Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Hello again, I am wondering if you could please help me by sharing with me what type of testing you have done to learn about or monitor your children. It seems that so many of you know so very much about their levels of this or that or know that they should be taking this or that supplement. I don't even know how to figure that out and was wondering what tests you used to help determine. Next week I have an appt with Ilana's (age 3) GI. She has been on SCD for 7 months and although she has had a few brief periods of no diarrhea, no real remission or improvement has occcured yet. I know that the GI wants to scope her again and of course wants to put her on meds to get her into remission. I am coming around to accepting the idea of having her on meds for a while, but I want to have a better picture of her health and why her body is not responding to SCD and I want to push for any test that may be helpful to understanding what is going on. We have done GSL CDSA 2.0 and found out she has zero beneficial bacteria, so I restarted yogurt, though have let off again because she started to bleed. Inflamation was through the roof. She was scoped 1 year ago and had what I guess what were the " routine " tests. I am of worried about her overall health such as nutrient levels, etc. She has grown though and put on 5 pounds since we started SCD, so she is absorbing something...it's just that we have never progressed out of the " stage 1 foods " , so variety is very limited. Thank you. If you would like to email me privately, my email is turbodog15@c... Sherrie Ilana age 3 UC SCD 7 months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Hi Sherrie, > I> > We have done GSL CDSA 2.0 and found out she has zero beneficial > bacteria, so I restarted yogurt, though have let off again because she > started to bleed. Inflamation was through the roof. > She was scoped 1 year ago and had what I guess what were the " routine " > tests. > I am of worried about her overall health such as nutrient levels, etc. > She has grown though and put on 5 pounds since we started SCD, so she > is absorbing something...it's just that we have never progressed out I think you are right that the weight gain means she is absorbing something. What kind of yogurt? Did you try dripping it? She may do better with the nut yogurt. What else does she eat? For some bleeding is the last symptom to disappear. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Sheila, Have you ever read the book, " Children with Starving Brains " ? It's by Jaquelyn McCandless and is a treatment guide. She includes diet, supplements, testing, and chelation. It really is a great reference. Do you have a DAN! dr.? Gia Mom to Jack and SCD 11 mos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Gia, Thanks for the info on the book..I will look into it. I am fortunate that Ilana is not on the autism spectum. I am doing this diet because she has ulcerative colitis. I have noticed (and have been impressed by) the knowledge that the parents of autistic children have. I know that DAN Drs are focused on Autism, but what type of Drs are they? do they see other types of patients? Maybe they could be my answer to finding out some more information, but am not really sure since I don't know much about them. > Sheila, > Have you ever read the book, " Children with Starving Brains " ? It's > by Jaquelyn McCandless and is a treatment guide. She includes diet, > supplements, testing, and chelation. It really is a great > reference. Do you have a DAN! dr.? > > Gia > Mom to Jack and > SCD 11 mos. Giaa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Gia, Thanks for the info on the book..I will look into it. I am fortunate that Ilana is not on the autism spectum. I am doing this diet because she has ulcerative colitis. I have noticed (and have been impressed by) the knowledge that the parents of autistic children have. I know that DAN Drs are focused on Autism, but what type of Drs are they? do they see other types of patients? Maybe they could be my answer to finding out some more information, but am not really sure since I don't know much about them. > Sheila, > Have you ever read the book, " Children with Starving Brains " ? It's > by Jaquelyn McCandless and is a treatment guide. She includes diet, > supplements, testing, and chelation. It really is a great > reference. Do you have a DAN! dr.? > > Gia > Mom to Jack and > SCD 11 mos. Giaa Quote Link to comment Share on other sites More sharing options...
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