Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Welcome Dan.. even if you do turn into a wolfman!!! hehehe I loved that one... 'until my razor blade bill got ridiculous' heheheheh Your name looks familiar.. have we run into each other before? An epidemiologist... so you can explain some of the chemistry things to us a bit better? We might put you to work around here!!! hehehhehe How are your labs looking now and what meds are you on? And a question about liver enzymes.... what does having elevated liver enzymes mean as far as health/symptoms? Topper () *whos happy to have another feller around here, makes my hairy legs less noticeable (don't worry, Dan, you'll learn that history of that remark in time! hehehehe)* On Tue, 07 Jun 2005 21:13:37 -0000 "Dan Strickland" writes: Thought I'd join this bunch; see what you're all about. I havehashimotos, diagnosed, oh, 10 years ago or so, when I was late 40's(and, yes, I'm a male variety person -) because I was wanting to getback into choral singing but my voice had become kind of rough. Andafter I went on meds I noticed my hands & feet didn't get cold somuch. But other than that, I didn't really notice that much in the wayof symptoms. As I told my doc at the time, if you took 10 years or soto do it, you could turn me into Wolfman and I wouldn't notice untilmy razor blade bill got ridiculous.By the way, I am a PhD level epidemiologist, so I know my way aroundmedical research. One interesting bit of research I saw a few monthsago was a paper showing that people on thyroid meds had a higherprevalence of elevated liver enzymes, presumably from incipient fattyliver - so get those liver enzymes checked periodically, people! Andexercise! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Hmmm, okay, I'll just let the hairy legs remark go right by - although it is a rather strange American fetish. Anyway, onward. I lived in Minneapolis in the late 80's, is that where we may have met? My labs - ummmm, don't really do them all that often - twice a year, usually. I work for a very large integrated health care system, as director of research for their largest region (You detective types now have enough information to exactly describe me), and this VLIHCS uses levothroid as the standard - I had been on synthroid, then we did a switch, everybody checked hormone levels after 6 weeks, and now here we are. Labs usually are just TSH, although I have asked to check free T3/4 a couple of time. Always within normal range, whatever that means. And I take 125 mcg's 4 times per week and 150mcgs 3 times a week. Kinda a keep an eye on levels by watching my resting pulse rate (Wow! Only 48! And I hardly exercise at all.....wait a minute...). Liver enzymes can indicate a wide variety of things, from myocardial infarct to cirrhosis to metabolic syndrome. In the case of fatty liver, that's a common problem close to metabolic syndrome. ~sigh~ And usually asymptomatic, except making it difficult to lower weight and serum lipids, trigs especially. As for the chemistry, I'll do my best but in all honesty it's been quite a while - like since undergrad school..... .................dan > Welcome Dan.. even if you do turn into a wolfman!!! hehehe I loved that > one... 'until my razor blade bill got ridiculous' heheheheh > > Your name looks familiar.. have we run into each other before? > > An epidemiologist... so you can explain some of the chemistry things to > us a bit better? We might put you to work around here!!! hehehhehe > > How are your labs looking now and what meds are you on? > > And a question about liver enzymes.... what does having elevated liver > enzymes mean as far as health/symptoms? > > Topper () *whos happy to have another feller around here, makes my > hairy legs less noticeable (don't worry, Dan, you'll learn that history > of that remark in time! hehehehe)* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Welcome!! UUUUUUUUUHHHHHHHHH.......what is you PHD in, please use lamens terms. Can you throw a citiation out there for me? I dabble into the research also and suprisingly a lot of things treatment, recovery, and body compensation for the thyroid disease have the liver as a prime factor i suspect from my readings. You research thyroid much, if you do i may have found a new friend, LOL. Darn it I am almost over the headache from my last excursion into thyroid reseaerch.......started with TSH receptor antibodies and somehow ended up reading about a short feed back system for TSH that is actually controlled by TSH, but you have perked my interest. Wondering if they excluded any other drugs, and how many times a day levels were checked, I would suspect people on meds would would have a higher flucuation ratio since one big factor for enzyme production is subject to one high daily intake, another factor could be how long these patients had been untreated and how long they had been optimized on meds. Most of your metabolic disorders can cause build up of several things to a degree. OH NO there i go again. > Thought I'd join this bunch; see