Re: Peggy -- Back from the Neuro/Sharon

September 5, 2007

LOL!!! I'm not sure Sharon. When I found out I had Reynauds I was

still very young. My hands, knees, feet, elbows, and around my mouth

turned blue. Freaked my Mom right out. For a while I was wearing

these shiny gloves kind of like !!! My sister has the

same thing.

Now I'm wondering how that will effect this Purpura Simplex. I'm

guessing it won't make it any better, just worse. As I type now, my

hands are cold. I'll be wearing gloves in the house by the end of the

month I think!!! Oh well.

I want to thank you for the lovely sympathy card you sent to our

family. It really makes a difference to know that so many people

truly care in a time of need.

Hugs,

Peggy

-- In MSersLife , Sharon Marsden

wrote:

>

> I have cold toes. Does that count?

>

> Sharon

>

> This email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and

in no way are to be considered flaws or defects.

>

> Re: Peggy -- Back from the Neuro

>

> {{{{{{{{Peggy} }}}}}}} That vein stuff doesn't sound good at all.

Be careful and please let us know what the doc says tomorrow? Maybe

you can make an appointment with your PCP, too??

>

> Have I talked with you about the Reynaud's and my cold fingers?

Or was that with someone else, somewhere else?? I can't remember now.

>

> Hugs,

> Challis

>

> Peggy <spazman222verizon (DOT) net> wrote:

>

> Thanks Challis,

>

> Yeah, I have the swelling but not

> as bad. I have noticed that the

> rash like thing on my legs in slowly moving up both my legs now to

my

> thighs. I also have what looks like a huge varicose vein on my left

> lower thigh right above my knee on the inside of my left leg. It

was

> really painful tthe other day. When I stood for not even 5 minutes

it

> was bulging and it hurt to walk. My sister yelled at me to go to

the

> drs office. Both my knees were hurting to like there is arthritis

> starting there. Who knows. I can see the vein, it's big and blue

and

> I can feel it bulging out and it hurts when I touch it. It didn't

> hurt yesterday and I have tried to stay off my feet as much as

> possible for the past couple of days so it hasn't been too bad. I

> didn't get the chance to call the dr yesterday so I didn't go. If

it

> comes back I have an appt with the dermatologist on Tues. so I'll

ask

> him.

>

> I'm glad the Amantadine is working well for you and I hope it stays

> that

> way and keeps getting better. It's so funny how some things work

> so well for some and not so good with others.

>

> Well, I'm off to get something to eat. Trying to eat healthy, salad

> today. Zack is having spaghettios! !! Then he'll want to be outside

to

> ride his bike. I'll try to get some yard work done. I can't believe

> it's September already. My flower garden looked like dog doody all

> year this year. Very disappointed in myself. Have to go get rid of

> some of the dead stuff and try and clean up what I can. It's a

little

> chilly out, only 64, I'll need a jacket. Like I said, the cold

> bothers me a lot more than the heat for some reason, possible

because

> I also have the Reynauds disease as well? Who knows. My hands are

> cold right now typing.

>

> I'll be back on later to tell you of all the interesting crap with

> s loser of a brother.

>

> Hugs,

> Peggy

>

> > > >

> > > > And happy with the visit. )

> > > >

> > > > Of course I can't remember what went where or why, but I have

> the

> > > gist of it locked deeply in my brain. rofl

> > > >

> > > > As said of Neuro after the visit, " sometimes it's hard

to

> > > know what he's saying, because it's hard to understand what

he's

> > > saying " . LOL Neuro has an accent. lol

> > > >

> > > > But, I came away with an rx for Amantadine, for fatigue. He

> > > also, without me seeking or discussing it, gave an rx for an

> > > antidepressant (saying for the depression resulting from all

the

> > > other stuff). I'd taken Zoloft in the

> past, not for depression,

> > > though could not remember why I'd thought I didn't want it this

> > > time. I remembered when I went to get the rx filled. My

insurance

> > > won't cover it unless it's from a certain place (Regional

> > Behavioral

> > > Health). So, if I decide I do want one, I'll get a hold of

> Neuro's

> > > office and discuss those covered on Walmart's $4 rx plan.

Simpler

> > > that way, if I can find one we feel is appropriate. (I would

like

> > > all things tied in with this mystery dx to be dealt with at

> Neuro's

> > > office).

> > > >

> > > > But... I have a med for fatigue. Yes, I got teary in his

> > > office. lol When he mentioned the depression resulting from all

> > > these things, and when I knew he heard and would help with the

> > > fatigue.

