New to group

December 2, 2008

Hi

I have also had type 1 diabetes since I was 9 years old, which is just over

17 years ago now. I have been legally blind since birth; my vision is about

20/600 in my better eye.

Welcome to the list, and if there is any way at all that we can help, please

don't hesitate to ask.

Jen

December 2, 2008

Hi

I have also had type 1 diabetes since I was 9 years old, which is just over

17 years ago now. I have been legally blind since birth; my vision is about

20/600 in my better eye.

Welcome to the list, and if there is any way at all that we can help, please

don't hesitate to ask.

Jen

December 2, 2008

Hi

I have also had type 1 diabetes since I was 9 years old, which is just over

17 years ago now. I have been legally blind since birth; my vision is about

20/600 in my better eye.

Welcome to the list, and if there is any way at all that we can help, please

don't hesitate to ask.

Jen

December 2, 2008

Hello

I have been type 1 diabetic since 1944 (aged 22 months) and went through all

that eye stuff over 30 years ago-before they had the technology they have

now. So I am total. I'm glad to hear yo have a supportive family. theStae

Department of Rehabilitation can also help you. Call your local DOR and ask

for the rehab counselor who works with the blind. I went back to work after

they funded some further education for me. You are going through a touh

time now, but as you learn more and more aobut techniques, thing will

improve.

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

__________ NOD32 3656 (20081202) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

December 2, 2008

Hello

I have been type 1 diabetic since 1944 (aged 22 months) and went through all

that eye stuff over 30 years ago-before they had the technology they have

now. So I am total. I'm glad to hear yo have a supportive family. theStae

Department of Rehabilitation can also help you. Call your local DOR and ask

for the rehab counselor who works with the blind. I went back to work after

they funded some further education for me. You are going through a touh

time now, but as you learn more and more aobut techniques, thing will

improve.

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

__________ NOD32 3656 (20081202) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

December 2, 2008

Hello

I have been type 1 diabetic since 1944 (aged 22 months) and went through all

that eye stuff over 30 years ago-before they had the technology they have

now. So I am total. I'm glad to hear yo have a supportive family. theStae

Department of Rehabilitation can also help you. Call your local DOR and ask

for the rehab counselor who works with the blind. I went back to work after

they funded some further education for me. You are going through a touh

time now, but as you learn more and more aobut techniques, thing will

improve.

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

__________ NOD32 3656 (20081202) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

March 30, 2010

Hi group,

I've been reading posts here for a couple of weeks now and finally have a small

grip on deciphering the OoO's OLE's, NT's and every other letter combination

known to mankind. whew! Anyhow, I have a son(with developmental delays)who

will be 8 in July and will go for his 3rd evaluation at the end of May and we're

hoping to finally have a dx as he is in serious need of more than the 1/2hour/wk

of speech therapy he receives at school. I suspect he will be dx'd somewhere on

the spectrum. My pediatrician is still in the dark ages as far as spectrum

disorders are concerned. There is one Dan! doc about two hours away that takes

ins. it is a very busy office (my sister takes her autistic son there). she has

explained to me that when visiting that dan!, you sort of have to know where

you'd like to go with the treatment and he'll either agree or not. My question

is: in what order should I start testing? He's a big-time toe-walker, stims(by

running back and forth through the house), his interests are limited (and yes,

he will force anyone and everyone to listen about them!) he's always had good

eye contact and interaction but his verbal skills are that of a 4-5 yr. old. He

has difficulty following verbal directions and has an increasingly difficult

time with kids his own age. He has had chronic deep ear itch since forever. His

symptoms seem to intensify at school where his teacher and therapists report

more stimming (humming and quiet singing), and concerns that he spends a great

deal of the school day " in a fog " . As a toddler he was a " spinner " , played with

his spit when he felt anxious and would briefly, at times, withdraw from people

into his own little world. These have all worked themselves out over time.

there is no headbanging, rocking, handflapping, and very few tantrums. He's

never suffered from constipation or GI problems. So where should I start

testing? Would it make sense to start with checking bacteria and yeast levels if

there are no GI symptoms? or perhaps metals? His anxiety is growing worse each

and everyday as mainstreaming part days turned out to be a nightmare and he's

begining to realize his deficiencies in comparison to his peers. His self-esteem

has tanked and I'm afraid he'll just give up. Outbursts are becoming more

frequent. He has even pooped his pants a couple of times in the past few weeks

which is strange as he's had only 1 accident (peeing) since he potty trained at

4. I'm just not sure what would be the most likely culprit that caused these

symptoms? Where would be the smartest place to start? It might be important to

add, that he was a breast-milk junkie and nursed well past the age of two. (My

mother will tell you she only saw the back of his head his first year of life

LOL) I remember an an infant he once had a terrible case of thrush. and only a

couple of ear infections that were treated with antibiotics. I would like to

say, by the way, that this board is chock full of incredible people! It's been

amazing sitting in - I can hardly believe the education I've received in such a

short time. wow! Sorry. loooooooooong post!

Tammy

March 31, 2010

wow. It sounds like Tom all over again. Thank you for sharing so much. I don't know much about the neuropsychologist he's going to see....what her approach would be. So I'm going to go ahead and make an appointment with that Dan! doc and take it from there.

Fortunately he does have one good friend (NT)-but even he is getting tired and frustrated of Tom's outbursts and crying fits all the time. The kid's a "superstar" and it's hard for Tom to keep up. They still try, but there's definitely frustration on both sides. I will most definitely look into Simply Smarter and Digit spans. (clueless. But thank God for Google. It has become my best friend!) It's my intention to home school him next year so there'll be plenty of time during the day to get really good, meaningful stuff in. He needs time to grow and learn in an environment where he's relaxed and not constantly comparing his accomplishments to his peers. Just like your son when he was younger, Tom's realizing the gap between him and his classmates. He's asked me a few times if he'll "talk different maybe in third or fourth grade." It's so

frustrating, yet I will count my blessings. I read this board and pray for these kids and their families who contend with so much more. Thanks again. that was awesome input!

To: mb12 valtrex Sent: Wed, March 31, 2010 11:55:48 AMSubject: Re: New to group

Hi Tammy,To me, it sounds like your son has a LOT of yeast in his system!I am a great believer in good testing, particularly at the outset to give you a good roadmap of the next year of your life and to let you see what you're dealing with in all areas. Most DAN docs have a comprehensive test that they offer (like the Metametrix Pediatric Ion Profile or Genova's NutrEval tests) to give you a broad view as to what you're dealing with. Once you hone in on the particularly deficiencies and problems, you can then order smaller tests on that particular area.Spinning, stacking, stims, are all symptomatic of yeast. I'm guessing your son is full of it. I would begin to attack it NOW before you even get to the doctor! Grapefruit seed drops might be something you'd like to try right away. Also find yourself a good probiotic like Klaire Labs Vital 10 or Culturelle to give away from what ever yeast protocol you end up sticking

with.His auditory comprehension can be worked utilizing a computer program called Simply Smarter or just by doing digit spans with him. We took Mark up from a 5 year old level of auditory sequential processing at the age of 11 to college level in about 8 months using this technique but we did it 'intensively' about 4 times a day with short 7 minute sessions. If he is eating milk products or casien, this may be congesting his ears and further exacerbating his auditory sequential processing.For kids with auditory processing issues, the world moves too fast for them. They are 5 or 6 steps behind everyone and can never seem to catch up no matter how hard they try. For us.... the metal associated with processing was Lead. When we got the lead out, WOW, did we ever see improvments with processing and the therapy we did moved along at great speed.What is he eating? In my house, to really get rid of the yeast, we had to starve them out