what you're all about. I have > hashimotos, diagnosed, oh, 10 years ago or so, when I was late 40's > (and, yes, I'm a male variety person -) because I was wanting to get > back into choral singing but my voice had become kind of rough. And > after I went on meds I noticed my hands & feet didn't get cold so > much. But other than that, I didn't really notice that much in the way > of symptoms. As I told my doc at the time, if you took 10 years or so > to do it, you could turn me into Wolfman and I wouldn't notice until > my razor blade bill got ridiculous. > > By the way, I am a PhD level epidemiologist, so I know my way around > medical research. One interesting bit of research I saw a few months > ago was a paper showing that people on thyroid meds had a higher > prevalence of elevated liver enzymes, presumably from incipient fatty > liver - so get those liver enzymes checked periodically, people! And > exercise! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 All the info is still flying around in the empty void i call my brain, LOL. Gonna have to get a good drunken stpior here soon to get them to settle down and stay in one place so i know where they are. LOL Not a whole lot of research has been done on the actuall receptors, very complicated little bugers, but some of the work that has been done was quite amazeing, I would never hide anything.....just waiting to remeber what I read. I could just smell the testosterone in this estrogen dominat groups i belong to. ROFL > Out of 800 some members we have maybe 25 or 30 guys (anyone counted > lately???) and here two of you have to chum together right away and leave > AALLL us females by ourselves!!! hehehehehehe > > hehehehe > > I couldn't resist that, sorry guys!!! hehehehehe > > Okay, ... talking about TSH receptors... perks up my ears... I need > to spend more time researching my lovely genetics.. not that it will make > any difference to me anymore.. but might help the 10 or 15 other people > on the planet that have this!! hehehe > > Anyway.. you guys come up with anything profound, you'll share it with > the rest of us, right??? > > Topper ()*the one that has the genetically defunct TSH receptors and > went through 20 years of hyper, then a year of thyroid storm, then RAI... > and now live with no thyroid gland* > > On Tue, 07 Jun 2005 23:06:11 -0000 " jeneric46324 " > <jeneric46324@y...> writes: > > Welcome!! UUUUUUUUUHHHHHHHHH.......what is you PHD in, please use > lamens terms. Can you throw a citiation out there for me? I dabble > into the research also and suprisingly a lot of things treatment, > recovery, and body compensation for the thyroid disease have the liver > as a prime factor i suspect from my readings. You research thyroid > much, if you do i may have found a new friend, LOL. > > > Darn it I am almost over the headache from my last excursion into > thyroid reseaerch.......started with TSH receptor antibodies and > somehow ended up reading about a short feed back system for TSH that is > actually controlled by TSH, but you have perked my interest. Wondering > if they excluded any other drugs, and how many times a day levels were > checked, I would suspect people on meds would would have a higher > flucuation ratio since one big factor for enzyme production is subject > to one high daily intake, another factor could be how long these > patients had been untreated and how long they had been optimized on > meds. Most of your metabolic disorders can cause build up of several > things to a degree. OH NO there i go again. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 -Oh topper, you haven't changed the color yet?? Everyone told me about your blue braids when i first got here and i know that has been more than a month. Time to change that color don't you think?? how bout rainbow?? LOL.. (tdybear5150) -- In The_Thyroid_Support_Group , topper2@j... wrote: > You're talking about my blue braids again!!! > > eeeeekkkkkkkkk > > hehehehehe > > Topper () > > On Tue, 7 Jun 2005 19:43:48 -0500 " Feisty\(ThyroFeisty\) " > <thyrofeisty@g...> writes: > < snip > > > About Topper's hairy legs......she has them braided in blue, thanks to > getting better thyroid hormone replacement for her.... > Now I better run and hide.... > Feisty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Nice definition - and thanks for the defense, being overwhelmed is not useful - but I did make the offer, and what I can do is keep track of the population-based studies of thyroid disorders. The lab stuff, eh, forget it. Epidemiology is basically a toolbox, and while most of us are specialists I've tried to remain a generalist. And most of us build our careers by writing grant proposals that are fundable by the NIH, so we perforce focus on areas that are heavily funded. This tends to make a lot of us into cancer specialists, for example. I find leprosy very interesting, but I'm sure never going to be able to do any funded studies in it. Most of my work has been in Parkinson's Disease, more recently in asthma and am starting to dabble in autism. So how's that hodge-podge link up with hashimotos or graves? Auto-immune diseases, folks, are a vast understudied world. ...........dan > > > > > > Welcome!! UUUUUUUUUHHHHHHHHH.......what is you PHD in, please use > > lamens terms. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 No names needed about nailing your incompetent doc. My VLIHCS doesn't have a branch in Minnesota....and all our docs are damn good! .................dan > Short story.. hairy legs disappeared during my 'bad hypo' years... and > when I got my hormone levels up and started on adrenal support they got > hairy again... they are my little badges of honor in my getting better!!! > Old running gag... but still valid. > > Late 80's... I was driving truck for a pet supply wholesaler... 5 state > area... living in St. ... Maybe I'll remember why your name sparks my > memory... Met a lot of folks during those years... > > You need to test more than just TSH... and it needs to be in the proper > range of 'in normal range'.... > > Oh oh.. large health care system?? I won't name names..but you weren't > involved in my dealings when I tried to nail the butt of the doc that did > this to me....? We'll take this off list... just to be sure not name > major names and get my flabby fanny in jail for slander... but > ooooooohhhhhhhh how I would love to name those names!!! hehehehe oh, no.. > that was in 90/91 that I went through all of that... and 93 or so when I > was getting so bad that I got angry enough to go after his license. > > If you get a chance.. see if you can get the results, and lab ranges, of > the last labs you had done... Lets see where you are at... and run > through symptoms again and see what comes up. > > Topper () *who still fantasizes of a dark alley, a crutch, a wind up > and a swing, and that doc's fat head* > > > On Tue, 07 Jun 2005 22:30:33 -0000 " Dan Strickland " > <danstrickland2001@y...> writes: > Hmmm, okay, I'll just let the hairy legs remark go right by - although > it is a rather strange American fetish. Anyway, onward. I lived in > Minneapolis in the late 80's, is that where we may have met? My labs - > ummmm, don't really do them all that often - twice a year, usually. I > work for a very large integrated health care system, as director of > research for their largest region (You detective types now have enough > information to exactly describe me), and this VLIHCS uses levothroid > as the standard - I had been on synthroid, then we did a switch, > everybody checked hormone levels after 6 weeks, and now here we are. > Labs usually are just TSH, although I have asked to check free T3/4 a > couple of time. Always within normal range, whatever that means. And I > take 125 mcg's 4 times per week and 150mcgs 3 times a week. Kinda a > keep an eye on levels by watching my resting pulse rate (Wow! Only 48! > And I hardly exercise at all.....wait a minute...). Liver enzymes can > indicate a wide variety of things, from myocardial infarct to > cirrhosis to metabolic syndrome. In the case of fatty liver, that's a > common problem close to metabolic syndrome. ~sigh~ And usually > asymptomatic, except making it difficult to lower weight and serum > lipids, trigs especially. As for the chemistry, I'll do my best but in > all honesty it's been quite a while - like since undergrad school..... > ................dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Ahem. Yes, Why am I here. Well, why not, you know? I feel fine frankly, so I'm not looking for how to improve treatments, although one does have to adjust a bit. Need to watch calorie intake more than in the old days, need to be careful of fads. For example, despite strong endorsements from a couple of the guys in my department, both docs, the low-carb diets really made me tired. I noticed when I was riding my bike home, which is harder in the evening because while I live about 5 miles from my office, in the morning it's downhill. So in the evening, on a long uphill grade, while doing the low-carb thing I had to stop 3-4 times, where I might have to stop once if the weather's hot. So, blaaahh! I have no idea if that's a thyroid thing, but evidentally I'm not someone for whom low-carb diets are relevant. So perhaps what I'm looking for listening to what goes on with thyroiditis patients, maybe get some research ideas, see how things apply to my condition, and the like. I will dig up my labs - been meaning to do that for a while anyway - since you guys seem to be into that - but they're really pretty boring. And I'll stick my oar into the conversation from time to time. .......................dan > We have someone wander amongst our ranks that has wondered if there is > any link between autism and thyroid disorder... Maybe they'll catch this > and jump in again.... > > Before we put you to work, Dan... we should work on you.. that's what > you're here for, right? So tell us more about what brought you here in > the first place and get us refocused on that first! > > hehehehe > > Topper () > > On Wed, 08 Jun 2005 05:09:03 -0000 " Dan Strickland " > <danstrickland2001@y...