Re: IGA Hair Loss...(new to the site)?

[Guest guest]

Hello H,

Let me start by extending a very warm welcome to the site. Congratulations

on your recent marriage. You certainly have started off with additional

stresses in experiencing kidney failure. I am so sorry you are having to cope

with

all this while at the same time being a newlywed. My heart goes out to you.

I think it is terrible that you went from Feb until this summer to be

diagnosed with kidney failure. You must have been feeling very terrible. It

seems

very irresponsible of your first doctor to not even order any basic blood

tests. Have you informed that doctor that you in fact did have kidney failure?

Perhaps knowing will keep that doctor from making a similar mistake with another

patient in the future.

I don't have any answers for you on the hair loss, but still wanted to

welcome you on board.

[Guest guest]

I am not sure what Prilosec is. I have taken:

Hydralazine; Phoslo; Prednisone; Norvasc; Labetalol; and Lisinopril.

I was eating Tums but then switched to Phoslo and that's when the hair

started falling out. My Neph said that Phoslo wouldn't do that. My Neph

stopped

the Labetalol and switched me to Lisinopril. Could it have been the

Lebetalol....but I stopped taking it a month ago and the hair is still falling

out.

Someone said that perhaps it's my magnesium intake. Not too sure on that...I'm

still waiting for my blood test on that one.

Thanks.

[Guest guest]

I am not sure what Prilosec is. I have taken:

Hydralazine; Phoslo; Prednisone; Norvasc; Labetalol; and Lisinopril.

I was eating Tums but then switched to Phoslo and that's when the hair

started falling out. My Neph said that Phoslo wouldn't do that. My Neph

stopped

the Labetalol and switched me to Lisinopril. Could it have been the

Lebetalol....but I stopped taking it a month ago and the hair is still falling

out.

Someone said that perhaps it's my magnesium intake. Not too sure on that...I'm

still waiting for my blood test on that one.

Thanks.

[Guest guest]

Are you taking Prilosec by any chance?

Walt

_____

From: hanskell6

Sent: Thursday, January 22, 2004 11:42 AM

To: iga-nephropathy

Subject: IGA Hair Loss...(new to the site)?

Hi,

I'm new to the site. I have never posted before. I was diagnosed

with IGA in July 03. I was never sick before...but I became very

tired/sick around Feb 03. My doctor thought I had allergies and

stress (due to wedding preparations...got married in June 03). I

believed her. I kept taking the medicine that she prescibed...and

kept feeling worse. She never did a simple blood test. Not until

after the honeymoon (and at my husband's strong suggestion) did I

change doctors. My new doctor did a blood test and realized I had

Kidney failure. Long story short...I have 0% of my kidney function

left, I'm on dialysis and am waiting for a transplant (hopefully in

March).

Like everyone else, I am dealing with this and all the pain as it

comes. Lately I have been losing my hair and this scares me to

death. Of all that I have been through it is kinda silly that I'm so

worried about losing my hair. So I am sorry if I sound vain. I'm

nervous because no one can tell me why. My Neph doctor and my

primary have run several tests to no avail. Does anyone else have

this problem? Am I one off or is this common? Could dialysis be

doing this? Could it be my diet? My potassium, phosphorous, protein

have all been good. Any feedback would be appreciated. Thank you

for your time.

H

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

<http://groups.yahoo.com/group/iga-nephropathy/>

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm <http://www.igan.ca/id62.htm>

Thank you

[Guest guest]

Pierre,

I hope your wife doesn't read your posts too often! :-)

Dana

Re: IGA Hair Loss...(new to the site)?

> H,

>

> Welcome to the group.

>

> I didn't realize it at the time, but when my kidney function went

> south my hair was very thin and flat, my fingernails barely grew, my

> skin was very dry and I lost a good bit of weight. I think the body

> just gets tired when It has to deal with the extra things not

> getting filtered from the body. I have since had a transplant and my

> hair is thick again, nails grow, skin is fine. On a side note I was

> also married last June.

