Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 ok, i am really new to this group thingie and I have been on a roller coaster for the past year trying to get this stuff done... I have been up,down,backwards and sideways, and my brain hurts now and I am lost! I recently moved and my DAN! doctor gave me a prescription for valtrex to start when i was ready, but i fear the dose is too low, but it was very expensive from a compounding pharmacy. My first question is if i buy it with the blue stuff on it and take it off myself would it be cheaper? i paid almost $275 for it. I am afraid to start the valtrex as the dose is so low, will the viruses pick up an immunity to it, thus making it not work? Next thing is i just finished a 21 day course of sporonax, as the yeast in my son's body was not reacting to the diflucan or ketaconzale anymore, it just did not work.... the natural antifungals no longer worked either... anyways he just finished that and i have him going on nystatin which is where he needs to stay while i conquer the rest, this i know.. I did not see any positive gains from the yeast meds until i started a mild version of the scd diet..... he became calm and very good, no stimming, after he broke a fever with a rash for 2 days! i have not seen him this calm since feb of this year! but then i started the methyl b12 shots. now here my new problem lies.... i know this stuff stirs up all the junk just sitting there not moving and gets it moving, alas unleashing the beast so i call it. I hope i understand this right.... all the toxins in his body that have not been moving and have been sitting there are now in movement and causing him problems as his body tries to expel them right? has anyone ever noticed their kids eyes get extremely bloodshot when they unleash the beast inside their kid? well he is doing the usual stimming like crazy ( very embarrassing when he stims beavis and butthead cartoons in the store =/) mouthing hitting jumping screaming and thus being unruly, i know in 2 weeks time he will slow down and be fine... but here i do not know where to go! I have a prescription for 2 things and do not know which one to start using first. I know my child is bound up with mercury, as i have had many tests done and the results show no mercury or lead in his body, i know this means his body is holding onto it refusing to release it. BUT i also know he has issues with viruses after recent rounds of olive leaf extract and oil of oregano and enhansa... as far as the valtrex and the chealtion i know u need to do one for the other and they both need to be done, but which one do i start first?? i have a prescription for DMPS, we tried DMSA but it did not seem to move anything with the timed urine test, and i fear my prescription of valtrex is too low.. I need to find a new DAN! doctor as i have moved to northern arizona near laughlin. anything anyone can give me will help, i have the tools needed i just need direction on where to go! sometimes my brain hurts so much i cannot think about this stuff anymore, but then that is when i almost give up..... almost..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 wow, sounds like you got your hands full. I know my daughter got crazy on mb12 shots and I had to switch her to adenosylcobalamin shots because she is a sulfur kid and all that methyl made her crazy. It's still b-12 just another form. Epsom salt baths may help determine if sulfur products are the way to go for your child if it helps calm him. My daughter takes one every other night. It really sounds like his yeast is getting high and nystatin probably wont even touch that problem, you need something potent like diflucan or amphotericin-b. I hear a lot of people say that they just wash off the blue stuff for the valtrex so that would def be an option for you. Anti-virals really helped my daughter, we did acyclovir which is cheap and no washing required. Don't make yourself crazy, if I was you I'd slow down and concentrate on the scd diet, it sounds like thats going to be your best option for yeast control. Keep on the olive leaf, add in some good probiotics at bedtime, and try some epsom salt baths. I'd cut your b-12 shots and the enhansa for now and let his body calm down. Enhansa is high in phenols and can cause a lot of kids problems. You can start low on valtrex and build up, you just cant drop back. Once you start rx anti-virals be ready for the long term, it's at least a 6+ month treatment. Btw coconut oil is anti-viral and has lots of good fats, that may be a good start for you guys. Doesn't taste bad either. Give him a tsp by mouth, rub it on chapped lips, brush his teeth with it, I even rub some into my daughters brain stem, we love good fats! I'd hold off on the chelation stuff until his yeast is better controlled or you could end up with a monster. Sorry I cant help with the DAN thing but you have plenty in your arsenal to keep moving until you find one. Hope this helped, good luck! > > ok, i am really new to this group thingie and I have been on a roller coaster for the past year trying to get this stuff done... I have been up,down,backwards and sideways, and my brain hurts now and I am lost! > I recently moved and my DAN! doctor gave me a prescription for valtrex to start when i was ready, but i fear the dose is too low, but it was very expensive from a compounding pharmacy. My first question is if i buy it with the blue stuff on it and take it off myself would it be cheaper? i paid almost $275 for it. I am afraid to start the valtrex as the dose is so low, will the viruses pick up an immunity to it, thus making it not work? > Next thing is i just finished a 21 day course of sporonax, as the yeast in my son's body was not reacting to the diflucan or ketaconzale anymore, it just did not work.... the natural antifungals no longer worked either... anyways he just finished that and i have him going on nystatin