(no sugars, no starchy carbs, no casien), while at the same time using Difulcan (prescription) , while at the same time, removing the metals.... while at the same time, eliminating any parasites and mycotoxic molds. It's not easy but if you attack it all at once while using the prescriptions, I found that the results to be far more efficient, enduring and worked faster.His mental mindset: I remember when Mark was in grade 2, he asked me if he was retarded. He must have overheard others talking at school because he indeed did test out as being borderline mentally handicapped. This plaintiff question truly broke my heart. He was so sad. He knew he was different from other kids and couldn't understand why everything seemed so impossible for him while so easy for them. He got bullied constantly.. .. even by teachers who grew frustrated with him. He was a sad, lonely and depressed little boy. Years later, neurotransmitter testing revealed that he was

low in tryptophan and a little 5HTP resolved his issues with sadness. BUT... school should be a safe place for kids and for ours, it is often a hostile world and our children begin to act out or become withdrawn and fearful. Really, can you blame them? Mark remembers now the days when he used to be depressed and will often comment on it. While the world is busy pulling him down.... it was up to me to push him up emotionally. Spend a lot of time telling him how great he is. Start opening up the dialogue about his condition and talk about it as a 'medical' condition not as a part of his personality. I found that this differentian between the 'condition' and the 'self' really helped to keep my son's spirits bouyed during the dark days of grade 1 to 4. He needs one friend. Just one or even maybe two will do. Someone close who lives down the street with whom he can forget all of his troubles and feel good about himself with. Mark had a buddy

growing up who had ADHD down the street and it was a good friendship. Unfortunately, this boy's parents are mainstream medical people and drugged the boy senseless. Today, Mark is pretty much recovered while their child has gotten worse and worse through the years. But, for that time period, this friendship did wonders for both boys in learning playskills and for escaping the hardships of the school room.In my experience, if your child comes home nasty, cranky, distraught or emotional from school.... 'something' has happened there that day. They are unwilling to talk about it. They take it out on mom and because they don't really always 'understand' what actually happened but know that they have been singled out in some way.... they react with emotional outbursts. I began spending time with Mark in his bed each night... talking or just letting him talk. Encourage your son to slowly open up to you and to share his feelings. This stuff hurts! You

can help to make the hurt lesser or in the event that someone (kid or even a teacher) is abusing him, make the hurt go away!You are on the good path now. Do a lot of reading and buy a lot of books!Most of all, give your son a lot of love and support right now. He really needs it because this stuff is so isolating and emotionally painful. Walk a mile in his young shoes.... JaniceMother of Mark, 15 (recovered)>> > > Hi group,> > I've been reading posts here for a couple of weeks now and finally have a small grip on deciphering the OoO's OLE's, NT's and every other letter combination known to mankind. whew! Anyhow, I have a son(with developmental delays)who will be 8 in July

and will go for his 3rd evaluation at the end of May and we're hoping to finally have a dx as he is in serious need of more than the 1/2hour/wk of speech therapy he receives at school. I suspect he will be dx'd somewhere on the spectrum. My pediatrician is still in the dark ages as far as spectrum disorders are concerned. There is one Dan! doc about two hours away that takes ins. it is a very busy office (my sister takes her autistic son there). she has explained to me that when visiting that dan!, you sort of have to know where you'd like to go with the treatment and he'll either agree or not. My question is: in what order should I start testing? He's a big-time toe-walker, stims(by running back and forth through the house), his interests are limited (and yes, he will force anyone and everyone to listen about them!) he's always had good eye contact and interaction but his verbal skills are that of a 4-5 yr. old. He has difficulty following verbal

directions and has an increasingly difficult time with kids his own age. He has had chronic deep ear itch since forever. His symptoms seem to intensify at school where his teacher and therapists report more stimming (humming and quiet singing), and concerns that he spends a great deal of the school day "in a fog". As a toddler he was a "spinner", played with his spit when he felt anxious and would briefly, at times, withdraw from people into his own little world. These have all worked themselves out over time. there is no headbanging, rocking, handflapping, and very few tantrums. He's never suffered from constipation or GI problems. So where should I start testing? Would it make sense to start with checking bacteria and yeast levels if there are no GI symptoms? or perhaps metals? His anxiety is growing worse each and everyday as mainstreaming part days turned out to be a nightmare and he's begining to realize his deficiencies in comparison to his peers.

His self-esteem has tanked and I'm afraid he'll just give up. Outbursts are becoming more frequent. He has even pooped his pants a couple of times in the past few weeks which is strange as he's had only 1 accident (peeing) since he potty trained at 4. I'm just not sure what would be the most likely culprit that caused these symptoms? Where would be the smartest place to start? It might be important to add, that he was a breast-milk junkie and nursed well past the age of two. (My mother will tell you she only saw the back of his head his first year of life LOL) I remember an an infant he once had a terrible case of thrush. and only a couple of ear infections that were treated with antibiotics. I would like to say, by the way, that this board is chock full of incredible people! It's been amazing sitting in - I can hardly believe the education I've received in such a short time. wow! Sorry. loooooooooong post!> >

Tammy>

March 31, 2010

Tammy,What have you done so far? GFCF? SCD? any supplements? I would start with some blood profiles to see what he deficient in although we generally supplement with a few things regardless like Vit. C, zinc, potassium iodine, enzymes, etc.Remember, every time you do a diet, supplement, or anything, his reaction to that is a clue as to what is going on in him.Not sure where you live, but Autism one in Chicago is a great way to start. I watched webcasts for hours and hours and learned a lot but it was nothing close like attending my first conference.sallyTo: mb12 valtrex Sent: Tue, March 30, 2010 9:57:22 PMSubject: New to group

Hi group,

I've been reading posts here for a couple of weeks now and finally have a small grip on deciphering the OoO's OLE's, NT's and every other letter combination known to mankind. whew! Anyhow, I have a son(with developmental delays)who will be 8 in July and will go for his 3rd evaluation at the end of May and we're hoping to finally have a dx as he is in serious need of more than the 1/2hour/wk of speech therapy he receives at school. I suspect he will be dx'd somewhere on the spectrum. My pediatrician is still in the dark ages as far as spectrum disorders are concerned. There is one Dan! doc about two hours away that takes ins. it is a very busy office (my sister takes her autistic son there). she has explained to me that when visiting that dan!, you sort of have to know where you'd like to go with the treatment and he'll either agree or not. My question is: in what order should I start testing? He's a big-time toe-walker, stims(by running back and

forth through the house), his interests are limited (and yes, he will force anyone and everyone to listen about them!) he's always had good eye contact and interaction but his verbal skills are that of a 4-5 yr. old. He has difficulty following verbal directions and has an increasingly difficult time with kids his own age. He has had chronic deep ear itch since forever. His symptoms seem to intensify at school where his teacher and therapists report more stimming (humming and quiet singing), and concerns that he spends a great deal of the school day "in a fog". As a toddler he was a "spinner", played with his spit when he felt anxious and would briefly, at times, withdraw from people into his own little world. These have all worked themselves out over time. there is no headbanging, rocking, handflapping, and very few tantrums. He's never suffered from constipation or GI problems. So where should I start testing? Would it make sense to start with

checking bacteria and yeast levels if there are no GI symptoms? or perhaps metals? Hi!

s anxiet

y is growing worse each and everyday as mainstreaming part days turned out to be a nightmare and he's begining to realize his deficiencies in comparison to his peers. His self-esteem has tanked and I'm afraid he'll just give up. Outbursts are becoming more frequent. He has even pooped his pants a couple of times in the past few weeks which is strange as he's had only 1 accident (peeing) since he potty trained at 4. I'm just not sure what would be the most likely culprit that caused these symptoms? Where would be the smartest place to start? It might be important to add, that he was a breast-milk junkie and nursed well past the age of two. (My mother will tell you she only saw the back of his head his first year of life LOL) I remember an an infant he once had a terrible case of thrush. and only a couple of ear infections that were treated with antibiotics. I would like to say, by the way, that this board is chock full of incredible people! It's been

amazing sitting in - I can hardly believe the education I've received in such a short time. wow! Sorry. loooooooooong post!

