Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi Anissa! I can relate to your feeling of having to prove yourself. I only talk about my sons treatment to people who are interested and open. I can't put my energy into convincing people that I am doing something helpful for my son. My husband is much more confident than I am and tells many people. I feel like if people know about his treatment they expect results! OK well so do I but not the results are not always coming on their timeline. And to me using descriptive language no matter how simple is a step up from functional language. But does a family member see the difference? Come on a two or three word sentence is still baby talk! Some people can see that any improvement after years of decline but it is so much slower coming for my son than for a normal child. My son was fine until 12 months and then withdrew from us after starting on milk and wheat. We did ABA but nothing really made a difference until I started the GFCF diet at 4 yo. From there my internet search was started and we have a full array of supplements, etc. My son never learned to talk before he slipped away so language is his biggest weakness. We have only been chelating since February but we are so happy with the results. He regained awareness earlier but the language connection was not there. Now with reduced toxicity he is using more language and much more open to learning and interacting. His newest talents are playing catch and during last round of chelation he was dry all night 2 nights in a row. This gives me so much hope! He is also kicking the ball. I think maybe his vision (3D?) is improving! Just a little update and love letter to my son. Thanks guys for all the support, Maddie >> I also decided to wait a round to collect urine for testing. I > realized that this test was less for me to know what is coming out > and more for everyone else so that I could " prove " that my kids have > mercury in them to begin with. I've gotten a lot of flack from > relatives about all this. It's really hard to go through this > without much support and I was hoping the test would help that. In > the end, it probably doesn't matter what the test shows. If it shows > mercury, everyone will say that the test is wrong. > > I'll do the test next round, but keep everything in perspective. It > will be nice to have a marker to see where we started but wont stop > chelating yet if it doesn't show metals. I'll probably keep the > dosage of DMSA the same. It was obviously doing something and I > wouldn't want the side effects to be much worse. > > So far I haven't notice any huge improvements from round one, but he > surely isn't any worse so I'm a lot more confident as we approach > round two. > > Thanks again. > > Annissa Quote Link to comment Share on other sites More sharing options...
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