Re: What is Happening with Krista Bach.

[Guest guest]

Oh, Krista,

I am so sorry that all of this is happening to you. I hope that when you go to

the doc's and get the swallow study, there will be some answers.

Keep us posted--

pam

[Guest guest]

Oh, Krista,

I am so sorry that all of this is happening to you. I hope that when you go to

the doc's and get the swallow study, there will be some answers.

Keep us posted--

pam

[Guest guest]

Oh, Krista,

I am so sorry that all of this is happening to you. I hope that when you go to

the doc's and get the swallow study, there will be some answers.

Keep us posted--

pam

[Guest guest]

Krista,

I am so sorry to hear about what's going on with you, I am sure the thoughts

of drinking the same thing over and over again and also the thought of

getting a tube again must be upsetting. I hope that if you end up having to

get a tube again you can understand that it's for your health although I'm

sure that won't make it any easier for you after all you have accomplished.

You are such a big inspiration to me and I've enjoyed hearing all about how

you taught yourself to swallow. I sincerely hope that you can get some meds

to help you with your depression.

Have the doctors done any tests to see why you are having trouble swallowing

all of the sudden? Keep us posted...

Hugs,

Weir

Mom to Kennedy 6 yr old with CHARGE, 14, 12 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

What is Happening with Krista Bach.

Hello;

For the past few months I have lost a tremendous amount of weight, and

have had a hard time gaining it back. My swallowing have been steadly going

downhill as well, at the moment I can't swallow anything but liquids. I am

sick and tired of drinking ensure all the time, and having to force myself

to drink 3 - 5 cans a day is unbelievably hard. I can't eat pasta, cookies,

or anything but pudding and that is the hardest problem I need to accept.

I am 10 pounds underweight, and there have been people who have told me to

drink more, to eat more, and to gain more weight, well I can't do that, it's

so hard for me to drink the same thing five times a day when I'm already

sick and tired of it. I don't like the way I look and I can't help it, so I

wear jeans and sweatshirts all the time to cover it up, I don't feel pretty,

and I don't need people to continuously remind me of that.

I have a mild case of depression that has been brough on due to the fact

that I can't swallow and have lost a tremendous amount of weight, and can't

seem to gain it back. On Wednesday, June 30th I'll be seeing my doctor about

the depression, probably go on medication to take care of it. On Friday,

July 2nd I'll be going to see a swallowing specialist and a dietician. Then

two weeks from now I'll be having a swallowing test done to find out what is

exactly wrong and weather they can fix it. If they can't fix my swallowing

then I might have to have a tube again.

Sincerely yours; Krista Bach.

---------------------------------

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[Guest guest]

Krista -

This may sound a bit out of left field and is likely wrong

but you might also have your thyroid checked. When the

thyroid is enlarged it can cause swallowing (and breathing)

problems, put thyroid issues are highly coorelated with

all kinds of strange weight issues. Just a thought ...

In any case I hope you're able to get things resolved and

can eat foods again soon.

Hugs,

Debbie

From the keyboard of Krista Bach:

> For the past few months I have lost a tremendous amount of weight, and have

had a hard time gaining it back. My swallowing have been steadly going downhill

as well, at the moment I can't swallow anything but liquids. ...

--

+ Debbie Tropiano -- debbie@... -- http://www.icus.com/personal.html +

| Mommy to b: 8/17/1995, ^Sara^ b: 10/25/2000 d: 11/7/2000 & |

| Leah b: 10/17/2001 a: 9/26/2002 " God shows His opposition to cancer and |

| birth defects, not by eliminating them or making them happen only to bad |

| people (He can't do that), but by summoning forth friends and neighbors |

+ to ease the burden and to fill the emptiness. " -- Harold S. Kushner +

[Guest guest]

Krista,

I hope they can help you be able to swallow

Kay

What is Happening with Krista Bach.

> Hello;

>

> For the past few months I have lost a tremendous amount of weight, and

have had a hard time gaining it back. My swallowing have been steadly going

downhill as well, at the moment I can't swallow anything but liquids. I am

sick and tired of drinking ensure all the time, and having to force myself

to drink 3 - 5 cans a day is unbelievably hard. I can't eat pasta, cookies,

or anything but pudding and that is the hardest problem I need to accept.

>

> I am 10 pounds underweight, and there have been people who have told me to

drink more, to eat more, and to gain more weight, well I can't do that, it's

so hard for me to drink the same thing five times a day when I'm already

sick and tired of it. I don't like the way I look and I can't help it, so I

wear jeans and sweatshirts all the time to cover it up, I don't feel pretty,

and I don't need people to continuously remind me of that.

