New to group

[Guest guest]

Hi Jolie:I love the names you gave your daughters! How old are they?What led to your diagnosis? What kind of symptoms were you having? And how are you doing now? Are you on any of the disease modifying drugs (CRAB-Ts)? I am 56 and was diagnosed in 1998 after having a really bad attack in 1997. I can, however, look back and see that I have had MS since I was 18 at least. I have two adult children and 8 grandkids ages 4 to 21.I'm so glad you found us! Sharonhttp://health.groups.yahoo.com/group/MSersHEALTH/This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. new to group

Hi all. I am new to the group and my name is Jolie. I just turned 30, that was a hard one for me! I was diagnosed in 2004. I have two beautiful daughters named Cienna and na. I look forward to meeting you all. Jolie------------------------------------

[Guest guest]

hi jolie welcome to the group. im kinda new here to and its the best group ever. its to bad we cant all get together and have a big party that would be so cool.i havent been diagnosed yet and its been six years. im getting more symptoms i just figure when i get bad enough they will finally diagnose me but for now its one day at a time. im sure everyone in this group has had ms for along time and just didnt know it. i know it very depressing but it makes you apreciate all the good days we have. im a very busy body and now i get so tired all the time just doing little things so i can see this progressing but i cant stop it so ill just have to make the best of it. i guess accepting it is the hardest thing. not only for me

but my family. especially my husband. he likes to think its all in my head. but he doesnt feel what i do. until i get diagnosed i dont think he will. well enough of me babbeling welcome to the group. i hope it brings you joy. it has for me. i havent talked to marion yet but hes quit intreging. i know i spelled that wrong lol. have a great day xoxoox deb new to group

Hi all. I am new to the group and my name is Jolie. I just turned 30, that was a hard one for me! I was diagnosed in 2004. I have two beautiful daughters named Cienna and na. I look forward to meeting you all. Jolie

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

hi jolie welcome to the group. im kinda new here to and its the best group ever. its to bad we cant all get together and have a big party that would be so cool.i havent been diagnosed yet and its been six years. im getting more symptoms i just figure when i get bad enough they will finally diagnose me but for now its one day at a time. im sure everyone in this group has had ms for along time and just didnt know it. i know it very depressing but it makes you apreciate all the good days we have. im a very busy body and now i get so tired all the time just doing little things so i can see this progressing but i cant stop it so ill just have to make the best of it. i guess accepting it is the hardest thing. not only for me

but my family. especially my husband. he likes to think its all in my head. but he doesnt feel what i do. until i get diagnosed i dont think he will. well enough of me babbeling welcome to the group. i hope it brings you joy. it has for me. i havent talked to marion yet but hes quit intreging. i know i spelled that wrong lol. have a great day xoxoox deb new to group

Hi all. I am new to the group and my name is Jolie. I just turned 30, that was a hard one for me! I was diagnosed in 2004. I have two beautiful daughters named Cienna and na. I look forward to meeting you all. Jolie

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

hi jolie welcome to the group. im kinda new here to and its the best group ever. its to bad we cant all get together and have a big party that would be so cool.i havent been diagnosed yet and its been six years. im getting more symptoms i just figure when i get bad enough they will finally diagnose me but for now its one day at a time. im sure everyone in this group has had ms for along time and just didnt know it. i know it very depressing but it makes you apreciate all the good days we have. im a very busy body and now i get so tired all the time just doing little things so i can see this progressing but i cant stop it so ill just have to make the best of it. i guess accepting it is the hardest thing. not only for me

but my family. especially my husband. he likes to think its all in my head. but he doesnt feel what i do. until i get diagnosed i dont think he will. well enough of me babbeling welcome to the group. i hope it brings you joy. it has for me. i havent talked to marion yet but hes quit intreging. i know i spelled that wrong lol. have a great day xoxoox deb new to group

Hi all. I am new to the group and my name is Jolie. I just turned 30, that was a hard one for me! I was diagnosed in 2004. I have two beautiful daughters named Cienna and na. I look forward to meeting you all. Jolie

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

Good morning all! Thank you so much for the greeting.

Now to answer your questions. My daughters are 7 and

8. I was diagnosed in 2004 only weeks after my

wedding. We kinda did things backwards, have kids then

get married. My first symptom was blurred vision,

doctor called it optic neuritis. I took tons of

steroids for that. Before I really got over that I

started having tingling feelings in my middle back.

