Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Dear and Ed, I remember the terrible depression that consumed me pre-diagnosis. It can be very debilitating. Ed, try to remember that things will get better. For me, the very worst time of all were those four months of being so very sick and not knowing why. I can remember sitting on my couch, staring at the carpet beneath my feet and having to TELL myself to look up. At the same time, my then husband of 18 years decided he didn't want to be married to someone who couldn't work. Admitted he couldn't handle the responsibility. When the diagnosis came through, it was determined that I would probably never be able to work again and he just stepped out of my life. His three wonderful daughters and my son took over and took care of me until I began to improve on the medication. Ed, please confide in us...we've all been where you are now and we know it's temporary. You have . Let her help you through this. Please talk to your doctors about the depression...perhaps they can give you something for this awful waiting period. You are in our thoughts and prayers, Ed. You too, . Some good will come from all this, I promise. Annette Just checking in Good morning all, Thought I would let you know that we are still alive. Ed is not doing well. He is very depressed. He had a friend call yesterday who is starting up a company in his field and wanted Ed to come work with him. Ed also had a really nice job lined up when he retired with the goverment and now he cannot take that posistion. He feels really worthless. He has been having a really tough time as you all know. I bought him a walker so he could get around without me pushing him around in the wheelchair. He will use the walker until he cannot take it anymore then we (the family) take turns getting him from here to there in the chair. I am really worried about his mental state. Please keep him in your prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Dear and Ed, I remember the terrible depression that consumed me pre-diagnosis. It can be very debilitating. Ed, try to remember that things will get better. For me, the very worst time of all were those four months of being so very sick and not knowing why. I can remember sitting on my couch, staring at the carpet beneath my feet and having to TELL myself to look up. At the same time, my then husband of 18 years decided he didn't want to be married to someone who couldn't work. Admitted he couldn't handle the responsibility. When the diagnosis came through, it was determined that I would probably never be able to work again and he just stepped out of my life. His three wonderful daughters and my son took over and took care of me until I began to improve on the medication. Ed, please confide in us...we've all been where you are now and we know it's temporary. You have . Let her help you through this. Please talk to your doctors about the depression...perhaps they can give you something for this awful waiting period. You are in our thoughts and prayers, Ed. You too, . Some good will come from all this, I promise. Annette Just checking in Good morning all, Thought I would let you know that we are still alive. Ed is not doing well. He is very depressed. He had a friend call yesterday who is starting up a company in his field and wanted Ed to come work with him. Ed also had a really nice job lined up when he retired with the goverment and now he cannot take that posistion. He feels really worthless. He has been having a really tough time as you all know. I bought him a walker so he could get around without me pushing him around in the wheelchair. He will use the walker until he cannot take it anymore then we (the family) take turns getting him from here to there in the chair. I am really worried about his mental state. Please keep him in your prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Dear and Ed, I remember the terrible depression that consumed me pre-diagnosis. It can be very debilitating. Ed, try to remember that things will get better. For me, the very worst time of all were those four months of being so very sick and not knowing why. I can remember sitting on my couch, staring at the carpet beneath my feet and having to TELL myself to look up. At the same time, my then husband of 18 years decided he didn't want to be married to someone who couldn't work. Admitted he couldn't handle the responsibility. When the diagnosis came through, it was determined that I would probably never be able to work again and he just stepped out of my life. His three wonderful daughters and my son took over and took care of me until I began to improve on the medication. Ed, please confide in us...we've all been where you are now and we know it's temporary. You have . Let her help you through this. Please talk to your doctors about the depression...perhaps they can give you something for this awful waiting period. You are in our thoughts and prayers, Ed. You too, . Some good will come from all this, I promise. Annette Just checking in Good morning all, Thought I would let you know that we are still alive. Ed is not doing well. He is very depressed. He had a friend call yesterday who is starting up a company in his field and wanted Ed to come work with him. Ed also had a really nice job lined up when he retired with the goverment and now he cannot take that posistion. He feels really worthless. He has been having a really tough time as you all know. I bought him a walker so he could get around without me pushing him around in the wheelchair. He will use