> > > >

> > > > He surprised me by saying he'd like to do

> another MRI. Of my

> > > brain and brain stem. Again, he feels with my symptoms if

> anything

> > > shows it will show in my brain first (I do wonder about the

> similar

> > > symptoms in my back and such, but... not so much to push for a

> > spinal

> > > MRI at this time). And, yup, Lumbar Puncture. I think he

thought

> I

> > > didn't want to do one. I'm not saying it's the first thing on

my

> > > Want To Do list. lol But I'm okay with it. I just don't think

> > > either of these tests are going to show me any answers. Yup,

I'll

> > be

> > > disappointed when they don't, no matter what I expect or don't.

> lol

> > > >

> > > > More talk of MS from him. Talk of " inject ables " from him.

> > > Talking in general dx terms, he mentioned MS and Vasculitis

> (tus? --

> >

> > > sp?). Asking his thoughts on other dx's, should it not be MS,

he

> > >

> mentioned FM and CFS. And did so in a way that gave the

> impression

> > > he had a clue there, too. I hope that's an accurate assumption.

> > > >

> > > > talked of how much this has taken from me, how well I'd

> > > been doing, how happy I was, and now I can do nothing I want

and

> > how

> > > hard it clearly is for me. Good man.

> > > >

> > > > Oh yes, and I really did print the email and I even gave it

to

> > > him. lol It was funny, because as soon as Neuro came in and sat

> > > down, asking me what was going on, pulled that paper from

> my

> > > purse and handed it to me to hand to Neuro. LOL

> > > >

> > > > At some point, during a conversation regarding tests not

giving

> > > answers and such, I told Doc I KNOW something is wrong, even if

I

> > > don't have answers. I want answers and it would be nice for the

> >

> > tests to show them, but if they don't I'll be okay (what choice

> is

> > > there? lol)... but I have to have help with the symptoms even

if

> I

> > > don't have an answer for what causes them. He agreed. No, I

won't

> > > find comfort in lack of answers, and he'd said something like

> that

> > to

> > > kick off what I said, but I can't remember just what. It wasn't

> > that

> > > callous, idiot crap I got from the first Neuro either.

> > > >

> > > > hopes for me that the fatigue will ease and that I will

> be

> > > able to do much of what I want. Including exercise. Though we

> both

> > > know my body itself stopped working, and that is on it's own

> > without

> > > the fatigue added in. We're hoping for improvement though.

> > > >

> > > > So I left that office feeling hopeful and excited. lol I hope

> > > the Amantadine

> helps! Next goal... learn as much as I can about

> > this

> > > med before beginning it in the morning. Quick, everyone with

> > > experience or knowledge write to me! ROFL Yup, I'll most likely

> > > post separatly for attention to that alone. <g>

> > > >

> > > > And after the visit, we stopped and ate Chinese food. )

> > > >

> > > > Today was good.

> > > >

> > > > Challis

> > > >

> > > > ------------ --------- --------- ---

> > > > Need a vacation? Get great deals to amazing places on Yahoo!

> > Travel.

> > > >

> > >

> > > ------------ --------- --------- ---

> > > Ready for the edge of your seat? Check out tonight's top picks

on

> > Yahoo! TV.

> > >

> >

>

> >

> > ------------ --------- --------- ---

> > Be a better Heartthrob. Get better relationship answers from

> someone who knows.

> > Yahoo! Answers - Check it out.

> >

>

> Looking for a deal? Find great prices on flights and hotels with

Yahoo! FareChase.

>

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______________________________________________________________________

______________

> Yahoo! oneSearch: Finally, mobile search

> that gives answers, not web links.

> http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC

>

September 5, 2007

You are welcome for the card, Peggy. I'm sorry it took me so long to send it. I did a quick search of Reynauds and Purpura Simplex and it seems there may be a connection but I didn't go any further. Do you have dry mouth and eyes? Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Peggy -- Back from the Neuro

>

> {{{{{{{{Peggy} }}}}}}} That vein stuff doesn't sound good at all.

Be careful and please let us know what the doc says tomorrow? Maybe

you can make an appointment with your PCP, too??

>

> Have I talked with you about the Reynaud's and my cold fingers?

Or was that with someone else, somewhere else?? I can't remember now.

>

> Hugs,

> Challis

>

> Peggy <spazman222@ verizon. net> wrote:

>

> Thanks Challis,

>

> Yeah, I have the swelling but not

> as bad. I have noticed that the

> rash like thing on my legs in slowly moving up both my legs now to

my

> thighs. I also have what looks like a huge varicose vein on my left

> lower thigh right above my knee on the inside of my left leg. It

was

> really painful tthe other day. When I stood for not even 5 minutes

it

> was bulging and it hurt to walk. My sister yelled at me to go to

the

> drs office. Both my knees were hurting to like there is arthritis

> starting there. Who knows. I can see the vein, it's big and blue

and

> I can feel it bulging out and it hurts when I touch it. It didn't

> hurt yesterday and I have tried to stay off my feet as much as

> possible for the past couple of days so it hasn't been too bad. I

> didn't get the chance to call the dr yesterday so I didn't go. If

it

> comes back I have an appt with the dermatologist on Tues. so I'll

ask

> him.