>

>

>

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

H,

Welcome to the group.

I didn't realize it at the time, but when my kidney function went

south my hair was very thin and flat, my fingernails barely grew, my

skin was very dry and I lost a good bit of weight. I think the body

just gets tired when It has to deal with the extra things not

getting filtered from the body. I have since had a transplant and my

hair is thick again, nails grow, skin is fine. On a side note I was

also married last June.

> Hi,

>

> I'm new to the site. I have never posted before. I was diagnosed

> with IGA in July 03. I was never sick before...but I became very

> tired/sick around Feb 03. My doctor thought I had allergies and

> stress (due to wedding preparations...got married in June 03). I

> believed her. I kept taking the medicine that she prescibed...and

> kept feeling worse. She never did a simple blood test. Not until

> after the honeymoon (and at my husband's strong suggestion) did I

> change doctors. My new doctor did a blood test and realized I had

> Kidney failure. Long story short...I have 0% of my kidney

function

> left, I'm on dialysis and am waiting for a transplant (hopefully

in

> March).

>

> Like everyone else, I am dealing with this and all the pain as it

> comes. Lately I have been losing my hair and this scares me to

> death. Of all that I have been through it is kinda silly that I'm

so

> worried about losing my hair. So I am sorry if I sound vain. I'm

> nervous because no one can tell me why. My Neph doctor and my

> primary have run several tests to no avail. Does anyone else have

> this problem? Am I one off or is this common? Could dialysis be

> doing this? Could it be my diet? My potassium, phosphorous,

protein

> have all been good. Any feedback would be appreciated. Thank you

> for your time.

>

> H

[Guest guest]

I'm on dialysis too, but my hair loss started long before that

There are reports of hair loss on dialysis though, but, there can be many

causes. One of them is protein malnutrition. As you know, it's very easy to

not eat enough protein when on dialysis, and that can lead to hair loss

(hair is primarily made of protein, and since we all lose hair everyday, if

you are protein malnourished as is common on dialysis, it might not be able

to grow back fast enough to replace the lost hair). There can be other

things, like zinc deficiency, or sometimes even drug reactions (as Walt

already suggested), allergic reaction to the dialyzer, etc. I'm afraid it

can take a long time of experimenting by elimination to figure it out, if

there's nothing obviously wrong in the blood work. I know one man who had

hair loss, and after he got a transplant, his hair came back. I think the

first thing would be to talk to your dietician to see if you might possibly

not be eating enough protein. In my experience so far with dialysis, the

dietician is a lot more clued in to this than the nephrologists are. Do you

have any other strange, allergic-type reaction, like skin rashes or

anything? If so, then, the likely culprit might be an allergy to a drug

(including the heparin during dialysis), or to the dialyzer itself (they do

have a hypo-allergenic version for people who have problems with the regular

ones). Even stress can cause hair loss.

But the greatest difficulty you may have in finding out why you are losing

hair is that kidney failure itself can be the cause, and if so, maybe it

will come back once you've been on dialysis a while. Not much the

nephrologists can do about it, I'm afraid.

Pierre

IGA Hair Loss...(new to the site)?

> Hi,

>

> I'm new to the site. I have never posted before. I was diagnosed

> with IGA in July 03. I was never sick before...but I became very

> tired/sick around Feb 03. My doctor thought I had allergies and

> stress (due to wedding preparations...got married in June 03). I

> believed her. I kept taking the medicine that she prescibed...and

> kept feeling worse. She never did a simple blood test. Not until

> after the honeymoon (and at my husband's strong suggestion) did I

> change doctors. My new doctor did a blood test and realized I had

> Kidney failure. Long story short...I have 0% of my kidney function

> left, I'm on dialysis and am waiting for a transplant (hopefully in

> March).

