Guest guest Posted August 29, 2007 Report Share Posted August 29, 2007 Challis, I had the purplish red marks after I had been taking it for quite a while, unless it takes a long time to show up, I'm not sure if thats what is causing it. It's wierd that it's only on my legs though. The provigil didn't give me headaches I had those before I went on the Provigil. That just made me feel super hyper, I didn't sleep for two days and that was on half of half of a dose!!! Didn't tolerate it very well!!! They took the biopsy in my left leg and I should have the results next week when I go back to the dermatologist. Last night I did notice something new though. My left ankle was swollen quite a bit and sore. I don't know if I was on my feet for too long as we had been doing alot of running around yesterday. Had to pick up 's car, needed new radiator, $342!!! Had to drop my car off, oil change and inspection, $65!!! Got 's van an oil change and went school shopping for Zack, $200!!! Paid Roxanne for some of the funeral expenses, $1000 (all we could swing, unfortunately). It's just too much, and today had to go to the Bronx for another funeral trip so he won't be home until 9 pm. Zack is ready to be outside and riding his bike and it's 74 degrees out. The heat doesn't seem to bother me as much as the cold anymore. I get cold very easily. I know he's going to walk around the block and I don't want to aggravate the ankle but I hate to not be able to do anything with him. Oh, and if I didn't thank you I wanted to now for the sympathy card. It was very nice of you to send. It's nice to know how many people care. So much has happened since she passed but that's a story for another time, a very disturbing one. You know families. I hope the Amantadine works for you, keep me posted on it, k? Hugs, Peggy > > > > And happy with the visit. ) > > > > Of course I can't remember what went where or why, but I have the > gist of it locked deeply in my brain. rofl > > > > As said of Neuro after the visit, " sometimes it's hard to > know what he's saying, because it's hard to understand what he's > saying " . LOL Neuro has an accent. lol > > > > But, I came away with an rx for Amantadine, for fatigue. He > also, without me seeking or discussing it, gave an rx for an > antidepressant (saying for the depression resulting from all the > other stuff). I'd taken Zoloft in the past, not for depression, > though could not remember why I'd thought I didn't want it this > time. I remembered when I went to get the rx filled. My insurance > won't cover it unless it's from a certain place (Regional Behavioral > Health). So, if I decide I do want one, I'll get a hold of Neuro's > office and discuss those covered on Walmart's $4 rx plan. Simpler > that way, if I can find one we feel is appropriate. (I would like > all things tied in with this mystery dx to be dealt with at Neuro's > office). > > > > But... I have a med for fatigue. Yes, I got teary in his > office. lol When he mentioned the depression resulting from all > these things, and when I knew he heard and would help with the > fatigue. > > > > He surprised me by saying he'd like to do another MRI. Of my > brain and brain stem. Again, he feels with my symptoms if anything > shows it will show in my brain first (I do wonder about the similar > symptoms in my back and such, but... not so much to push for a spinal > MRI at this time). And, yup, Lumbar Puncture. I think he thought I > didn't want to do one. I'm not saying it's the first thing on my > Want To Do list. lol But I'm okay with it. I just don't think > either of these tests are going to show me any answers. Yup, I'll be > disappointed when they don't, no matter what I expect or don't. lol > > > > More talk of MS from him. Talk of " inject ables " from him. > Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- > sp?). Asking his thoughts on other dx's, should it not be MS, he > mentioned FM and CFS. And did so in a way that gave the impression > he had a clue there, too. I hope that's an accurate assumption. > > > > talked of how much this has taken from me, how well I'd > been doing, how happy I was, and now I can do nothing I want and how > hard it clearly is for me. Good man. > > > > Oh yes, and I really did print the email and I even gave it to > him. lol It was funny, because as soon as Neuro came in and sat > down, asking me what was going on, pulled that paper from my > purse and handed it to me to hand to Neuro. LOL > > > > At some point, during a conversation regarding tests not giving > answers and such, I told Doc I KNOW something is wrong, even if I > don't have answers. I want answers and it would be nice for the > tests to show them, but if they don't I'll be okay (what choice is > there? lol)... but I have to have help with the symptoms even if I > don't have an answer for what causes them. He agreed. No, I won't > find comfort in lack of answers, and he'd said something like that to > kick off what I said, but I can't remember just what. It wasn't that > callous, idiot crap I got from the first Neuro either. > > > > hopes for me that the fatigue will ease and that I will be > able to do much of what I want. Including exercise. Though we both > know my body itself stopped working, and that is on it's own without > the fatigue added in. We're hoping for improvement though. > > > > So I left that office feeling hopeful and excited. lol I hope > the Amantadine helps! Next goal... learn as much as I can about this > med before beginning it in the morning. Quick, everyone with > experience or knowledge write to me! ROFL Yup, I'll most likely > post separatly for attention to that alone. <g> > > > > And after the visit, we stopped and ate Chinese food. ) > > > > Today was good. > > > > Challis > > > > > > --------------------------------- > > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > > > > > > > > > > --------------------------------- > Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2007 Report Share Posted August 29, 2007 Yeah, the big mammo... S'posed to be having mine done in a couple of weeks. I've never had one either. Love and blessings...Val RE: Back from the Neuro Hi Cassy! ) I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, "DAYS??!!" ROFL I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL Challis cassandra workmn <payngabby72> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management. Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol.hugz,cassySmyelin groovy wrote: > And happy with the visit. ) Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl As said of Neuro after the visit, "sometimes it's hard to know what he's saying, because it's hard to understand what he's saying". LOL Neuro has an accent. lol But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office> and discuss those covered on Walmart's $4 rx plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office). But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the depression resulting from all these things, and when I knew he heard and would help with the fatigue. He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just> don't think either of these tests are going to show me any answers. Yup, I'll be disappointed when they don't, no matter what I expect or don't. lol More talk of MS from him. Talk of "inject ables" from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption. talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man. Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper> from my purse and handed it to me to hand to Neuro. LOL At some point, during a conversation regarding tests not giving answers and such, I told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either. hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though. So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g> And after the visit, we stopped and ate Chinese food. ) Today was good. Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > __________________________________________________________Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Yahoo! Games. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.10/976 - Release Date: 8/27/2007 6:20 PM Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.10/977 - Release Date: 8/28/07 4:29 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 Now,in the case of the & quot;mammogram & quot;,I think the numbing will come in handy. Lol. Wow! Your all set up. Way cool! I have alsways dredded the day id have a mammogram,the whole smashing the boob idea scares me. Lol. But its not as bad. I have heard from lots of people its not so bad. My g-ma jus had hers and she said it didnt hurt. hugz,cassy Smyelin groovy wrote: > Hi Cassy! )  I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, " DAYS??!! "  ROFL  I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL  Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management. Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol. hugz,cassy Smyelin groovy > wrote: > And happy with the visit. )  Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl  As said of Neuro after the visit, " sometimes it's hard to know what he's saying, because it's hard to understand what he's saying " . LOL Neuro has an accent. lol  But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office > and discuss those covered on Walmart's $4 rx > plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office).  But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the depression resulting from all these things, and when I knew he heard and would help with the fatigue.  He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just > don't think either of these tests are going to show me any answers. Yup, I'll be > disappointed when they don't, no matter what I expect or don't. lol  More talk of MS from him. Talk of " inject ables " from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption.  talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man.  Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper > from my purse and handed it to me to hand to Neuro. LOL  At some point, during a conversation regarding tests not giving answers and such, I > told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either.  hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though.  So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this > med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g>  And after the visit, we stopped and ate Chinese food. )  Today was good.  Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > ____________ _________ _________ _________ _________ _________ _ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games. yahoo.com/ proddesc? gamekey=monopoly herenow > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > ________________________________________________________________________________\ ____ Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 I forgot you had headaches, I guess. I'm sure you must have mentioned them before. No, it doesn't sound like you tolerated Provigil well at all. Ugh, what a lousy thing to feel! Have you had the swelling and pain in your left ankle again since the other night? Dang, you've had a lot of money going out for needed things. It never fails to all come due at the same time, does it? Anytime you're wanting and ready to type out all the things going on since your MIL passed, I'm here and reading. {{{{{{{{Peggy}}}}}}}} I just sent a post regarding Amantadine. ) Challis Peggy wrote: Challis,I had the purplish red marks after I had been taking it for quite a while, unless it takes a long time to show up, I'm not sure if thats what is causing it. It's wierd that it's only on my legs though. The provigil didn't give me headaches I had those before I went on the Provigil. That just made me feel super hyper, I didn't sleep for two days and that was on half of half of a dose!!! Didn't tolerate it very well!!!They took the biopsy in my left leg and I should have the results next week when I go back to the dermatologist. Last night I did notice something new though. My left ankle was swollen quite a bit and sore. I don't know if I was on my feet for too long as we had been doing alot of running around yesterday.Had to pick up 's car, needed new radiator, $342!!! Had to drop my car off, oil change and inspection, $65!!! Got 's van an oil change and went school shopping for Zack, $200!!! Paid Roxanne for some of the funeral expenses, $1000 (all we could swing, unfortunately). It's just too much, and today had to go to the Bronx for another funeral trip so he won't be home until 9 pm. Zack is ready to be outside and riding his bike and it's 74 degrees out. The heat doesn't seem to bother me as much as the cold anymore. I get cold very easily. I know he's going to walk around the block and I don't want to aggravate the ankle but I hate to not be able to do anything with him.Oh, and if I didn't thank you I wanted to now for the sympathy card. It was very nice of you to send. It's nice to know how many people care. So much has happened since she passed but that's a story for another time, a very disturbing one. You know families.I hope the Amantadine works for you, keep me posted on it, k?Hugs,Peggy> >> > And happy with the visit. )> > > > Of course I can't remember what went where or why, but I have the > gist of it locked deeply in my brain. rofl> > > > As said of Neuro after the visit, "sometimes it's hard to > know what he's saying, because it's hard to understand what he's > saying". LOL Neuro has an accent. lol> > > > But, I came away with an rx for Amantadine, for fatigue. He > also, without me seeking or discussing it, gave an rx for an > antidepressant (saying for the depression resulting from all the > other stuff). I'd taken Zoloft in the past, not for depression, > though could not remember why I'd thought I didn't want it this > time. I remembered when I went to get the rx filled. My insurance > won't cover it unless it's from a certain place (Regional Behavioral > Health). So, if I decide I do want one, I'll get a hold of Neuro's > office and discuss those covered on Walmart's $4 rx plan. Simpler > that way, if I can find one we feel is appropriate. (I would like > all things tied in with this mystery dx to be dealt with at Neuro's > office).> > > > But... I have a med for fatigue. Yes, I got teary in his > office. lol When he mentioned the depression resulting from all > these things, and when I knew he heard and would help with the > fatigue.> > > > He surprised me by saying he'd like to do another MRI. Of my > brain and brain stem. Again, he feels with my symptoms if anything > shows it will show in my brain first (I do wonder about the similar > symptoms in my back and such, but... not so much to push for a spinal > MRI at this time). And, yup, Lumbar Puncture. I think he thought I > didn't want to do one. I'm not saying it's the first thing on my > Want To Do list. lol But I'm okay with it. I just don't think > either of these tests are going to show me any answers. Yup, I'll be > disappointed when they don't, no matter what I expect or don't. lol> > > > More talk of MS from him. Talk of "inject ables" from him. > Talking in general dx terms, he mentioned MS and Vasculitis (tus? --> sp?). Asking his thoughts on other dx's, should it not be MS, he > mentioned FM and CFS. And did so in a way that gave the impression > he had a clue there, too. I hope that's an accurate assumption.> > > > talked of how much this has taken from me, how well I'd > been doing, how happy I was, and now I can do nothing I want and how > hard it clearly is for me. Good man.> > > > Oh yes, and I really did print the email and I even gave it to > him. lol It was funny, because as soon as Neuro came in and sat > down, asking me what was going on, pulled that paper from my > purse and handed it to me to hand to Neuro. LOL> > > > At some point, during a conversation regarding tests not giving > answers and such, I told Doc I KNOW something is wrong, even if I > don't have answers. I want answers and it would be nice for the > tests to show them, but if they don't I'll be okay (what choice is > there? lol)... but I have to have help with the symptoms even if I > don't have an answer for what causes them. He agreed. No, I won't > find comfort in lack of answers, and he'd said something like that to > kick off what I said, but I can't remember just what. It wasn't that > callous, idiot crap I got from the first Neuro either.> > > > hopes for me that the fatigue will ease and that I will be > able to do much of what I want. Including exercise. Though we both > know my body itself stopped working, and that is on it's own without > the fatigue added in. We're hoping for improvement though.