RE: I am so tired all the time, anyone else?

[Guest guest]

Jill, I am new to the group and this will be the first email I have

responded to. But... I thought I should because as I have been reading I

realized that I am not the only one who feels the way I do. So I thought it

only fair to do the same for others. I am a Police Officer and trust me...

every day I struggle with trying to find energy to get me though the shift.

And if your Nephrologist is anything like mine he/she is very vague at best

when you ask questions about pain and fatigue. I am guessing that it is

because those two things are very common to so many facets of life these

days that they would hate to associate it with IgA. But I can tell you that

I have always had enough energy to get though the day and still some left

over so I know it is from this. I have trouble getting through my workouts

now and never seem to be able to get enough sleep.

So in short Jill you are not alone and I feel your pain. I hope everyone is

well and thank you all for your insightful words that I try and keep up with

every day.

Jon

I am so tired all the time, anyone else?

I have a new baby at home so that definitely doesn't help with the

sleep deprivation, but I honestly feel so tired all the time. I'm

not sure if its a side effect of the meds or the disease itself.

Just wondering if anyone else feels this way.

Jill

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Thank you

[Guest guest]

Hi Jill,

It's been 19 years since we had babies in the house, but I can well remember

my wife saying she was tired all the time, and I'm the one who had the IgAN

(diagnosed only as mild glomerulonephritis at that time). It's very hard to

say what can cause fatigue. Honestly, I always thought I was more prone to

fatigue than other people around me when I was doing army service, but who

knows. Certainly, many people in this group report the same thing. On the

other hand, we should guard against blaming IgAN for everything we feel,

just because we happen to have it. Life itself is a little tiring sometimes.

In the end, it's a probably a bit of everything: IgAN, the BP meds, and just

plain life.

Other than checking for anemia and treating it if it's present, which is

unlikely to be a problem when your IgAN is still mild, there's not much a

doctor can do for fatigue. I think it would be worth mentioning it though.

Even to this day, when I'm a little tired the morning after dialysis, a good

stiff coffee is my best friend.

Pierre

I am so tired all the time, anyone else?

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

>

>

[Guest guest]

Hi Jill,

It's been 19 years since we had babies in the house, but I can well remember

my wife saying she was tired all the time, and I'm the one who had the IgAN

(diagnosed only as mild glomerulonephritis at that time). It's very hard to

say what can cause fatigue. Honestly, I always thought I was more prone to

fatigue than other people around me when I was doing army service, but who

knows. Certainly, many people in this group report the same thing. On the

other hand, we should guard against blaming IgAN for everything we feel,

just because we happen to have it. Life itself is a little tiring sometimes.

In the end, it's a probably a bit of everything: IgAN, the BP meds, and just

plain life.

Other than checking for anemia and treating it if it's present, which is

unlikely to be a problem when your IgAN is still mild, there's not much a

doctor can do for fatigue. I think it would be worth mentioning it though.

Even to this day, when I'm a little tired the morning after dialysis, a good

stiff coffee is my best friend.

Pierre

I am so tired all the time, anyone else?

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

>

>

[Guest guest]

Hi Jill,

It's been 19 years since we had babies in the house, but I can well remember

my wife saying she was tired all the time, and I'm the one who had the IgAN

(diagnosed only as mild glomerulonephritis at that time). It's very hard to

say what can cause fatigue. Honestly, I always thought I was more prone to

fatigue than other people around me when I was doing army service, but who

knows. Certainly, many people in this group report the same thing. On the

other hand, we should guard against blaming IgAN for everything we feel,

just because we happen to have it. Life itself is a little tiring sometimes.

In the end, it's a probably a bit of everything: IgAN, the BP meds, and just

plain life.

Other than checking for anemia and treating it if it's present, which is

unlikely to be a problem when your IgAN is still mild, there's not much a

doctor can do for fatigue. I think it would be worth mentioning it though.

Even to this day, when I'm a little tired the morning after dialysis, a good

stiff coffee is my best friend.

