Re: The autism cycle

March 22, 2010

Why not skip the ABA (The only autism "treatment" endorsed by the neurodiversity movement,BTW.),and stick to biomed and diet.If a school is forcing you to do ABA,there are ways out of it.

Why would you use ritalin anyway?

To: taca-usa ; EOHarm ; mb12 valtrex Sent: Mon, March 22, 2010 7:14:04 AMSubject: The autism cycle

I went to the Fairfax conference and also to a lecture for picky eaters that included a nutritionist. I figured out why DAN doesn't work for many families. It's because the parents are getting conflicting information from experts who give the opposite advice and contradict each other. They are only looking at their little piece of the puzzle and not about how each part affects the child. I have put together the autism puzzle as far as all the experts that take care of these kids and how their little piece changes the rest of the picture.. Pay attention because this is confusing but when I put each piece together you'll understand how each expert puts a piece in to help a child in one area and takes a piece out in another area and none of them are in at the same time. Okay, here goes.The reason The DAN protocol doesn't work for everyone is that different experts give opposite opinions leaving

parents confused. The parents start with GFCF. The ABA therapist awards kids with gluten cookies and cakes.The nutritionist says the child is underweight and needs fat from milk which makes the kid act out. The therapist takes the food away the kid gets better so she gives some more. The pediatrician says the child is acting out so lets medicate and gives them Ritalin. The Ritalin stunts their growth so now the child must need more fat from milk. The child is calmer on the Ritalin and so the ABA therapist gives the child another cookie. The cookie makes the child act out so the pediatrician gives the child more Ritalin. On top of this the child is eating a little because he knows if he eats too much he might vomit because he has acid reflux. The parent tries very hard to get the kid to eat because he is underweight and his intestinal tract is inflamed and his body cannot absorb the food. The parent

wants the child on the growth chart and gets the food in the child. The child is malnourished, and constipated so he projectile vomits because the food has no where to go. The child develops an allergy to the food that he is being fed and then reacts. The immune system is weakened because of this allergy so the child gets the flu. The parent gives the child Tylenol which is filled with artificial colors, and it lowers the glutothione and makes him weaker. The parent doesn't want the child to get the flu so the child gets a flu shot. The child is even weaker from the vaccine and the child gets sick and is on an antibiotic. The antibiotic kills the good bacteria in the gut making the immune system weaker and the child gets sicker. The immune system is very weak and they can't get rid of the mercury so the child's behavior is worse. The cycle begins again with a new DAN protocol. The parent removes the

allergies. The child feels better but now can barely eat because his intestinal tract is highly inflamed and won't eat at all. The parent discontinues the GFCF diet because the child won't eat anything at all because he is malnourished and weak and getting worse. The parent is completely lost and gives up on the whole thing. After that story, who can blame them.Doesn't that sound like some of your friends? How am I doing so far..?Let me be clear, the main point is that the parent will spend all his time keeping charts and graphs and going from expert to expert telling each one that they do not agree with the other experts. This is a lack of communication between all parties and the parent has to sort all that out to get the experts on the same page and agree. He may also be going broke to pay for all of this and fighting the schools which is another issue to fight about. No wonder we're all

exhausted. For the parent to succeed, he has to break the cycle. Reward the kid doing ABA with something other then food. Give the child more calories with something other than milk fat. Teach the pediatrician that a side effect of Ritalin is stunted growth and if they want the child on the growth chart for a child who is underweight, then if they child is starving and won't eat and is not growing that Ritalin isn't the answer for this child. The parent has to figure out how to help the child expand his food choices while still staying GFCF and taking out the allergies. The parent has to figure out if there is an underlying cause for not eating such as acid reflux, inflammation etc... The parent is not given any credit for doing all of this because the experts think they know everything which they might but only their small piece of the cycle and not how it affects everything else. The parent is

frustrated because they all want the child to be succesful, but it takes some crisis management and great skill and energy to put all that together. Since many parents often have the same underlying medical issues that the children have, they are too exhausted to spend every waking moment taking care of an autistic child and fighting with all the experts in order to break the cycle. The parent gives up and become frustrated just getting through the day and trying to get their child to eat anything at all.-- WalshMom to Robbie and Identical twins mostly recovered from autism.

March 22, 2010

The ritalin is for the co-diagnosis of ADHD that a lot of kids with autism have, I suspect.