Tammy

March 31, 2010

I haven't tried much of anything yet as this is all very new to me. I've been spending the last few weeks just reading and learning as much as I can. We've taken small steps like getting him on a multivitam and l-theanine to reduce his anxiety. We've also started switching out his favorite foods for GFCF alternatives to ease the transition. I probably won't go 100% with it until school lets out for the year that way I'll have a little more control over the probability of infractions. I may also have to cut sugars (for yeast) and that's going to be difficult so I'll need some time to find foods and recipes he'll like. He and his brother both have issues with their sense of smell so it makes it tough. I was going to start with OLE

this weekend, but a couple of people have suggested I get him on probiotics asap so I've ordered those. and GSE. I'll introduce them one at a time. I'm in Rhode Island - I could only find one dan nutritionist. We will drive a couple of hours into Massachusetts to a dan doc that takes ins. Those are few and far between around here.

To: mb12 valtrex Sent: Wed, March 31, 2010 9:44:06 PMSubject: Re: New to group

Tammy,

What have you done so far? GFCF? SCD? any supplements?

I would start with some blood profiles to see what he deficient in although we generally supplement with a few things regardless like Vit. C, zinc, potassium iodine, enzymes, etc.

Remember, every time you do a diet, supplement, or anything, his reaction to that is a clue as to what is going on in him.

Not sure where you live, but Autism one in Chicago is a great way to start. I watched webcasts for hours and hours and learned a lot but it was nothing close like attending my first conference.

sally

From: "t.lynn28@rocketmai l.com" <t.lynn28@rocketmail .com>To: mb12 valtrex@ yahoogroups. comSent: Tue, March 30, 2010 9:57:22 PMSubject: New to group

Hi group,I've been reading posts here for a couple of weeks now and finally have a small grip on deciphering the OoO's OLE's, NT's and every other letter combination known to mankind. whew! Anyhow, I have a son(with developmental delays)who will be 8 in July and will go for his 3rd evaluation at the end of May and we're hoping to finally have a dx as he is in serious need of more than the 1/2hour/wk of speech therapy he receives at school. I suspect he will be dx'd somewhere on the spectrum. My pediatrician is still in the dark ages as far as spectrum disorders are concerned. There is one Dan! doc about two hours away that takes ins. it is a very busy office (my sister takes her autistic son there). she has explained to me that when visiting that dan!, you sort of have to know where you'd like to go with the treatment and he'll either agree or not. My question is: in what order should I start testing? He's a big-time toe-walker,

stims(by running back and forth through the house), his interests are limited (and yes, he will force anyone and everyone to listen about them!) he's always had good eye contact and interaction but his verbal skills are that of a 4-5 yr. old. He has difficulty following verbal directions and has an increasingly difficult time with kids his own age. He has had chronic deep ear itch since forever. His symptoms seem to intensify at school where his teacher and therapists report more stimming (humming and quiet singing), and concerns that he spends a great deal of the school day "in a fog". As a toddler he was a "spinner", played with his spit when he felt anxious and would briefly, at times, withdraw from people into his own little world. These have all worked themselves out over time. there is no headbanging, rocking, handflapping, and very few tantrums. He's never suffered from constipation or GI problems. So where should I start testing? Would it make

sense to start with checking bacteria and yeast levels if there are no GI symptoms? or perhaps metals? Hi! s anxiet y is growing worse each and everyday as mainstreaming part days turned out to be a nightmare and he's begining to realize his deficiencies in comparison to his peers. His self-esteem has tanked and I'm afraid he'll just give up. Outbursts are becoming more frequent. He has even pooped his pants a couple of times in the past few weeks which is strange as he's had only 1 accident (peeing) since he potty trained at 4. I'm just not sure what would be the most likely culprit that caused these symptoms? Where would be the smartest place to start? It might be important to add, that he was a breast-milk junkie and nursed well past the age of two. (My mother will tell you she only saw the back of his head his first year of life LOL) I remember an an infant he once had a terrible case of thrush. and only a couple of ear infections that were treated

with antibiotics. I would like to say, by the way, that this board is chock full of incredible people! It's been amazing sitting in - I can hardly believe the education I've received in such a short time. wow! Sorry. loooooooooong post!Tammy

April 1, 2010

Janice,Thanks again. I am " starring " your post and hopefully I will remember to refer back to it! :-)My biggest fear for my daughter is the bullying. One thing you said that I am glad to see:

" Our kids need 'more' experiences in this life, not less. " It is so easy to avoid the tantrums and stay home... so hard to go out in public and endure the glares from " perfect parents. " I feel it is the one thing I am proud of myself for, and all of us, to go out and make sure our kids do participate in things that don't make us or them comfortable. It's from these experiences, I have learned, and they have too.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

April 1, 2010

Janice,Thanks again. I am " starring " your post and hopefully I will remember to refer back to it! :-)My biggest fear for my daughter is the bullying. One thing you said that I am glad to see:

" Our kids need 'more' experiences in this life, not less. " It is so easy to avoid the tantrums and stay home... so hard to go out in public and endure the glares from " perfect parents. " I feel it is the one thing I am proud of myself for, and all of us, to go out and make sure our kids do participate in things that don't make us or them comfortable. It's from these experiences, I have learned, and they have too.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

April 1, 2010

wow. thank you so much! Hey, anytime you feel the need to share, feel free to keep it comin'!

To: mb12 valtrex Sent: Thu, April 1, 2010 12:11:26 PMSubject: Re: New to group

Tammy and All,You guys are really kind. I think that what Mark went through was very typical. I read about issues with bullying for our kids all of the time. ....and some of bullying he endured was truly unbearable.. . I could tell you some aweful stories but... they sadden me so I'll leave it for now.I will say that the bullying did not stop until Mark was reasonably healed. Took about 9 months of chelation for him to get his verve back! Chelation changed everything.Being low toned and extremely weak (as well as having severe apraxia and dysarthria of speech), Mark had developed an extremely laid back and placid personality.In grade 7, this one kid would regularly push him up against the locker and shove him around. Now, this was nothing in comparison to what he took in his early grades but this time, he'd had enough. I remember the day 'it' happened. He jumped into the car after school looking rather guilty. He told

me that he punched the kid in the face and was worried about getting suspended for it. I told him, "Good for you!" Everyone who knew him said "Good for you!" And that was that. No more bullying, EVER AGAIN! Now, normally I wouldn't advocate this behavior in any child because you don't want your kid running around and hitting others. But Mark was a different sort of cat. He was sooooo placid and sooooo enduring that he just would never stand up for himself. Thus, he was extremely 'low sensory'. For a 'high sensory' kid, you would NEVER want to promote hitting but always encourage them to use words. But Mark was known as a kid who would sit back and 'take' it; When he finally got up the gumption to say "NO" (albiet with his fist), the bullying ended. He has never hit another child since.... the only violence he engages in is on the wrestling team (where they toss him about like a sack of potatoes and now... on the football team!)The more