> writes: > Nice definition - and thanks for the defense, being overwhelmed is not > useful - but I did make the offer, and what I can do is keep track of > the population-based studies of thyroid disorders. The lab stuff, eh, > forget it. Epidemiology is basically a toolbox, and while most of us > are specialists I've tried to remain a generalist. And most of us > build our careers by writing grant proposals that are fundable by the > NIH, so we perforce focus on areas that are heavily funded. This tends > to make a lot of us into cancer specialists, for example. I find > leprosy very interesting, but I'm sure never going to be able to do > any funded studies in it. Most of my work has been in Parkinson's > Disease, more recently in asthma and am starting to dabble in autism. > So how's that hodge-podge link up with hashimotos or graves? > Auto-immune diseases, folks, are a vast understudied world. > ..........dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 But I'm not hypo!, he protested, I'm on meds. Although with the jiggering that diabetics do with their insulin, it seems odd that we don't do much more than pop a very small pill once a day. My dose, BTW, is 125 4 days/week, and 150 three days. Took a little while to titrate, esp. when I first started and my thyroid went into its dying spasms ( " Whoa, look how low my heart rate is - and I don't even work out that much " flipped over to " Why am I waking up at this time of night feeling overheated in a 66deg house in winter " ) but things are pretty steady now. Still, the stuff (levothroid and the like) has something like a 72 hour half-life, so I guess the little tweaking really isn't needed. But diabetics sure get a lot more press. ..................dan > Hypos tend to assimilate carbs the easiest, often why we crave them, they > give us the energy that we need with less overhead (work for the body to > process). > > What is your current dose? I don't remember if you've said that yet or > not... > > Before the RAI and becoming hypo... about the only carbs I did was the > occasional potato or chocolate bar... I was a major carnivore... now I > have to be careful with balance... not enough protein and I carb trigger > (I'm now showing symptoms of carb addiction) and if I do all protein I'm > looking around for dessert... so, for me, a balance covers both and I'm > able to better maintain portions.... > > Topper () > > On Wed, 08 Jun 2005 15:45:12 -0000 " Dan Strickland " > <danstrickland2001@y...> writes: > Ahem. Yes, Why am I here. Well, why not, you know? I feel fine > frankly, so I'm not looking for how to improve treatments, although > one does have to adjust a bit. Need to watch calorie intake more than > in the old days, need to be careful of fads. For example, despite > strong endorsements from a couple of the guys in my department, both > docs, the low-carb diets really made me tired. I noticed when I was > riding my bike home, which is harder in the evening because while I > live about 5 miles from my office, in the morning it's downhill. So in > the evening, on a long uphill grade, while doing the low-carb thing I > had to stop 3-4 times, where I might have to stop once if the > weather's hot. So, blaaahh! I have no idea if that's a thyroid thing, > but evidentally I'm not someone for whom low-carb diets are relevant. > So perhaps what I'm looking for listening to what goes on with > thyroiditis patients, maybe get some research ideas, see how things > apply to my condition, and the like. I will dig up my labs - been > meaning to do that for a while anyway - since you guys seem to be into > that - but they're really pretty boring. And I'll stick my oar into > the conversation from time to time. > ......................dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Nope, I was hyper. 'Course I thought it was my wife being perimenopausal, but no, it was me putting out the btu's. Sympathies on your and others problems, , and i hope I didn't come across as either callous or generalizing from my experience to the world at large; that certainly wasn't my intention. An important point of medical practice that takes a while to learn is that people are affected very differently by an illness that has the same root cause, that people react very differently to the same dose of the same drug. I was fortunate in that when I was diagnosed, I was on the faculty of a good medical school, my primary doc was one of the few with a strong interest in alternative medicine - he's a licensed acupuncturist & has studied with Weil in New Mexico - but when watching the tsh wasn't getting me where I should be, he referred me quickly to another friend, a woman who was a member of the dissertation committee for an MD/PhD student of mine, and who was also the chair of endocrinology. Your mileage, of course, differs. And, yes, I realize we have one of the most messed-up, uneven, inequitable medical care systems in the world. I happen to be fortunate to have been at the high end of that; doesn't mean I am unaware of the low end. My VLIHCS is one good possible solution - we cover medicare/aid people as well as employed people, and I'm talking with a guy in UK who wants to do a comparison study of the British National health care system with my VLIHCS. Indications are, oddly enough, my outfit is doing it better. But that's not most of the country, sadly. ..................dan > Oooops.. missed the part about waking in the night feeling hot in a cool > room.. that can be a sign of adrenal fatigue... common in folks that are > still running on insufficient levels of thyroid hormone.... > > Topper () > > On Wed, 08 Jun 2005 17:25:25 -0000 " Dan Strickland " > <danstrickland2001@y...