today im

> going to the doctor to talk about this. Its getting so extreem I just

> want to wack someone unless they say they understand. Its stupid I

> know. CHARGE, sigh, guess I got the emotional stuff bad!

>

> Chantelle

>

>

>

> Membership of this email support groups does not constitute membership

> in the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you

> may contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

>

>

[Guest guest]

hi chantelle

when my voices where all neg. I used zoloft for a while. I

tried some other things but they didn't work as well and I didn't

handle the side effects with them well. there are other meds if it

happens to be more like scitzophenia. that is if the voices are

from the outside more. the inside voices its more of learning to

balance stuff. and work through the hard childhood . yours sounds

hard I can understand the troubles with it.

seeing a psych. dr is a very good idea. hope things go well for

you.

KayRena

Chantelle McLaren wrote:

> Hey what meds have ppl or their chargers been on to control the " head

>

> voices " negative self talk and other dark thoughts that go through

> ppl's heads. I dont mean just when your under stress, I get this

> 24/7. Its too much and I cant take it. I cant just live in my bedroom

> for my entire life to avoid stress! Talking about it only helps for

> like a few hours then im back to my negitive stuff again. Sometimes

> its so bad I have to actulay tell my self to SHUT UP but it dosnt

> help. and it only makes me more annoied when ppl say have faith in

> the lord stuff. Fine you want to believe good for you, but i have my

> own believes and I am fine with it. UGH im getting myself worked up

> agian and all I wanted to do was ask a simple question. Well today im

> going to the doctor to talk about this. Its getting so extreem I just

> want to wack someone unless they say they understand. Its stupid I

> know. CHARGE, sigh, guess I got the emotional stuff bad!

>

> Chantelle

>

>

>

> Membership of this email support groups does not constitute membership

> in the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you

> may contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

>

>

[Guest guest]

Chantelle: i come from a family of psychiatrists (a truly mixed blessing).

The one thing I do know is that there is help for " voices. " You must search

for a psychiatrist (not a psychologist if you need meds). Things can be

done. Martha

Please keep me posted on how things go. I'll ask for specific advice

from my brother, but he's in the states, and you need someone in Canada. On

that note, a cousin is head of a medical school in western Canada...I'll try

to help.

[Guest guest]

Awww, thanks Pam. No more now though for a week, we are off to Ireland for

(hopefully) a well-earned rest.

Hope things are looking up for you Chatelle.

Flo

>

>Reply-To: CHARGE

>To: <CHARGE >

>Subject: RE: Re: Meds to control OCD, multiple personalities and

>other stuff

>Date: Mon, 28 Jun 2004 18:28:58 -0400

>

>Flo,

>If you think your response wasn't coherent, WOW! I can't imagine what the

>message with sleep would be like!! Your response was brilliant and very

>clear and Chantelle, I'd like to add my total support for you and hope that

>a good referral can be made quickly so you can feel better.

>

>pam

>

>

>

[Guest guest]

Awww, thanks Pam. No more now though for a week, we are off to Ireland for

(hopefully) a well-earned rest.

Hope things are looking up for you Chatelle.

Flo

>

>Reply-To: CHARGE

>To: <CHARGE >

>Subject: RE: Re: Meds to control OCD, multiple personalities and

>other stuff

>Date: Mon, 28 Jun 2004 18:28:58 -0400

>

>Flo,

>If you think your response wasn't coherent, WOW! I can't imagine what the

>message with sleep would be like!! Your response was brilliant and very

>clear and Chantelle, I'd like to add my total support for you and hope that

>a good referral can be made quickly so you can feel better.

>

>pam

>

>

>

[Guest guest]

Awww, thanks Pam. No more now though for a week, we are off to Ireland for

(hopefully) a well-earned rest.

Hope things are looking up for you Chatelle.

Flo

>

>Reply-To: CHARGE

>To: <CHARGE >

>Subject: RE: Re: Meds to control OCD, multiple personalities and

>other stuff

>Date: Mon, 28 Jun 2004 18:28:58 -0400

>

>Flo,

>If you think your response wasn't coherent, WOW! I can't imagine what the

>message with sleep would be like!! Your response was brilliant and very

>clear and Chantelle, I'd like to add my total support for you and hope that

>a good referral can be made quickly so you can feel better.

