Re: Starting SCD after 6 months on GF/CF diet - HELP!!

[Guest guest]

..has HUGE phenol issues - do any of your kids

>And how do you do diet then?

Doing SCD with phenol issues is not that hard, you just have to be careful that

you don't eliminate all your child's sources of carbs, that is not healthy.

Luke does fine with cashew or pecan instead of almond, which is high. He also

gets the lower level fruits and veggies, just over and over again, so not much

variety but still plenty intake of those good carbs. We also cannot use honey

with him so we sweeten things with homemade pear sauce or pineapple juice or

sometimes saccharin.

Welcome, and GL!

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3; and , 23 mos

All SCD since 1/26/04

No Mom is an island. but sometimes she needs one!

Starting SCD after 6 months on GF/CF diet - HELP!!

Help! My son (BEn age 4)has regressive autism - and one of the worst

guts ever! Half a banana will give still give him diaherra up and

down his whole body. He had a bad case of the stomach flu and ate

virtually nothing for over 3 days (most importantly no potato or rice

or supplements - staples of his GF/CF regimine.

While he was sick - and not eating these things - he basically potty-

trained himself, started doing much more imitative play, showing

affection and interest in other, talking more, etc.

We think all this means we should definitely do the SCD - essentially

begun the die-off already.

QUestions: - for those of you that did the non-dairy/caseine free -

do you use the yogurt, cheeses, etc. that the diet recommends? How

did you know?

What about supplements - Ben needs but his are " illegal " as is his

probiotic.

Do you make your own yogurt - how did you replace " rice milk " or the

child's desire for a thick drink?

So appreciate any input - Feel slightly lost on this as so different

from his current diet : has HUGE phenol issues - do any of your kids

and how do you do diet then?

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

..has HUGE phenol issues - do any of your kids

>And how do you do diet then?

Doing SCD with phenol issues is not that hard, you just have to be careful that

you don't eliminate all your child's sources of carbs, that is not healthy.

Luke does fine with cashew or pecan instead of almond, which is high. He also

gets the lower level fruits and veggies, just over and over again, so not much

variety but still plenty intake of those good carbs. We also cannot use honey

with him so we sweeten things with homemade pear sauce or pineapple juice or

sometimes saccharin.

Welcome, and GL!

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3; and , 23 mos

All SCD since 1/26/04

No Mom is an island. but sometimes she needs one!

Starting SCD after 6 months on GF/CF diet - HELP!!

Help! My son (BEn age 4)has regressive autism - and one of the worst

guts ever! Half a banana will give still give him diaherra up and

down his whole body. He had a bad case of the stomach flu and ate

virtually nothing for over 3 days (most importantly no potato or rice

or supplements - staples of his GF/CF regimine.

While he was sick - and not eating these things - he basically potty-

trained himself, started doing much more imitative play, showing

affection and interest in other, talking more, etc.

We think all this means we should definitely do the SCD - essentially

begun the die-off already.

QUestions: - for those of you that did the non-dairy/caseine free -

do you use the yogurt, cheeses, etc. that the diet recommends? How

did you know?

What about supplements - Ben needs but his are " illegal " as is his

probiotic.

Do you make your own yogurt - how did you replace " rice milk " or the

child's desire for a thick drink?

So appreciate any input - Feel slightly lost on this as so different

from his current diet : has HUGE phenol issues - do any of your kids

and how do you do diet then?

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

..has HUGE phenol issues - do any of your kids

>And how do you do diet then?

Doing SCD with phenol issues is not that hard, you just have to be careful that

you don't eliminate all your child's sources of carbs, that is not healthy.

Luke does fine with cashew or pecan instead of almond, which is high. He also

gets the lower level fruits and veggies, just over and over again, so not much

variety but still plenty intake of those good carbs. We also cannot use honey

with him so we sweeten things with homemade pear sauce or pineapple juice or

sometimes saccharin.

Welcome, and GL!

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3; and , 23 mos

All SCD since 1/26/04

No Mom is an island. but sometimes she needs one!

Starting SCD after 6 months on GF/CF diet - HELP!!

Help! My son (BEn age 4)has regressive autism - and one of the worst

guts ever! Half a banana will give still give him diaherra up and

down his whole body. He had a bad case of the stomach flu and ate

virtually nothing for over 3 days (most importantly no potato or rice

or supplements - staples of his GF/CF regimine.

While he was sick - and not eating these things - he basically potty-

trained himself, started doing much more imitative play, showing

affection and interest in other, talking more, etc.