Pierre

I am so tired all the time, anyone else?

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

>

>

[Guest guest]

I was soooo drained when my little one finally came home from the

hospital. I was emotional and physical drained, plus the increase in

my BP meds made a huge difference. My BP was so low that I couldn't

get off of the couch. Everytime I stood up I had to sit right back

down cause the world was spinning. Eventually the doc lowered my

meds and I almost felt like doing something.

BRANDY

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

[Guest guest]

Hi Jill,

Fatigue seems to go hand in hand with IgAN, but then again, it also does go

with having a new baby in the house too.

It would not hurt to check to see if you are anemic next time you go to your

Neph because anemia can definitely make you feel more tired and is not

uncommon if you are in an advanced stage.

Congratulations on the new baby! Is it a boy or a girl? What a precious

time of life.

[Guest guest]

HI ,

Your email encouraged me since I am dragging so much myself these days since

my function got so low :-) It always makes me feel good that a positive end

is in sight when I hear how much better people feel after starting dialysis or

a transplant.

Also, I really liked your advise to pace ourselves, take care of the things

that are most important and accept what can't get done! Allowing others to

help is very important and not always easy. There is much wisdom in your email

so thank you for sharing it with us.

In a message dated 2/13/2004 10:42:27 AM Pacific Standard Time,

garymattcohen@... writes:

> My best suggestion to you is to pace yourself, and take care of the most

> important things. If some of the smaller things don't get done when you want,

> then just accept it. Allow others around you to help.

>

>

[Guest guest]

Hello .

I not sure which cause it but yes I am tired more then not.

Martha

In iga-nephropathy , " aj72300 " <aj72300@y...> wrote:

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

[Guest guest]

Jill,

Welcome! Fatigue goes with IgAN - and could go with some BP meds. To

eliminate some possibilities, why don't you have your doc do a CBC next time

you have labs? That way you can rule out anemia. If your disease isn't too

advanced, in all probability it is the baby.

Cy

I am so tired all the time, anyone else?

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

I haven't found much help from the docs in reference to fatigue. I can tell

you what helps for me. Getting to bed earlier than I normally would. I find

that I just need more sleep. It sounds so self indulging but I find it a

necessity instead of a luxury. I don't think it is depression related sleep

because there are certainly other things I would rather be doing. I have to put

them out of my mind and tell myself that there will be time later.

Even though my blood count is not severely low I have found that taking a

vitamin with iron helps tremendously. I use Flintstones chewable because I

nearly choked to death on an adult multivitamin. Wouldn't won't that on my death

certificate. I could tell a different after a few weeks. When I was exercising

I didn't get winded near as quickly.

Exercise is another must. I know you think but I don't have the energy.

Making your body physically stronger will help it cope with the fatigue. I

workout with a great group of people. I find that the stress relief I get from

exercise makes it even more worthwhile. It is important that you find something

that you like to do preferable with adult companionship. Only talking to

little ones at home tends to limit ones vocabulary to one syllable words.

It is hard to differentiate between everyday fatigue and illness induced

fatigue. The fatigue that I believe is illness induced is when my muscles feel

shaky and week. It is not just a tired feeling from a long day but a physical

weakness that only progresses if I try to push through it.

After my second child was when the severe fatigue set in. Part of it was

from sleepless nights but not all. I remember carrying the baby around and

holding on tightly because I was afraid my arms would give out and I would drop

him. It went away for a few years and only resurfaced in the last couple of

years.

On days when I feel bad I usually still work out. (I do Tae Kwon Do) We do a

lot of push ups in class. Somedays my arms start shaking at six pushups and

other days I can do forty before I start to feel it.

I wish I could tell you there is a magic pill that would fix it for you.

The best advice is try not to overextend yourself right now. Focus on taking

care of your baby and yourself.

