Re: Facial Paralysis surgery question

May 26, 2004

I am also interested in learning more about this surgery. I have

bilateral facial palsy and im so tired of ppl telling me to " smile

more " expecialy when I am smiling! I think I would have more self

esteem if I wasnt always grimicing. Im going to eventualy get my last

choanal atresia operation so i wanted to know about this one too.

Chantelle

May 27, 2004

The doctor could have been J. Marsh. We met him when he must have been right

out of residency, and our experience was most unpleasant. We were dealing

with speech issues. He said quite blandly that if a patient wasn't going to

develop speech, he wouldn't do surgery. Dah! Our had VPI and thus

couldn't speak.

However, I've heard some good things about the man since was born

20 years ago. If this is the guy you've heard about, ask a lot of questions

on the list. I believe he attended and presented at the last (?) CHARGE

conference.

Good luck.

Martha

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