We think all this means we should definitely do the SCD - essentially

begun the die-off already.

QUestions: - for those of you that did the non-dairy/caseine free -

do you use the yogurt, cheeses, etc. that the diet recommends? How

did you know?

What about supplements - Ben needs but his are " illegal " as is his

probiotic.

Do you make your own yogurt - how did you replace " rice milk " or the

child's desire for a thick drink?

So appreciate any input - Feel slightly lost on this as so different

from his current diet : has HUGE phenol issues - do any of your kids

and how do you do diet then?

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

> Help! My son (BEn age 4)has regressive autism - and one of the

worst

> guts ever!

Welcome to the list! I think you will find pretty quickly that you

have a lot in common with many of us here. In fact, my son was 4

when we started SCD a year ago. At that time, he'd been GFCF for 6

months and his gut was in terrible shape!

I'll take a go at your questions, but I also want to encourage you

to read www.pecanbread.com as most of your questions are actually

answered there. Jody, our website creator, has done a fabulous job

of addressing not only the more basic issues, but many of the

complex ones as well. It's quite comprehensive.

> QUestions: - for those of you that did the non-dairy/caseine free -

> do you use the yogurt, cheeses, etc. that the diet recommends?

How

> did you know?

The recommendation for previously CF kids is to do the diet dairy

free for at least a few weeks, if not months, before adding the goat

dairy products (homemade yogurt, legal cheeses). There is a good

section on pecanbread about this. Many have successfully added dairy

down the healing road, but many also remain dairy free and use

probiotics or the wonderful nut yogurt (found in recipes on

pecanbread) to get the good bugs repopulated. I personally have

successfully added goat yogurt and goat cheddar at this point.

> What about supplements - Ben needs but his are " illegal " as is his

> probiotic.

Legal supplements are on pecanbread, too. There is a nice list of

legal and illegal additives as well as many specific products that

are commonly used. A lot of people have either eliminated many

supplements, and/or found legal replacements. However, this is an

area where the family's choice is highly respected and it will

ultimately be up to you to decide what to do. The good news is,

there are many legal choices out there! Probiotics are specifically

addressed.

> Do you make your own yogurt - how did you replace " rice milk " or

the

> child's desire for a thick drink?

Since you have been CF, I would recommend trying the nut yogurt and

making some sort of milk drink with it. Homemade nut milk is legal,

but usually isn't thick because it doesn't contain the highly

illegal additives the store bought stuff has.

>

> So appreciate any input - Feel slightly lost on this as so

different

> from his current diet : has HUGE phenol issues - do any of your

kids

> and how do you do diet then?

Many on the diet are doing a low-phenol version. You can search the

archives and find tons of information on avoiding high phenolic

foods. Also, a lot of people are getting good results by using the

No-Fenol enzymes by Houston's.

We are very glad you are here and are happy to help you make this

transition. Please sign your posts with your name, your child's

name, age, dx, and time on SCD (once you get started!) pecanbread

has a " getting started " section, great recipes, tips for doing the

diet, and a lot of other good stuff. Happy reading!

son - 5yo ASD, SCD 13 1/2 months

[Guest guest]

> Help! My son (BEn age 4)has regressive autism - and one of the

worst

> guts ever!

Welcome to the list! I think you will find pretty quickly that you

have a lot in common with many of us here. In fact, my son was 4

when we started SCD a year ago. At that time, he'd been GFCF for 6

months and his gut was in terrible shape!

I'll take a go at your questions, but I also want to encourage you

to read www.pecanbread.com as most of your questions are actually

answered there. Jody, our website creator, has done a fabulous job

of addressing not only the more basic issues, but many of the

complex ones as well. It's quite comprehensive.

> QUestions: - for those of you that did the non-dairy/caseine free -

> do you use the yogurt, cheeses, etc. that the diet recommends?

How

> did you know?

The recommendation for previously CF kids is to do the diet dairy

free for at least a few weeks, if not months, before adding the goat

dairy products (homemade yogurt, legal cheeses). There is a good

section on pecanbread about this. Many have successfully added dairy

down the healing road, but many also remain dairy free and use

probiotics or the wonderful nut yogurt (found in recipes on

pecanbread) to get the good bugs repopulated. I personally have

successfully added goat yogurt and goat cheddar at this point.

> What about supplements - Ben needs but his are " illegal " as is his

> probiotic.