>

> I have a mild case of depression that has been brough on due to the fact

that I can't swallow and have lost a tremendous amount of weight, and can't

seem to gain it back. On Wednesday, June 30th I'll be seeing my doctor about

the depression, probably go on medication to take care of it. On Friday,

July 2nd I'll be going to see a swallowing specialist and a dietician. Then

two weeks from now I'll be having a swallowing test done to find out what is

exactly wrong and weather they can fix it. If they can't fix my swallowing

then I might have to have a tube again.

> Sincerely yours; Krista Bach.

>

>

>

> ---------------------------------

> Post your free ad now! Yahoo! Canada Personals

>

>

>

[Guest guest]

Krista good luck with your weight struggle, I guess we all have a weight

struggle in one way or another. hope you find the answers you need.

mom to timmy ChARGE also need ing to gain weight, keegan 6, liam 3

1/2 and wife to pat

What is Happening with Krista Bach.

> Hello;

>

> For the past few months I have lost a tremendous amount of weight, and

have had a hard time gaining it back. My swallowing have been steadly going

downhill as well, at the moment I can't swallow anything but liquids. I am

sick and tired of drinking ensure all the time, and having to force myself

to drink 3 - 5 cans a day is unbelievably hard. I can't eat pasta, cookies,

or anything but pudding and that is the hardest problem I need to accept.

>

> I am 10 pounds underweight, and there have been people who have told me to

drink more, to eat more, and to gain more weight, well I can't do that, it's

so hard for me to drink the same thing five times a day when I'm already

sick and tired of it. I don't like the way I look and I can't help it, so I

wear jeans and sweatshirts all the time to cover it up, I don't feel pretty,

and I don't need people to continuously remind me of that.

>

> I have a mild case of depression that has been brough on due to the fact

that I can't swallow and have lost a tremendous amount of weight, and can't

seem to gain it back. On Wednesday, June 30th I'll be seeing my doctor about

the depression, probably go on medication to take care of it. On Friday,

July 2nd I'll be going to see a swallowing specialist and a dietician. Then

two weeks from now I'll be having a swallowing test done to find out what is

exactly wrong and weather they can fix it. If they can't fix my swallowing

then I might have to have a tube again.

> Sincerely yours; Krista Bach.

>

>

>

> ---------------------------------

> Post your free ad now! Yahoo! Canada Personals

>

>

>

[Guest guest]

Krista-

Oh my! I'll certainly be thinking of you -- and looking forward to the

updates after your appts and as your figure this thing out. I hope that

your new swallowing problems are easily treatable.

It's one thing for me to complain about having to deal with Aubrie's stuff.

But that's not happening *to me*. It must be so crummy to be the one who is

handling it all plus the one it's happening to. I forget your family

situation. Is your mom around to support you through this stuff? I hope

I'll be able to continue to be a support to Aubrie even when she's an adult.

And I hope you have a strong supporter there as well.

Hugs and healthy, positive thoughts coming your way...

Michele W

Aubrie's mom

[Guest guest]

Krista-

Oh my! I'll certainly be thinking of you -- and looking forward to the

updates after your appts and as your figure this thing out. I hope that

your new swallowing problems are easily treatable.

It's one thing for me to complain about having to deal with Aubrie's stuff.

But that's not happening *to me*. It must be so crummy to be the one who is

handling it all plus the one it's happening to. I forget your family

situation. Is your mom around to support you through this stuff? I hope

I'll be able to continue to be a support to Aubrie even when she's an adult.

And I hope you have a strong supporter there as well.

Hugs and healthy, positive thoughts coming your way...

Michele W

Aubrie's mom

[Guest guest]

Krista-

Oh my! I'll certainly be thinking of you -- and looking forward to the

updates after your appts and as your figure this thing out. I hope that

your new swallowing problems are easily treatable.

It's one thing for me to complain about having to deal with Aubrie's stuff.

But that's not happening *to me*. It must be so crummy to be the one who is

handling it all plus the one it's happening to. I forget your family

situation. Is your mom around to support you through this stuff? I hope

I'll be able to continue to be a support to Aubrie even when she's an adult.

And I hope you have a strong supporter there as well.

Hugs and healthy, positive thoughts coming your way...