we chelated, the more stable his speech became and the more that his other therapies worked wonders. Today he has a whole host of friends of all different types! He makes friends with everyone because chelation has made him NT. So,kids no longer avoid him (like the plague). He can diagnose disorders like no one else and maintain friendships with children who I consider very 'aspies' as well as NT kids. His biggest hurdle (other than his crappy organizational skills and poor fine motor skills) is girls. He likes them but is not comfortable speaking with him. On his trip to France, there are 19 girls and 5 boys! His biggest goal on the trip was to 'try' to find a girlfriend, perhaps.... I'll be happy if he doesn't lose his passport! My baby comes home tomorrow and then I shall be able to sleep again!People are always aghast at how much I have Mark do. NACD taught me one thing that was extremely important for our kids. (http://www.nacd. org designed our home therapy programs) Our kids need 'more' experiences in this life, not less. For years, I kept Mark back, out of sight, hidden from the world and did not let him participate because I fretted over what might hurt him. That was wrong thinking. He needed 'more' stimulation and 'more' experiences so that when he grows up and leaves me, he'll have a solid fountain on which to build.Right now, we are at the stage of recovery where I now have to 'go back' and fill in the gaps so that he can successfully transition to adulthood. I never let him use the stove. Well, jeepers, what am I waiting for? For him to get his own appartment? So, that is a big one on my list for my kid with terrible fine motor! Things like doing laundry, folding his clothes and managing keys are skills that he continues to lack. (surprisingly, he's a pretty good driver!) Time is running

out and I need to get after it. Previously, life had always been about "managing" his condition. Now, I take the next step and play 'catch up' with all of those skills other kids have been developing all along.... while we've been in therapy!Take a really good look at your child. Is he hyper-sensitive or is he 'hypo-sensitive' like my son. If he has low muscle tone, he is likely hypo-sensitive. This means that he 'lacks' feeling in his hands, mouth, limbs, feet and needs deep pressure stimulation for these areas to get the nerves 'feeling' again. If he is 'hyper-sensitive' , then he will likely be a bit racey, hate his socks, shoes, clothes, tags on clothes and find touch sometimes abrasive and hostile for him. He then needs to 'learn' how to 'desensitize' his skin and feel more normally. Normalizing tactility is often 'missed' by everyone and it is really important.All kids need fish oils to start. I think that kids who are

hypo-sensitive tend to be 'extremely' deficient but then my experience is biased. I could never get enough fish oils into my child to bring his levels up through a pill alone. So.... I did some extra along with the pills. Go to the grocery store and buy some of the beautiful oils they have. Olive oil, walnut oil (super high in omega 3), almond oil, grapeseed oil, and coconut oil. Don't feed your child a morsel unless you drizzle a little bit of oil onto their food. It will save you a bundle in supplements and vastly increase the time it takes to build their stores of fats.... and your ability to get the good oils that their brains are craving into their systems.If your child is low toned, then they need carnitine, COQ10 added to this mix at the "very" minimum.If not, then they might do well on carnosine, B12 shots, B6/magnesium regime or some extra vitamin A. Vitamin A and CLO is what really has improved our eye-contact issues but you

need to do a pretty high dose to see improvments. People give up on CLO because they don't see improvments and then you find out that they're giving piddly amounts. Our kids are severely deficient. Most of the younger ones need several months of A at the minimum of 10,000 IU to see improvements and we did a few months of 20,000 IU before the eye contact issues straightened out. Our kids tend to have hyper-peripheral vision (caused by the visual stims from yeast). The therapy we used for this was pinhole glasses, 15 minutes of wearing them each day while either watching TV or while playing FAST video games to force the binocular vision to get a work out.Pretty much ALL of these kids have issues with yeast, bacteria overgrowth, etc so everyone needs a good anti-fungal and a probiotic... to start.Then...GET YOUR LABS! They are expensive both worth every dime. Build a roadmap. Learn how to analyse your labs yourself! That is

important. Get Sid Baker and Jon Pangborns book when you're waiting for your labs and go through each biomarker using this book. You'll learn a host of things about your child that no doctor has the time to research. But you do! You can!So.... what is your child doing? Make a list. Start a file on the computer and as things come up, write them down. Then, one by one, research each item. Find it's supplement, it's diet and it's therapy. Build a program and a regime. Do it daily! ...that includes the therapy. Don't just shunt your kid off to the therapist a few times a week and expect it to work. Believe me after 9.5 years of useless system speech therapy.... I learned that you have to do exercises daily for them to 'take'. I made more progress in 6 months of daily oral motor exercises of 9 minutes each then in doing close to 10 years of speech therapy! Learn from my son's wasted childhood here. You've got to work therapeutically with your

child at home. You're the only one who truly cares that they improve. You're vested. No one else is.It's not just one thing that heals these kids, it's generally many things. Supplements do not 'heal' the child; they support the child through healing. You want to attack any deficiencies in nutrients so the child can function. So you must attack the underlying issues such as metals, yeast and pathogens... .. otherwise you'll only get 'managed' recovery and not 'true' recovery. You want the real thing because no 22 year old is going to follow this regime on their own. You want to heal your child now so that they are not encumbered by supplements, pills and diet for the rest of their life in order to function. Believe me, keeping a teen on these diets is near impossible! Heal the gut, remove the metals and the child will be able to eat like you and me. That is the goal: complete recovery, not 'managed' recovery. It is doable! (hard, but

doable)That is the essence of the program you need to build. Lots of things will come up along the way. You may get a stint of diarrhea or a stint of constipation that you'll have to deal with (generally through diet). You experience wonderful gains and feel extreme elation and then BAM! .... you'll hit a regression and feel terribly blue. Don't worry, regressions pass. But DO research the regressions your child experiences because for my own son.... we have a 'recipe' to pull ourselves out of regressions that is very tailored to him.... and work 'every' time. But, I had to develop a protocol that worked for 'him'. We don't get regressions any more. The longer we chelated, the less they came on. The longer we chelated, the less we had to do diets. We now only live chemical free wheras when we were in the thick of healing, we couldn't eat ANY sugars, casien or starchy carbs. I don't know how I did it.... but I did! We all do. There is an inner

force that drives us. I think that it is the promise of health.My biggest piece of advice to all with kids who are in the 'thick' right now is this. Each night before you go to bed, imagine your child..... running up to you and speaking clearly, making jokes and behaving in a manner that is completely NT. Imagine your child graduating from high school, having a girlfriend and borrowing the car. Hold that image in your mind and never let it go. Walk toward that image... slowly and gently. I believe that this image has given me the strength to do the things I needed to do. Seeing my son healthy and whole in my mind allowed me to propel him forward to that in real life.Is he done? Not quite but he is more like the 'image' I held then I ever really believed possible. If you had asked me 3 years ago whether I ever thought it truly possible that Mark could travel on a school trip to France, I would have laughed out loud.... and then, I would

have lied and said, 'SURE'. But, I would have been lying, and saving face.We 'cover' for our kids constantly in the real world. It is on these boards where we can be absolutely raw and truthful. It is here where we can find answers and benefit from the experience of those that have gone before us. That is the beauty of the boards and without them, my boy would still be in special ed.... headed for the group home.I will always be eternally grateful to the mothers who taught me though I have never seen their faces. Crazy, eh? I owe them all so much!JaniceMother of Mark, 15>> Janice blew my mind.Ã‚ Especially when sheÃ‚ talked about what Mark went through at my sons' age as we are experiencing much of

the same.Ã‚ She should definitely share her story on other boards. It's overwhelming to think about the amount ofÃ‚ supplements and such we'll haveÃ‚ to start giving him.Ã‚ I can'at imagine how the first people to try all this ever figured it out orÃ‚ knew where to begin.Ã‚ My hubby, who has been supportive and just awesome is starting to get nervous and he's freaking out a little bit on me - especially about removing sugar entirely and all the supplements and rx's we've never even hear of before.Ã‚ Reading Janice's and 's stories were a real boost.Ã‚ Ã‚ It breaks my heart to think of any child believing themself Ã‚ to be "stupid" Ã‚ No child should ever feel that way and noÃ‚ mother should ever have to hear that.Ã‚ You're wise to explain it as a medical condition.Ã‚ Ã‚ Thanks for that link andÃ‚ your input! > > Tammy> > >

