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Could someone please repost the web address for the jungle packs? I

do apologize for asking because I know it has been posted several times, but

we have a new computer now and I have lost all that data. Thanks much.

Also, just FYI, there is another virus called W32 annoying virus that my

virus scan has caught for the 3rd time. We just got the computer last

Monday and I only have this list serv and another CI forum in my address

book. But someone must have the virus and not cleaned their computer yet.

Could everyone, just as a precautionary measure, run a virus scan on their

machines? Thanks much. Tish

Question

>

>

> Does anyone know what section of the Jungle Stuff site the fanny pack is

> under since they changed it?

> Thanks,

> Elaine

>

> Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99

>

>

>

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Could someone please repost the web address for the jungle packs? I

do apologize for asking because I know it has been posted several times, but

we have a new computer now and I have lost all that data. Thanks much.

Also, just FYI, there is another virus called W32 annoying virus that my

virus scan has caught for the 3rd time. We just got the computer last

Monday and I only have this list serv and another CI forum in my address

book. But someone must have the virus and not cleaned their computer yet.

Could everyone, just as a precautionary measure, run a virus scan on their

machines? Thanks much. Tish

Question

>

>

> Does anyone know what section of the Jungle Stuff site the fanny pack is

> under since they changed it?

> Thanks,

> Elaine

>

> Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99

>

>

>

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Could someone please repost the web address for the jungle packs? I

do apologize for asking because I know it has been posted several times, but

we have a new computer now and I have lost all that data. Thanks much.

Also, just FYI, there is another virus called W32 annoying virus that my

virus scan has caught for the 3rd time. We just got the computer last

Monday and I only have this list serv and another CI forum in my address

book. But someone must have the virus and not cleaned their computer yet.

Could everyone, just as a precautionary measure, run a virus scan on their

machines? Thanks much. Tish

Question

>

>

> Does anyone know what section of the Jungle Stuff site the fanny pack is

> under since they changed it?

> Thanks,

> Elaine

>

> Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99

>

>

>

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Hi Tish,

Here's the address:

http://www.junglestuff.com/

Re: Question

Could someone please repost the web address for the jungle packs? I

do apologize for asking because I know it has been posted several times,

but

we have a new computer now and I have lost all that data. Thanks much.

Also, just FYI, there is another virus called W32 annoying virus that

my

virus scan has caught for the 3rd time. We just got the computer last

Monday and I only have this list serv and another CI forum in my address

book. But someone must have the virus and not cleaned their computer yet.

Could everyone, just as a precautionary measure, run a virus scan on their

machines? Thanks much. Tish

Question

>

>

> Does anyone know what section of the Jungle Stuff site the fanny pack

is

> under since they changed it?

> Thanks,

> Elaine

>

> Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99

>

>

>

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At 11:11 AM 8/13/01 -0400, you wrote:

>Hi Tish,

>

>Here's the address:

>

>http://www.junglestuff.com/

>

>

We have been very happy with their product. The stretchy material fits the

Sprint with the double battery pack and two spares.

Another item you may be interested in is spare batteries. We've been

testing some nickel metal hydride (cellphone-type) batteries for about a

month in 's processor and they have worked great. NiMH batteries

have about 1/3 longer life and do not have to be fully discharged in order

to be fully recharged (memory problem). The cost is $9.99 for four AA

batteries. www.gotbatteries.com, part number TP4AANIMH. Shipping was $3.99

via priority mail. So far, these have worked out great, cheaper than

Cochlear and Rat Shack and a better type of battery to boot.

I apologize if Kay already has this resource on her site.

Chris

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> I apologize if Kay already has this resource on her site.

Never apologize. Folks might not have run across it and I would rather it be

repeated than

have them miss info that can be helpful to them.

Believe it or not, I didn't have this on my site - but I will soon correct that.

;-)

Thanks Chris!

Kay

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Those fanny packs are cute, but I've been looking for one with a little

padding to keep the Phonic remote in. Does anyone have a link for that?

Randie

Reply-To: Listen-Up

To: <Listen-Up >

Subject: Re: Question

Date: Mon, 13 Aug 2001 06:25:06 -0500

> Does anyone know what section of the Jungle Stuff site the fanny pack is

> under since they changed it?

It's under CI Fanny Packs.

http://www.junglestuff.com/

or, if you want a direct link without the frames, you can get there with

this link:

http://www.junglestuff.com/cipacks.htm

Kay

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Those fanny packs are cute, but I've been looking for one with a little

padding to keep the Phonic remote in. Does anyone have a link for that?