These sensations progressed quickly and only 2 months

after diagnoses I was hospitalized, completely

paralyzed from the neck down. I spent about a month in

ICU struggling for every breath. My doctor tried alot

of different treatments (steriods, IVIG,

plasmapherisis, etc. Nothing worked, my doctor even

sent blood to the Mayo clinic to test for the rare

fatal form of MS. Thank God I didn't have that. Next,

my doctor decided to try chemotherapy. Within a week

after my week of chemo I slowly recovered, a wiggle of

a toe at first then about a month in the

rehabilitation unit learning to walk again.

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals.yahoo.com/tc/blockbuster/text5.com

[Guest guest]

Good morning all! Thank you so much for the greeting.

Now to answer your questions. My daughters are 7 and

8. I was diagnosed in 2004 only weeks after my

wedding. We kinda did things backwards, have kids then

get married. My first symptom was blurred vision,

doctor called it optic neuritis. I took tons of

steroids for that. Before I really got over that I

started having tingling feelings in my middle back.

These sensations progressed quickly and only 2 months

after diagnoses I was hospitalized, completely

paralyzed from the neck down. I spent about a month in

ICU struggling for every breath. My doctor tried alot

of different treatments (steriods, IVIG,

plasmapherisis, etc. Nothing worked, my doctor even

sent blood to the Mayo clinic to test for the rare

fatal form of MS. Thank God I didn't have that. Next,

my doctor decided to try chemotherapy. Within a week

after my week of chemo I slowly recovered, a wiggle of

a toe at first then about a month in the

rehabilitation unit learning to walk again.

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals.yahoo.com/tc/blockbuster/text5.com

[Guest guest]

Good morning all! Thank you so much for the greeting.

Now to answer your questions. My daughters are 7 and

8. I was diagnosed in 2004 only weeks after my

wedding. We kinda did things backwards, have kids then

get married. My first symptom was blurred vision,

doctor called it optic neuritis. I took tons of

steroids for that. Before I really got over that I

started having tingling feelings in my middle back.

These sensations progressed quickly and only 2 months

after diagnoses I was hospitalized, completely

paralyzed from the neck down. I spent about a month in

ICU struggling for every breath. My doctor tried alot

of different treatments (steriods, IVIG,

plasmapherisis, etc. Nothing worked, my doctor even

sent blood to the Mayo clinic to test for the rare

fatal form of MS. Thank God I didn't have that. Next,

my doctor decided to try chemotherapy. Within a week

after my week of chemo I slowly recovered, a wiggle of

a toe at first then about a month in the

rehabilitation unit learning to walk again.

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals.yahoo.com/tc/blockbuster/text5.com

[Guest guest]

Jolie, Hi. My name is . I was dx about 6 years ago and then undiagnosed about 6 months or so from another neurologist. I stayed in the group bcs I was encouraged to do so from everyone in the group even though I don't have ms. Everyone here is very nice. I don't post or read a lot of the emails bcs there are so many to go through and most are MS related. But we talk about more than MS in this group and everyone is so nice here. I am sure you will like the group. Wow....what an experience you had with the MS. Thank God you didn't have the rare MS dx. But you sure did have to go through a lot. I think this is the first I have heard of how severe MS can be. Can you walk now? Do you still have times where you can't feel your legs or below the neck? How long did it take for you to get back on your feet and learn to walk

again? Sorry for all the questions but I find your story very interesting. How is your husband and children taking all this? I find that a lot of the spouses have a really hard time with an MS dx. I don't think I have ever heard of Chemo being used for MS. You must have been so worried not knowing what was happening. I am very glad to hear that you got better. I hope you continue to be better and not worse. Take care and hugs, :)Jolie Kucera wrote: Good morning all! Thank you so much for the greeting.Now to answer your questions. My daughters are 7 and8. I was diagnosed in 2004 only weeks after mywedding. We kinda did things backwards, have kids thenget married. My first symptom was blurred vision,doctor called it optic neuritis. I took tons ofsteroids for that. Before I really got over that Istarted having tingling feelings in my middle back.These sensations progressed quickly and only 2 monthsafter diagnoses I was hospitalized, completelyparalyzed from the neck down. I spent about a month inICU struggling for every breath. My doctor tried alotof different treatments (steriods, IVIG,plasmapherisis, etc. Nothing worked, my doctor evensent blood to the Mayo clinic to test for the rarefatal form of MS. Thank God I didn't have that. Next,my doctor decided to try chemotherapy. Within a

weekafter my week of chemo I slowly recovered, a wiggle ofa toe at first then about a month in therehabilitation unit learning to walk again.__________________________________________________________You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com Peace,

Love and Hugs, D.