the walker until he cannot take it anymore then we (the family) take turns getting him from here to there in the chair. I am really worried about his mental state. Please keep him in your prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 You really have a handfull. There are times when one member of the family has to be strong for the rest. It's bad enough (and depressing enought) when you know what you have but the uncertainty and not knowing is the worst. I had always been a very independent person and to go from that to someone who couldn't even position herself in a chair, etc. was a hard thing to handle. I function now with a few limitations but even after 6 yrs depression still sneaks in at times. If it's any comfort to Ed, things will get better and once he knows what he has he can fight it. My prayers are with both of you. hugs Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 You really have a handfull. There are times when one member of the family has to be strong for the rest. It's bad enough (and depressing enought) when you know what you have but the uncertainty and not knowing is the worst. I had always been a very independent person and to go from that to someone who couldn't even position herself in a chair, etc. was a hard thing to handle. I function now with a few limitations but even after 6 yrs depression still sneaks in at times. If it's any comfort to Ed, things will get better and once he knows what he has he can fight it. My prayers are with both of you. hugs Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Hi ! I feel the same way does...angry that it's taken so long to get Ed treatment! Everyone else has given wonderful advice. Yes, we fall into a black hole of depression. I know I didn't even recognize myself those months before treatment began. makes great points...men do handle this differently. Their identities are so tied up in being the bread winner, of being macho and not admitting to weakness. To have to pass on a job offered from a friend has got to be one heck of a blow. Any chance you can talk him into seeing a counselor? I know a lot falls on your shoulders, , but can you call his primary doc...and lay it all out, as suggests, before too much time passes. The thing with the military docs is not to get too emotional...lay out facts, symptoms and the effects you're seeing...and then ask them " What steps are you going to take and how fast will you take them now that Ed's situation has been allowed to get to crisis? " I wish I had more advice...except give him love and hugs and understanding, but don't let him wallow in self-pity. Geez...building the Eiffel tower might be easier...but Ed is such a good guy. Sic Endora on him, too! You, Ed and the kids are in my prayers! Hugs, Lynn --- edsmary84 wrote: > Good morning all, > > Thought I would let you know that we are still > alive. Ed is not > doing well. He is very depressed. He had a friend > call yesterday > who is starting up a company in his field and wanted > Ed to come work > with him. Ed also had a really nice job lined up > when he retired > with the goverment and now he cannot take that > posistion. He feels > really worthless. He has been having a really tough > time as you all > know. I bought him a walker so he could get around > without me > pushing him around in the wheelchair. He will use > the walker until > he cannot take it anymore then we (the family) take > turns getting him > from here to there in the chair. I am really > worried about his > mental state. Please keep him in your prayers. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Oh , Your post brought tears to my eyes. I am so sorry that Ed is having such a rough time. Hopefully, he is getting close to a dx. I can't really say if became depressed because he was so young. Just about to turn 3. I do remember that he kept talking when previously he had talked all the time. He also stopped laughing and smiling. So, I guess he probably was experiencing depression. I know it is painful to watch a loved one go through this and the frustration of not being able to " fix " it. You can be sure that you are both in my thoughts. Keep us up to date on how Ed, and you too, are doing. Tell Ed I am sending positive thoughts his way. Hugs, Cari > >Reply-To: OurMyositis >To: OurMyositis >Subject: Just checking in >Date: Tue, 12 Feb 2002 16:30:00 -0000 > >Good morning all, > >Thought I would let you know that we are still alive. Ed is not >doing well. He is very depressed. He had a friend call yesterday >who is starting up a company in his field and wanted Ed to come work >with him. Ed also had a really nice job lined up when he retired >with the goverment and now he cannot take that posistion. He feels >really worthless. He has been having a really tough time as you all >know. I bought him a walker so he could get around without me >pushing him around in the wheelchair. He will use the walker until >he cannot take it anymore then we (the family) take turns getting him >from here to there in the chair. I am really worried about his >mental state. Please keep him in your prayers. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 , I am sorry to hear that Ed is down. I know that this disease is hard and especially with all he is going through trying to get a diagnosis. That is the hardest part-the not knowing. Let him know we are thinking about him and miss that 'Ever-lovin' Duck' and his quit wit!!! Zanna Quote Link to comment Share on other sites More sharing options...
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