Randie

Reply-To: Listen-Up

To: <Listen-Up >

Subject: Re: Question

Date: Mon, 13 Aug 2001 06:25:06 -0500

> Does anyone know what section of the Jungle Stuff site the fanny pack is

> under since they changed it?

It's under CI Fanny Packs.

http://www.junglestuff.com/

or, if you want a direct link without the frames, you can get there with

this link:

http://www.junglestuff.com/cipacks.htm

Kay

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Check out the Tune Belts web site. I think, www.tunebelt.com

I just put in an order for one and am waiting for it to come. It has a

wide, elastacized belt that looks like it would fit snugly to the body. I

don't know how much padding the actual pouch has, but maybe you can tell if

it's what you want in the picture.

Re: Question

> Date: Mon, 13 Aug 2001 06:25:06 -0500

>

> > Does anyone know what section of the Jungle Stuff site the fanny pack

is

> > under since they changed it?

>

> It's under CI Fanny Packs.

> http://www.junglestuff.com/

> or, if you want a direct link without the frames, you can get there with

> this link:

> http://www.junglestuff.com/cipacks.htm

>

> Kay

>

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

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Check out the Tune Belts web site. I think, www.tunebelt.com

I just put in an order for one and am waiting for it to come. It has a

wide, elastacized belt that looks like it would fit snugly to the body. I

don't know how much padding the actual pouch has, but maybe you can tell if

it's what you want in the picture.

Re: Question

> Date: Mon, 13 Aug 2001 06:25:06 -0500

>

> > Does anyone know what section of the Jungle Stuff site the fanny pack

is

> > under since they changed it?

>

> It's under CI Fanny Packs.

> http://www.junglestuff.com/

> or, if you want a direct link without the frames, you can get there with

> this link:

> http://www.junglestuff.com/cipacks.htm

>

> Kay

>

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

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Check out the Tune Belts web site. I think, www.tunebelt.com

I just put in an order for one and am waiting for it to come. It has a

wide, elastacized belt that looks like it would fit snugly to the body. I

don't know how much padding the actual pouch has, but maybe you can tell if

it's what you want in the picture.

Re: Question

> Date: Mon, 13 Aug 2001 06:25:06 -0500

>

> > Does anyone know what section of the Jungle Stuff site the fanny pack

is

> > under since they changed it?

>

> It's under CI Fanny Packs.

> http://www.junglestuff.com/

> or, if you want a direct link without the frames, you can get there with

> this link:

> http://www.junglestuff.com/cipacks.htm

>

> Kay

>

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

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  • 6 months later...

Dawn... That's the reality and the mystery we all experience. It's reality

to us, and seems to be a real " mystery " to the medical experts. Annette

Question

I found out my CK was 384 yesterday, which is the very lowest yet. My

question is this: why is my pain not subsiding and somedays even seems

worse than ever if my #'s are going down? I see my Rhuemy on March 5th

and if my #'s are down, I believe he'll think I'm " all better " and pain

free. Thanks.

Dawn

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Dawn,

Rheumy's have a tendancy to believe if your cpk is down you are feeling better. Well, the simple fact is is that you still have muscle damage that is not going away. I have found that I have had worse pain with lower cpk and been suprised that I feel well with higher ones.. I always say-the only thing you can be sure of with myositis is that you can't be sure of anything!!! Tell your rhuemy that. Your level of pain and good days does not always go along with the level of your cpk.

Take care,

Good news on the cpk.

Zanna

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Dawn - My doc said even tho the CPK comes down, the

muscles are still damaged...so, just cause numbers are

down..the muscles are still damaged. Be patient. She

wants me to swim for exercise.

Lynn

--- Dawn Green wrote:

> I found out my CK was 384 yesterday, which is the

> very lowest yet. My

> question is this: why is my pain not subsiding and

> somedays even seems

> worse than ever if my #'s are going down? I see my

> Rhuemy on March 5th

> and if my #'s are down, I believe he'll think I'm

> " all better " and pain

> free. Thanks.

>

> Dawn

>

>

>

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Dawn - My doc said even tho the CPK comes down, the

muscles are still damaged...so, just cause numbers are

down..the muscles are still damaged. Be patient. She

wants me to swim for exercise.

Lynn

--- Dawn Green wrote:

> I found out my CK was 384 yesterday, which is the

> very lowest yet. My

> question is this: why is my pain not subsiding and

> somedays even seems

> worse than ever if my #'s are going down? I see my

> Rhuemy on March 5th

> and if my #'s are down, I believe he'll think I'm

> " all better " and pain

> free. Thanks.