[Guest guest]

I haven't found much help from the docs in reference to fatigue. I can tell

you what helps for me. Getting to bed earlier than I normally would. I find

that I just need more sleep. It sounds so self indulging but I find it a

necessity instead of a luxury. I don't think it is depression related sleep

because there are certainly other things I would rather be doing. I have to put

them out of my mind and tell myself that there will be time later.

Even though my blood count is not severely low I have found that taking a

vitamin with iron helps tremendously. I use Flintstones chewable because I

nearly choked to death on an adult multivitamin. Wouldn't won't that on my death

certificate. I could tell a different after a few weeks. When I was exercising

I didn't get winded near as quickly.

Exercise is another must. I know you think but I don't have the energy.

Making your body physically stronger will help it cope with the fatigue. I

workout with a great group of people. I find that the stress relief I get from

exercise makes it even more worthwhile. It is important that you find something

that you like to do preferable with adult companionship. Only talking to

little ones at home tends to limit ones vocabulary to one syllable words.

It is hard to differentiate between everyday fatigue and illness induced

fatigue. The fatigue that I believe is illness induced is when my muscles feel

shaky and week. It is not just a tired feeling from a long day but a physical

weakness that only progresses if I try to push through it.

After my second child was when the severe fatigue set in. Part of it was

from sleepless nights but not all. I remember carrying the baby around and

holding on tightly because I was afraid my arms would give out and I would drop

him. It went away for a few years and only resurfaced in the last couple of

years.

On days when I feel bad I usually still work out. (I do Tae Kwon Do) We do a

lot of push ups in class. Somedays my arms start shaking at six pushups and

other days I can do forty before I start to feel it.

I wish I could tell you there is a magic pill that would fix it for you.

The best advice is try not to overextend yourself right now. Focus on taking

care of your baby and yourself.

[Guest guest]

I haven't found much help from the docs in reference to fatigue. I can tell

you what helps for me. Getting to bed earlier than I normally would. I find

that I just need more sleep. It sounds so self indulging but I find it a

necessity instead of a luxury. I don't think it is depression related sleep

because there are certainly other things I would rather be doing. I have to put

them out of my mind and tell myself that there will be time later.

Even though my blood count is not severely low I have found that taking a

vitamin with iron helps tremendously. I use Flintstones chewable because I

nearly choked to death on an adult multivitamin. Wouldn't won't that on my death

certificate. I could tell a different after a few weeks. When I was exercising

I didn't get winded near as quickly.

Exercise is another must. I know you think but I don't have the energy.

Making your body physically stronger will help it cope with the fatigue. I

workout with a great group of people. I find that the stress relief I get from

exercise makes it even more worthwhile. It is important that you find something

that you like to do preferable with adult companionship. Only talking to

little ones at home tends to limit ones vocabulary to one syllable words.

It is hard to differentiate between everyday fatigue and illness induced

fatigue. The fatigue that I believe is illness induced is when my muscles feel

shaky and week. It is not just a tired feeling from a long day but a physical

weakness that only progresses if I try to push through it.

After my second child was when the severe fatigue set in. Part of it was

from sleepless nights but not all. I remember carrying the baby around and

holding on tightly because I was afraid my arms would give out and I would drop

him. It went away for a few years and only resurfaced in the last couple of

years.

On days when I feel bad I usually still work out. (I do Tae Kwon Do) We do a

lot of push ups in class. Somedays my arms start shaking at six pushups and

other days I can do forty before I start to feel it.

I wish I could tell you there is a magic pill that would fix it for you.

The best advice is try not to overextend yourself right now. Focus on taking

care of your baby and yourself.

[Guest guest]

Hi ,

I agree with you completely. I also go to bed early most nights, and even

when it feels impossible to exercise, I still jump on the treadmill for my 3

miles no matter how I feel, and I am convinced that it really does help with the

fatigue.

For me, I also struggle with anemia and have to be checked monthly due to the

Procrit shots to help control it. I can sure feel it when I drop lower

though!