Michele W

Aubrie's mom

[Guest guest]

Hey Krista hope things start turning around for you soon! Hey I agree

it would suck to have to have to drink 5 cans of ensure every day. I

think even I would be so sick of smoothies after a very short time.

Oh on another note, I found out that the magazine editer I used to

live near still lives in Oakville so I will send her a letter. She

recently had an article in the Reader's Digest (December 2003). I

will see if she remembers me (probably as we lived 3 doors away for a

good 5 years.

Chantelle

[Guest guest]

Hey Krista hope things start turning around for you soon! Hey I agree

it would suck to have to have to drink 5 cans of ensure every day. I

think even I would be so sick of smoothies after a very short time.

Oh on another note, I found out that the magazine editer I used to

live near still lives in Oakville so I will send her a letter. She

recently had an article in the Reader's Digest (December 2003). I

will see if she remembers me (probably as we lived 3 doors away for a

good 5 years.

Chantelle

[Guest guest]

Hey Krista hope things start turning around for you soon! Hey I agree

it would suck to have to have to drink 5 cans of ensure every day. I

think even I would be so sick of smoothies after a very short time.

Oh on another note, I found out that the magazine editer I used to

live near still lives in Oakville so I will send her a letter. She

recently had an article in the Reader's Digest (December 2003). I

will see if she remembers me (probably as we lived 3 doors away for a

good 5 years.

Chantelle

[Guest guest]

Krista,

Sorry to hear life is proving tough again for you. I am not surprised you

are depressed. All this and you must still be grieving for your brother

too. It's all quite a lot to contend with. Hope the visit to the doc about

the depression proved helpful today and that your other 2 appointments do

too. Keeping everything I can crossed for you.

Flo

[Guest guest]

Krista,

Sorry to hear life is proving tough again for you. I am not surprised you

are depressed. All this and you must still be grieving for your brother

too. It's all quite a lot to contend with. Hope the visit to the doc about

the depression proved helpful today and that your other 2 appointments do

too. Keeping everything I can crossed for you.

Flo

[Guest guest]

Krista,

Sorry to hear life is proving tough again for you. I am not surprised you

are depressed. All this and you must still be grieving for your brother

too. It's all quite a lot to contend with. Hope the visit to the doc about

the depression proved helpful today and that your other 2 appointments do

too. Keeping everything I can crossed for you.

Flo

[Guest guest]

My Mother is a Regestered Nurse at St. Joesph Hospital here in Hamilton, she has

been a Nurse for 29 years and has been able to take care of all my medical

problems professionally and motherly. She is a great woman, nurse and mother.

My Brother died in late April, I told you about that.

My Swallowing test will be on June, 14th - I'll get back to you with the

results.

Sincerely yours; Krista Bach.

Michele Westmaas wrote:

Krista-

Oh my! I'll certainly be thinking of you -- and looking forward to the

updates after your appts and as your figure this thing out. I hope that

your new swallowing problems are easily treatable.

It's one thing for me to complain about having to deal with Aubrie's stuff.

But that's not happening *to me*. It must be so crummy to be the one who is

handling it all plus the one it's happening to. I forget your family

situation. Is your mom around to support you through this stuff? I hope

I'll be able to continue to be a support to Aubrie even when she's an adult.

And I hope you have a strong supporter there as well.

Hugs and healthy, positive thoughts coming your way...

Michele W

Aubrie's mom

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information

will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may contact

CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

I don't mind getting a tube again. People with CHARGE, and people who have

swallowing problems that aren't related to CHARGE, have never had the privilage

and ability to eat as much as I have been able to for ten straight years. The

way I see it is I got ten years instead of none.

Sincerely yours; Krista Bach.

Weir wrote:

Krista,

I am so sorry to hear about what's going on with you, I am sure the thoughts

of drinking the same thing over and over again and also the thought of

getting a tube again must be upsetting. I hope that if you end up having to

get a tube again you can understand that it's for your health although I'm

sure that won't make it any easier for you after all you have accomplished.

You are such a big inspiration to me and I've enjoyed hearing all about how

you taught yourself to swallow. I sincerely hope that you can get some meds

to help you with your depression.

Have the doctors done any tests to see why you are having trouble swallowing

all of the sudden? Keep us posted...

Hugs,

Weir

Mom to Kennedy 6 yr old with CHARGE, 14, 12 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

What is Happening with Krista Bach.