which is where he needs to stay while i conquer the rest, this i know.. I did not see any positive gains from the yeast meds until i started a mild version of the scd diet..... he became calm and very good, no stimming, after he broke a fever with a rash for 2 days! i have not seen him this calm since feb of this year! > but then i started the methyl b12 shots. now here my new problem lies.... i know this stuff stirs up all the junk just sitting there not moving and gets it moving, alas unleashing the beast so i call it. I hope i understand this right.... all the toxins in his body that have not been moving and have been sitting there are now in movement and causing him problems as his body tries to expel them right? has anyone ever noticed their kids eyes get extremely bloodshot when they unleash the beast inside their kid? well he is doing the usual stimming like crazy ( very embarrassing when he stims beavis and butthead cartoons in the store =/) mouthing hitting jumping screaming and thus being unruly, i know in 2 weeks time he will slow down and be fine... but here i do not know where to go! > > I have a prescription for 2 things and do not know which one to start using first. I know my child is bound up with mercury, as i have had many tests done and the results show no mercury or lead in his body, i know this means his body is holding onto it refusing to release it. BUT i also know he has issues with viruses after recent rounds of olive leaf extract and oil of oregano and enhansa... as far as the valtrex and the chealtion i know u need to do one for the other and they both need to be done, but which one do i start first?? i have a prescription for DMPS, we tried DMSA but it did not seem to move anything with the timed urine test, and i fear my prescription of valtrex is too low.. I need to find a new DAN! doctor as i have moved to northern arizona near laughlin. > > anything anyone can give me will help, i have the tools needed i just need direction on where to go! sometimes my brain hurts so much i cannot think about this stuff anymore, but then that is when i almost give up..... almost..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 thanks michelle i have sworn off enhansa for the rest of his life!! that was a nightmare!!!!!!!! i know nystatin is not enough but the others are just not giving me the die off we want they do nothing as a matter of fact!! so nystatin is better than nothing. i just did a round of lab testing thru great plains and i am hoping the one i did will he;p, they did a culture of his stool and are growing whatever yeast is in his body to see what will kill it and what it is immune too, because it seems that stupid yeast is immune to everything!! i even tried candex with it and nothing!!!!! i hate the yeast beast=[ Re: yeast,SCD, Methyl b12 shots, next?!?! wow, sounds like you got your hands full. I know my daughter got crazy on mb12 shots and I had to switch her to adenosylcobalamin shots because she is a sulfur kid and all that methyl made her crazy. It's still b-12 just another form. Epsom salt baths may help determine if sulfur products are the way to go for your child if it helps calm him. My daughter takes one every other night. It really sounds like his yeast is getting high and nystatin probably wont even touch that problem, you need something potent like diflucan or amphotericin-b. I hear a lot of people say that they just wash off the blue stuff for the valtrex so that would def be an option for you. Anti-virals really helped my daughter, we did acyclovir which is cheap and no washing required. Don't make yourself crazy, if I was you I'd slow down and concentrate on the scd diet, it sounds like thats going to be your best option for yeast control. Keep on the olive leaf, add in some good probiotics at bedtime, and try some epsom salt baths. I'd cut your b-12 shots and the enhansa for now and let his body calm down. Enhansa is high in phenols and can cause a lot of kids problems. You can start low on valtrex and build up, you just cant drop back. Once you start rx anti-virals be ready for the long term, it's at least a 6+ month treatment. Btw coconut oil is anti-viral and has lots of good fats, that may be a good start for you guys. Doesn't taste bad either. Give him a tsp by mouth, rub it on chapped lips, brush his teeth with it, I even rub some into my daughters brain stem, we love good fats! I'd hold off on the chelation stuff until his yeast is better controlled or you could end up with a monster. Sorry I cant help with the DAN thing but you have plenty in your arsenal to keep moving until you find one. Hope this helped, good luck! > > ok, i am really new to this group thingie and I have been on a roller coaster for the past year trying to get this stuff done... I have been up,down,backwards and sideways, and my brain hurts now and I am lost! > I recently moved and my DAN! doctor gave me a prescription for valtrex to start when i was ready, but i fear the dose is too low, but it was very expensive from a compounding pharmacy. My first question is if i buy it with the blue stuff on it and take it off myself would it be cheaper? i paid almost $275 for it. I am afraid to start the valtrex as the dose is so low, will the viruses pick up an immunity to it, thus making it not work? > Next thing is i just finished a 21 day course of sporonax, as the yeast in my son's body was not reacting to the diflucan or ketaconzale anymore, it just did not work.... the natural antifungals no longer worked either... anyways he just finished that and i have him going on nystatin which is where he needs to stay while i conquer the rest, this i know.. I did not see any positive gains from the yeast meds until i started a mild version of the scd diet..... he became calm and very good, no stimming, after he broke a fever with a rash for 2 days! i have not seen him this calm since feb of this year! > but then