>

>pam

>

>

>

[Guest guest]

OH, I am soooo jealous--I love Ireland. Enjoy the time and the peace.

pam

> ----------

> From: Florence Njeru

> Reply To: CHARGE

> Sent: Wednesday, June 30, 2004 3:08 PM

> To: CHARGE

> Subject: RE: Re: Meds to control OCD, multiple personalities and

other stuff

>

> Awww, thanks Pam. No more now though for a week, we are off to Ireland for

> (hopefully) a well-earned rest.

>

> Hope things are looking up for you Chatelle.

>

> Flo

>

>

> >

> >Reply-To: CHARGE

> >To: <CHARGE >

> >Subject: RE: Re: Meds to control OCD, multiple personalities and

> >other stuff

> >Date: Mon, 28 Jun 2004 18:28:58 -0400

> >

> >Flo,

> >If you think your response wasn't coherent, WOW! I can't imagine what the

> >message with sleep would be like!! Your response was brilliant and very

> >clear and Chantelle, I'd like to add my total support for you and hope that

> >a good referral can be made quickly so you can feel better.

> >

> >pam

> >

> >

> >

[Guest guest]

OH, I am soooo jealous--I love Ireland. Enjoy the time and the peace.

pam

> ----------

> From: Florence Njeru

> Reply To: CHARGE

> Sent: Wednesday, June 30, 2004 3:08 PM

> To: CHARGE

> Subject: RE: Re: Meds to control OCD, multiple personalities and

other stuff

>

> Awww, thanks Pam. No more now though for a week, we are off to Ireland for

> (hopefully) a well-earned rest.

>

> Hope things are looking up for you Chatelle.

>

> Flo

>

>

> >

> >Reply-To: CHARGE

> >To: <CHARGE >

> >Subject: RE: Re: Meds to control OCD, multiple personalities and

> >other stuff

> >Date: Mon, 28 Jun 2004 18:28:58 -0400

> >

> >Flo,

> >If you think your response wasn't coherent, WOW! I can't imagine what the

> >message with sleep would be like!! Your response was brilliant and very

> >clear and Chantelle, I'd like to add my total support for you and hope that

> >a good referral can be made quickly so you can feel better.

> >

> >pam

> >

> >

> >

[Guest guest]

OH, I am soooo jealous--I love Ireland. Enjoy the time and the peace.

pam

> ----------

> From: Florence Njeru

> Reply To: CHARGE

> Sent: Wednesday, June 30, 2004 3:08 PM

> To: CHARGE

> Subject: RE: Re: Meds to control OCD, multiple personalities and

other stuff

>

> Awww, thanks Pam. No more now though for a week, we are off to Ireland for

> (hopefully) a well-earned rest.

>

> Hope things are looking up for you Chatelle.

>

> Flo

>

>

> >

> >Reply-To: CHARGE

> >To: <CHARGE >

> >Subject: RE: Re: Meds to control OCD, multiple personalities and

> >other stuff

> >Date: Mon, 28 Jun 2004 18:28:58 -0400

> >

> >Flo,

> >If you think your response wasn't coherent, WOW! I can't imagine what the

> >message with sleep would be like!! Your response was brilliant and very

> >clear and Chantelle, I'd like to add my total support for you and hope that

> >a good referral can be made quickly so you can feel better.

> >

> >pam

> >

> >

> >

[Guest guest]

I have heard many discuss psychiatric-type symptoms in many of the

children or young adults. It is great to have the young adults help

verbalize some of what could be experienced, yet also good to know

that each child with CHARGE could be very different in the what will

occur due to the variability in CHARGE and the variability in

experiences. A good partnership early on with a psychiatrist who can

keep tabs on dev'p, and begin to KNOW the child throughout dev'p could

be a suggestion. I'm sure by the early 20's there are MANY factors,

both past medical experiences and sociological, which would interplay.

I'm questioning in CHARGE what role the neurological " clutter " could

play (such that sensory integration function could explain) in the

expression of some psychiatric-type characteristics. As well, many

have early experiences with eating which are not the norm, and food

allergy, intollerance, as well as immune-dysfunction have been

reported. We know that in more recent studies of schizophrenea,

relationships to the colon have been found. Glutin, casin, and dairy

free diets helped in some studies, as well as in cases of those with

CHARGE. A good record log keeping track of mood, diet, sleep,

weather, elimination, etc. could prove surprising and interesting for

us all! Just also a note, I happened by this article today,and have

included because of 'Asperger's' (on the autism spectrum) has been

mentioned in relation to CHARGE in some posts. We would hate for a

life-time of heavy, unnecessary medication when there could have been

alternative answers. (as the case below)