____________ _________ _________ __> From: Sally Averkamp <saverkamp@. ..>> To: mb12 valtrex@ yahoogroups. com> Sent: Wed, March 31, 2010 10:41:11 PM> Subject: Re: New to group> > Ã‚ > Tammy,> > Janice' post earlier was so incredible. One gets to learn a lot after a while of trial and error but the emotional support piece is huge. My son still thinks he is stupid in his down moments and the idea of separating it as a medical problem is important. I tried to tell that he was smart inside but it couldn't get out but I think her idea of using the "medical problem" explanation is easier for them (and me) to understand.> > The posts about CLO are important, too. It is never too early to start that. I can tell when hasn't had

it in awhile, his temper flares. Really seems to help calm him. Carlson is the most reasonably priced and the company is a good one from Illinois.> > There are a lot of good books out there and I learned small pieces that fit together information about my kids in each one. I always have one or two started. Don't rely entirely on doctors, even DANS!. They don't really know your kid like you do and the good ones will want your intuition as a guide.> > For Simply Smarter which we use even today, go to www.NACD.org.> > sally> > > > ____________ _________ _________ __> From: T Lynn <t.lynn28@rocketmai l .com>> To: mb12 valtrex@ yahoogroups. com> Sent: Wed, March 31, 2010 9:30:11 PM> Subject: Re: New to group> > Ã‚ > I haven't tried much of anything yet as this is all very new to me.Ã‚ I've been spending the

last few weeks just reading and learning as much as I can.Ã‚ We've taken small steps like getting him on a multivitam and l-theanine to reduce his anxiety.Ã‚ We've also started switching out his favorite foods for GFCF alternatives to ease the transition.Ã‚ I probably won't go 100% with it until school lets out for the year that way I'll have a little more control over the probability of infractions.Ã‚ I may alsoÃ‚ have to cut sugars (for yeast) and that's going to be difficult so I'll need some time to find foods and recipes he'll like.Ã‚ HeÃ‚ and his brother both haveÃ‚ issues with their sense ofÃ‚ smell so it makes it tough.Ã‚ I was going to start with OLE this weekend, but a couple of people have suggested I get him on probiotics asap so I've ordered those. and GSE.Ã‚ I'll introduce them one at a time.Ã‚ I'm in Rhode Island - I could only find one dan> nutritionist.Ã‚

We willÃ‚ drive a couple of hours into Massachusetts to a dan doc that takes ins.Ã‚ Those are few and far between around here.> > > > ____________ _________ _________ __> From: Sally Averkamp <saverkamp@sbcgloba l .net>> To: mb12 valtrex@ yahoogroups. com> Sent: Wed, March 31, 2010 9:44:06 PM> Subject: Re: New to group> > Ã‚ > Tammy,> > What have you done so far? GFCF? SCD? any supplements?Ã‚ > > I would start with some blood profiles to see what he deficient in although we generally supplement with a few things regardless like Vit. C, zinc, potassium iodine, enzymes, etc.> > Remember, every time you do a diet, supplement, or anything, his reaction to that is a clue as to what is going on in him.> > Not sure where you live, but Autism one in Chicago is a great way to start. I

watched webcasts for hours and hours and learned a lot but it was nothing close like attending my first conference.> > sally> > > > ____________ _________ _________ __> From: "t.lynn28@rocketmai l.com" <t.lynn28@rocketmai l .com>> To: mb12 valtrex@ yahoogroups. com> Sent: Tue, March 30, 2010 9:57:22 PM> Subject: New to group> > Ã‚ > > > Hi group,> > I've been reading posts here for a couple of weeks now and finally have a small grip on deciphering the OoO's OLE's, NT's and every other letter combination known to mankind. whew! Anyhow, I have a son(with developmental delays)who will be 8 in July and will go for his 3rd evaluation at the end of May and we're hoping to finally have a dx as he is in serious need of more than the 1/2hour/wk of speech therapy he receives at school. I suspect he will be dx'd somewhere

on the spectrum. My pediatrician is still in the dark ages as far as spectrum disorders are concerned. There is one Dan! doc about two hours away that takes ins. it is a very busy office (my sister takes her autistic son there). she has explained to me that when visiting that dan!, you sort of have to know where you'd like to go with the treatment and he'll either agree or not. My question is: in what order should I start testing? He's a big-time toe-walker, stims(by running back and forth> through the house), his interests are limited (and yes, he will force anyone and everyone to listen about them!) he's always had good eye contact and interaction but his verbal skills are that of a 4-5 yr. old. He has difficulty following verbal directions and has an increasingly difficult time with kids his own age. He has had chronic deep ear itch since forever. His symptoms seem to intensify at school where his teacher and therapists report more stimming

(humming and quiet singing), and concerns that he spends a great deal of the school day "in a fog". As a toddler he was a "spinner", played with his spit when he felt anxious and would briefly, at times, withdraw from people into his own little world. These have all worked themselves out over time. there is no headbanging, rocking, handflapping, and very few tantrums. He's never suffered from constipation or GI problems. So where should I start testing? Would it make sense to start with checking> bacteria and yeast levels if there are no GI symptoms? or perhaps metals? Hi! s anxiet y is growing worse each and everyday as mainstreaming part days turned out to be a nightmare and he's begining to realize his deficiencies in comparison to his peers. His self-esteem has tanked and I'm afraid he'll just give up. Outbursts are becoming more frequent. He has even pooped his pants a couple of times in the past few weeks which is strange as he's had only 1

accident (peeing) since he potty trained at 4. I'm just not sure what would be the most likely culprit that caused these symptoms? Where would be the smartest place to start? It might be important to add, that he was a breast-milk junkie and nursed well past the age of two. (My mother will tell you she only saw the back of his head his first year of life LOL) I remember an an infant he once had a terrible case of thrush. and only a couple of ear infections that were treated with antibiotics. I would> like to say, by the way, that this board is chock full of incredible people! It's been amazing sitting in - I can hardly believe the education I've received in such a short time. wow! Sorry. loooooooooong post!> > Tammy>

April 5, 2010

Hi ,

My name is Salina I am new to the group as well. I hope you never think of yourself in those horrible words I read your post and you are very smart and sound like a great guy.This world is full of ignorant people that love to judge...How long have you been doing bio. med? and what other therapies have you had?

Take care,

Salina

To: mb12 valtrex Sent: Mon, April 5, 2010 4:32:01 PMSubject: Re: New to group

More than anything else, the thought of that just breaks my heart. It upsets me to think of you ever feeling that way about yourself. How is your 4 liters of pee going? Also, this board is pretty new to me, so I don't know if you've ever mentioned it before or if you even care to answer but have you always managed your own recovery? Or did a parent or adult start and you've continued as an adult?

From: Kulp <thorenstd124@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, April 5, 2010 3:39:22 PMSubject: Re: New to group

Actually thinking you are "stupid","worthless ",or a "retard",is VERY common for children on the spectrum.