>

> Dawn

>

>

>

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Dawn,

's CPK numbers were in the normal range for a couple of months before

the muscles caught up. Hang in there. It will happen.

Cari

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Question

>Date: Wed, 20 Feb 2002 17:56:59 -0800 (PST)

>

>Dawn - My doc said even tho the CPK comes down, the

>muscles are still damaged...so, just cause numbers are

>down..the muscles are still damaged. Be patient. She

>wants me to swim for exercise.

>

>Lynn

>

>--- Dawn Green wrote:

> > I found out my CK was 384 yesterday, which is the

> > very lowest yet. My

> > question is this: why is my pain not subsiding and

> > somedays even seems

> > worse than ever if my #'s are going down? I see my

> > Rhuemy on March 5th

> > and if my #'s are down, I believe he'll think I'm

> > " all better " and pain

> > free. Thanks.

> >

> > Dawn

> >

> >

> >

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  • 2 weeks later...
Guest guest

My pulse rate was 101 today. My bp was 161 over 100. I am high. I don't know if it is because of my higher meds but my heart seems to be racing lately. You have a bp cuff at home?? I did mine at Target today. I think I will call the doc tomorrow.

Zanna

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Guest guest

Sorry you're feeling bad Vicki.

{{{Healing Hugs}}}

Ed from United States

>

> Ok, I've not felt good all day long. Tried to get up and move

around

> but that makes it worse. I get short of breath doing the least

little

> thing. Tonight while sitting up in bed I took my blood pressure

because

> I felt like my heart was racing...

> It was:

>

> Blood Pressure: 141/68

> Pulse rate: 102

>

> I think that pulse rate is high...don't you?

>

> Vicki

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Guest guest

Hi Vicki...so sorry your feeling so bad hun!!!!

70 to 100 beats per minute is considered in the

normal range, so your really right there at the top end of normal.

Its not considered Tachycardia (or rapid heart rate) till your over 120bpm's.

Hope this helps and that you can get to feeling better friend.

BIG hugs,

anzavic@... wrote:

Ok, I've not felt good all day long.

Tried to get up and move around

but that makes it worse. I get short

of breath doing the least little

thing. Tonight while sitting up in

bed I took my blood pressure because

I felt like my heart was racing...

It was:

Blood Pressure: 141/68

Pulse rate: 102

I think that pulse rate is high...don't you?

Vicki

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Guest guest

> My pulse rate was 101 today. My bp was 161 over 100. I am high.

I don't

> know if it is because of my higher meds but my heart seems to be

racing

> lately. You have a bp cuff at home?? I did mine at Target today.

I think I

> will call the doc tomorrow.

>

> Zanna

Hi Zanna,

A lot of simple things could be the answer. In Target, it's a little

inconvenient, but people would probably hardly notice....just gently

take of your bra, pantyhose , etc, and casually take your blood

pressure again, and see if there's a big difference!

YEP!!! I'M ONLY KIDDIN YA!! [but living so close to a retirement

Community, I have seen it almost that bad in the stores, and Long's

Drug Store, etc.] Janie

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Guest guest

> My pulse rate was 101 today. My bp was 161 over 100. I am high.

I don't

> know if it is because of my higher meds but my heart seems to be

racing

> lately. You have a bp cuff at home?? I did mine at Target today.

I think I

> will call the doc tomorrow.

>

> Zanna

Hi Zanna,

A lot of simple things could be the answer. In Target, it's a little

inconvenient, but people would probably hardly notice....just gently

take of your bra, pantyhose , etc, and casually take your blood

pressure again, and see if there's a big difference!

YEP!!! I'M ONLY KIDDIN YA!! [but living so close to a retirement

Community, I have seen it almost that bad in the stores, and Long's

Drug Store, etc.] Janie

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Guest guest

> My pulse rate was 101 today. My bp was 161 over 100. I am high.

I don't

> know if it is because of my higher meds but my heart seems to be

racing

> lately. You have a bp cuff at home?? I did mine at Target today.

I think I

> will call the doc tomorrow.

>

> Zanna

Hi Zanna,

A lot of simple things could be the answer. In Target, it's a little

inconvenient, but people would probably hardly notice....just gently

take of your bra, pantyhose , etc, and casually take your blood

pressure again, and see if there's a big difference!

YEP!!! I'M ONLY KIDDIN YA!! [but living so close to a retirement

Community, I have seen it almost that bad in the stores, and Long's

Drug Store, etc.] Janie

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