>

> I'm glad the Amantadine is working well for you and I hope it stays

> that

> way and keeps getting better. It's so funny how some things work

> so well for some and not so good with others.

>

> Well, I'm off to get something to eat. Trying to eat healthy, salad

> today. Zack is having spaghettios! !! Then he'll want to be outside

to

> ride his bike. I'll try to get some yard work done. I can't believe

> it's September already. My flower garden looked like dog doody all

> year this year. Very disappointed in myself. Have to go get rid of

> some of the dead stuff and try and clean up what I can. It's a

little

> chilly out, only 64, I'll need a jacket. Like I said, the cold

> bothers me a lot more than the heat for some reason, possible

because

> I also have the Reynauds disease as well? Who knows. My hands are

> cold right now typing.

>

> I'll be back on later to tell you of all the interesting crap with

> s loser of a brother.

>

> Hugs,

> Peggy

>

> > > >

> > > > And happy with the visit. )

> > > >

> > > > Of course I can't remember what went where or why, but I have

> the

> > > gist of it locked deeply in my brain. rofl

> > > >

> > > > As said of Neuro after the visit, "sometimes it's hard

to

> > > know what he's saying, because it's hard to understand what

he's

> > > saying". LOL Neuro has an accent. lol

> > > >

> > > > But, I came away with an rx for Amantadine, for fatigue. He

> > > also, without me seeking or discussing it, gave an rx for an

> > > antidepressant (saying for the depression resulting from all

the

> > > other stuff). I'd taken Zoloft in the

> past, not for depression,

> > > though could not remember why I'd thought I didn't want it this

> > > time. I remembered when I went to get the rx filled. My

insurance

> > > won't cover it unless it's from a certain place (Regional

> > Behavioral

> > > Health). So, if I decide I do want one, I'll get a hold of

> Neuro's

> > > office and discuss those covered on Walmart's $4 rx plan.

Simpler

> > > that way, if I can find one we feel is appropriate. (I would

like

> > > all things tied in with this mystery dx to be dealt with at

> Neuro's

> > > office).

> > > >

> > > > But... I have a med for fatigue. Yes, I got teary in his

> > > office. lol When he mentioned the depression resulting from all

> > > these things, and when I knew he heard and would help with the

> > > fatigue.

> > > >

> > > > He surprised me by saying he'd like to do

> another MRI. Of my

> > > brain and brain stem. Again, he feels with my symptoms if

> anything

> > > shows it will show in my brain first (I do wonder about the

> similar

> > > symptoms in my back and such, but... not so much to push for a

> > spinal

> > > MRI at this time). And, yup, Lumbar Puncture. I think he

thought

> I

> > > didn't want to do one. I'm not saying it's the first thing on

my

> > > Want To Do list. lol But I'm okay with it. I just don't think

> > > either of these tests are going to show me any answers. Yup,

I'll

> > be

> > > disappointed when they don't, no matter what I expect or don't.

> lol

> > > >

> > > > More talk of MS from him. Talk of "inject ables" from him.

> > > Talking in general dx terms, he mentioned MS and Vasculitis

> (tus? --

> >

> > > sp?). Asking his thoughts on other dx's, should it not be MS,

he

> > >

> mentioned FM and CFS. And did so in a way that gave the

> impression

> > > he had a clue there, too. I hope that's an accurate assumption.

> > > >

> > > > talked of how much this has taken from me, how well I'd

> > > been doing, how happy I was, and now I can do nothing I want

and

> > how

> > > hard it clearly is for me. Good man.

> > > >

> > > > Oh yes, and I really did print the email and I even gave it

to

> > > him. lol It was funny, because as soon as Neuro came in and sat

> > > down, asking me what was going on, pulled that paper from

> my

> > > purse and handed it to me to hand to Neuro. LOL

> > > >

> > > > At some point, during a conversation regarding tests not

giving

> > > answers and such, I told Doc I KNOW something is wrong, even if

I

> > > don't have answers. I want answers and it would be nice for the

> >

> > tests to show them, but if they don't I'll be okay (what choice

> is

> > > there? lol)... but I have to have help with the symptoms even

if

> I

> > > don't have an answer for what causes them. He agreed. No, I

won't

> > > find comfort in lack of answers, and he'd said something like

> that

> > to

> > > kick off what I said, but I can't remember just what. It wasn't

> > that

> > > callous, idiot crap I got from the first Neuro either.