>

> Like everyone else, I am dealing with this and all the pain as it

> comes. Lately I have been losing my hair and this scares me to

> death. Of all that I have been through it is kinda silly that I'm so

> worried about losing my hair. So I am sorry if I sound vain. I'm

> nervous because no one can tell me why. My Neph doctor and my

> primary have run several tests to no avail. Does anyone else have

> this problem? Am I one off or is this common? Could dialysis be

> doing this? Could it be my diet? My potassium, phosphorous, protein

> have all been good. Any feedback would be appreciated. Thank you

> for your time.

>

> H

>

[Guest guest]

,

Marriage generally causes men to actually pull their hair out - which is why

so many men are bald. Of course, it takes more than just a few months of

marriage until it's noticeable

But I just posted about another man I know who got a transplant after

dialysis and his hair started growing nicely again. So, you're more

confirmation of this. I sure wouldn't mind growing some!

Pierre

Re: IGA Hair Loss...(new to the site)?

> H,

>

> Welcome to the group.

>

> I didn't realize it at the time, but when my kidney function went

> south my hair was very thin and flat, my fingernails barely grew, my

> skin was very dry and I lost a good bit of weight. I think the body

> just gets tired when It has to deal with the extra things not

> getting filtered from the body. I have since had a transplant and my

> hair is thick again, nails grow, skin is fine. On a side note I was

> also married last June.

>

>

>

[Guest guest]

Pierre,

Thanks for dropping a laugh into my day. Yeah hair's still there

for now, but it's only been 7 months.

May more hair grace you in the near future.

> ,

>

> Marriage generally causes men to actually pull their hair out -

which is why

> so many men are bald. Of course, it takes more than just a few

months of

> marriage until it's noticeable

>

> But I just posted about another man I know who got a transplant

after

> dialysis and his hair started growing nicely again. So, you're more

> confirmation of this. I sure wouldn't mind growing some!

>

> Pierre

>

> Re: IGA Hair Loss...(new to the site)?

>

>

> > H,

> >

> > Welcome to the group.

> >

> > I didn't realize it at the time, but when my kidney function went

> > south my hair was very thin and flat, my fingernails barely

grew, my

> > skin was very dry and I lost a good bit of weight. I think the

body

> > just gets tired when It has to deal with the extra things not

> > getting filtered from the body. I have since had a transplant

and my

> > hair is thick again, nails grow, skin is fine. On a side note I

was

> > also married last June.

> >

> >

> >

[Guest guest]

Pierre thinks he a comedian today... Makes me laugh though and I love

it...

Connie

Re: Re: IGA Hair Loss...(new to the site)?

,

Marriage generally causes men to actually pull their hair out - which is

why

so many men are bald. Of course, it takes more than just a few months of

marriage until it's noticeable

But I just posted about another man I know who got a transplant after

dialysis and his hair started growing nicely again. So, you're more

confirmation of this. I sure wouldn't mind growing some!

Pierre

Re: IGA Hair Loss...(new to the site)?

> H,

>

> Welcome to the group.

>

> I didn't realize it at the time, but when my kidney function went

> south my hair was very thin and flat, my fingernails barely grew, my

> skin was very dry and I lost a good bit of weight. I think the body

> just gets tired when It has to deal with the extra things not

> getting filtered from the body. I have since had a transplant and my

> hair is thick again, nails grow, skin is fine. On a side note I was

> also married last June.

>

>

>

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi and welcome to the site. I have been " shedding " horribly since starting

all the medications in Sept. Prednisone seemed to make it much worse. At

times I'm losing hair in clumps, then it tapers off a bit, then starts back

up when they change my dosages again so I find mine tends to be medication

related. I've been noticing lots of new shorter hairs growing in though

which stick out all over like sore thumbs in my waist length hair. Like

Pierre said it can be caused by numerous other things though, including the

kidneys shutting down. And like Pierre said so wonderfully check with your

dietician they are a great resource and can help on many levels. Mine has

helped me with numbness I tend to get in my mouth and fingers, the docs

couldn't explain it but a few hours of her going over my diet and we found

my phosphorus levels were too low. I changed my diet a bit and viola no

more numbness!