Legal supplements are on pecanbread, too. There is a nice list of

legal and illegal additives as well as many specific products that

are commonly used. A lot of people have either eliminated many

supplements, and/or found legal replacements. However, this is an

area where the family's choice is highly respected and it will

ultimately be up to you to decide what to do. The good news is,

there are many legal choices out there! Probiotics are specifically

addressed.

> Do you make your own yogurt - how did you replace " rice milk " or

the

> child's desire for a thick drink?

Since you have been CF, I would recommend trying the nut yogurt and

making some sort of milk drink with it. Homemade nut milk is legal,

but usually isn't thick because it doesn't contain the highly

illegal additives the store bought stuff has.

>

> So appreciate any input - Feel slightly lost on this as so

different

> from his current diet : has HUGE phenol issues - do any of your

kids

> and how do you do diet then?

Many on the diet are doing a low-phenol version. You can search the

archives and find tons of information on avoiding high phenolic

foods. Also, a lot of people are getting good results by using the

No-Fenol enzymes by Houston's.

We are very glad you are here and are happy to help you make this

transition. Please sign your posts with your name, your child's

name, age, dx, and time on SCD (once you get started!) pecanbread

has a " getting started " section, great recipes, tips for doing the

diet, and a lot of other good stuff. Happy reading!

son - 5yo ASD, SCD 13 1/2 months

[Guest guest]

> Help! My son (BEn age 4)has regressive autism - and one of the

worst

> guts ever!

Welcome to the list! I think you will find pretty quickly that you

have a lot in common with many of us here. In fact, my son was 4

when we started SCD a year ago. At that time, he'd been GFCF for 6

months and his gut was in terrible shape!

I'll take a go at your questions, but I also want to encourage you

to read www.pecanbread.com as most of your questions are actually

answered there. Jody, our website creator, has done a fabulous job

of addressing not only the more basic issues, but many of the

complex ones as well. It's quite comprehensive.

> QUestions: - for those of you that did the non-dairy/caseine free -

> do you use the yogurt, cheeses, etc. that the diet recommends?

How

> did you know?

The recommendation for previously CF kids is to do the diet dairy

free for at least a few weeks, if not months, before adding the goat

dairy products (homemade yogurt, legal cheeses). There is a good

section on pecanbread about this. Many have successfully added dairy

down the healing road, but many also remain dairy free and use

probiotics or the wonderful nut yogurt (found in recipes on

pecanbread) to get the good bugs repopulated. I personally have

successfully added goat yogurt and goat cheddar at this point.

> What about supplements - Ben needs but his are " illegal " as is his

> probiotic.

Legal supplements are on pecanbread, too. There is a nice list of

legal and illegal additives as well as many specific products that

are commonly used. A lot of people have either eliminated many

supplements, and/or found legal replacements. However, this is an

area where the family's choice is highly respected and it will

ultimately be up to you to decide what to do. The good news is,

there are many legal choices out there! Probiotics are specifically

addressed.

> Do you make your own yogurt - how did you replace " rice milk " or

the

> child's desire for a thick drink?

Since you have been CF, I would recommend trying the nut yogurt and

making some sort of milk drink with it. Homemade nut milk is legal,

but usually isn't thick because it doesn't contain the highly

illegal additives the store bought stuff has.

>

> So appreciate any input - Feel slightly lost on this as so

different

> from his current diet : has HUGE phenol issues - do any of your

kids

> and how do you do diet then?

Many on the diet are doing a low-phenol version. You can search the

archives and find tons of information on avoiding high phenolic

foods. Also, a lot of people are getting good results by using the

No-Fenol enzymes by Houston's.

We are very glad you are here and are happy to help you make this

transition. Please sign your posts with your name, your child's

name, age, dx, and time on SCD (once you get started!) pecanbread

has a " getting started " section, great recipes, tips for doing the

diet, and a lot of other good stuff. Happy reading!

son - 5yo ASD, SCD 13 1/2 months

[Guest guest]

Thanks so! I read the whole book last night and have been " at one "

with the site for hours (just copied tons of recipies)! still, even

our dev. pediatrician is not very familiar with the diet and she is

worried I am cutting things out (those listed as " illegal " ). Still,

sure the learning curve is all worth it.

Thanks for advice on staying non-dairy for awhile, that concerned us.

Am thinking transition of having no more rice milk will be the

hardest thing to overcome. Will try nut yogurt.

Not sure where extensive section on probiotics is on " pecanbread.com "

as only lists one choice - did I miss something? Also, need one that

is non-dairy, don't I?