> > > >

> > > > hopes for me that the fatigue will ease and that I will

> be

> > > able to do much of what I want. Including exercise. Though we

> both

> > > know my body itself stopped working, and that is on it's own

> > without

> > > the fatigue added in. We're hoping for improvement though.

> > > >

> > > > So I left that office feeling hopeful and excited. lol I hope

> > > the Amantadine

> helps! Next goal... learn as much as I can about

> > this

> > > med before beginning it in the morning. Quick, everyone with

> > > experience or knowledge write to me! ROFL Yup, I'll most likely

> > > post separatly for attention to that alone. <g>

> > > >

> > > > And after the visit, we stopped and ate Chinese food. )

> > > >

> > > > Today was good.

> > > >

> > > > Challis

> > > >

> > > > ------------ --------- --------- ---

> > > > Need a vacation? Get great deals to amazing places on Yahoo!

> > Travel.

> > > >

> > >

> > > ------------ --------- --------- ---

> > > Ready for the edge of your seat? Check out tonight's top picks

on

> > Yahoo! TV.

> > >

> >

>

> >

> > ------------ --------- --------- ---

> > Be a better Heartthrob. Get better relationship answers from

> someone who knows.

> > Yahoo! Answers - Check it out.

> >

>

> Looking for a deal? Find great prices on flights and hotels with

Yahoo! FareChase.

>

> <!--

>

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>

____________ _________ _________ _________ _________ _________ _

____________ __

> Yahoo! oneSearch: Finally, mobile search

> that gives answers, not web links.

> http://mobile. yahoo.com/ mobileweb/ onesearch? refer=1ONXIC

>

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

September 5, 2007

You are welcome for the card, Peggy. I'm sorry it took me so long to send it. I did a quick search of Reynauds and Purpura Simplex and it seems there may be a connection but I didn't go any further. Do you have dry mouth and eyes? Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Peggy -- Back from the Neuro

>

> {{{{{{{{Peggy} }}}}}}} That vein stuff doesn't sound good at all.

Be careful and please let us know what the doc says tomorrow? Maybe

you can make an appointment with your PCP, too??

>

> Have I talked with you about the Reynaud's and my cold fingers?

Or was that with someone else, somewhere else?? I can't remember now.

>

> Hugs,

> Challis

>

> Peggy <spazman222@ verizon. net> wrote:

>

> Thanks Challis,

>

> Yeah, I have the swelling but not

> as bad. I have noticed that the

> rash like thing on my legs in slowly moving up both my legs now to

my

> thighs. I also have what looks like a huge varicose vein on my left

> lower thigh right above my knee on the inside of my left leg. It

was

> really painful tthe other day. When I stood for not even 5 minutes

it

> was bulging and it hurt to walk. My sister yelled at me to go to

the

> drs office. Both my knees were hurting to like there is arthritis

> starting there. Who knows. I can see the vein, it's big and blue

and

> I can feel it bulging out and it hurts when I touch it. It didn't

> hurt yesterday and I have tried to stay off my feet as much as

> possible for the past couple of days so it hasn't been too bad. I

> didn't get the chance to call the dr yesterday so I didn't go. If

it

> comes back I have an appt with the dermatologist on Tues. so I'll

ask

> him.

>

> I'm glad the Amantadine is working well for you and I hope it stays

> that

> way and keeps getting better. It's so funny how some things work

> so well for some and not so good with others.

>

> Well, I'm off to get something to eat. Trying to eat healthy, salad

> today. Zack is having spaghettios! !! Then he'll want to be outside

to

> ride his bike. I'll try to get some yard work done. I can't believe

> it's September already. My flower garden looked like dog doody all

> year this year. Very disappointed in myself. Have to go get rid of

> some of the dead stuff and try and clean up what I can. It's a

little

> chilly out, only 64, I'll need a jacket. Like I said, the cold

> bothers me a lot more than the heat for some reason, possible

because

> I also have the Reynauds disease as well? Who knows. My hands are

> cold right now typing.

>

> I'll be back on later to tell you of all the interesting crap with

> s loser of a brother.

>

> Hugs,

> Peggy

>

> > > >

> > > > And happy with the visit. )

> > > >

> > > > Of course I can't remember what went where or why, but I have

> the

> > > gist of it locked deeply in my brain. rofl

> > > >

> > > > As said of Neuro after the visit, "sometimes it's hard

to

> > > know what he's saying, because it's hard to understand what

he's

> > > saying". LOL Neuro has an accent. lol

> > > >

> > > > But, I came away with an rx for Amantadine, for fatigue. He

> > > also, without me seeking or discussing it, gave an rx for an

> > > antidepressant (saying for the depression resulting from all

the

> > > other stuff). I'd taken Zoloft in the

> past, not for depression,

> > > though could not remember why I'd thought I didn't want it this

> > > time. I remembered when I went to get the rx filled. My

insurance

> > > won't cover it unless it's from a certain place (Regional

> > Behavioral

> > > Health). So, if I decide I do want one, I'll get a hold of

> Neuro's

> > > office and discuss those covered on Walmart's $4 rx plan.