Hello;

For the past few months I have lost a tremendous amount of weight, and

have had a hard time gaining it back. My swallowing have been steadly going

downhill as well, at the moment I can't swallow anything but liquids. I am

sick and tired of drinking ensure all the time, and having to force myself

to drink 3 - 5 cans a day is unbelievably hard. I can't eat pasta, cookies,

or anything but pudding and that is the hardest problem I need to accept.

I am 10 pounds underweight, and there have been people who have told me to

drink more, to eat more, and to gain more weight, well I can't do that, it's

so hard for me to drink the same thing five times a day when I'm already

sick and tired of it. I don't like the way I look and I can't help it, so I

wear jeans and sweatshirts all the time to cover it up, I don't feel pretty,

and I don't need people to continuously remind me of that.

I have a mild case of depression that has been brough on due to the fact

that I can't swallow and have lost a tremendous amount of weight, and can't

seem to gain it back. On Wednesday, June 30th I'll be seeing my doctor about

the depression, probably go on medication to take care of it. On Friday,

July 2nd I'll be going to see a swallowing specialist and a dietician. Then

two weeks from now I'll be having a swallowing test done to find out what is

exactly wrong and weather they can fix it. If they can't fix my swallowing

then I might have to have a tube again.

Sincerely yours; Krista Bach.

---------------------------------

Post your free ad now! Yahoo! Canada Personals

[Guest guest]

I don't mind getting a tube again. People with CHARGE, and people who have

swallowing problems that aren't related to CHARGE, have never had the privilage

and ability to eat as much as I have been able to for ten straight years. The

way I see it is I got ten years instead of none.

Sincerely yours; Krista Bach.

Weir wrote:

Krista,

I am so sorry to hear about what's going on with you, I am sure the thoughts

of drinking the same thing over and over again and also the thought of

getting a tube again must be upsetting. I hope that if you end up having to

get a tube again you can understand that it's for your health although I'm

sure that won't make it any easier for you after all you have accomplished.

You are such a big inspiration to me and I've enjoyed hearing all about how

you taught yourself to swallow. I sincerely hope that you can get some meds

to help you with your depression.

Have the doctors done any tests to see why you are having trouble swallowing

all of the sudden? Keep us posted...

Hugs,

Weir

Mom to Kennedy 6 yr old with CHARGE, 14, 12 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

What is Happening with Krista Bach.

Hello;

For the past few months I have lost a tremendous amount of weight, and

have had a hard time gaining it back. My swallowing have been steadly going

downhill as well, at the moment I can't swallow anything but liquids. I am

sick and tired of drinking ensure all the time, and having to force myself

to drink 3 - 5 cans a day is unbelievably hard. I can't eat pasta, cookies,

or anything but pudding and that is the hardest problem I need to accept.

I am 10 pounds underweight, and there have been people who have told me to

drink more, to eat more, and to gain more weight, well I can't do that, it's

so hard for me to drink the same thing five times a day when I'm already

sick and tired of it. I don't like the way I look and I can't help it, so I

wear jeans and sweatshirts all the time to cover it up, I don't feel pretty,

and I don't need people to continuously remind me of that.

I have a mild case of depression that has been brough on due to the fact

that I can't swallow and have lost a tremendous amount of weight, and can't

seem to gain it back. On Wednesday, June 30th I'll be seeing my doctor about

the depression, probably go on medication to take care of it. On Friday,

July 2nd I'll be going to see a swallowing specialist and a dietician. Then

two weeks from now I'll be having a swallowing test done to find out what is

exactly wrong and weather they can fix it. If they can't fix my swallowing

then I might have to have a tube again.

Sincerely yours; Krista Bach.

---------------------------------

Post your free ad now! Yahoo! Canada Personals

[Guest guest]

Krista -

Knowing you have a knowledgable and skilled mom puts my mind at ease! I

didn't know about her. I do remember the loss of your brother.

Your positive attitude is wonderful. I'm dealing with a friend with no

unusual life complications who is so negative! Attitude is everything! I

hope I can teach my kids that. Aubrie gets it, but my 12-year-old... now

that might be another story... I hope it's just the preteen stage and not a

permanent disposition that I'm seeing lately :-)

Michele W

[Guest guest]

Krista -

Knowing you have a knowledgable and skilled mom puts my mind at ease! I

didn't know about her. I do remember the loss of your brother.

Your positive attitude is wonderful. I'm dealing with a friend with no

unusual life complications who is so negative! Attitude is everything! I

hope I can teach my kids that. Aubrie gets it, but my 12-year-old... now

that might be another story... I hope it's just the preteen stage and not a

permanent disposition that I'm seeing lately :-)

Michele W