Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Hi everyone, I am so sorry I haven't emailed the group in a while. I am just so upset and sorting out problems in my mind. My feet is swelling again and they hurt so bad. I ran out of medication for the month and Medicaid (The state insurance) allows only 3 medications per month. So, on my last medication, I needed to make a decision on which one to get the refil for. So, I got my blood pressure medication. So, now my feet is suffering. UGH! Then trying to move around is very difficult and getting much harder for me. UGH! Ok, I am just counting down the days until the new year so I can get the medication I need. I am so sorry to rumble on, but I feel terrible. I just needed to let out my frustrations. Thanks for listening. I think I will call the Kidney foundation in the morning where I live to see if there is a program in the US to try to pay for more medications when you already use the amount up. My luck, there is probably not. But it is worth the try. I am also feeling down because I am tired of hurting. I am so independent of myself and it is so hard to ask for some help. I just can't do that. I mean, I take care of everything. But these days, I just feel tired and feel like I have no energy. So, it is hard managing my daily living. But I still do the best I can. For all newcomers in the group. I am 33 years old. I have Cerebral Palsy and IgA nephropathy. I found out last year I have IgA thru a kidney biospy. Ok, Sorry for the long post. But I just needed to talk and I am just being so closed in that I just needed to talk with you all. Just to try to bring my self out of this depression. It is just really getting to me and it is hard when you don't have a good support system in your family. Take Care. I will get my self out of this one way or the another. Even if I have to go back to my nephrologist and really tell him all of this and how I am feeling again. Again, I am sorry for rumbling on. I hope everyone has a great week and have a Happy 2004 New Year! Sincerely, Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 What is the medication you are living without? I think phoning the local chapter of the Kidney Foundation is a very good idea. At the very least, they should be able to advise you on which agency to contact for help. They might even have some kind of emergency fund for things like this. However, you might want to ask your doctor first. You might be able to get some free samples to tide you over. Usually, among the meds commonly taken by kidney patients, it's easiest to get free samples of blood pressure medication, since the drug companies give a lot of samples out to doctors in order to gain market share, and doctors often have a cabinet full of them. Pierre IgA-Carla > Hi everyone, > I am so sorry I haven't emailed the group in a while. I am just > so upset and sorting out problems in my mind. My feet is swelling > again and they hurt so bad. I ran out of medication for the month > and Medicaid (The state insurance) allows only 3 medications per > month. So, on my last medication, I needed to make a decision on > which one to get the refil for. So, I got my blood pressure > medication. So, now my feet is suffering. UGH! Then trying to move > around is very difficult and getting much harder for me. UGH! > Ok, I am just counting down the days until the new year so I can > get the medication I need. > I am so sorry to rumble on, but I feel terrible. I just needed to > let out my frustrations. Thanks for listening. > I think I will call the Kidney foundation in the morning where I > live to see if there is a program in the US to try to pay for more > medications when you already use the amount up. My luck, there is > probably not. But it is worth the try. > I am also feeling down because I am tired of hurting. I am so > independent of myself and it is so hard to ask for some help. I just > can't do that. I mean, I take care of everything. But these days, I > just feel tired and feel like I have no energy. So, it is hard > managing my daily living. But I still do the best I can. > For all newcomers in the group. I am 33 years old. I have > Cerebral Palsy and IgA nephropathy. I found out last year I have IgA > thru a kidney biospy. > Ok, Sorry for the long post. But I just needed to talk and I am > just being so closed in that I just needed to talk with you all. > Just to try to bring my self out of this depression. It is just > really getting to me and it is hard when you don't have a good > support system in your family. > Take Care. I will get my self out of this one way or the another. > Even if I have to go back to my nephrologist and really tell him all > of this and how I am feeling again. Again, I am sorry for rumbling > on. > I hope everyone has a great week and have a Happy 2004 New Year! > Sincerely, > Carla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 What is the medication you are living without? I think phoning the local chapter of the Kidney Foundation is a very good idea. At the very least, they should be able to advise you on which agency to contact for help. They might even have some kind of emergency fund for things like this. However, you might want to ask your doctor first. You might be able to get some free samples to tide you over. Usually, among the meds commonly taken by kidney patients, it's easiest to get free samples of blood pressure medication, since the drug companies give a lot of samples out to doctors in order to gain market share, and doctors often have a cabinet full of them. Pierre IgA-Carla > Hi everyone, > I am so sorry I haven't emailed the group in a while. I am just > so upset and sorting out problems in my mind. My feet is swelling > again and they hurt so bad. I ran out of medication for the month > and Medicaid (The state insurance) allows only 3 medications per > month. So, on my last medication, I needed to make a decision on > which one to get the refil for. So, I got my blood pressure > medication. So, now my feet is suffering. UGH! Then trying to move > around is very difficult and getting much harder for me. UGH! > Ok, I am just counting down the days until the new year so I can > get the medication I