Simpler

> > > that way, if I can find one we feel is appropriate. (I would

like

> > > all things tied in with this mystery dx to be dealt with at

> Neuro's

> > > office).

> > > >

> > > > But... I have a med for fatigue. Yes, I got teary in his

> > > office. lol When he mentioned the depression resulting from all

> > > these things, and when I knew he heard and would help with the

> > > fatigue.

> > > >

> > > > He surprised me by saying he'd like to do

> another MRI. Of my

> > > brain and brain stem. Again, he feels with my symptoms if

> anything

> > > shows it will show in my brain first (I do wonder about the

> similar

> > > symptoms in my back and such, but... not so much to push for a

> > spinal

> > > MRI at this time). And, yup, Lumbar Puncture. I think he

thought

> I

> > > didn't want to do one. I'm not saying it's the first thing on

my

> > > Want To Do list. lol But I'm okay with it. I just don't think

> > > either of these tests are going to show me any answers. Yup,

I'll

> > be

> > > disappointed when they don't, no matter what I expect or don't.

> lol

> > > >

> > > > More talk of MS from him. Talk of "inject ables" from him.

> > > Talking in general dx terms, he mentioned MS and Vasculitis

> (tus? --

> >

> > > sp?). Asking his thoughts on other dx's, should it not be MS,

he

> > >

> mentioned FM and CFS. And did so in a way that gave the

> impression

> > > he had a clue there, too. I hope that's an accurate assumption.

> > > >

> > > > talked of how much this has taken from me, how well I'd

> > > been doing, how happy I was, and now I can do nothing I want

and

> > how

> > > hard it clearly is for me. Good man.

> > > >

> > > > Oh yes, and I really did print the email and I even gave it

to

> > > him. lol It was funny, because as soon as Neuro came in and sat

> > > down, asking me what was going on, pulled that paper from

> my

> > > purse and handed it to me to hand to Neuro. LOL

> > > >

> > > > At some point, during a conversation regarding tests not

giving

> > > answers and such, I told Doc I KNOW something is wrong, even if

I

> > > don't have answers. I want answers and it would be nice for the

> >

> > tests to show them, but if they don't I'll be okay (what choice

> is

> > > there? lol)... but I have to have help with the symptoms even

if

> I

> > > don't have an answer for what causes them. He agreed. No, I

won't

> > > find comfort in lack of answers, and he'd said something like

> that

> > to

> > > kick off what I said, but I can't remember just what. It wasn't

> > that

> > > callous, idiot crap I got from the first Neuro either.

> > > >

> > > > hopes for me that the fatigue will ease and that I will

> be

> > > able to do much of what I want. Including exercise. Though we

> both

> > > know my body itself stopped working, and that is on it's own

> > without

> > > the fatigue added in. We're hoping for improvement though.

> > > >

> > > > So I left that office feeling hopeful and excited. lol I hope

> > > the Amantadine

> helps! Next goal... learn as much as I can about

> > this

> > > med before beginning it in the morning. Quick, everyone with

> > > experience or knowledge write to me! ROFL Yup, I'll most likely

> > > post separatly for attention to that alone. <g>

> > > >

> > > > And after the visit, we stopped and ate Chinese food. )

> > > >

> > > > Today was good.

> > > >

> > > > Challis

> > > >

> > > > ------------ --------- --------- ---

> > > > Need a vacation? Get great deals to amazing places on Yahoo!

> > Travel.

> > > >

> > >

> > > ------------ --------- --------- ---

> > > Ready for the edge of your seat? Check out tonight's top picks

on

> > Yahoo! TV.

> > >

> >

>

> >

> > ------------ --------- --------- ---

> > Be a better Heartthrob. Get better relationship answers from

> someone who knows.

> > Yahoo! Answers - Check it out.

> >

>

> Looking for a deal? Find great prices on flights and hotels with

Yahoo! FareChase.

>

> <!--

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>

____________ _________ _________ _________ _________ _________ _

____________ __

> Yahoo! oneSearch: Finally, mobile search

> that gives answers, not web links.

> http://mobile. yahoo.com/ mobileweb/ onesearch? refer=1ONXIC

>

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

September 5, 2007

You are welcome for the card, Peggy. I'm sorry it took me so long to send it. I did a quick search of Reynauds and Purpura Simplex and it seems there may be a connection but I didn't go any further. Do you have dry mouth and eyes? Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Peggy -- Back from the Neuro

>

> {{{{{{{{Peggy} }}}}}}} That vein stuff doesn't sound good at all.