> > > > So I left that office feeling hopeful and excited. lol I hope > the Amantadine helps! Next goal... learn as much as I can about this > med before beginning it in the morning. Quick, everyone with > experience or knowledge write to me! ROFL Yup, I'll most likely > post separatly for attention to that alone. <g>> > > > And after the visit, we stopped and ate Chinese food. )> > > > Today was good.> > > > Challis> > > > > > ---------------------------------> > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> >> > > > > > > > ---------------------------------> Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV.> Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 LOLOL Cassy, after all the testing and prodding you've been through, I'm thinking a mammogram will be nothing for you. LOL But if squishing wasn't enough, now Trista's added in "examining". LOL HUGS, Challis cassandra workmn wrote: Now,in the case of the & quot;mammogram & quot;,I think the numbing will come in handy. Lol. Wow! Your all set up. Way cool! I have alsways dredded the day id have a mammogram,the whole smashing the boob idea scares me. Lol. But its not as bad. I have heard from lots of people its not so bad. My g-ma jus had hers and she said it didnt hurt.hugz,cassySmyelin groovy wrote: > Hi Cassy! ) I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, "DAYS??!!" ROFL I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management.Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol. hugz,cassy Smyelin groovy> wrote: > And happy with the visit. ) Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl As said of Neuro after the visit, "sometimes it's hard to know what he's saying, because it's hard to understand what he's saying". LOL Neuro has an accent. lol But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office > and discuss those covered on Walmart's $4 rx> plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office). But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the depression resulting from all these things, and when I knew he heard and would help with the fatigue. He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just > don't think either of these tests are going to show me any answers. Yup, I'll be> disappointed when they don't, no matter what I expect or don't. lol More talk of MS from him. Talk of "inject ables" from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption. talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man. Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper > from my purse and handed it to me to hand to Neuro. LOL At some point, during a conversation regarding tests not giving answers and such, I> told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either. hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though. So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this> med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g> And after the visit, we stopped and ate Chinese food. ) Today was good. Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > ____________ _________ _________ _________ _________ _________ _ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games. yahoo.com/ proddesc? gamekey=monopoly herenow > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > __________________________________________________________Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 LOLOL Cassy, after all the testing and prodding you've been through, I'm thinking a mammogram will be nothing for you. LOL But if squishing wasn't enough, now Trista's added in "examining". LOL HUGS, Challis cassandra workmn wrote: Now,in the case of the & quot;mammogram & quot;,I think the numbing will come in handy. Lol. Wow! Your all set up. Way cool! I have alsways dredded the day id have a mammogram,the whole smashing the boob idea scares me. Lol. But its not as bad. I have heard from lots of people its not so bad. My g-ma jus had hers and she said it didnt hurt.hugz,cassySmyelin groovy wrote: > Hi Cassy! ) I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, "DAYS??!!" ROFL I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management.Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol. hugz,cassy Smyelin groovy> wrote: > And happy with the visit. ) Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl As said of Neuro after the visit, "sometimes it's hard to know what he's saying, because it's hard to understand what he's saying". LOL Neuro has an accent. lol But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office > and discuss those covered on Walmart's $4 rx> plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office). But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the depression resulting from all these things, and when I knew he heard and would help with the fatigue. He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just > don't think either of these tests are going to show me any answers. Yup, I'll be> disappointed when they don't, no matter what I expect or don't. lol More talk of MS from him. Talk of "inject ables" from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption. talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man. Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper > from my purse and handed it to me to hand to Neuro. LOL At some point, during a conversation regarding tests not giving answers and such, I> told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either. hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though. So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this> med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g> And after the visit, we stopped and ate Chinese food. ) Today was good. Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > ____________ _________ _________ _________ _________ _________ _ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games. yahoo.com/ proddesc? gamekey=monopoly herenow > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > __________________________________________________________Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 LOLOL Cassy, after all the testing and prodding you've been through, I'm thinking a mammogram will be nothing for you. LOL But if squishing wasn't enough, now Trista's added in "examining". LOL HUGS, Challis cassandra workmn wrote: Now,in the case of the & quot;mammogram & quot;,I think the numbing will come in handy. Lol. Wow! Your all set up. Way cool! I have alsways dredded the day id have a mammogram,the whole smashing the boob idea scares me. Lol. But its not as bad. I have heard from lots of people its not so bad. My g-ma jus had hers and she said it didnt hurt.hugz,cassySmyelin groovy wrote: > Hi Cassy! ) I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, "DAYS??!!" ROFL I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management.Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol. hugz,cassy Smyelin groovy> wrote: > And happy with the visit. ) Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl As said of Neuro after the visit, "sometimes it's hard to know what he's saying, because it's hard to understand what he's saying". LOL Neuro has an accent. lol But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office > and discuss those covered on Walmart's $4 rx> plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office). But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the depression resulting from all these things, and when I knew he heard and would help with the fatigue. He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just > don't think either of these tests are going to show me any answers. Yup, I'll be> disappointed when they don't, no matter what I expect or don't. lol More talk of MS from him. Talk of "inject ables" from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption. talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man. Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper > from my purse and handed it to me to hand to Neuro. LOL At some point, during a conversation regarding tests not giving answers and such, I> told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either. hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though. So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this> med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g> And after the visit, we stopped and ate Chinese food. ) Today was good. Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > ____________ _________ _________ _________ _________ _________ _ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games. yahoo.com/ proddesc? gamekey=monopoly herenow > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > __________________________________________________________Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 ROTFLMBFHO! (That means rolling on the floor laughing my big fat head off) lol hugz,cassy Smyelin groovy wrote: > LOLOL Cassy, after all the testing and prodding you've been through, I'm thinking a mammogram will be nothing for you. LOL  But if squishing wasn't enough, now Trista's added in " examining " . LOL  HUGS, Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Now,in the case of the & quot;mammogram & quot;,I think the numbing will come in handy. Lol. Wow! Your all set up. Way cool! I have alsways dredded the day id have a > mammogram,the whole smashing the boob idea scares me. Lol. But its not as bad. I have heard from lots of people its not so bad. My g-ma jus had hers and she said it didnt hurt. hugz,cassy Smyelin groovy wrote: > Hi Cassy! )  I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, " DAYS??!! "  ROFL  I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL  > Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management. Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol. hugz,cassy Smyelin groovy > wrote: > And happy with the visit. )  Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl  As said of Neuro after the visit, " sometimes it's hard to know what he's saying, because it's hard to > understand what he's saying " . LOL Neuro has an accent. lol  But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office > and discuss those covered on Walmart's $4 rx > plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office).  But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the > depression resulting from all these things, and when I knew he heard and would help with the fatigue.  He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just > don't think either of these tests are going to show me any answers. Yup, I'll be > disappointed when they don't, no matter what I expect or don't. lol  More talk of MS from him. Talk of " inject ables " from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not > be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption.  talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man.  Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper > from my purse and handed it to me to hand to Neuro. LOL  At some point, during a conversation regarding tests not giving answers and such, I > told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer > for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either.  hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though.  So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this > med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g>  And after the visit, we stopped and ate Chinese food. > )  Today was good.  Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > ____________ _________ _________ _________ _________ _________ _ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games. yahoo.com/ proddesc? gamekey=monopoly herenow > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > ____________ _________ _________ _________ _________ _________ _ Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink. yahoo.com/ gmrs/yahoo_ panel_invite. asp?a=7 > Sick sense of humor? Visit Yahoo! TV's > Comedy with an Edge to see what's on, when. > ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 ROTFLMBFHO! (That means rolling on the floor laughing my big fat head off) lol hugz,cassy Smyelin groovy wrote: > LOLOL Cassy, after all the testing and prodding you've been through, I'm thinking a mammogram will be nothing for you. LOL  But if squishing wasn't enough, now Trista's added in " examining " . LOL  HUGS, Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Now,in the case of the & quot;mammogram & quot;,I think the numbing will come in handy. Lol. Wow! Your all set up. Way cool! I have alsways dredded the day id have a > mammogram,the whole smashing the boob idea scares me. Lol. But its not as bad. I have heard from lots of people its not so bad. My g-ma jus had hers and she said it didnt hurt. hugz,cassy Smyelin groovy wrote: > Hi Cassy! )  I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, " DAYS??!! "  ROFL  I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL  > Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management. Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol. hugz,cassy Smyelin groovy > wrote: > And happy with the visit. )  Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl  As said of Neuro after the visit, " sometimes it's hard to know what he's saying, because it's hard to > understand what he's saying " . LOL Neuro has an accent. lol  But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office > and discuss those covered on Walmart's $4 rx > plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office).  But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the > depression resulting from all these things, and when I knew he heard and would help with the fatigue.  He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just > don't think either of these tests are going to show me any answers. Yup, I'll be > disappointed when they don't, no matter what I expect or don't. lol  More talk of MS from him. Talk of " inject ables " from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not > be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption.  talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man.  Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper > from my purse and handed it to me to hand to Neuro. LOL  At some point, during a conversation regarding tests not giving answers and such, I > told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer > for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either.  hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though.  So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this > med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g>  And after the visit, we stopped and ate Chinese food. > )  Today was good.  Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > ____________ _________ _________ _________ _________ _________ _ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games. yahoo.com/ proddesc? gamekey=monopoly herenow > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > ____________ _________ _________ _________ _________ _________ _ Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink. yahoo.com/ gmrs/yahoo_ panel_invite. asp?a=7 > Sick sense of humor? Visit Yahoo! TV's > Comedy with an Edge to see what's on, when. > ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 ROTFLMBFHO! (That means rolling on the floor laughing my big fat head off) lol hugz,cassy Smyelin groovy wrote: > LOLOL Cassy, after all the testing and prodding you've been through, I'm thinking a mammogram will be nothing for you. LOL  But if squishing wasn't enough, now Trista's added in " examining " . LOL  HUGS, Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Now,in the case of the & quot;mammogram & quot;,I think the numbing will come in handy. Lol. Wow! Your all set up. Way cool! I have alsways dredded the day id have a > mammogram,the whole smashing the boob idea scares me. Lol. But its not as bad. I have heard from lots of people its not so bad. My g-ma jus had hers and she said it didnt hurt. hugz,cassy Smyelin groovy wrote: > Hi Cassy! )  I have orders for both the brain MRI and the Spinal Tap in and am waiting for calls. Once the authorization goes through from my insurance I'll get calls to schedule them. Neuro said it could take a few days. I had to make myself not say, " DAYS??!! "  ROFL  I saw my PCP this morning. He ordered blood work. (rofl) I also get to pee in a cup. Woohoo. LOL AND, as a bonus, I get to have my first mammogram. LOL The appointment is already set for the 10th of September. Doc says he hears lots of complaints from some, and no complaints from others. I told my Mom with the numbing I have there, maybe I won't notice a thing. LOL  > Challis cassandra workmn <payngabby72@ yahoo.com> wrote: Hey Challis. Im so glad the visit went well. Seems like this neuro is concerned and caring. Sounds like he will go to the next step if your brain MRI is ok.Im so glad he is helping with symptom management. Thats awesome. You shouldnt have to suffer while waiting for your