From: T Lynn <t.lynn28@rocketmail .com>To: mb12 valtrex@ yahoogroups. comSent: Thu, April 1, 2010 6:19:46 AMSubject: Re: New to group

Reading Janice's and 's stories were a real boost. It breaks my heart to think of any child believing themself to be "stupid" No child should ever feel that way and no mother should ever have to hear that. You're wise to explain it as a medical condition. Thanks for that link and your input!

Tammy

From: Sally Averkamp <saverkamp@sbcglobal .net>To: mb12 valtrex@ yahoogroups. comSent: Wed, March 31, 2010 10:41:11 PMSubject: Re: New to group

Tammy,

Janice' post earlier was so incredible. One gets to learn a lot after a while of trial and error but the emotional support piece is huge. My son still thinks he is stupid in his down moments and the idea of separating it as a medical problem is important. I tried to tell that he was smart inside but it couldn't get out but I think her idea of using the "medical problem" explanation is easier for them (and me) to understand.

The posts about CLO are important, too. It is never too early to start that. I can tell when hasn't had it in awhile, his temper flares. Really seems to help calm him. Carlson is the most reasonably priced and the company is a good one from Illinois.

There are a lot of good books out there and I learned small pieces that fit together information about my kids in each one. I always have one or two started. Don't rely entirely on doctors, even DANS!. They don't really know your kid like you do and the good ones will want your intuition as a guide.

For Simply Smarter which we use even today, go to www.NACD.org.

sally

From: T Lynn <t.lynn28@rocketmail .com>To: mb12 valtrex@ yahoogroups. comSent: Wed, March 31, 2010 9:30:11 PMSubject: Re: New to group

I haven't tried much of anything yet as this is all very new to me. I've been spending the last few weeks just reading and learning as much as I can. We've taken small steps like getting him on a multivitam and l-theanine to reduce his anxiety. We've also started switching out his favorite foods for GFCF alternatives to ease the transition. I probably won't go 100% with it until school lets out for the year that way I'll have a little more control over the probability of infractions. I may also have to cut sugars (for yeast) and that's going to be difficult so I'll need some time to find foods and recipes he'll like. He and his brother both have issues with their sense of smell so it makes it tough. I was going to start with OLE this weekend, but a couple of people have suggested I get him on probiotics asap so I've ordered those. and GSE. I'll introduce them one at a time.

I'm in Rhode Island - I could only find one dan nutritionist. We will drive a couple of hours into Massachusetts to a dan doc that takes ins. Those are few and far between around here.

From: Sally Averkamp <saverkamp@sbcglobal .net>To: mb12 valtrex@ yahoogroups. comSent: Wed, March 31, 2010 9:44:06 PMSubject: Re: New to group

Tammy,

What have you done so far? GFCF? SCD? any supplements?

I would start with some blood profiles to see what he deficient in although we generally supplement with a few things regardless like Vit. C, zinc, potassium iodine, enzymes, etc.

Remember, every time you do a diet, supplement, or anything, his reaction to that is a clue as to what is going on in him.

Not sure where you live, but Autism one in Chicago is a great way to start. I watched webcasts for hours and hours and learned a lot but it was nothing close like attending my first conference.

sally

From: "t.lynn28@rocketmai l.com" <t.lynn28@rocketmail .com>To: mb12 valtrex@ yahoogroups. comSent: Tue, March 30, 2010 9:57:22 PMSubject: New to group

Hi group,I've been reading posts here for a couple of weeks now and finally have a small grip on deciphering the OoO's OLE's, NT's and every other letter combination known to mankind. whew! Anyhow, I have a son(with developmental delays)who will be 8 in July and will go for his 3rd evaluation at the end of May and we're hoping to finally have a dx as he is in serious need of more than the 1/2hour/wk of speech therapy he receives at school. I suspect he will be dx'd somewhere on the spectrum. My pediatrician is still in the dark ages as far as spectrum disorders are concerned. There is one Dan! doc about two hours away that takes ins. it is a very busy office (my sister takes her autistic son there). she has explained to me that when visiting that dan!, you sort of have to know where you'd like to go with the treatment and he'll either agree or not. My question is: in what order should I start testing? He's a big-time toe-walker,

stims(by running back and forth through the house), his interests are limited (and yes, he will force anyone and everyone to listen about them!) he's always had good eye contact and interaction but his verbal skills are that of a 4-5 yr. old. He has difficulty following verbal directions and has an increasingly difficult time with kids his own age. He has had chronic deep ear itch since forever. His symptoms seem to intensify at school where his teacher and therapists report more stimming (humming and quiet singing), and concerns that he spends a great deal of the school day "in a fog". As a toddler he was a "spinner", played with his spit when he felt anxious and would briefly, at times, withdraw from people into his own little world. These have all worked themselves out over time. there is no headbanging, rocking, handflapping, and very few tantrums. He's never suffered from constipation or GI problems. So where should I start testing? Would it make

sense to start with checking bacteria and yeast levels if there are no GI symptoms? or perhaps metals? Hi! s anxiet y is growing worse each and everyday as mainstreaming part days turned out to be a nightmare and he's begining to realize his deficiencies in comparison to his peers. His self-esteem has tanked and I'm afraid he'll just give up. Outbursts are becoming more frequent. He has even pooped his pants a couple of times in the past few weeks which is strange as he's had only 1 accident (peeing) since he potty trained at 4. I'm just not sure what would be the most likely culprit that caused these symptoms? Where would be the smartest place to start? It might be important to add, that he was a breast-milk junkie and nursed well past the age of two. (My mother will tell you she only saw the back of his head his first year of life LOL) I remember an an infant he once had a terrible case of thrush. and only a couple of ear infections that were treated

with antibiotics. I would like to say, by the way, that this board is chock full of incredible people! It's been amazing sitting in - I can hardly believe the education I've received in such a short time. wow! Sorry. loooooooooong post!Tammy

April 6, 2010

Tammy, your son sounds so much like mine. He is 8 and very much behind both

socially and academically. He is still not reading. We homeschool and I have

told his pediatrician for years that something was off with him, but they kept

saying he would outgrow it. My heart goes out to you. I also am just starting

out in this endeavor. I am not even sure what to do first. I feel like crying a

lot of the time. Blessings to you, Sheatina

>

> More than anything else, the thought of that just breaks my heart.Â It upsets

me to think of you ever feeling that way about yourself.Â How is your 4 liters

of pee going?Â Also, this board is pretty new to me, so I don't know if you've

ever mentioned it before or if you even care to answer but have you always

managed your own recovery?Â Or did a parent or adult start and you've continued

as an adult?

>

> ________________________________

>

> To: mb12 valtrex

> Sent: Mon, April 5, 2010 3:39:22 PM

> Subject: Re: New to group

>

> Â

> Actually thinking you are " stupid " , " worthless " ,or a " retard " ,is VERY common

for children on the spectrum.

>

> Â

>

> ________________________________

> From: T Lynn <t.lynn28@rocketmail .com>

> To: mb12 valtrex@ yahoogroups. com

> Sent: Thu, April 1, 2010 6:19:46 AM

> Subject: Re: New to group

>

> Â Â Reading Janice's and 's stories were a real boost.Â Â It breaks my

heart to think of any child believing themself Â to be " stupid " Â No child

should ever feel that way and noÂ mother should ever have to hear that.Â You're

wise to explain it as a medical condition.Â Â Thanks for that link andÂ your

input!