i started the methyl b12 shots. now here my new problem lies.... i know this stuff stirs up all the junk just sitting there not moving and gets it moving, alas unleashing the beast so i call it. I hope i understand this right.... all the toxins in his body that have not been moving and have been sitting there are now in movement and causing him problems as his body tries to expel them right? has anyone ever noticed their kids eyes get extremely bloodshot when they unleash the beast inside their kid? well he is doing the usual stimming like crazy ( very embarrassing when he stims beavis and butthead cartoons in the store =/) mouthing hitting jumping screaming and thus being unruly, i know in 2 weeks time he will slow down and be fine... but here i do not know where to go! > > I have a prescription for 2 things and do not know which one to start using first. I know my child is bound up with mercury, as i have had many tests done and the results show no mercury or lead in his body, i know this means his body is holding onto it refusing to release it. BUT i also know he has issues with viruses after recent rounds of olive leaf extract and oil of oregano and enhansa... as far as the valtrex and the chealtion i know u need to do one for the other and they both need to be done, but which one do i start first?? i have a prescription for DMPS, we tried DMSA but it did not seem to move anything with the timed urine test, and i fear my prescription of valtrex is too low.. I need to find a new DAN! doctor as i have moved to northern arizona near laughlin. > > anything anyone can give me will help, i have the tools needed i just need direction on where to go! sometimes my brain hurts so much i cannot think about this stuff anymore, but then that is when i almost give up..... almost..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Yeast is the never ending beast around here as well. I can't do too much of any therapy that kicks up yeast, she only does her chelation suppositories once a week because of the yeast beast. Good luck. > > > > ok, i am really new to this group thingie and I have been on a roller coaster for the past year trying to get this stuff done... I have been up,down,backwards and sideways, and my brain hurts now and I am lost! > > I recently moved and my DAN! doctor gave me a prescription for valtrex to start when i was ready, but i fear the dose is too low, but it was very expensive from a compounding pharmacy. My first question is if i buy it with the blue stuff on it and take it off myself would it be cheaper? i paid almost $275 for it. I am afraid to start the valtrex as the dose is so low, will the viruses pick up an immunity to it, thus making it not work? > > Next thing is i just finished a 21 day course of sporonax, as the yeast in my son's body was not reacting to the diflucan or ketaconzale anymore, it just did not work.... the natural antifungals no longer worked either... anyways he just finished that and i have him going on nystatin which is where he needs to stay while i conquer the rest, this i know.. I did not see any positive gains from the yeast meds until i started a mild version of the scd diet..... he became calm and very good, no stimming, after he broke a fever with a rash for 2 days! i have not seen him this calm since feb of this year! > > but then i started the methyl b12 shots. now here my new problem lies.... i know this stuff stirs up all the junk just sitting there not moving and gets it moving, alas unleashing the beast so i call it. I hope i understand this right.... all the toxins in his body that have not been moving and have been sitting there are now in movement and causing him problems as his body tries to expel them right? has anyone ever noticed their kids eyes get extremely bloodshot when they unleash the beast inside their kid? well he is doing the usual stimming like crazy ( very embarrassing when he stims beavis and butthead cartoons in the store =/) mouthing hitting jumping screaming and thus being unruly, i know in 2 weeks time he will slow down and be fine... but here i do not know where to go! > > > > I have a prescription for 2 things and do not know which one to start using first. I know my child is bound up with mercury, as i have had many tests done and the results show no mercury or lead in his body, i know this means his body is holding onto it refusing to release it. BUT i also know he has issues with viruses after recent rounds of olive leaf extract and oil of oregano and enhansa... as far as the valtrex and the chealtion i know u need to do one for the other and they both need to be done, but which one do i start first?? i have a prescription for DMPS, we tried DMSA but it did not seem to move anything with the timed urine test, and i fear my prescription of valtrex is too low.. I need to find a new DAN! doctor as i have moved to northern arizona near laughlin. > > > > anything anyone can give me will help, i have the tools needed i just need direction on where to go! sometimes my brain hurts so much i cannot think about this stuff anymore, but then that is when i almost give up..... almost..... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 biotin can induce pretty extreme dieoff, if that's what you're looking for... go low and slow! - Kati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 i thought biotin just helped prevent yeast growth? he takes that anyways... nothing gives my poor kid die offs anymore, stupid intolerant yeast and his food is so limited as with most autistic children he wont eat what he is not allergic too!!! and he is too old to be sneaky! at almost 11 he knows whats up! Re: yeast,SCD, Methyl b12 shots, next?!?! biotin can induce pretty extreme dieoff, if that's what you're looking for... go low and slow! - Kati Quote Link to comment Share on other sites More sharing options...
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