- Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??

October 2, 2010

I don't know, I can't tell from your post what the time line is. So you saw

social regression after strep and then after adding OLE you saw aggression and

hands over ears, etc.???

All I can say is that you should have an OAT test done if you're not sure. If

the OAT shows no bacteria or yeast, then maybe you still have some strep to deal

with...maybe you should increase the OLE? zithromax worked great in my 5yo for a

year until he developed clostridia and I had to stop it.

> >>

> >> From: stephanieweeks@ <stephanieweeks@>

> >> Subject: Started OLE for PANDAS, but seeing some major gains

> >>elsewhere...some feedback??

> >> Date: Wednesday, September 29, 2010, 1:07 PM

> >>

> >> Ã‚

> >>

> >> I started my 5 and 2 year old boys on OLE (first 250mg, then 500mg 3 times

a

> >>day). I do believe it is helping pandas, but in my very speech delayed,

gross

> >>motor delayed 2yo I am seeing quite a leap in speech and overall

> >>interaction/affection.

> >>

> >> I am also seeing a fine, raised rash, first on his thigh, then on his

torso.

> >>Some days it goes away and some days it comes back. I am also treating him

with

> >>things like OoO and GSE to combat yeast.

> >>

> >> Behaviorally, he is very fussy and even a little aggressive. He is hitting

me

> >>(although still responds to discipline) and he also has a little sound

> >>sensitivity. I have to say that I almost wonder if his clostridia has come

back,

> >>but I am wondering if this is more of a viral die-off thing. Any feedback

would

> >>be greatly appreciated.

> >>

> >

>

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