A. Gloyn

Canada

" Asperger's – It's a Syn-Drome "

[ " Private Eye " magazine, No.1108, 24 June 2004 " In the Back "

section,page 27.] (cut and shortened)

.....Nick Priechenfried was only 14 when he was given his first dose of

anti-psychotic drugs by a GP. Although another doctor took him off

them,the reprieve was short-lived. Nick was correctly diagnosed with

Asperger's but seven years later he was still sectioned and diagnosed

as schizophrenic and put on the cocktail of psychiatric medicine his

mother says wrecked his life. (cont'd.) He ended up in the

Medium Secure Unit at Horton Hospital, Epsom, with very ill and

disturbed patients. Even though leading autism experts confirmed the

diagnosis of Asperger's, Nick's treatment with powerful

anti-psychotics continued. Following other disastrous placements,

Nick eventually went to the Shepherd Unit in Hertfordshire.

Three years ago, psychiatrists there weaned him off all medication,

resulting in a huge improvement in both his mental and physical

health. As Nick says: " If you are put on anti-psychotics when you do

not need them, you soon develop a psychosis. "

What has happened to people like Piers, and Nick is

nothing short of scandalous. But it is a simple message that they and

their parents have been trying to convey to Ladyman and his

fellow health chiefs. Not only is the continuing misdiagnosis,

treatment and inappropriate placements for people with Asperger's

devastating for those involved, it actually costs millions. An

investment in proper services now – particularly with the huge

increase in children being diagnosed on the autistic spectrum – would

save money in the future. Why isn't the government listening?

[Guest guest]

I have heard many discuss psychiatric-type symptoms in many of the

children or young adults. It is great to have the young adults help

verbalize some of what could be experienced, yet also good to know

that each child with CHARGE could be very different in the what will

occur due to the variability in CHARGE and the variability in

experiences. A good partnership early on with a psychiatrist who can

keep tabs on dev'p, and begin to KNOW the child throughout dev'p could

be a suggestion. I'm sure by the early 20's there are MANY factors,

both past medical experiences and sociological, which would interplay.

I'm questioning in CHARGE what role the neurological " clutter " could

play (such that sensory integration function could explain) in the

expression of some psychiatric-type characteristics. As well, many

have early experiences with eating which are not the norm, and food

allergy, intollerance, as well as immune-dysfunction have been

reported. We know that in more recent studies of schizophrenea,

relationships to the colon have been found. Glutin, casin, and dairy

free diets helped in some studies, as well as in cases of those with

CHARGE. A good record log keeping track of mood, diet, sleep,

weather, elimination, etc. could prove surprising and interesting for

us all! Just also a note, I happened by this article today,and have

included because of 'Asperger's' (on the autism spectrum) has been

mentioned in relation to CHARGE in some posts. We would hate for a

life-time of heavy, unnecessary medication when there could have been

alternative answers. (as the case below)

A. Gloyn

Canada

" Asperger's – It's a Syn-Drome "

[ " Private Eye " magazine, No.1108, 24 June 2004 " In the Back "

section,page 27.] (cut and shortened)

.....Nick Priechenfried was only 14 when he was given his first dose of

anti-psychotic drugs by a GP. Although another doctor took him off

them,the reprieve was short-lived. Nick was correctly diagnosed with

Asperger's but seven years later he was still sectioned and diagnosed

as schizophrenic and put on the cocktail of psychiatric medicine his

mother says wrecked his life. (cont'd.) He ended up in the

Medium Secure Unit at Horton Hospital, Epsom, with very ill and

disturbed patients. Even though leading autism experts confirmed the

diagnosis of Asperger's, Nick's treatment with powerful

anti-psychotics continued. Following other disastrous placements,

Nick eventually went to the Shepherd Unit in Hertfordshire.

Three years ago, psychiatrists there weaned him off all medication,

resulting in a huge improvement in both his mental and physical

health. As Nick says: " If you are put on anti-psychotics when you do

not need them, you soon develop a psychosis. "

What has happened to people like Piers, and Nick is

nothing short of scandalous. But it is a simple message that they and

their parents have been trying to convey to Ladyman and his

fellow health chiefs. Not only is the continuing misdiagnosis,

treatment and inappropriate placements for people with Asperger's

devastating for those involved, it actually costs millions. An

investment in proper services now – particularly with the huge

increase in children being diagnosed on the autistic spectrum – would

save money in the future. Why isn't the government listening?