>

> Tammy

>

> ________________________________

> From: Sally Averkamp <saverkamp@sbcglobal .net>

> To: mb12 valtrex@ yahoogroups. com

> Sent: Wed, March 31, 2010 10:41:11 PM

> Subject: Re: New to group

>

> Â

> Tammy,

>

> Janice' post earlier was so incredible. One gets to learn a lot after a while

of trial and error but the emotional support piece is huge. My son still thinks

he is stupid in his down moments and the idea of separating it as a medical

problem is important. I tried to tell that he was smart inside but it

couldn't get out but I think her idea of using the " medical problem " explanation

is easier for them (and me) to understand.

>

> The posts about CLO are important, too. It is never too early to start that. I

can tell when hasn't had it in awhile, his temper flares. Really seems to

help calm him. Carlson is the most reasonably priced and the company is a good

one from Illinois.

>

> There are a lot of good books out there and I learned small pieces that fit

together information about my kids in each one. I always have one or two

started. Don't rely entirely on doctors, even DANS!. They don't really know your

kid like you do and the good ones will want your intuition as a guide.

>

> For Simply Smarter which we use even today, go to www.NACD.org.

>

> sally

>

> ________________________________

> From: T Lynn <t.lynn28@rocketmail .com>

> To: mb12 valtrex@ yahoogroups. com

> Sent: Wed, March 31, 2010 9:30:11 PM

> Subject: Re: New to group

>

> Â

> I haven't tried much of anything yet as this is all very new to me.Â I've

been spending the last few weeks just reading and learning as much as I can.Â

We've taken small steps like getting him on a multivitam and l-theanine to

reduce his anxiety.Â We've also started switching out his favorite foods for

GFCF alternatives to ease the transition.Â I probably won't go 100% with it

until school lets out for the year that way I'll have a little more control over

the probability of infractions.Â I may alsoÂ have to cut sugars (for yeast) and

that's going to be difficult so I'll need some time to find foods and recipes

he'll like.Â HeÂ and his brother both haveÂ issues with their sense ofÂ smell

so it makes it tough.Â I was going to start with OLE this weekend, but a couple

of people have suggested I get him on probiotics asap so I've ordered those. and

GSE.Â I'll introduce them one at a time.Â I'm in Rhode Island - I could only

find one dan

> nutritionist.Â We willÂ drive a couple of hours into Massachusetts to a dan

doc that takes ins.Â Those are few and far between around here.

>

> ________________________________

> From: Sally Averkamp <saverkamp@sbcglobal .net>

> To: mb12 valtrex@ yahoogroups. com

> Sent: Wed, March 31, 2010 9:44:06 PM

> Subject: Re: New to group

>

> Â

> Tammy,

>

> What have you done so far? GFCF? SCD? any supplements?Â

>

> I would start with some blood profiles to see what he deficient in although we

generally supplement with a few things regardless like Vit. C, zinc, potassium

iodine, enzymes, etc.

>

> Remember, every time you do a diet, supplement, or anything, his reaction to

that is a clue as to what is going on in him.

>

> Not sure where you live, but Autism one in Chicago is a great way to start. I

watched webcasts for hours and hours and learned a lot but it was nothing close

like attending my first conference.

>

> sally

>

> ________________________________

> From: " t.lynn28@rocketmai l.com " <t.lynn28@rocketmail .com>

> To: mb12 valtrex@ yahoogroups. com

> Sent: Tue, March 30, 2010 9:57:22 PM

> Subject: New to group

>

> Â

>

> Hi group,

>

> I've been reading posts here for a couple of weeks now and finally have a

small grip on deciphering the OoO's OLE's, NT's and every other letter

combination known to mankind. whew! Anyhow, I have a son(with developmental

delays)who will be 8 in July and will go for his 3rd evaluation at the end of

May and we're hoping to finally have a dx as he is in serious need of more than

the 1/2hour/wk of speech therapy he receives at school. I suspect he will be

dx'd somewhere on the spectrum. My pediatrician is still in the dark ages as far

as spectrum disorders are concerned. There is one Dan! doc about two hours away

that takes ins. it is a very busy office (my sister takes her autistic son

there). she has explained to me that when visiting that dan!, you sort of have

to know where you'd like to go with the treatment and he'll either agree or not.

My question is: in what order should I start testing? He's a big-time

toe-walker, stims(by running back and forth

> through the house), his interests are limited (and yes, he will force anyone

and everyone to listen about them!) he's always had good eye contact and

interaction but his verbal skills are that of a 4-5 yr. old. He has difficulty

following verbal directions and has an increasingly difficult time with kids his

own age. He has had chronic deep ear itch since forever. His symptoms seem to

intensify at school where his teacher and therapists report more stimming

(humming and quiet singing), and concerns that he spends a great deal of the

school day " in a fog " . As a toddler he was a " spinner " , played with his spit

when he felt anxious and would briefly, at times, withdraw from people into his

own little world. These have all worked themselves out over time. there is no

headbanging, rocking, handflapping, and very few tantrums. He's never suffered

from constipation or GI problems. So where should I start testing? Would it make

sense to start with checking

> bacteria and yeast levels if there are no GI symptoms? or perhaps metals? Hi!

s anxiet y is growing worse each and everyday as mainstreaming part days turned

out to be a nightmare and he's begining to realize his deficiencies in

comparison to his peers. His self-esteem has tanked and I'm afraid he'll just

give up. Outbursts are becoming more frequent. He has even pooped his pants a

couple of times in the past few weeks which is strange as he's had only 1

accident (peeing) since he potty trained at 4. I'm just not sure what would be

the most likely culprit that caused these symptoms? Where would be the smartest

place to start? It might be important to add, that he was a breast-milk junkie

and nursed well past the age of two. (My mother will tell you she only saw the

back of his head his first year of life LOL) I remember an an infant he once had

a terrible case of thrush. and only a couple of ear infections that were treated

with antibiotics. I would

> like to say, by the way, that this board is chock full of incredible people!

It's been amazing sitting in - I can hardly believe the education I've received

in such a short time. wow! Sorry. loooooooooong post!

>

> Tammy

>

April 6, 2010

My goodness. First things first, do not wait for your pediatrician, get your son to a dan! doctor (or a biomedical doctor) now! I believe you can find a list according to location, on the TACA website. Click around, if you can't find it, get back to me and I'll find it for you. Read this board (and others) EVERY day. And ask questions. There are amazing people here with oodles of experiences to share and you can learn ALOT. The most important tips I've gotten so far, is find a dan!, get your son on good probiotics (people seem to like Kirkman's), good vitamins, Cod Liver Oil and Omegas. Call a neuropsyhcologist for an evaluation (if you have insurance, a diagnosis will help you get therapies).

Do not give up hope. There is so much we can do for our kids. If you feel like crying, cry. (Lord knows I have) Then pick yourself up by the bootstraps and get to work! You're most definitely on the right track if you find yourself on this board. Along with a good biomedical doctor, You will learn how to help your son here. In the mean time I will be praying for your son as I do for every family on this board. Stay connected. This is definitely the place where people can point you toward awesome resources. I don't know much more than you, but if you ever need to talk, vent, or cry, write me.

Be well!