need. > I am so sorry to rumble on, but I feel terrible. I just needed to > let out my frustrations. Thanks for listening. > I think I will call the Kidney foundation in the morning where I > live to see if there is a program in the US to try to pay for more > medications when you already use the amount up. My luck, there is > probably not. But it is worth the try. > I am also feeling down because I am tired of hurting. I am so > independent of myself and it is so hard to ask for some help. I just > can't do that. I mean, I take care of everything. But these days, I > just feel tired and feel like I have no energy. So, it is hard > managing my daily living. But I still do the best I can. > For all newcomers in the group. I am 33 years old. I have > Cerebral Palsy and IgA nephropathy. I found out last year I have IgA > thru a kidney biospy. > Ok, Sorry for the long post. But I just needed to talk and I am > just being so closed in that I just needed to talk with you all. > Just to try to bring my self out of this depression. It is just > really getting to me and it is hard when you don't have a good > support system in your family. > Take Care. I will get my self out of this one way or the another. > Even if I have to go back to my nephrologist and really tell him all > of this and how I am feeling again. Again, I am sorry for rumbling > on. > I hope everyone has a great week and have a Happy 2004 New Year! > Sincerely, > Carla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 What is the medication you are living without? I think phoning the local chapter of the Kidney Foundation is a very good idea. At the very least, they should be able to advise you on which agency to contact for help. They might even have some kind of emergency fund for things like this. However, you might want to ask your doctor first. You might be able to get some free samples to tide you over. Usually, among the meds commonly taken by kidney patients, it's easiest to get free samples of blood pressure medication, since the drug companies give a lot of samples out to doctors in order to gain market share, and doctors often have a cabinet full of them. Pierre IgA-Carla > Hi everyone, > I am so sorry I haven't emailed the group in a while. I am just > so upset and sorting out problems in my mind. My feet is swelling > again and they hurt so bad. I ran out of medication for the month > and Medicaid (The state insurance) allows only 3 medications per > month. So, on my last medication, I needed to make a decision on > which one to get the refil for. So, I got my blood pressure > medication. So, now my feet is suffering. UGH! Then trying to move > around is very difficult and getting much harder for me. UGH! > Ok, I am just counting down the days until the new year so I can > get the medication I need. > I am so sorry to rumble on, but I feel terrible. I just needed to > let out my frustrations. Thanks for listening. > I think I will call the Kidney foundation in the morning where I > live to see if there is a program in the US to try to pay for more > medications when you already use the amount up. My luck, there is > probably not. But it is worth the try. > I am also feeling down because I am tired of hurting. I am so > independent of myself and it is so hard to ask for some help. I just > can't do that. I mean, I take care of everything. But these days, I > just feel tired and feel like I have no energy. So, it is hard > managing my daily living. But I still do the best I can. > For all newcomers in the group. I am 33 years old. I have > Cerebral Palsy and IgA nephropathy. I found out last year I have IgA > thru a kidney biospy. > Ok, Sorry for the long post. But I just needed to talk and I am > just being so closed in that I just needed to talk with you all. > Just to try to bring my self out of this depression. It is just > really getting to me and it is hard when you don't have a good > support system in your family. > Take Care. I will get my self out of this one way or the another. > Even if I have to go back to my nephrologist and really tell him all > of this and how I am feeling again. Again, I am sorry for rumbling > on. > I hope everyone has a great week and have a Happy 2004 New Year! > Sincerely, > Carla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Carla, I'm not qualified to give medical advice, you understand - and I have to emphasize that. I would never suggest it's Ok not to take a prescribed medication. It's not advisable at all to do that. Often though, say you're stranded in a blizzard and cut-off from civilization by an avalanche, a day or two off medication is not too much of a problem, especially since you do have your blood pressure medication - but it could be. The body can hold a remarkable amount of extra fluid. As long as it's in your feet and not in your lungs, and you're still urinating, it might not be too bad for a day or two, other than being uncomfortable. I wouldn't drink too much fluid or eat too much salt though. And if you get short of breath or anything like that (especially when lying down), I hope you will get medical attention *immediately*. You should really ensure you don't run into the same problem a month from now. Pierre IgA-Carla > > > > > > > Hi everyone, > > > I am so sorry I haven't emailed the group in a while. I am > just > > > so upset and sorting out problems in my mind. My feet is swelling > > > again and they hurt so bad. I ran out of medication for the month > > > and Medicaid (The state insurance) allows only 3 medications per > > > month. So, on my last medication, I needed to make a decision on > > > which one to get the refil for. So, I got my blood pressure > > > medication. So, now my feet is suffering. UGH! Then trying to > move > > > around is very difficult and getting much harder for me. UGH! > > > Ok, I am just counting down the days until the new year so I > can > > > get the medication I need. > > > I am so sorry to rumble on, but I feel terrible. I just > needed to > > > let out my frustrations. Thanks for listening. > > > I think I will call the Kidney foundation in the morning > where I > > > live to see if there is a program in the US to try to pay for > more > > > medications when