Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 " I am starting to feel very discouraged. Any ideas? " I'd try No Fenol if I were you. If it works for him, then you won't need to avoid all those foods. Also, I didn't see zuchinnin or green beans on your list. Those are not high in phenols. Maybe you could add those into his diet. Jody mom to -5 and -7 SCD 16 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 > " I am starting to feel very discouraged. Any ideas? " > > I'd try No Fenol if I were you. > If it works for him, then you won't need to avoid all those foods. > > Also, I didn't see zuchinnin or green beans on your list. Those > are not high in phenols. Maybe you could add those into his diet. > Jody, on my list of salicylates, zucchini is very high and green beans get hidden under the plate! Certainly his health is more important than his 'druthers and I can have favorite foods offered after the green beans are eaten. The no-phenol enzime concerns me because of one article I read (http://www.autismtoday.com/articles/nophenoldangerous.html). Yes, I know, it was only one little article, but as you all know there is really only so much obsessing a mom can do before it becomes real neglect to the children (sleep is a thing of the past already). If you or anyone else knows more about the necessity of free phenols and can help me understand, I would be so appreciative. Also, how common is it for my child to have thyroid problems? Is this something that can be remidied through healthy SCD or is medication essential? If we choose to use no-phenol, can we really use whatever foods he likes? I mean, it seems to me that they are unhealthy to him for a reason and I would like very much to heal his little gut. Can he still get healthy using this? I certainly will cut out eggs for the week and re-introduce later (the irritability was something we saw last year when we introduced eggs). It just seems that if eggs have no salicylates, how could they affect him the same way? I was so hoping he could eat eggs - that would open up a whole new dietary world for us. Thanks for the ideas! Helen, mom of three, including (9 y/o, ASD, SCD 4 weeks) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Jody, I know I've seen " squash " listed as highly phenolic on several lists, and our girls reacted to zucchini the same way they reacted to butternut and other squashes. Sorry if this doesn't help with the frustration, but would hate to see you try it then wonder where the behaviors were coming from (if there are any). I suppose it's worth a shot to try while at least knowing that it may be a culprit for phenol problems if they show up. --Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Jody, I know I've seen " squash " listed as highly phenolic on several lists, and our girls reacted to zucchini the same way they reacted to butternut and other squashes. Sorry if this doesn't help with the frustration, but would hate to see you try it then wonder where the behaviors were coming from (if there are any). I suppose it's worth a shot to try while at least knowing that it may be a culprit for phenol problems if they show up. --Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 I know you're gonna kill me for this...but we had a problem with the No-Fenol enzyme also. We tried it with my older daughter 4 days after giving her one dose of Diflucan for yeast issues, and after two days of the enzyme she ended up in the hospital for 4 days with metabolic acidosis, vomiting brown/green stomach bile like crazy. When I looked it up later, I found that enzymes potentiate the effect of potent antifungals (we haven't had a problem using it with Nystatin). It was really scary...she slept for most of the time in the hospital and her cheeks were bright red as if trying to burn off whatever was in her system. We almost lost her. Just a word of caution when trying several things at once! As far as the eggs...I just posted this to the sulfurstories group because I think they may be one of our culprits as well. Some kids with phenol problems have trouble processing or detoxifying (or whatever it is) foods that have a high sulfur content. I'm wondering if that's our issue as we're seeing the same reaction to egg whites as we see to other phenolic foods. I'll let you know if I hear anything on it! --Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 I know you're gonna kill me for this...but we had a problem with the No-Fenol enzyme also. We tried it with my older daughter 4 days after giving her one dose of Diflucan for yeast issues, and after two days of the enzyme she ended up in the hospital for 4 days with metabolic acidosis, vomiting brown/green stomach bile like crazy. When I looked it up later, I found that enzymes potentiate the effect of potent antifungals (we haven't had a problem using it with Nystatin). It was really scary...she slept for most of the time in the hospital and her cheeks were bright red as if trying to burn off whatever was in her system. We almost lost her. Just a word of caution when trying several things at once! As far as the eggs...I just posted this to the sulfurstories group because I think they may be one of our culprits as well. Some kids with phenol problems have trouble processing or detoxifying (or whatever it is) foods that have a high sulfur content. I'm wondering if that's our issue as we're seeing the same reaction to egg whites as we see to other phenolic foods. I'll let you know if I hear anything on it! --Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 We are low sal too. The nophenol may or may not work. Or will work for certain foods but not others. Call the Houston Company and they will send you a sample of 12 capsules for free, then you can try it out. It is possible to be allergic to a food and instead of having a skin reaction (or any other typical response that one thinks of) the person reacts behaviorally. A woman I know is allergic to eggs. She finds that if she has too many she gets very irritable. It has nothing to do with Salicylates, it's just an allergic reaction. Check out www.drrapp.com. She has alot of infor on environmental and food allergies that cause brain fog, behavior problems and learning difficulties. The is OT of course. Eggs are the only thing I haven't tried pulling yet. Sam is enjoying his flatbread and cashew butter muffins so much. I've tried egg replacers for the muffins and frankly, they were gross. The only thing keeping me from pulling them completely is that we saw no results when we pulled casein for 4 weeks. My theory about the whole food sensitivity thing for Sam is that because he probably has a leaky gut, large chunks of undigested food are getting into his bloodstream that normally wouldn't and so he reacts to them. I feel like if I keep on the same track with SCD, his gut will heal and he will be less sensitive. Of course keeping foods that he might be reacting to in his diet will probably slow down the healing process. This is my personal opinion and philosophy about my child, your situation could be different. HTH Chrystee Sam, 5 in June, behavior/sensory issues, salicylate sensitive SCD 3 months > If we choose to use no-phenol, can we really use whatever foods he > likes? I mean, it seems to me that they are unhealthy to him for a > reason and I would like very much to heal his little gut. Can he > still get healthy using this? > I certainly will cut out eggs for the week and re-introduce later > (the irritability was something we saw last year when we introduced > eggs). It just seems that if eggs have no salicylates, how could > they affect him the same way? I was so hoping he could eat eggs - > that would open up a whole new dietary world for us. > Thanks for the ideas! > Helen, mom of three, including (9 y/o, ASD, SCD 4 weeks) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 > banana (1 or 2 a day), Please consider pulling the banana. Have you read Karyn Seroussi's book? I had no idea banana was such a problem for us but it did all the things you described (hyper, silly, aggressive etc) but the worst was the sleeping. It totally interrupted his sleep. Caused night waking and that hysterical (FREAKY!) night laughing. Just a thought but for us that one was huge. I'm STILL terrified of bananas. Quote Link to comment Share on other sites More sharing options...
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