THanks for enzyme idea - like others I've known to use them, the " NO-

phenols " tended to make Ben somewhat " high " . Will be starting

Kirkman's DPPVI shortly.

Sara, , 5 , just beginning

> > Help! My son (BEn age 4)has regressive autism - and one of the

> worst

> > guts ever!

>

> Welcome to the list! I think you will find pretty quickly that you

> have a lot in common with many of us here. In fact, my son was 4

> when we started SCD a year ago. At that time, he'd been GFCF for 6

> months and his gut was in terrible shape!

>

> I'll take a go at your questions, but I also want to encourage you

> to read www.pecanbread.com as most of your questions are actually

> answered there. Jody, our website creator, has done a fabulous job

> of addressing not only the more basic issues, but many of the

> complex ones as well. It's quite comprehensive.

>

>

> > QUestions: - for those of you that did the non-dairy/caseine

free -

>

> > do you use the yogurt, cheeses, etc. that the diet recommends?

> How

> > did you know?

>

> The recommendation for previously CF kids is to do the diet dairy

> free for at least a few weeks, if not months, before adding the

goat

> dairy products (homemade yogurt, legal cheeses). There is a good

> section on pecanbread about this. Many have successfully added

dairy

> down the healing road, but many also remain dairy free and use

> probiotics or the wonderful nut yogurt (found in recipes on

> pecanbread) to get the good bugs repopulated. I personally have

> successfully added goat yogurt and goat cheddar at this point.

>

> > What about supplements - Ben needs but his are " illegal " as is

his

> > probiotic.

>

> Legal supplements are on pecanbread, too. There is a nice list of

> legal and illegal additives as well as many specific products that

> are commonly used. A lot of people have either eliminated many

> supplements, and/or found legal replacements. However, this is an

> area where the family's choice is highly respected and it will

> ultimately be up to you to decide what to do. The good news is,

> there are many legal choices out there! Probiotics are specifically

> addressed.

>

> > Do you make your own yogurt - how did you replace " rice milk " or

> the

> > child's desire for a thick drink?

>

> Since you have been CF, I would recommend trying the nut yogurt and

> making some sort of milk drink with it. Homemade nut milk is legal,

> but usually isn't thick because it doesn't contain the highly

> illegal additives the store bought stuff has.

> >

> > So appreciate any input - Feel slightly lost on this as so

> different

> > from his current diet : has HUGE phenol issues - do any of your

> kids

> > and how do you do diet then?

>

> Many on the diet are doing a low-phenol version. You can search the

> archives and find tons of information on avoiding high phenolic

> foods. Also, a lot of people are getting good results by using the

> No-Fenol enzymes by Houston's.

>

> We are very glad you are here and are happy to help you make this

> transition. Please sign your posts with your name, your child's

> name, age, dx, and time on SCD (once you get started!) pecanbread

> has a " getting started " section, great recipes, tips for doing the

> diet, and a lot of other good stuff. Happy reading!

>

>

> son - 5yo ASD, SCD 13 1/2 months

[Guest guest]

How did you know you can not use honey?

> .has HUGE phenol issues - do any of your kids

> >And how do you do diet then?

>

> Doing SCD with phenol issues is not that hard, you just have to be

careful that you don't eliminate all your child's sources of carbs,

that is not healthy.

>

> Luke does fine with cashew or pecan instead of almond, which is

high. He also gets the lower level fruits and veggies, just over and

over again, so not much variety but still plenty intake of those good

carbs. We also cannot use honey with him so we sweeten things with

homemade pear sauce or pineapple juice or sometimes saccharin.

>

> Welcome, and GL!

> in NC

> Mom of Luke, age 5, Asperger's/low-salicylate;

> , age 3; and , 23 mos

> All SCD since 1/26/04

>

> No Mom is an island. but sometimes she needs one!

>

>

>

>

>

>

>

> Starting SCD after 6 months on GF/CF diet -

HELP!!

>

>

> Help! My son (BEn age 4)has regressive autism - and one of the

worst

> guts ever! Half a banana will give still give him diaherra up

and

> down his whole body. He had a bad case of the stomach flu and

ate

> virtually nothing for over 3 days (most importantly no potato or

rice

> or supplements - staples of his GF/CF regimine.

>

> While he was sick - and not eating these things - he basically

potty-

> trained himself, started doing much more imitative play, showing

> affection and interest in other, talking more, etc.

>

> We think all this means we should definitely do the SCD -

essentially

> begun the die-off already.