It's o.k. to be worried about the hair loss, heck I posted here about a

hairstyle that would look good with the " moon face " caused by prednisone.

When you look good it has a tendency to make you feel better, nothing vain

about that.

Hang in there and welcome again,

Amy

IGA Hair Loss...(new to the site)?

> Hi,

>

> I'm new to the site. I have never posted before. I was diagnosed

> with IGA in July 03. I was never sick before...but I became very

> tired/sick around Feb 03. My doctor thought I had allergies and

> stress (due to wedding preparations...got married in June 03). I

> believed her. I kept taking the medicine that she prescibed...and

> kept feeling worse. She never did a simple blood test. Not until

> after the honeymoon (and at my husband's strong suggestion) did I

> change doctors. My new doctor did a blood test and realized I had

> Kidney failure. Long story short...I have 0% of my kidney function

> left, I'm on dialysis and am waiting for a transplant (hopefully in

> March).

>

> Like everyone else, I am dealing with this and all the pain as it

> comes. Lately I have been losing my hair and this scares me to

> death. Of all that I have been through it is kinda silly that I'm so

> worried about losing my hair. So I am sorry if I sound vain. I'm

> nervous because no one can tell me why. My Neph doctor and my

> primary have run several tests to no avail. Does anyone else have

> this problem? Am I one off or is this common? Could dialysis be

> doing this? Could it be my diet? My potassium, phosphorous, protein

> have all been good. Any feedback would be appreciated. Thank you

> for your time.

>

> H

>

>

>

>

>

>

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

[Guest guest]

Hi and welcome to the site. I have been " shedding " horribly since starting

all the medications in Sept. Prednisone seemed to make it much worse. At

times I'm losing hair in clumps, then it tapers off a bit, then starts back

up when they change my dosages again so I find mine tends to be medication

related. I've been noticing lots of new shorter hairs growing in though

which stick out all over like sore thumbs in my waist length hair. Like

Pierre said it can be caused by numerous other things though, including the

kidneys shutting down. And like Pierre said so wonderfully check with your

dietician they are a great resource and can help on many levels. Mine has

helped me with numbness I tend to get in my mouth and fingers, the docs

couldn't explain it but a few hours of her going over my diet and we found

my phosphorus levels were too low. I changed my diet a bit and viola no

more numbness!

It's o.k. to be worried about the hair loss, heck I posted here about a

hairstyle that would look good with the " moon face " caused by prednisone.

When you look good it has a tendency to make you feel better, nothing vain

about that.

Hang in there and welcome again,

Amy

IGA Hair Loss...(new to the site)?

> Hi,

>

> I'm new to the site. I have never posted before. I was diagnosed

> with IGA in July 03. I was never sick before...but I became very

> tired/sick around Feb 03. My doctor thought I had allergies and

> stress (due to wedding preparations...got married in June 03). I

> believed her. I kept taking the medicine that she prescibed...and

> kept feeling worse. She never did a simple blood test. Not until

> after the honeymoon (and at my husband's strong suggestion) did I

> change doctors. My new doctor did a blood test and realized I had

> Kidney failure. Long story short...I have 0% of my kidney function

> left, I'm on dialysis and am waiting for a transplant (hopefully in

> March).

>

> Like everyone else, I am dealing with this and all the pain as it

> comes. Lately I have been losing my hair and this scares me to

> death. Of all that I have been through it is kinda silly that I'm so

> worried about losing my hair. So I am sorry if I sound vain. I'm

> nervous because no one can tell me why. My Neph doctor and my

> primary have run several tests to no avail. Does anyone else have

> this problem? Am I one off or is this common? Could dialysis be

> doing this? Could it be my diet? My potassium, phosphorous, protein

> have all been good. Any feedback would be appreciated. Thank you

> for your time.

