Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 I'm sorry everyone for being so "absent" and if anyone wrote to me and I didn't answer--please send your email again.I think the last I wrote was that the nighttime leg pain had returned full force and I thought it was because I went back on LDN 5 days before. So I had decided to stop taking it again. The night I stopped taking LDN again my legs were better and the pain has gotten better each night since. I will not be going back on LDN again. It really did help my pain when I first started it over a year ago. But now it doesn't. I wonder if the effectiveness wears off?My current neurologist says the CRAB-Ts won't help me because he classes me as having Secondary Progressive MS. He classes me so because he feels I haven't had a clear relapse in over a year. I have had ups and downs with my MS but I don't call him each time. I am looking forward to seeing the new neurologist after I move to see what he says. If he says to take a CRAB-T then I will definitely do it. I won't take Tysabri because I personally don't trust it-- but that's just my opinion. I was on Avonex for 5 years and did fine on it. So I'm off LDN, my leg pain has improved but my feet are still hurting. Sometimes I will be walking along just fine and dandy and suddenly one of my feet will just "give out". Stupid feet. LOL My neck has also started hurting again and I'm not very happy about that.I've been working on genealogy, sorting through already packed boxes to see what I don't need and then selling them on ebay, packing more boxes, taking care of the grandkids who live in this house while trying to feel better. I'm just wanting to get moved to my new home! That's all my news. hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 I am glad to hear the leg pain is improving Sharon. You are moving? I did that 3 times in a yr a couple yrs ago, told DH I go out of this house one way only! Connie Sharon's little update I'm sorry everyone for being so "absent" and if anyone wrote to me and I didn't answer--please send your email again.I think the last I wrote was that the nighttime leg pain had returned full force and I thought it was because I went back on LDN 5 days before. So I had decided to stop taking it again. The night I stopped taking LDN again my legs were better and the pain has gotten better each night since. I will not be going back on LDN again. It really did help my pain when I first started it over a year ago. But now it doesn't. I wonder if the effectiveness wears off?My current neurologist says the CRAB-Ts won't help me because he classes me as having Secondary Progressive MS. He classes me so because he feels I haven't had a clear relapse in over a year. I have had ups and downs with my MS but I don't call him each time. I am looking forward to seeing the new neurologist after I move to see what he says. If he says to take a CRAB-T then I will definitely do it. I won't take Tysabri because I personally don't trust it-- but that's just my opinion. I was on Avonex for 5 years and did fine on it. So I'm off LDN, my leg pain has improved but my feet are still hurting. Sometimes I will be walking along just fine and dandy and suddenly one of my feet will just "give out". Stupid feet. LOL My neck has also started hurting again and I'm not very happy about that.I've been working on genealogy, sorting through already packed boxes to see what I don't need and then selling them on ebay, packing more boxes, taking care of the grandkids who live in this house while trying to feel better. I'm just wanting to get moved to my new home! That's all my news. hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 I am glad to hear the leg pain is improving Sharon. You are moving? I did that 3 times in a yr a couple yrs ago, told DH I go out of this house one way only! Connie Sharon's little update I'm sorry everyone for being so "absent" and if anyone wrote to me and I didn't answer--please send your email again.I think the last I wrote was that the nighttime leg pain had returned full force and I thought it was because I went back on LDN 5 days before. So I had decided to stop taking it again. The night I stopped taking LDN again my legs were better and the pain has gotten better each night since. I will not be going back on LDN again. It really did help my pain when I first started it over a year ago. But now it doesn't. I wonder if the effectiveness wears off?My current neurologist says the CRAB-Ts won't help me because he classes me as having Secondary Progressive MS. He classes me so because he feels I haven't had a clear relapse in over a year. I have had ups and downs with my MS but I don't call him each time. I am looking forward to seeing the new neurologist after I move to see what he says. If he says to take a CRAB-T then I will definitely do it. I won't take Tysabri because I personally don't trust it-- but that's just my opinion. I was on Avonex for 5 years and did fine on it. So I'm off LDN, my leg pain has improved but my feet are still hurting. Sometimes I will be walking along just fine and dandy and suddenly one of my feet will just "give out". Stupid feet. LOL My neck has also started hurting again and I'm not very happy about that.I've been working on genealogy, sorting through already packed boxes to see what I don't need and then selling them on ebay, packing more boxes, taking care of the grandkids who live in this house while trying to feel better. I'm just wanting to get moved to my new home! That's all my news. hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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