you already use the amount up. My luck, there is > > > probably not. But it is worth the try. > > > I am also feeling down because I am tired of hurting. I am so > > > independent of myself and it is so hard to ask for some help. I > just > > > can't do that. I mean, I take care of everything. But these > days, I > > > just feel tired and feel like I have no energy. So, it is hard > > > managing my daily living. But I still do the best I can. > > > For all newcomers in the group. I am 33 years old. I have > > > Cerebral Palsy and IgA nephropathy. I found out last year I have > IgA > > > thru a kidney biospy. > > > Ok, Sorry for the long post. But I just needed to talk and I > am > > > just being so closed in that I just needed to talk with you all. > > > Just to try to bring my self out of this depression. It is just > > > really getting to me and it is hard when you don't have a good > > > support system in your family. > > > Take Care. I will get my self out of this one way or the > another. > > > Even if I have to go back to my nephrologist and really tell him > all > > > of this and how I am feeling again. Again, I am sorry for > rumbling > > > on. > > > I hope everyone has a great week and have a Happy 2004 New > Year! > > > Sincerely, > > > Carla > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Carla, I'm not qualified to give medical advice, you understand - and I have to emphasize that. I would never suggest it's Ok not to take a prescribed medication. It's not advisable at all to do that. Often though, say you're stranded in a blizzard and cut-off from civilization by an avalanche, a day or two off medication is not too much of a problem, especially since you do have your blood pressure medication - but it could be. The body can hold a remarkable amount of extra fluid. As long as it's in your feet and not in your lungs, and you're still urinating, it might not be too bad for a day or two, other than being uncomfortable. I wouldn't drink too much fluid or eat too much salt though. And if you get short of breath or anything like that (especially when lying down), I hope you will get medical attention *immediately*. You should really ensure you don't run into the same problem a month from now. Pierre IgA-Carla > > > > > > > Hi everyone, > > > I am so sorry I haven't emailed the group in a while. I am > just > > > so upset and sorting out problems in my mind. My feet is swelling > > > again and they hurt so bad. I ran out of medication for the month > > > and Medicaid (The state insurance) allows only 3 medications per > > > month. So, on my last medication, I needed to make a decision on > > > which one to get the refil for. So, I got my blood pressure > > > medication. So, now my feet is suffering. UGH! Then trying to > move > > > around is very difficult and getting much harder for me. UGH! > > > Ok, I am just counting down the days until the new year so I > can > > > get the medication I need. > > > I am so sorry to rumble on, but I feel terrible. I just > needed to > > > let out my frustrations. Thanks for listening. > > > I think I will call the Kidney foundation in the morning > where I > > > live to see if there is a program in the US to try to pay for > more > > > medications when you already use the amount up. My luck, there is > > > probably not. But it is worth the try. > > > I am also feeling down because I am tired of hurting. I am so > > > independent of myself and it is so hard to ask for some help. I > just > > > can't do that. I mean, I take care of everything. But these > days, I > > > just feel tired and feel like I have no energy. So, it is hard > > > managing my daily living. But I still do the best I can. > > > For all newcomers in the group. I am 33 years old. I have > > > Cerebral Palsy and IgA nephropathy. I found out last year I have > IgA > > > thru a kidney biospy. > > > Ok, Sorry for the long post. But I just needed to talk and I > am > > > just being so closed in that I just needed to talk with you all. > > > Just to try to bring my self out of this depression. It is just > > > really getting to me and it is hard when you don't have a good > > > support system in your family. > > > Take Care. I will get my self out of this one way or the > another. > > > Even if I have to go back to my nephrologist and really tell him > all > > > of this and how I am feeling again. Again, I am sorry for > rumbling > > > on. > > > I hope everyone has a great week and have a Happy 2004 New > Year! > > > Sincerely, > > > Carla > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Hi Carla, You have such a heavy load you carry. I am sorry you are feeling so frustrated and so tired. The tired part wears on most of us I think. It is hard to deal with the fatigue, and for those like yourself that have chronic pain on top of the fatigue, well, that is lots to deal with. The " why me, and what did I do to deserve this " are hard questions. My mother always used to say why not me? It is certainly not a matter of deserving a chronic illness, just that each life has its trials, and if it was not this, it would be something else. There is no such thing as a perfect life. Every single life has its trials and burdens we all encounter. Carla, perhaps you should ask your doctor about anti-depressant medication. That really can help you to feel more in control of your situation and better able to deal with the chronic illness. Depression is not uncommon in dealing with a chronic illness, and medication can help you to cope with your feelings of frustrations. When I get discouraged, I try to go through an exercise of thinking of a reason to be thankful for each letter of the alphabet. After I get through 26 things I am thankful for, I always feel so much better. My situation may not have changed, but my attitude is much improved and that sometimes helps to make the outlook so much brighter. I find that for me, if I can keep an attitude of being thankful and of counting all my blessings, it helps me to keep a more positive attitude, and that makes coping with things so much easier. I hope this helps Carla. Quote Link to comment Share on other sites More sharing options...
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