[Guest guest]

Wow Jolie! You have really been through a lot and what a rough introduction you had to the world of MS. What treatment are you on? hugs)) Sharonhttp://health.groups.yahoo.com/group/MSersHEALTH/This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: new to group

Good morning all! Thank you so much for the greeting.Now to answer your questions. My daughters are 7 and8. I was diagnosed in 2004 only weeks after mywedding. We kinda did things backwards, have kids thenget married. My first symptom was blurred vision,doctor called it optic neuritis. I took tons ofsteroids for that. Before I really got over that Istarted having tingling feelings in my middle back.These sensations progressed quickly and only 2 monthsafter diagnoses I was hospitalized, completelyparalyzed from the neck down. I spent about a month inICU struggling for every breath. My doctor tried alotof different treatments (steriods, IVIG,plasmapherisis, etc. Nothing worked, my doctor evensent blood to the Mayo clinic to test for the rarefatal form of MS. Thank God I didn't have that. Next,my doctor decided to try chemotherapy. Within a weekafter my week of chemo I slowly

recovered, a wiggle ofa toe at first then about a month in therehabilitation unit learning to walk again. ____________________________________________________________________________________You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com------------------------------------

[Guest guest]

Wow Jolie! You have really been through a lot and what a rough introduction you had to the world of MS. What treatment are you on? hugs)) Sharonhttp://health.groups.yahoo.com/group/MSersHEALTH/This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: new to group

Good morning all! Thank you so much for the greeting.Now to answer your questions. My daughters are 7 and8. I was diagnosed in 2004 only weeks after mywedding. We kinda did things backwards, have kids thenget married. My first symptom was blurred vision,doctor called it optic neuritis. I took tons ofsteroids for that. Before I really got over that Istarted having tingling feelings in my middle back.These sensations progressed quickly and only 2 monthsafter diagnoses I was hospitalized, completelyparalyzed from the neck down. I spent about a month inICU struggling for every breath. My doctor tried alotof different treatments (steriods, IVIG,plasmapherisis, etc. Nothing worked, my doctor evensent blood to the Mayo clinic to test for the rarefatal form of MS. Thank God I didn't have that. Next,my doctor decided to try chemotherapy. Within a weekafter my week of chemo I slowly

recovered, a wiggle ofa toe at first then about a month in therehabilitation unit learning to walk again. ____________________________________________________________________________________You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com------------------------------------

[Guest guest]

Hi Jolie,

Welcome to the group. Wow, 30!!! I remember that one, vaguely, lol!!!

It seems like so looong ago now, sigh. I am Peggy and I am 41, still

wondering how I EVER got to be this age!!! I have 2 children as well,

1 girl, 1 boy. is 18 and ready to graduate high school and

begin college in the fall. She wants to become a nurse!! Zackary is 5

and will be graduating kindergarten(hopefully) and he wants to become

a race car driver, a fireman, a stuntman, a motocross biker, etc.,

anything that can cause bodily harm!!! He has ADHD among other issues.

I have been married to for 22 years the end of this month

(geez)!!! LOL! We live in Central NY where Spring still has not

sprung, gggrrrrr.

I was dx. in July of 2006 right before my 40th birthday. Probably the

crappiest birthday present I ever got. So far only one relapse and

doing ok!! Hope to get to know you better here on the board!!!

Hugs,

Peggy

>

> Hi all. I am new to the group and my name is Jolie. I just turned

30, that was a hard one for me! I was diagnosed in 2004. I have two

beautiful daughters named Cienna and na. I look forward to

meeting you all. Jolie

>

[Guest guest]

Welcome to the family Jolie:) How frightening a time you had! What is the

name of the rare form of MS?

ConnieS

Re: new to group

> Good morning all! Thank you so much for the greeting.

> Now to answer your questions. My daughters are 7 and

> 8. I was diagnosed in 2004 only weeks after my

> wedding. We kinda did things backwards, have kids then

> get married. My first symptom was blurred vision,

> doctor called it optic neuritis. I took tons of

> steroids for that. Before I really got over that I

> started having tingling feelings in my middle back.