>

> QUestions: - for those of you that did the non-dairy/caseine

free -

> do you use the yogurt, cheeses, etc. that the diet recommends?

How

> did you know?

>

> What about supplements - Ben needs but his are " illegal " as is

his

> probiotic.

>

> Do you make your own yogurt - how did you replace " rice milk " or

the

> child's desire for a thick drink?

>

> So appreciate any input - Feel slightly lost on this as so

different

> from his current diet : has HUGE phenol issues - do any of your

kids

> and how do you do diet then?

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

How did you know you can not use honey?

> .has HUGE phenol issues - do any of your kids

> >And how do you do diet then?

>

> Doing SCD with phenol issues is not that hard, you just have to be

careful that you don't eliminate all your child's sources of carbs,

that is not healthy.

>

> Luke does fine with cashew or pecan instead of almond, which is

high. He also gets the lower level fruits and veggies, just over and

over again, so not much variety but still plenty intake of those good

carbs. We also cannot use honey with him so we sweeten things with

homemade pear sauce or pineapple juice or sometimes saccharin.

>

> Welcome, and GL!

> in NC

> Mom of Luke, age 5, Asperger's/low-salicylate;

> , age 3; and , 23 mos

> All SCD since 1/26/04

>

> No Mom is an island. but sometimes she needs one!

>

>

>

>

>

>

>

> Starting SCD after 6 months on GF/CF diet -

HELP!!

>

>

> Help! My son (BEn age 4)has regressive autism - and one of the

worst

> guts ever! Half a banana will give still give him diaherra up

and

> down his whole body. He had a bad case of the stomach flu and

ate

> virtually nothing for over 3 days (most importantly no potato or

rice

> or supplements - staples of his GF/CF regimine.

>

> While he was sick - and not eating these things - he basically

potty-

> trained himself, started doing much more imitative play, showing

> affection and interest in other, talking more, etc.

>

> We think all this means we should definitely do the SCD -

essentially

> begun the die-off already.

>

> QUestions: - for those of you that did the non-dairy/caseine

free -

> do you use the yogurt, cheeses, etc. that the diet recommends?

How

> did you know?

>

> What about supplements - Ben needs but his are " illegal " as is

his

> probiotic.

>

> Do you make your own yogurt - how did you replace " rice milk " or

the

> child's desire for a thick drink?

>

> So appreciate any input - Feel slightly lost on this as so

different

> from his current diet : has HUGE phenol issues - do any of your

kids

> and how do you do diet then?

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

How did you know you can not use honey?

> .has HUGE phenol issues - do any of your kids

> >And how do you do diet then?

>

> Doing SCD with phenol issues is not that hard, you just have to be

careful that you don't eliminate all your child's sources of carbs,

that is not healthy.

>

> Luke does fine with cashew or pecan instead of almond, which is

high. He also gets the lower level fruits and veggies, just over and

over again, so not much variety but still plenty intake of those good

carbs. We also cannot use honey with him so we sweeten things with

homemade pear sauce or pineapple juice or sometimes saccharin.

>

> Welcome, and GL!

> in NC

> Mom of Luke, age 5, Asperger's/low-salicylate;

> , age 3; and , 23 mos

> All SCD since 1/26/04

>

> No Mom is an island. but sometimes she needs one!

>

>

>

>

>

>

>

> Starting SCD after 6 months on GF/CF diet -

HELP!!

>

>

> Help! My son (BEn age 4)has regressive autism - and one of the

worst

> guts ever! Half a banana will give still give him diaherra up

and

> down his whole body. He had a bad case of the stomach flu and

ate

> virtually nothing for over 3 days (most importantly no potato or

rice

> or supplements - staples of his GF/CF regimine.

>

> While he was sick - and not eating these things - he basically

potty-

> trained himself, started doing much more imitative play, showing

> affection and interest in other, talking more, etc.

>

> We think all this means we should definitely do the SCD -

essentially

> begun the die-off already.

>

> QUestions: - for those of you that did the non-dairy/caseine

free -

> do you use the yogurt, cheeses, etc. that the diet recommends?

How

> did you know?

>

> What about supplements - Ben needs but his are " illegal " as is

his

> probiotic.

>

> Do you make your own yogurt - how did you replace " rice milk " or

the

> child's desire for a thick drink?

>

> So appreciate any input - Feel slightly lost on this as so

different

> from his current diet : has HUGE phenol issues - do any of your

kids

> and how do you do diet then?

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>