A Little (BIG) Celebration !!!

[Guest guest]

I can't hold this in any longer and NO ONE around here can appreciate

it..I have to share this with SOMEONE !!!!....My CPK was

97!!!....My name is Jacqui (Duluth, MN)...I was stung by a hornet on

Aug. 23 and that seem to set everything off again...On 09-18 my CPK

was 1,598 (better than 15,217 when I first got this in 1988), but

still out of the normal range...He put me on 40 mg. Pred. and 150 mg.

Imuran for 10 days, then down to 30 Pred. for 10 days, 20 for 10 days

and so on...Right now I'm down to 10 mg. Pred and 150 mg. Imuran

everyday...I'm still having bad side affects from the Pred., but the

numbers are down in the normal range and I'm slowly reducing the

Pred. and by early next year, I should be off of the pred. all

together.....YEAH...YEAH...Happy Dance...Happy Dance.....I have

absolutley NO strength or stamina, I feel like crap all day & can't

sleep at night and my house looks like I'm getting ready for a

Rummage Sale or something, but WHO CARES...The Pred./Imuran worked

again (THANK YOU GOD)and the numbers are back in the normal range!!!I

still get out with the dogs twice a day for our walks, but spend the

rest of the day laying on the couch...Taking a shower *drains* me of

all energy (did you catch that - *drains*me), but WHO CARES...I

really put the lbs. on this time and it is really affecting my

breathing more than it ever has...I think it's the extra weight that

is causing the worse breathing problem...I have pulmon. fibrosis from

the interstitial lung disease, but the PFT didn't show much of a

change (THANK YOU GOD, once again)- so I figure it has to be the

extra weight...My face is so HUGE, I'm kind of embarrassed to go out

in public right now...That will get smaller with the lower Pred.

amount...and it doesn't bother my poochies at all...They love me no

matter what I look like, just so they keep getting their food and

walks...LOL...Well, I don't want to get too carried away here, but

since my Mom died in April - I don't have any family members close by

that even care if I'm sick or not...I have two siblings within

walking distance of me, but they're too caught up in their own lives

to even ask how I'm doing...That's fine, but it would be nice if one

would just call and say " How ya feeling, Jac? " , but it's not going to

happen, so why dwell on it...Life goes on and my CPK was

97 !!!!...OK, I'll stop now and say *Toodles*...Sorry, if this brag

offends anyone, BUT I'm very happy and that's what this list is

for...Sharing the GOOD and the BAD times...THANKS for listening...

Jacqui, Kodi(I happy Mom is feeling better),

Casey(Hey,is it time to eat yet?)and

Timmy the Timneh(Why are those two nit-wits always going

outside-it's cold out there!!!...Peanut,

where are my peanuts??...Hi..Hi..Hi..Hi..)