Tammy

To: mb12 valtrex Sent: Tue, April 6, 2010 5:03:15 PMSubject: Re: New to group

Tammy, your son sounds so much like mine. He is 8 and very much behind both socially and academically. He is still not reading. We homeschool and I have told his pediatrician for years that something was off with him, but they kept saying he would outgrow it. My heart goes out to you. I also am just starting out in this endeavor. I am not even sure what to do first. I feel like crying a lot of the time. Blessings to you, Sheatina>> More than anything else, the thought of that just breaks my heart.Ã‚ It upsets me to think of you ever feeling that way about yourself.Ã‚ How is your 4 liters of pee going?Ã‚ Also, this board is pretty new to me, so I don't know if you've ever mentioned it before or if you even care to

answer but have you always managed your own recovery?Ã‚ Or did a parent or adult start and you've continued as an adult?> > > > > ____________ _________ _________ __> From: Kulp <thorenstd124@ ...>> To: mb12 valtrex@ yahoogroups. com> Sent: Mon, April 5, 2010 3:39:22 PM> Subject: Re: New to group> > Ã‚ > Actually thinking you are "stupid","worthless ",or a "retard",is VERY common for children on the spectrum.> > > Ã‚ > > > > > > ____________ _________ _________ __> From: T Lynn <t.lynn28@rocketmai l .com>> To: mb12 valtrex@ yahoogroups. com> Sent: Thu, April 1, 2010 6:19:46 AM> Subject: Re: New

to group> > > Ã‚ Ã‚ Reading Janice's and 's stories were a real boost.Ã‚ Ã‚ It breaks my heart to think of any child believing themself Ã‚ to be "stupid" Ã‚ No child should ever feel that way and noÃ‚ mother should ever have to hear that.Ã‚ You're wise to explain it as a medical condition.Ã‚ Ã‚ Thanks for that link andÃ‚ your input! > > Tammy> > > ____________ _________ _________ __> From: Sally Averkamp <saverkamp@sbcgloba l .net>> To: mb12 valtrex@ yahoogroups. com> Sent: Wed, March 31, 2010 10:41:11 PM> Subject: Re: New to group> > Ã‚ > Tammy,> > Janice' post earlier was so incredible. One gets to learn a lot after a while of trial and error but the emotional support piece is huge. My son still thinks he is stupid in his down moments and the idea

of separating it as a medical problem is important. I tried to tell that he was smart inside but it couldn't get out but I think her idea of using the "medical problem" explanation is easier for them (and me) to understand.> > The posts about CLO are important, too. It is never too early to start that. I can tell when hasn't had it in awhile, his temper flares. Really seems to help calm him. Carlson is the most reasonably priced and the company is a good one from Illinois.> > There are a lot of good books out there and I learned small pieces that fit together information about my kids in each one. I always have one or two started. Don't rely entirely on doctors, even DANS!. They don't really know your kid like you do and the good ones will want your intuition as a guide.> > For Simply Smarter which we use even today, go to www.NACD.org.> >

sally> > > > ____________ _________ _________ __> From: T Lynn <t.lynn28@rocketmai l .com>> To: mb12 valtrex@ yahoogroups. com> Sent: Wed, March 31, 2010 9:30:11 PM> Subject: Re: New to group> > Ã‚ > I haven't tried much of anything yet as this is all very new to me.Ã‚ I've been spending the last few weeks just reading and learning as much as I can.Ã‚ We've taken small steps like getting him on a multivitam and l-theanine to reduce his anxiety.Ã‚ We've also started switching out his favorite foods for GFCF alternatives to ease the transition.Ã‚ I probably won't go 100% with it until school lets out for the year that way I'll have a little more control over the probability of infractions.Ã‚ I may alsoÃ‚ have to cut sugars (for yeast) and that's going to be difficult so I'll need some time to find foods and recipes he'll

like.Ã‚ HeÃ‚ and his brother both haveÃ‚ issues with their sense ofÃ‚ smell so it makes it tough.Ã‚ I was going to start with OLE this weekend, but a couple of people have suggested I get him on probiotics asap so I've ordered those. and GSE.Ã‚ I'll introduce them one at a time.Ã‚ I'm in Rhode Island - I could only find one dan> nutritionist.Ã‚ We willÃ‚ drive a couple of hours into Massachusetts to a dan doc that takes ins.Ã‚ Those are few and far between around here.> > > > ____________ _________ _________ __> From: Sally Averkamp <saverkamp@sbcgloba l .net>> To: mb12 valtrex@ yahoogroups. com> Sent: Wed, March 31, 2010 9:44:06 PM> Subject: Re: New to group> > Ã‚ > Tammy,> > What have you done so far? GFCF? SCD? any supplements?Ã‚ > > I would start with

some blood profiles to see what he deficient in although we generally supplement with a few things regardless like Vit. C, zinc, potassium iodine, enzymes, etc.> > Remember, every time you do a diet, supplement, or anything, his reaction to that is a clue as to what is going on in him.> > Not sure where you live, but Autism one in Chicago is a great way to start. I watched webcasts for hours and hours and learned a lot but it was nothing close like attending my first conference.> > sally> > > > ____________ _________ _________ __> From: "t.lynn28@rocketmai l.com" <t.lynn28@rocketmai l .com>> To: mb12 valtrex@ yahoogroups. com> Sent: Tue, March 30, 2010 9:57:22 PM> Subject: New to group> > Ã‚ > > > Hi group,> > I've been reading posts here for

a couple of weeks now and finally have a small grip on deciphering the OoO's OLE's, NT's and every other letter combination known to mankind. whew! Anyhow, I have a son(with developmental delays)who will be 8 in July and will go for his 3rd evaluation at the end of May and we're hoping to finally have a dx as he is in serious need of more than the 1/2hour/wk of speech therapy he receives at school. I suspect he will be dx'd somewhere on the spectrum. My pediatrician is still in the dark ages as far as spectrum disorders are concerned. There is one Dan! doc about two hours away that takes ins. it is a very busy office (my sister takes her autistic son there). she has explained to me that when visiting that dan!, you sort of have to know where you'd like to go with the treatment and he'll either agree or not. My question is: in what order should I start testing? He's a big-time toe-walker, stims(by running back and forth> through the house), his

interests are limited (and yes, he will force anyone and everyone to listen about them!) he's always had good eye contact and interaction but his verbal skills are that of a 4-5 yr. old. He has difficulty following verbal directions and has an increasingly difficult time with kids his own age. He has had chronic deep ear itch since forever. His symptoms seem to intensify at school where his teacher and therapists report more stimming (humming and quiet singing), and concerns that he spends a great deal of the school day "in a fog". As a toddler he was a "spinner", played with his spit when he felt anxious and would briefly, at times, withdraw from people into his own little world. These have all worked themselves out over time. there is no headbanging, rocking, handflapping, and very few tantrums. He's never suffered from constipation or GI problems. So where should I start testing? Would it make sense to start with checking> bacteria and yeast

levels if there are no GI symptoms? or perhaps metals? Hi! s anxiet y is growing worse each and everyday as mainstreaming part days turned out to be a nightmare and he's begining to realize his deficiencies in comparison to his peers. His self-esteem has tanked and I'm afraid he'll just give up. Outbursts are becoming more frequent. He has even pooped his pants a couple of times in the past few weeks which is strange as he's had only 1 accident (peeing) since he potty trained at 4. I'm just not sure what would be the most likely culprit that caused these symptoms? Where would be the smartest place to start? It might be important to add, that he was a breast-milk junkie and nursed well past the age of two. (My mother will tell you she only saw the back of his head his first year of life LOL) I remember an an infant he once had a terrible case of thrush. and only a couple of ear infections that were treated with antibiotics. I would> like to say,

by the way, that this board is chock full of incredible people! It's been amazing sitting in - I can hardly believe the education I've received in such a short time. wow! Sorry. loooooooooong post!> > Tammy>

April 7, 2010

Sometimes you do "outgrow" it,but it takes decades...

To: mb12 valtrex Sent: Tue, April 6, 2010 3:03:15 PMSubject: Re: New to group