Be careful and please let us know what the doc says tomorrow? Maybe

you can make an appointment with your PCP, too??

>

> Have I talked with you about the Reynaud's and my cold fingers?

Or was that with someone else, somewhere else?? I can't remember now.

>

> Hugs,

> Challis

>

> Peggy <spazman222@ verizon. net> wrote:

>

> Thanks Challis,

>

> Yeah, I have the swelling but not

> as bad. I have noticed that the

> rash like thing on my legs in slowly moving up both my legs now to

my

> thighs. I also have what looks like a huge varicose vein on my left

> lower thigh right above my knee on the inside of my left leg. It

was

> really painful tthe other day. When I stood for not even 5 minutes

it

> was bulging and it hurt to walk. My sister yelled at me to go to

the

> drs office. Both my knees were hurting to like there is arthritis

> starting there. Who knows. I can see the vein, it's big and blue

and

> I can feel it bulging out and it hurts when I touch it. It didn't

> hurt yesterday and I have tried to stay off my feet as much as

> possible for the past couple of days so it hasn't been too bad. I

> didn't get the chance to call the dr yesterday so I didn't go. If

it

> comes back I have an appt with the dermatologist on Tues. so I'll

ask

> him.

>

> I'm glad the Amantadine is working well for you and I hope it stays

> that

> way and keeps getting better. It's so funny how some things work

> so well for some and not so good with others.

>

> Well, I'm off to get something to eat. Trying to eat healthy, salad

> today. Zack is having spaghettios! !! Then he'll want to be outside

to

> ride his bike. I'll try to get some yard work done. I can't believe

> it's September already. My flower garden looked like dog doody all

> year this year. Very disappointed in myself. Have to go get rid of

> some of the dead stuff and try and clean up what I can. It's a

little

> chilly out, only 64, I'll need a jacket. Like I said, the cold

> bothers me a lot more than the heat for some reason, possible

because

> I also have the Reynauds disease as well? Who knows. My hands are

> cold right now typing.

>

> I'll be back on later to tell you of all the interesting crap with

> s loser of a brother.

>

> Hugs,

> Peggy

>

> > > >

> > > > And happy with the visit. )

> > > >

> > > > Of course I can't remember what went where or why, but I have

> the

> > > gist of it locked deeply in my brain. rofl

> > > >

> > > > As said of Neuro after the visit, "sometimes it's hard

to

> > > know what he's saying, because it's hard to understand what

he's

> > > saying". LOL Neuro has an accent. lol

> > > >

> > > > But, I came away with an rx for Amantadine, for fatigue. He

> > > also, without me seeking or discussing it, gave an rx for an

> > > antidepressant (saying for the depression resulting from all

the

> > > other stuff). I'd taken Zoloft in the

> past, not for depression,

> > > though could not remember why I'd thought I didn't want it this

> > > time. I remembered when I went to get the rx filled. My

insurance

> > > won't cover it unless it's from a certain place (Regional

> > Behavioral

> > > Health). So, if I decide I do want one, I'll get a hold of

> Neuro's

> > > office and discuss those covered on Walmart's $4 rx plan.

Simpler

> > > that way, if I can find one we feel is appropriate. (I would

like

> > > all things tied in with this mystery dx to be dealt with at

> Neuro's

> > > office).

> > > >

> > > > But... I have a med for fatigue. Yes, I got teary in his

> > > office. lol When he mentioned the depression resulting from all

> > > these things, and when I knew he heard and would help with the

> > > fatigue.

> > > >

> > > > He surprised me by saying he'd like to do

> another MRI. Of my

> > > brain and brain stem. Again, he feels with my symptoms if

> anything

> > > shows it will show in my brain first (I do wonder about the

> similar

> > > symptoms in my back and such, but... not so much to push for a

> > spinal

> > > MRI at this time). And, yup, Lumbar Puncture. I think he

thought

> I

> > > didn't want to do one. I'm not saying it's the first thing on

my

> > > Want To Do list. lol But I'm okay with it. I just don't think

> > > either of these tests are going to show me any answers. Yup,

I'll

> > be

> > > disappointed when they don't, no matter what I expect or don't.

> lol

> > > >

> > > > More talk of MS from him. Talk of "inject ables" from him.

> > > Talking in general dx terms, he mentioned MS and Vasculitis

> (tus? --

> >

> > > sp?). Asking his thoughts on other dx's, should it not be MS,

he

> > >

> mentioned FM and CFS. And did so in a way that gave the

> impression

> > > he had a clue there, too. I hope that's an accurate assumption.

> > > >

> > > > talked of how much this has taken from me, how well I'd

> > > been doing, how happy I was, and now I can do nothing I want

and

> > how

> > > hard it clearly is for me. Good man.

