Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 martha,,,,,i know what u mean,,,cause i have got denial letters 2 times for april as well,,,so i gave up,,,but what i dont understand one of my cuz got hit in the head by something off of his 18 wheeler truck,,he got approved for ssdi the first time,,and my friends son is 21 and got shot in the leg by a drive by shooting and he got his the first time also,,,,but yet he walks fine,,,,it just dont make no since,,,,,my mom had to fight hers for over 2 years,,,she has really bad problems with her legs,,,but she did get it ,,,when she did she got over $10,000...........so that was a good turn out,,,but i think people with this disease shoudl be getting ssdi,,,,because some people just dont understand how painful and stressful this is to go through,,,,,god bless you and keep your head up,,,,dont give up,,,,because u deserve it!!!!!,,,,,,,,,,crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Martha, I understand what you mean...applying for Disability can be extremely frustrating. I got denied the first time, but my appeal letter must have done the trick because I got it after that. I think you should try one more time, or maybe even talk to another lawyer about what you can do. What helped me was talking to a Social Worker...she seemed to know a lot about appealing this sort of thing. Hope it works out for you, and sorry you are having a hard time. > I am having a big debate and i am so confused about what to do. I > had file for ssdi. I got my first denial and lawyer apeal then just > this week got my second denial. I call the lawyer back and talked to > his sectary she told me that she would send me the paperwork so we > can apeal to the hearing. But she told me it can take up to six > months. And right now my boyfriend not working he is looking but > since we have no car it don't help. So we have no income coming in at > all. I am so torn up about what to do. I know I should keep fighting > but I see it both choices i am taking a chance. IF I wait and file > the apeal hearing and get it that good or if i get denial agian then > i will have wasted over a year. However, if I just decide to go back > to work, I risk losing my medicare, won't be able too do physical > therpy and the risk of cause more stress on an already thin wall. not > to mention being so tired all the time. So I see this as a hard > choice to make. I just want to scream and cry at the same time. Ssdi > said they feel that I could still do a sit down job that dosen't > reauire a lot of getting up and down. I feel that they see me only > as a medical file not a person. Sorry i am rambling I needed to get > this off my chest to someone who has an idea of what I am going > through. > > Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Hi Martha, Your not rambling at all - you're just echoing a jam that many of us find ourselves it (presently, I'm tempted to go to my boss and ask him to LOWER my salary because I may be in a bit of a jam myself in a bit). Is there any chance you can handle a two front war ? I mean re-appeal (with lots of medical certification) and look for a new job? I only say this because it helps to have options. During that six month wait, you might be able to earn a few bucks.... Cy debate > I am having a big debate and i am so confused about what to do. I > had file for ssdi. I got my first denial and lawyer apeal then just > this week got my second denial. I call the lawyer back and talked to > his sectary she told me that she would send me the paperwork so we > can apeal to the hearing. But she told me it can take up to six > months. And right now my boyfriend not working he is looking but > since we have no car it don't help. So we have no income coming in at > all. I am so torn up about what to do. I know I should keep fighting > but I see it both choices i am taking a chance. IF I wait and file > the apeal hearing and get it that good or if i get denial agian then > i will have wasted over a year. However, if I just decide to go back > to work, I risk losing my medicare, won't be able too do physical > therpy and the risk of cause more stress on an already thin wall. not > to mention being so tired all the time. So I see this as a hard > choice to make. I just want to scream and cry at the same time. Ssdi > said they feel that I could still do a sit down job that dosen't > reauire a lot of getting up and down. I feel that they see me only > as a medical file not a person. Sorry i am rambling I needed to get > this off my chest to someone who has an idea of what I am going > through. > > Martha > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 , Thanks I will check that site. I have others problems that make it hard for me. My kidney doctor imform me that I have lost most of my muscle mass. I have one of the worst cases he has seen they have yet to get my swelling under control. Also I have a very thin wall in my kidneys that separtes that blood and urine that can break. Aa well as some other problems. Tendenist in foot, temors, asthma, feet seizures and I am a cyst producer. So it's a really pain, they have me on 9 meds and 3 creams. My last creatine was at (for a 24 hour) 1.0. My cratinine clearance was 73.6 and protein (24 hours) was at 5.28. They have a hard time getting it under control it has yet been any where normal. Since I was diagnose. I was about 98-99 that I was found out. So I am trying to keep postive. martha Quote Link to comment Share on other sites More sharing options...
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