Re: cashew butter concern and a RANT!

May 10, 2004

Good Penny. It is totally hard. I have had neckaches, headaches,

exhausted, worried for 3 months. Maybe it's easier for some mom's because

they have higher functioning kids and kids that can have phenols and dairy,

but my kid reacts to everything and in a self-injurious way. She's on the

the med's to clear the inflammation and I am doing the best I can with the

diet and am proud of that. But it I can't be 100% all the time I'm not

going to beat myself up over it. And she does eat very healthy!

cashew butter concern and a RANT!

>

> > I looked in the section under allowable nuts. It doesn't say what

roasted

> nuts may do to you. It says that roasted peanuts may be tried

cautiously

> after six months. I have been avoiding peanut butter for quite some

time

> because of the mold. I have been using cashew or almond butter for

quite a

> while and I don't see a problem.

> >

> > I'm not looking for a loop hold but doing this diet with a very low

> functioning child that simply doesn't understand any of it, is

completely

> different than an adult with some bowel disorder. I don't see Kenzie as

one

> of those kids that will be recovered no matter what I do. Those of you

that

> know me know that I have tried about everything. Don't get mad now but

I

> truly hate this diet sometimes. I love knowing that he's eating well

and

> that his stools are somewhat better. But, there is no life outside of

it.

> There are no loopholes. We can never go out to eat, not that we can

afford

> it. We can't go to anyone's house because every time I've tried it's

been a

> nightmare. Kenzie is like a hound sniffing out food and getting into

> everything. I can't put the world on SCD so consequently we live like

> hermits. That's real fair to my other children.

> >

> > Every week I have to travel 100 miles one way to do my shopping. It

is

> pure hell every week for our lunch. I pack Kenzie's lunch and the girls

try

> to get something out of the grocery store but it's awful. We're gone at

> least ten hours each trip and eating something while you're walking

through

> the grocery store is no fun. I mean how much damage can one order of

fries

> do him every week. That's what I hate. There's no room for anything.

> You've got to follow it by the letter of the law or you're not going to

get

> that recovery.

> >

> > Sorry guys I just had to vent. I mean, now he can't have the cashew

> cookies. Screw it! I don't have time to grind nuts all day. We are

opening

> our business for the season in just a few days. I can't believe I'm

even

> taking time to read posts. We will be open every day from now until

> Thanksgiving. There's no time for my husband to baby-sit so the girls

and I

> can take a ten hour day to do our shopping. So, I know you all might

> say... " move " . Not an option. I just have so much else going on. Why

does

> this diet have to be so hard!!!

> >

> > Penny

> > Kenzie ASD

> > SCD 8 months

> >

May 10, 2004