> > > >

> > > > Oh yes, and I really did print the email and I even gave it

to

> > > him. lol It was funny, because as soon as Neuro came in and sat

> > > down, asking me what was going on, pulled that paper from

> my

> > > purse and handed it to me to hand to Neuro. LOL

> > > >

> > > > At some point, during a conversation regarding tests not

giving

> > > answers and such, I told Doc I KNOW something is wrong, even if

I

> > > don't have answers. I want answers and it would be nice for the

> >

> > tests to show them, but if they don't I'll be okay (what choice

> is

> > > there? lol)... but I have to have help with the symptoms even

if

> I

> > > don't have an answer for what causes them. He agreed. No, I

won't

> > > find comfort in lack of answers, and he'd said something like

> that

> > to

> > > kick off what I said, but I can't remember just what. It wasn't

> > that

> > > callous, idiot crap I got from the first Neuro either.

> > > >

> > > > hopes for me that the fatigue will ease and that I will

> be

> > > able to do much of what I want. Including exercise. Though we

> both

> > > know my body itself stopped working, and that is on it's own

> > without

> > > the fatigue added in. We're hoping for improvement though.

> > > >

> > > > So I left that office feeling hopeful and excited. lol I hope

> > > the Amantadine

> helps! Next goal... learn as much as I can about

> > this

> > > med before beginning it in the morning. Quick, everyone with

> > > experience or knowledge write to me! ROFL Yup, I'll most likely

> > > post separatly for attention to that alone. <g>

> > > >

> > > > And after the visit, we stopped and ate Chinese food. )

> > > >

> > > > Today was good.

> > > >

> > > > Challis

> > > >

> > > > ------------ --------- --------- ---

> > > > Need a vacation? Get great deals to amazing places on Yahoo!

> > Travel.

> > > >

> > >

> > > ------------ --------- --------- ---

> > > Ready for the edge of your seat? Check out tonight's top picks

on

> > Yahoo! TV.

> > >

> >

>

> >

> > ------------ --------- --------- ---

> > Be a better Heartthrob. Get better relationship answers from

> someone who knows.

> > Yahoo! Answers - Check it out.

> >

>

> Looking for a deal? Find great prices on flights and hotels with

Yahoo! FareChase.

>

> <!--

>

> #ygrp-mkp{

> border:1px solid #d8d8d8;font- family:Arial; margin:14px

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>

____________ _________ _________ _________ _________ _________ _

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> Yahoo! oneSearch: Finally, mobile search

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> http://mobile. yahoo.com/ mobileweb/ onesearch? refer=1ONXIC

>

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

September 6, 2007

I've never really noticed before, but I guess I'm thirsty alot. I

drink during the day and at night, not overly thirsty, but I have

something with me all the time and I wake up and have something by my

bed. As for my eyes, not usually. Does that have anything to do with

Reynauds or Purpura?

I jsut talked to the nurse at the neuro's office and she is pulling

my chart to see and talk to the nurse pratictioner since the doc is

on vacation and he doesn't have any appts. until after the first of

the year and I don't want to wait that long. Seems he is only in the

office 2-3 times a week as he is also a professor and does research

as well. Figures!!! The other neuros there have some training in MS

but aren't specialists. He does have the NP so I'm hoping to see her

but she is backed up since my previous neuro left so who knows.

I just didn't know if I should continue with the Copaxone or not

since I'm one giant oval of a bruise on the underside of both of my

arms. What would I be put on if not Copaxone? I jsut got off of

Avonex and that didn't work, made me worse!!!

Hugs,

Peggy

>

> > > > >

>

> > > > > And happy with the visit. )

>

> > > > >

>

> > > > > Of course I can't remember what went where or why, but I

have

>

> > the

>

> > > > gist of it locked deeply in my brain. rofl

>

> > > > >

>

> > > > > As said of Neuro after the visit, " sometimes it's

hard

>

> to

>

> > > > know what he's saying, because it's hard to understand what

>

> he's

>

> > > > saying " . LOL Neuro has an accent. lol

>

> > > > >

>

> > > > > But, I came away with an rx for Amantadine, for fatigue. He

>

> > > > also, without me seeking or discussing it, gave an rx for an

>

> > > > antidepressant (saying for the depression resulting from all

>

> the

>

> > > > other stuff). I'd taken Zoloft in the

>

> > past, not for depression,

>

> > > > though could not remember why I'd thought I didn't want it

this

>

> > > > time. I remembered when I went to get the rx filled. My

>

> insurance

>

> > > > won't cover it unless it's from a certain place (Regional

>

> > > Behavioral

>

> > > > Health). So, if I decide I do want one, I'll get a hold of

>

> > Neuro's

>

> > > > office and discuss those covered on Walmart's $4 rx plan.