> writes: > But I'm not hypo!, he protested, I'm on meds. Although with the > jiggering that diabetics do with their insulin, it seems odd that we > don't do much more than pop a very small pill once a day. My dose, > BTW, is 125 4 days/week, and 150 three days. Took a little while to > titrate, esp. when I first started and my thyroid went into its dying > spasms ( " Whoa, look how low my heart rate is - and I don't even work > out that much " flipped over to " Why am I waking up at this time of > night feeling overheated in a 66deg house in winter " ) but things are > pretty steady now. Still, the stuff (levothroid and the like) has > something like a 72 hour half-life, so I guess the little tweaking > really isn't needed. But diabetics sure get a lot more press. > .................dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hello - sorry, the VLIHCS is a sort of running joke I've been using since my first or second post, to wit: Very Large Integrated Health Care System. In part I'm avoiding using a much more common acronym which is widely known and widely misunderstood. Suffice it to say that the more common acronym has become synonomous with Managed Care, which those of us in the industry refer to sneeringly as Managed Cost, because that's really all it is. ............................dan > Hello Dan, > I live in the UK. I have no idea what a VLIHCS is, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 What do you mean hyper, graves hyper or just had the temporary hashis swing hyper? > > Oooops.. missed the part about waking in the night feeling hot in a cool > > room.. that can be a sign of adrenal fatigue... common in folks that are > > still running on insufficient levels of thyroid hormone.... > > > > Topper () > > > > On Wed, 08 Jun 2005 17:25:25 -0000 " Dan Strickland " > > <danstrickland2001@y...> writes: > > But I'm not hypo!, he protested, I'm on meds. Although with the > > jiggering that diabetics do with their insulin, it seems odd that we > > don't do much more than pop a very small pill once a day. My dose, > > BTW, is 125 4 days/week, and 150 three days. Took a little while to > > titrate, esp. when I first started and my thyroid went into its dying > > spasms ( " Whoa, look how low my heart rate is - and I don't even work > > out that much " flipped over to " Why am I waking up at this time of > > night feeling overheated in a 66deg house in winter " ) but things are > > pretty steady now. Still, the stuff (levothroid and the like) has > > something like a 72 hour half-life, so I guess the little tweaking > > really isn't needed. But diabetics sure get a lot more press. > > .................dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Over abundance of thyroid hormone hyper... .................dan > > > Oooops.. missed the part about waking in the night feeling hot in > a cool > > > room.. that can be a sign of adrenal fatigue... common in folks > that are > > > still running on insufficient levels of thyroid hormone.... > > > > > > Topper () > > > > > > On Wed, 08 Jun 2005 17:25:25 -0000 " Dan Strickland " > > > <danstrickland2001@y...> writes: > > > But I'm not hypo!, he protested, I'm on meds. Although with the > > > jiggering that diabetics do with their insulin, it seems odd that > we > > > don't do much more than pop a very small pill once a day. My dose, > > > BTW, is 125 4 days/week, and 150 three days. Took a little while > to > > > titrate, esp. when I first started and my thyroid went into its > dying > > > spasms ( " Whoa, look how low my heart rate is - and I don't even > work > > > out that much " flipped over to " Why am I waking up at this time of > > > night feeling overheated in a 66deg house in winter " ) but things > are > > > pretty steady now. Still, the stuff (levothroid and the like) has > > > something like a 72 hour half-life, so I guess the little tweaking > > > really isn't needed. But diabetics sure get a lot more press. > > > .................dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 > Over abundance of thyroid hormone hyper... > ................dan > graves hyper or just had the temporary hashis swing hyper????? How long were you hyper???? Quote Link to comment Share on other sites More sharing options...
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