>

> H

>

>

>

>

>

>

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

[Guest guest]

What used to kill me was my mother in law (who never took lessons from

's MIL). My husband's hair was long gone (maybe his first wife?) when

we got together. His mother's transition from " cut your hair " to signing

him up for " Hair Club for Men " was utterly seamless. Oy!

Cy

Re: IGA Hair Loss...(new to the site)?

>

>

> > H,

> >

> > Welcome to the group.

> >

> > I didn't realize it at the time, but when my kidney function went

> > south my hair was very thin and flat, my fingernails barely grew, my

> > skin was very dry and I lost a good bit of weight. I think the body

> > just gets tired when It has to deal with the extra things not

> > getting filtered from the body. I have since had a transplant and my

> > hair is thick again, nails grow, skin is fine. On a side note I was

> > also married last June.

> >

> >

> >

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

[Guest guest]

My wife says that my first wife made me gray and she is making me bald.

Jack (NY)

[Guest guest]

See? Both Jack and I can't be wrong about this.

Pierre

P.S. No, my wife doesn't read my email. I have enough with the kidney

failure

Re: Re: IGA Hair Loss...(new to the site)?

> My wife says that my first wife made me gray and she is making me bald.

>

> Jack (NY)

>

>

[Guest guest]

See? Both Jack and I can't be wrong about this.

Pierre

P.S. No, my wife doesn't read my email. I have enough with the kidney

failure

Re: Re: IGA Hair Loss...(new to the site)?

> My wife says that my first wife made me gray and she is making me bald.

>

> Jack (NY)

>

>

[Guest guest]

You guys better watch it, or I'll start in on the husband jokes...

Connie

Re: Re: IGA Hair Loss...(new to the site)?

My wife says that my first wife made me gray and she is making me bald.

Jack (NY)

[Guest guest]

.... or the sexist too - ie why do women have smaller feet? So they

can stand closer to the cooker ;o)

On that note I think I'll slide back into the shadows )

> You guys better watch it, or I'll start in on the husband

jokes...

>

> Connie

>

[Guest guest]

.... or the sexist too - ie why do women have smaller feet? So they

can stand closer to the cooker ;o)

On that note I think I'll slide back into the shadows )

> You guys better watch it, or I'll start in on the husband

jokes...

>

> Connie

>

[Guest guest]

.... or the sexist too - ie why do women have smaller feet? So they

can stand closer to the cooker ;o)

On that note I think I'll slide back into the shadows )

> You guys better watch it, or I'll start in on the husband

jokes...

>

> Connie

>

[Guest guest]

or how about....

What's the smartest thing a man can say?

" My wife says... "

> > You guys better watch it, or I'll start in on the husband

> jokes...

> >

> > Connie

> >

[Guest guest]

ok the final one - we can take any others to email to save the group lol

How many men does it take to change a lightbulb? - None, let her do the dishes

in the dark

Re: IGA Hair Loss...(new to the site)?

or how about....

What's the smartest thing a man can say?

" My wife says... "

> > You guys better watch it, or I'll start in on the husband

> jokes...

> >

> > Connie

> >

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------

[Guest guest]

ok the final one - we can take any others to email to save the group lol

How many men does it take to change a lightbulb? - None, let her do the dishes

in the dark

Re: IGA Hair Loss...(new to the site)?

or how about....

What's the smartest thing a man can say?

" My wife says... "

> > You guys better watch it, or I'll start in on the husband

> jokes...

> >

> > Connie

> >

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------

[Guest guest]

ok the final one - we can take any others to email to save the group lol

How many men does it take to change a lightbulb? - None, let her do the dishes

in the dark

Re: IGA Hair Loss...(new to the site)?

or how about....

What's the smartest thing a man can say?

" My wife says... "

> > You guys better watch it, or I'll start in on the husband

> jokes...

> >

> > Connie

> >

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------