>

> Simpler

>

> > > > that way, if I can find one we feel is appropriate. (I would

>

> like

>

> > > > all things tied in with this mystery dx to be dealt with at

>

> > Neuro's

>

> > > > office).

>

> > > > >

>

> > > > > But... I have a med for fatigue. Yes, I got teary in his

>

> > > > office. lol When he mentioned the depression resulting from

all

>

> > > > these things, and when I knew he heard and would help with

the

>

> > > > fatigue.

>

> > > > >

>

> > > > > He surprised me by saying he'd like to do

>

> > another MRI. Of my

>

> > > > brain and brain stem. Again, he feels with my symptoms if

>

> > anything

>

> > > > shows it will show in my brain first (I do wonder about the

>

> > similar

>

> > > > symptoms in my back and such, but... not so much to push for

a

>

> > > spinal

>

> > > > MRI at this time). And, yup, Lumbar Puncture. I think he

>

> thought

>

> > I

>

> > > > didn't want to do one. I'm not saying it's the first thing on

>

> my

>

> > > > Want To Do list. lol But I'm okay with it. I just don't think

>

> > > > either of these tests are going to show me any answers. Yup,

>

> I'll

>

> > > be

>

> > > > disappointed when they don't, no matter what I expect or

don't.

>

> > lol

>

> > > > >

>

> > > > > More talk of MS from him. Talk of " inject ables " from him.

>

> > > > Talking in general dx terms, he mentioned MS and Vasculitis

>

> > (tus? --

>

> > >

>

> > > > sp?). Asking his thoughts on other dx's, should it not be MS,

>

> he

>

> > > >

>

> > mentioned FM and CFS. And did so in a way that gave the

>

> > impression

>

> > > > he had a clue there, too. I hope that's an accurate

assumption.

>

> > > > >

>

> > > > > talked of how much this has taken from me, how well

I'd

>

> > > > been doing, how happy I was, and now I can do nothing I want

>

> and

>

> > > how

>

> > > > hard it clearly is for me. Good man.

>

> > > > >

>

> > > > > Oh yes, and I really did print the email and I even gave it

>

> to

>

> > > > him. lol It was funny, because as soon as Neuro came in and

sat

>

> > > > down, asking me what was going on, pulled that paper

from

>

> > my

>

> > > > purse and handed it to me to hand to Neuro. LOL

>

> > > > >

>

> > > > > At some point, during a conversation regarding tests not

>

> giving

>

> > > > answers and such, I told Doc I KNOW something is wrong, even

if

>

> I

>

> > > > don't have answers. I want answers and it would be nice for

the

>

> > >

>

> > > tests to show them, but if they don't I'll be okay (what

choice

>

> > is

>

> > > > there? lol)... but I have to have help with the symptoms even

>

> if

>

> > I

>

> > > > don't have an answer for what causes them. He agreed. No, I

>

> won't

>

> > > > find comfort in lack of answers, and he'd said something like

>

> > that

>

> > > to

>

> > > > kick off what I said, but I can't remember just what. It

wasn't

>

> > > that

>

> > > > callous, idiot crap I got from the first Neuro either.

>

> > > > >

>

> > > > > hopes for me that the fatigue will ease and that I

will

>

> > be

>

> > > > able to do much of what I want. Including exercise. Though we

>

> > both

>

> > > > know my body itself stopped working, and that is on it's own

>

> > > without

>

> > > > the fatigue added in. We're hoping for improvement though.

>

> > > > >

>

> > > > > So I left that office feeling hopeful and excited. lol I

hope

>

> > > > the Amantadine

>

> > helps! Next goal... learn as much as I can about

>

> > > this

>

> > > > med before beginning it in the morning. Quick, everyone with

>

> > > > experience or knowledge write to me! ROFL Yup, I'll most

likely

>

> > > > post separatly for attention to that alone. <g>

>

> > > > >

>

> > > > > And after the visit, we stopped and ate Chinese food. )

>

> > > > >

>

> > > > > Today was good.

>

> > > > >

>

> > > > > Challis

>

> > > > >

>

> > > > >

>

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>

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>

> >

>

> >

>

> >

>

> >

>

> ____________ _________ _________ _________ _________ _________ _

>

> ____________ __

>

> > Yahoo! oneSearch: Finally, mobile search

>

> > that gives answers, not web links.

>

> > http://mobile. yahoo.com/ mobileweb/ onesearch? refer=1ONXIC

>

> >

>

> <!--

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______________________________________________________________________

______________

> Moody friends. Drama queens. Your life? Nope! - their life, your

story. Play Sims Stories at Yahoo! Games.

> http://sims.yahoo.com/

>

September 6, 2007