dx. So,if all is well with the mri & #39;s you can ask for the spine mri before the spinal tap. When will you be having the mri? Did you start the new med? I hope it helps. Fatigue sucks. Lol. What a sweet hubby! Im so glad he went with you. And im glad you finished the day with chinese.Mmmm. Perfect topper offer. Lol. hugz,cassy Smyelin groovy > wrote: > And happy with the visit. )  Of course I can't remember what went where or why, but I have the gist of it locked deeply in my brain. rofl  As said of Neuro after the visit, " sometimes it's hard to know what he's saying, because it's hard to > understand what he's saying " . LOL Neuro has an accent. lol  But, I came away with an rx for Amantadine, for fatigue. He also, without me seeking or discussing it, gave an rx for an antidepressant (saying for the depression resulting from all the other stuff). I'd taken Zoloft in the past, not for depression, though could not remember why I'd thought I didn't want it this time. I remembered when I went to get the rx filled. My insurance won't cover it unless it's from a certain place (Regional Behavioral Health). So, if I decide I do want one, I'll get a hold of Neuro's office > and discuss those covered on Walmart's $4 rx > plan. Simpler that way, if I can find one we feel is appropriate. (I would like all things tied in with this mystery dx to be dealt with at Neuro's office).  But... I have a med for fatigue. Yes, I got teary in his office. lol When he mentioned the > depression resulting from all these things, and when I knew he heard and would help with the fatigue.  He surprised me by saying he'd like to do another MRI. Of my brain and brain stem. Again, he feels with my symptoms if anything shows it will show in my brain first (I do wonder about the similar symptoms in my back and such, but... not so much to push for a spinal MRI at this time). And, yup, Lumbar Puncture. I think he thought I didn't want to do one. I'm not saying it's the first thing on my Want To Do list. lol But I'm okay with it. I just > don't think either of these tests are going to show me any answers. Yup, I'll be > disappointed when they don't, no matter what I expect or don't. lol  More talk of MS from him. Talk of " inject ables " from him. Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- sp?). Asking his thoughts on other dx's, should it not > be MS, he mentioned FM and CFS. And did so in a way that gave the impression he had a clue there, too. I hope that's an accurate assumption.  talked of how much this has taken from me, how well I'd been doing, how happy I was, and now I can do nothing I want and how hard it clearly is for me. Good man.  Oh yes, and I really did print the email and I even gave it to him. lol It was funny, because as soon as Neuro came in and sat down, asking me what was going on, pulled that paper > from my purse and handed it to me to hand to Neuro. LOL  At some point, during a conversation regarding tests not giving answers and such, I > told Doc I KNOW something is wrong, even if I don't have answers. I want answers and it would be nice for the tests to show them, but if they don't I'll be okay (what choice is there? lol)... but I have to have help with the symptoms even if I don't have an answer > for what causes them. He agreed. No, I won't find comfort in lack of answers, and he'd said something like that to kick off what I said, but I can't remember just what. It wasn't that callous, idiot crap I got from the first Neuro either.  hopes for me that the fatigue will ease and that I will be able to do much of what I want. Including exercise. Though we both know my body itself stopped working, and that is on it's own without the fatigue added in. > We're hoping for improvement though.  So I left that office feeling hopeful and excited. lol I hope the Amantadine helps! Next goal... learn as much as I can about this > med before beginning it in the morning. Quick, everyone with experience or knowledge write to me! ROFL Yup, I'll most likely post separatly for attention to that alone. <g>  And after the visit, we stopped and ate Chinese food. > )  Today was good.  Challis > Need a vacation? Get great deals > to amazing places on Yahoo! Travel. > ____________ _________ _________ _________ _________ _________ _ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games. yahoo.com/ proddesc? gamekey=monopoly herenow > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. > ____________ _________ _________ _________ _________ _________ _ Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink. yahoo.com/ gmrs/yahoo_ panel_invite. asp?a=7 > Sick sense of humor? Visit Yahoo! TV's > Comedy with an Edge to see what's on, when. > ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. 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Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Thanks Challis, Yeah, I have the swelling but not as bad. I have noticed that the rash like thing on my legs in slowly moving up both my legs now to my thighs. I also have what looks like a huge varicose vein on my left lower thigh right above my knee on the inside of my left leg. It was really painful tthe other day. When I stood for not even 5 minutes it was bulging and it hurt to walk. My sister yelled at me to go to the drs office. Both my knees were hurting to like there is arthritis starting there. Who knows. I can see the vein, it's big and blue and I can feel it bulging out and it hurts when I touch it. It didn't hurt yesterday and I have tried to stay off my feet as much as possible for the past couple of days so it hasn't been too bad. I didn't get the chance to call the dr