> These sensations progressed quickly and only 2 months

> after diagnoses I was hospitalized, completely

> paralyzed from the neck down. I spent about a month in

> ICU struggling for every breath. My doctor tried alot

> of different treatments (steriods, IVIG,

> plasmapherisis, etc. Nothing worked, my doctor even

> sent blood to the Mayo clinic to test for the rare

> fatal form of MS. Thank God I didn't have that. Next,

> my doctor decided to try chemotherapy. Within a week

> after my week of chemo I slowly recovered, a wiggle of

> a toe at first then about a month in the

> rehabilitation unit learning to walk again.

>

>

>

>

________________________________________________________________________________\

____

> You rock. That's why Blockbuster's offering you one month of Blockbuster

> Total Access, No Cost.

> http://tc.deals.yahoo.com/tc/blockbuster/text5.com

>

> ------------------------------------

>

>

[Guest guest]

Welcome to the family Jolie:) How frightening a time you had! What is the

name of the rare form of MS?

ConnieS

Re: new to group

> Good morning all! Thank you so much for the greeting.

> Now to answer your questions. My daughters are 7 and

> 8. I was diagnosed in 2004 only weeks after my

> wedding. We kinda did things backwards, have kids then

> get married. My first symptom was blurred vision,

> doctor called it optic neuritis. I took tons of

> steroids for that. Before I really got over that I

> started having tingling feelings in my middle back.

> These sensations progressed quickly and only 2 months

> after diagnoses I was hospitalized, completely

> paralyzed from the neck down. I spent about a month in

> ICU struggling for every breath. My doctor tried alot

> of different treatments (steriods, IVIG,

> plasmapherisis, etc. Nothing worked, my doctor even

> sent blood to the Mayo clinic to test for the rare

> fatal form of MS. Thank God I didn't have that. Next,

> my doctor decided to try chemotherapy. Within a week

> after my week of chemo I slowly recovered, a wiggle of

> a toe at first then about a month in the

> rehabilitation unit learning to walk again.

>

>

>

>

________________________________________________________________________________\

____

> You rock. That's why Blockbuster's offering you one month of Blockbuster

> Total Access, No Cost.

> http://tc.deals.yahoo.com/tc/blockbuster/text5.com

>

> ------------------------------------

>

>

[Guest guest]

Welcome to the family Jolie:) How frightening a time you had! What is the

name of the rare form of MS?

ConnieS

Re: new to group

> Good morning all! Thank you so much for the greeting.

> Now to answer your questions. My daughters are 7 and

> 8. I was diagnosed in 2004 only weeks after my

> wedding. We kinda did things backwards, have kids then

> get married. My first symptom was blurred vision,

> doctor called it optic neuritis. I took tons of

> steroids for that. Before I really got over that I

> started having tingling feelings in my middle back.

> These sensations progressed quickly and only 2 months

> after diagnoses I was hospitalized, completely

> paralyzed from the neck down. I spent about a month in

> ICU struggling for every breath. My doctor tried alot

> of different treatments (steriods, IVIG,

> plasmapherisis, etc. Nothing worked, my doctor even

> sent blood to the Mayo clinic to test for the rare

> fatal form of MS. Thank God I didn't have that. Next,

> my doctor decided to try chemotherapy. Within a week

> after my week of chemo I slowly recovered, a wiggle of

> a toe at first then about a month in the

> rehabilitation unit learning to walk again.

>

>

>

>

________________________________________________________________________________\

____

> You rock. That's why Blockbuster's offering you one month of Blockbuster

> Total Access, No Cost.

> http://tc.deals.yahoo.com/tc/blockbuster/text5.com

>

> ------------------------------------

>

>

[Guest guest]

>

> Welcome to the family Jolie:) How frightening a time you had! What is the

> name of the rare form o

It is referred to as malignantly progressive MS. very rare.

[Guest guest]

>

> Welcome to the family Jolie:) How frightening a time you had! What is the

> name of the rare form o

It is referred to as malignantly progressive MS. very rare.

[Guest guest]

There is also Devics Disease. Which is like ms but more severe. My docs

thought I had Devics a few yrs. Ago and I had to have several tests

done and see several specialists. Awful disease. Take care

hugz,cassy

Re: new to group

& gt;

& gt; Welcome to the family Jolie:) How frightening a time you had!