[Guest guest]

Hi ,

I agree with you completely. I also go to bed early most nights, and even

when it feels impossible to exercise, I still jump on the treadmill for my 3

miles no matter how I feel, and I am convinced that it really does help with the

fatigue.

For me, I also struggle with anemia and have to be checked monthly due to the

Procrit shots to help control it. I can sure feel it when I drop lower

though!

[Guest guest]

Yes, I tend to feel really tired most of the time too, especially lately. I'm

probably anemic again, knowing me.

aj72300 wrote:I have a new baby at home so that definitely

doesn't help with the

sleep deprivation, but I honestly feel so tired all the time. I'm

not sure if its a side effect of the meds or the disease itself.

Just wondering if anyone else feels this way.

Jill

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http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Yes, I tend to feel really tired most of the time too, especially lately. I'm

probably anemic again, knowing me.

aj72300 wrote:I have a new baby at home so that definitely

doesn't help with the

sleep deprivation, but I honestly feel so tired all the time. I'm

not sure if its a side effect of the meds or the disease itself.

Just wondering if anyone else feels this way.

Jill

To edit your settings for the group, go to our Yahoo Group

home page:

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iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Yes, I tend to feel really tired most of the time too, especially lately. I'm

probably anemic again, knowing me.

aj72300 wrote:I have a new baby at home so that definitely

doesn't help with the

sleep deprivation, but I honestly feel so tired all the time. I'm

not sure if its a side effect of the meds or the disease itself.

Just wondering if anyone else feels this way.

Jill

To edit your settings for the group, go to our Yahoo Group

home page:

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To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi Jill,

Sorry you're always tired. I am too BUT .... well I guess I associated it with

IgAN - assuming that's what I have! But then my wife suggested that in all the

time she's known me, I've always like sleep and never seem to get enough and

thinking about it, that's true!!!! So, as I don't know how long I've had a

kidney problem, I can't point a finger at my medical condition for sure but yep,

ALWAYS tired to the extent that when I have a few days off (I've had thur/fri

and tomorrow off for half term hols here) I plan all these things I want to do

then never do half of them ( Maybe I'm just lazy! but I can't build up the

energy nor the enthusiasm!

Dave

I am so tired all the time, anyone else?

I have a new baby at home so that definitely doesn't help with the

sleep deprivation, but I honestly feel so tired all the time. I'm

not sure if its a side effect of the meds or the disease itself.

Just wondering if anyone else feels this way.

Jill

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi Jon,

Glad you responded to others mails, and sorry you're so tired too - in your job

you need your senses about you - us accountants can fall asleep counting sheep

)

But, hey ... keep replying, this group is about its' members and everyone

contributing will help - take care out there!

Dave

I am so tired all the time, anyone else?

I have a new baby at home so that definitely doesn't help with the

sleep deprivation, but I honestly feel so tired all the time. I'm

not sure if its a side effect of the meds or the disease itself.

Just wondering if anyone else feels this way.

Jill

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Pierre,

Why is it when we say similar things you are always more articulate? you're

starting to bug me now ;o)

Dave

I am so tired all the time, anyone else?

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

>

>

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------

[Guest guest]

I am tired all the time also. I think it's the IgA.

> I have a new baby at home so that definitely doesn't help with the

> sleep deprivation, but I honestly feel so tired all the time. I'm

> not sure if its a side effect of the meds or the disease itself.

> Just wondering if anyone else feels this way.

>

> Jill

[Guest guest]

Hi ,

You know what, realizing how precious life is, and realizing what really

matters are some of the real blessings I have found with having IgAN. I think

life is much richer and that I have a much deeper appreciation for things after

having a chronic disease. Would we all enjoy the sunshine as much if we didn't

have any rain? I know it makes me count my blessings.

Your email was inspiring!

In a message dated 2/16/2004 7:46:46 AM Pacific Standard Time,

garymattcohen@... writes:

> Life is too short - in a way, I'm glad that I had this time to find out

> what really matters - family and friends.