yesterday so I didn't go. If it comes back I have an appt with the dermatologist on Tues. so I'll ask him. I'm glad the Amantadine is working well for you and I hope it stays that way and keeps getting better. It's so funny how some things work so well for some and not so good with others. Well, I'm off to get something to eat. Trying to eat healthy, salad today. Zack is having spaghettios!!! Then he'll want to be outside to ride his bike. I'll try to get some yard work done. I can't believe it's September already. My flower garden looked like dog doody all year this year. Very disappointed in myself. Have to go get rid of some of the dead stuff and try and clean up what I can. It's a little chilly out, only 64, I'll need a jacket. Like I said, the cold bothers me a lot more than the heat for some reason, possible because I also have the Reynauds disease as well? Who knows. My hands are cold right now typing. I'll be back on later to tell you of all the interesting crap with s loser of a brother. Hugs, Peggy > > > > > > And happy with the visit. ) > > > > > > Of course I can't remember what went where or why, but I have the > > gist of it locked deeply in my brain. rofl > > > > > > As said of Neuro after the visit, " sometimes it's hard to > > know what he's saying, because it's hard to understand what he's > > saying " . LOL Neuro has an accent. lol > > > > > > But, I came away with an rx for Amantadine, for fatigue. He > > also, without me seeking or discussing it, gave an rx for an > > antidepressant (saying for the depression resulting from all the > > other stuff). I'd taken Zoloft in the past, not for depression, > > though could not remember why I'd thought I didn't want it this > > time. I remembered when I went to get the rx filled. My insurance > > won't cover it unless it's from a certain place (Regional > Behavioral > > Health). So, if I decide I do want one, I'll get a hold of Neuro's > > office and discuss those covered on Walmart's $4 rx plan. Simpler > > that way, if I can find one we feel is appropriate. (I would like > > all things tied in with this mystery dx to be dealt with at Neuro's > > office). > > > > > > But... I have a med for fatigue. Yes, I got teary in his > > office. lol When he mentioned the depression resulting from all > > these things, and when I knew he heard and would help with the > > fatigue. > > > > > > He surprised me by saying he'd like to do another MRI. Of my > > brain and brain stem. Again, he feels with my symptoms if anything > > shows it will show in my brain first (I do wonder about the similar > > symptoms in my back and such, but... not so much to push for a > spinal > > MRI at this time). And, yup, Lumbar Puncture. I think he thought I > > didn't want to do one. I'm not saying it's the first thing on my > > Want To Do list. lol But I'm okay with it. I just don't think > > either of these tests are going to show me any answers. Yup, I'll > be > > disappointed when they don't, no matter what I expect or don't. lol > > > > > > More talk of MS from him. Talk of " inject ables " from him. > > Talking in general dx terms, he mentioned MS and Vasculitis (tus? -- > > > sp?). Asking his thoughts on other dx's, should it not be MS, he > > mentioned FM and CFS. And did so in a way that gave the impression > > he had a clue there, too. I hope that's an accurate assumption. > > > > > > talked of how much this has taken from me, how well I'd > > been doing, how happy I was, and now I can do nothing I want and > how > > hard it clearly is for me. Good man. > > > > > > Oh yes, and I really did print the email and I even gave it to > > him. lol It was funny, because as soon as Neuro came in and sat > > down, asking me what was going on, pulled that paper from my > > purse and handed it to me to hand to Neuro. LOL > > > > > > At some point, during a conversation regarding tests not giving > > answers and such, I told Doc I KNOW something is wrong, even if I > > don't have answers. I want answers and it would be nice for the > > tests to show them, but if they don't I'll be okay (what choice is > > there? lol)... but I have to have help with the symptoms even if I > > don't have an answer for what causes them. He agreed. No, I won't > > find comfort in lack of answers, and he'd said something like that > to > > kick off what I said, but I can't remember just what. It wasn't > that > > callous, idiot crap I got from the first Neuro either. > > > > > > hopes for me that the fatigue will ease and that I will be > > able to do much of what I want. Including exercise. Though we both > > know my body itself stopped working, and that is on it's own > without > > the fatigue added in. We're hoping for improvement though. > > > > > > So I left that office feeling hopeful and excited. lol I hope > > the Amantadine helps! Next goal... learn as much as I can about > this > > med before beginning it in the morning. Quick, everyone with > > experience or knowledge write to me! ROFL Yup, I'll most likely > > post separatly for attention to that alone. <g> > > > > > > And after the visit, we stopped and ate Chinese food. ) > > > > > > Today was good. > > > > > > Challis > > > > > > > > > --------------------------------- > > > Need a vacation? Get great deals to amazing places on Yahoo! > Travel. > > > > > > > > > > > > > > > > > > > --------------------------------- > > Ready for the edge of your seat? Check out tonight's top picks on > Yahoo! TV. > > > > > > > > > --------------------------------- > Be a better Heartthrob. Get better relationship answers from someone who knows. > Yahoo! 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