The hardest thing about taking care of Chaya

[Guest guest]

The thing I am having the most difficulty with taking care of

is remembering that first and foremost she is a 5 month old baby.

Sometimes she cries and I spend 20 minutes checking her trach and g-

button and making sure all the wires and tubes are comfortable and

then I suddenly think maybe I should check her diaper and lo and

behold it is dirty. I change the diaper and she stops crying and

starts blowing raspberries ;-)

Rochel

[Guest guest]

Oh- Rochel- You have brought something back for me....when was a baby

and he would cry, we would all be so concerned about his airway - we would

suction and suction - and we really couldn't stop until he stopped crying.

So that is the comfort he received when he cried - suctioning. It breaks my

heart whenever I think of it.... once I literally had folded his foot in

half in his shoe - I think that was one time he cried for so long we had to

figure it out ... that and the really raw bleeding bottoms from the constant

antibiotics..... and that too all passed.... and now he's had his first

" date " ! He asked a girl to the high school play, and she accepted, and he

paid for her ticket ..... if neither of them develop any serious emotional

attachments to a significant other I can see them going to the High School

Prom together as comrades - they are in 9th grade now....... she is not in

special ed - but coincidentally enough, her mother works in Special Ed in a

neighboring school system and she volunteers at a Equestrian Therapy

facility........ they met in P>E! =-) Happy endings...... take good care -

Yuka

The hardest thing about taking care of

> The thing I am having the most difficulty with taking care of

> is remembering that first and foremost she is a 5 month old baby.

>

> Sometimes she cries and I spend 20 minutes checking her trach and g-

> button and making sure all the wires and tubes are comfortable and

> then I suddenly think maybe I should check her diaper and lo and

> behold it is dirty. I change the diaper and she stops crying and

> starts blowing raspberries ;-)

>

> Rochel

[Guest guest]

It is so hard at times to remember that our babies are ... babies! Guess

what? This continues into the teen years! Martha

[Guest guest]

It is so hard at times to remember that our babies are ... babies! Guess

what? This continues into the teen years! Martha

[Guest guest]

It is so hard at times to remember that our babies are ... babies! Guess

what? This continues into the teen years! Martha

[Guest guest]

Yuka -

Just in case it can erase some of your guilt-- I've known many moms through

my years in day care and preschool who have folded a kid's foot into a shoe

without realizing it. Crazy -- but it happens more often that you'd think

:-)

I love the mental image of going on a date! Aubrie's got more

marraige proposals than most girls her age so she's doing well so far...

Michele W

Aubrie's mom

[Guest guest]

Yuka -

Just in case it can erase some of your guilt-- I've known many moms through

my years in day care and preschool who have folded a kid's foot into a shoe

without realizing it. Crazy -- but it happens more often that you'd think

:-)

I love the mental image of going on a date! Aubrie's got more

marraige proposals than most girls her age so she's doing well so far...

Michele W

Aubrie's mom

[Guest guest]

Yuka -

Just in case it can erase some of your guilt-- I've known many moms through

my years in day care and preschool who have folded a kid's foot into a shoe

without realizing it. Crazy -- but it happens more often that you'd think

:-)

I love the mental image of going on a date! Aubrie's got more

marraige proposals than most girls her age so she's doing well so far...

Michele W

Aubrie's mom