Why not skip the ABA (The only autism " treatment " endorsed by the neurodiversity movement,BTW.),and stick to biomed and diet.If a school is forcing you to do ABA,there are ways out of it.

Why would you use ritalin anyway?

To: taca-usa ; EOHarm ; mb12 valtrex

Sent: Mon, March 22, 2010 7:14:04 AMSubject: The autism cycle

I went to the Fairfax conference and also to a lecture for picky eaters that included a nutritionist. I figured out why DAN doesn't work for many families. It's because the parents are getting conflicting

information from experts who give the opposite advice and contradict each other. They are only looking at their little piece of the puzzle and not about how each part affects the child. I have put together the

autism puzzle as far as all the experts that take care of these kids and how their little piece changes the rest of the picture.. Pay attention because this is confusing but when I put each piece together you'll

understand how each expert puts a piece in to help a child in one area and takes a piece out in another area and none of them are in at the same time. Okay, here goes.The reason The DAN protocol doesn't work for everyone is that

different experts give opposite opinions leaving

parents confused. The parents start with GFCF. The ABA therapist awards kids with gluten cookies and cakes.The nutritionist says the child is underweight and needs fat from milk which makes the kid act out. The therapist takes the

food away the kid gets better so she gives some more. The pediatrician says the child is acting out so lets medicate and gives them Ritalin. The Ritalin stunts their growth so now the child must need more fat from

milk. The child is calmer on the Ritalin and so the ABA therapist gives the child another cookie. The cookie makes the child act out so the pediatrician gives the child more Ritalin. On top of this the child is

eating a little because he knows if he eats too much he might vomit because he has acid reflux. The parent tries very hard to get the kid to eat because he is underweight and his intestinal tract is inflamed and his body cannot absorb the food. The parent

wants the child on the growth chart and gets the food in the child. The child is malnourished, and constipated so he projectile vomits because the food has no where to go. The child develops an allergy to the food that he is being fed

and then reacts. The immune system is weakened because of this allergy so the child gets the flu. The parent gives the child Tylenol which is filled with artificial colors, and it lowers the glutothione and makes

him weaker. The parent doesn't want the child to get the flu so the child gets a flu shot. The child is even weaker from the vaccine and the child gets sick and is on an antibiotic. The antibiotic kills the good

bacteria in the gut making the immune system weaker and the child gets sicker. The immune system is very weak and they can't get rid of the mercury so the child's behavior is worse. The cycle begins again with a

new DAN protocol. The parent removes the

allergies. The child feels better but now can barely eat because his intestinal tract is highly inflamed and won't eat at all. The parent discontinues the GFCF diet because the child won't eat anything at all because he is malnourished

and weak and getting worse. The parent is completely lost and gives up on the whole thing. After that story, who can blame them.Doesn't that sound like some of your friends? How am I doing so far..?

Let me be clear, the main point is that the parent will spend all his time keeping charts and graphs and going from expert to expert telling each one that they do not agree with the other experts. This is a lack

of communication between all parties and the parent has to sort all that out to get the experts on the same page and agree. He may also be going broke to pay for all of this and fighting the schools which is another

issue to fight about. No wonder we're all

exhausted. For the parent to succeed, he has to break the cycle. Reward the kid doing ABA with something other then food. Give the child more calories with something other than milk fat. Teach the pediatrician that a side effect of

Ritalin is stunted growth and if they want the child on the growth chart for a child who is underweight, then if they child is starving and won't eat and is not growing that Ritalin isn't the answer for this child. The

parent has to figure out how to help the child expand his food choices while still staying GFCF and taking out the allergies. The parent has to figure out if there is an underlying cause for not eating such as acid

reflux, inflammation etc... The parent is not given any credit for doing all of this because the experts think they know everything which they might but only their small piece of the cycle and not how it affects

everything else. The parent is

frustrated because they all want the child to be succesful, but it takes some crisis management and great skill and energy to put all that together. Since many parents often have the same underlying medical issues that the children have, they are too

exhausted to spend every waking moment taking care of an autistic child and fighting with all the experts in order to break the cycle. The parent gives up and become frustrated just getting through the day and

trying to get their child to eat anything at all.-- WalshMom to Robbie and Identical twins mostly recovered from autism.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 22, 2010