What is the

& gt; name of the rare form o

It is

referred to as malignantly progressive MS. very rare.

[Guest guest]

Hi Deb! )

As far as your husband's thought on it all being in your head... That may depend on where the lesions are found. He could be right! LOL

HUGS,

Challis

new to group

Hi all. I am new to the group and my name is Jolie. I just turned 30, that was a hard one for me! I was diagnosed in 2004. I have two beautiful daughters named Cienna and na. I look forward to meeting you all. Jolie

You rock. That's why Blockbuster' s offering you one month of Blockbuster Total Access, No Cost.

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

chris, welcome to the group. we look forward to assisting you in any way we can.

you are just an email away when you have a question, smile. karen from canada

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

------------------------------------------------------------------------------

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Checked by AVG - http://www.avg.com

Version: 8.0.176 / Virus Database: 270.9.12/1822 - Release Date: 12/1/2008

8:23 AM

[Guest guest]

chris, welcome to the group. we look forward to assisting you in any way we can.

you are just an email away when you have a question, smile. karen from canada

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.176 / Virus Database: 270.9.12/1822 - Release Date: 12/1/2008

8:23 AM

[Guest guest]

Hello

I too got type 1 diabetes at age 12, but that was in 1967. I lost my sight in

one eye, then in the other a year later, and that was in 1988. I had the same

problems you are having. Hopefully, over 20 years later, and if you were able

to get your retinas re-attached well enough, you won't lose your sight like me

(and others on this list).

Glad you found the list. Feel free to share anything you wish pertaining to

your diabetes and blindness.

Dave

God doesn't hate sinners, just sin!

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

[Guest guest]

Hello

I too got type 1 diabetes at age 12, but that was in 1967. I lost my sight in

one eye, then in the other a year later, and that was in 1988. I had the same

problems you are having. Hopefully, over 20 years later, and if you were able

to get your retinas re-attached well enough, you won't lose your sight like me

(and others on this list).

Glad you found the list. Feel free to share anything you wish pertaining to

your diabetes and blindness.

Dave

God doesn't hate sinners, just sin!

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

[Guest guest]

Hello

I too got type 1 diabetes at age 12, but that was in 1967. I lost my sight in

one eye, then in the other a year later, and that was in 1988. I had the same

problems you are having. Hopefully, over 20 years later, and if you were able

to get your retinas re-attached well enough, you won't lose your sight like me

(and others on this list).

Glad you found the list. Feel free to share anything you wish pertaining to

your diabetes and blindness.

Dave

God doesn't hate sinners, just sin!

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

[Guest guest]

Hi I'm Vicki, diabetic for 3 years, and totally blind from birth. It

sounds like you are going through a really rough and uncertain time, and I feel

badly about that and such a change in your eyes. Yes, this is a good place to

go and there is always someone or more to listen and to give you good advice. I

hope we hear from you frequently.

Vicki

A prudent man gives thought to his steps.

Proverbs 14:15

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

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8:23 AM

[Guest guest]

Hi I'm Vicki, diabetic for 3 years, and totally blind from birth. It

sounds like you are going through a really rough and uncertain time, and I feel

badly about that and such a change in your eyes. Yes, this is a good place to

go and there is always someone or more to listen and to give you good advice. I

hope we hear from you frequently.

Vicki

A prudent man gives thought to his steps.

Proverbs 14:15

new to group

I just joined the group. I have had Type I diabetes since age

12...so that's 23 years now. Right now I am being treated for

detached retinas in both eyes. In April 2008 both eyes developed

detached retinas. I had surgery to repari them, with gas bubles.

In June 2008, both retinas detached again and I deeveloped cataracts

in both eyes. Later that month I had surgery on each eye again,

this time with silicone oil. On Wednesday December 3, I am

scheduled to have the silicone removed from my right eye along with

some kind of blood membrane that is blocking my vision to the point

where I can only se light if its shined into my right eye. the left

eye is currently at 20/400.

The last day I worked was in April. I lost my job, car, aprtment,

and a lot of independence. Fortunately, I moved back to my hometown

by Bloomington IL and into low income housing. In November I

received SSDI and state Medicaid. My family has been extremely

important in helping me get by. And fortunately, I can do the day

to day things needed to get by in my apartment.

Thanks, Chris

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8:23 AM