>

[Guest guest]

Hi ,

You know what, realizing how precious life is, and realizing what really

matters are some of the real blessings I have found with having IgAN. I think

life is much richer and that I have a much deeper appreciation for things after

having a chronic disease. Would we all enjoy the sunshine as much if we didn't

have any rain? I know it makes me count my blessings.

Your email was inspiring!

In a message dated 2/16/2004 7:46:46 AM Pacific Standard Time,

garymattcohen@... writes:

> Life is too short - in a way, I'm glad that I had this time to find out

> what really matters - family and friends.

>

[Guest guest]

Jill Congratulations on the new baby. Your body adjusting back to normal

and the sleep deprivation from a new baby is definitely adding to your

fatigue!

I was one of those people who could live on 4-5 hours of sleep a night

and not have it bother me at all..up until April of 2003. Then I got to the

point where I would fall asleep sitting up. I couldn't for the life of me

keep my eyes open. It was in Sept 2003 that my IgAN diagnosis came in...I'm

still tired as all get out most days. I have 2 young kids who I homeschool

and I run my business out of the home, I used to have tons of energy and was

constantly fitting extra things into my life. Even before I knew anything

was wrong I had to force myself to slow down due to fatigue. After April it

became a joke around here with my husband that if he put in a movie to watch

I wouldn't be able to stay awake thru the first half hour....nearly every

time I would be sitting straight up sound asleep within 20 minutes of

sitting down. So I would have to say that the IgAN has played a part in my

extreme fatigue. It has only been made worse since my diagnosis due to the

drugs I'm now on causing fatigue in and of themselves. My neph recognizes

it as a symptom and just tells me to take whatever time I can to just lay

down. Even if you don't sleep just laying down for an hour can help quite a

bit.

Nap when the baby naps or just lay down in the room with the baby and rest

while they nap. *yes I know you have housework, and cooking, and cleaning,

and other things to do...but if you can't do them because you are beat you

are only hurting yourself.* You'll be surprised at how much more you can

get accomplished after laying down for an hour. You tend to have more

energy and get things done faster after a rest...at least that's what I've

been finding.

Good luck with it and you aren't alone. And remember there are tons of

people out there without IgAN who are tired all the time just due to stress

and being overworked. The important part is to slow down and take the time

to let your body rest.

Amy

[Guest guest]

Jill Congratulations on the new baby. Your body adjusting back to normal

and the sleep deprivation from a new baby is definitely adding to your

fatigue!

I was one of those people who could live on 4-5 hours of sleep a night

and not have it bother me at all..up until April of 2003. Then I got to the

point where I would fall asleep sitting up. I couldn't for the life of me

keep my eyes open. It was in Sept 2003 that my IgAN diagnosis came in...I'm

still tired as all get out most days. I have 2 young kids who I homeschool

and I run my business out of the home, I used to have tons of energy and was

constantly fitting extra things into my life. Even before I knew anything

was wrong I had to force myself to slow down due to fatigue. After April it

became a joke around here with my husband that if he put in a movie to watch

I wouldn't be able to stay awake thru the first half hour....nearly every

time I would be sitting straight up sound asleep within 20 minutes of

sitting down. So I would have to say that the IgAN has played a part in my

extreme fatigue. It has only been made worse since my diagnosis due to the

drugs I'm now on causing fatigue in and of themselves. My neph recognizes

it as a symptom and just tells me to take whatever time I can to just lay

down. Even if you don't sleep just laying down for an hour can help quite a

bit.

Nap when the baby naps or just lay down in the room with the baby and rest

while they nap. *yes I know you have housework, and cooking, and cleaning,

and other things to do...but if you can't do them because you are beat you

are only hurting yourself.* You'll be surprised at how much more you can

get accomplished after laying down for an hour. You tend to have more

energy and get things done faster after a rest...at least that's what I've

been finding.

Good luck with it and you aren't alone. And remember there are tons of

people out there without IgAN who are tired all the time just due to stress

and being overworked. The important part is to slow down and take the time

to let your body rest.

Amy