Re: cashew butter concern and a RANT!

[Guest guest]

Penny,

First of all,I agree with you that this diet is hard. But i have to say that

we go out to eat once in awhile with no problem.My son is 7 and not high

functioning. I bring squash chips, ketchup, cookies and an apple.We order him a

hamburger or a peice of plain grlled chicken.I always tell the waitress that he

has a lot of serious allergies so please don't put anything on it. He is

perfectly happy with this and i get to get out of the house and not cook!!

It sounds like you need a break. Please try to take some time for yourself.

karen

[Guest guest]

Penny

I just wanted to send my thoughts. Your situation sounds very hard.

Where do you live? I wish I could help. I hope you get some relief

soon. You are obviously a wonderful Mom.

Kathleen

3

1

Don't get mad now but I truly hate this diet sometimes. >

> Penny

> Kenzie ASD

> SCD 8 months

>

>

[Guest guest]

> I looked in the section under allowable nuts. It doesn't say what roasted

nuts may do to you. It says that roasted peanuts may be tried cautiously after

six months. I have been avoiding peanut butter for quite some time because of

the mold. I have been using cashew or almond butter for quite a while and I

don't see a problem.

>

> I'm not looking for a loop hold but doing this diet with a very low

functioning child that simply doesn't understand any of it, is completely

different than an adult with some bowel disorder.

Penny my " loophole " mention wasn't intended personally for you. I know very well

what you are going through.

It was general as many newcomers are puzzled over the why's and wherefores of

some of the legal and illegal items. We'll try to get these nut issues sorted

out more clearly.

Carol F

SCD 2 3/4 years, Celiac adult

[Guest guest]

> I looked in the section under allowable nuts. It doesn't say what roasted

nuts may do to you. It says that roasted peanuts may be tried cautiously after

six months. I have been avoiding peanut butter for quite some time because of

the mold. I have been using cashew or almond butter for quite a while and I

don't see a problem.

>

> I'm not looking for a loop hold but doing this diet with a very low

functioning child that simply doesn't understand any of it, is completely

different than an adult with some bowel disorder.

Penny my " loophole " mention wasn't intended personally for you. I know very well

what you are going through.

It was general as many newcomers are puzzled over the why's and wherefores of

some of the legal and illegal items. We'll try to get these nut issues sorted

out more clearly.

Carol F

SCD 2 3/4 years, Celiac adult

[Guest guest]

> I looked in the section under allowable nuts. It doesn't say what roasted

nuts may do to you. It says that roasted peanuts may be tried cautiously after

six months. I have been avoiding peanut butter for quite some time because of

the mold. I have been using cashew or almond butter for quite a while and I

don't see a problem.

>

> I'm not looking for a loop hold but doing this diet with a very low

functioning child that simply doesn't understand any of it, is completely

different than an adult with some bowel disorder.

Penny my " loophole " mention wasn't intended personally for you. I know very well

what you are going through.

It was general as many newcomers are puzzled over the why's and wherefores of

some of the legal and illegal items. We'll try to get these nut issues sorted

out more clearly.

Carol F

SCD 2 3/4 years, Celiac adult

[Guest guest]

Oh Carol, I know it wasn't personal. Just always frustrated. Thanks for

attempting to figure this out for us.

Penny

Re: cashew butter concern and a RANT!

> I looked in the section under allowable nuts. It doesn't say what roasted

nuts may do to you. It says that roasted peanuts may be tried cautiously after

six months. I have been avoiding peanut butter for quite some time because of

the mold. I have been using cashew or almond butter for quite a while and I

don't see a problem.

>

> I'm not looking for a loop hold but doing this diet with a very low

functioning child that simply doesn't understand any of it, is completely

different than an adult with some bowel disorder.

Penny my " loophole " mention wasn't intended personally for you. I know very

well what you are going through.

It was general as many newcomers are puzzled over the why's and wherefores of

some of the legal and illegal items. We'll try to get these nut issues sorted

out more clearly.

Carol F

SCD 2 3/4 years, Celiac adult

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

We go out every once in a great while too. We've gotten plain baked

fish and steamed broccoli once......Sam loved it! And another time

shrimp cocktail. I bring a drink and stuff to snack on too. It worked

out of for us.

chrystee

Sam

SCD 3 months

> Penny,

> First of all,I agree with you that this diet is hard. But i have to

say that

> we go out to eat once in awhile with no problem.My son is 7 and not

high

> functioning. I bring squash chips, ketchup, cookies and an apple.We

order him a

> hamburger or a peice of plain grlled chicken.I always tell the

waitress that he

> has a lot of serious allergies so please don't put anything on it.

He is

> perfectly happy with this and i get to get out of the house and not

cook!!

> It sounds like you need a break. Please try to take some time for

yourself.

> karen

>

>

>

[Guest guest]

http://www.nichcy.org/stateshe/mt.htm

Penny,

You may already know of all of these places, but I thought I would

send the list just in case.

Jody

mom to -5 and -7

SCD 15 months

[Guest guest]

We have eaten out a couple of times too... I just get sick when the

bill comes and I have to pay $4 for a thin hamburger patty!!!!

(they charge the full amount of a child's meal, althought he can't

eat the french fries, bun, cheese, ketchup, icecream and soda!!!)

Coral

[Guest guest]

We have eaten out a couple of times too... I just get sick when the

bill comes and I have to pay $4 for a thin hamburger patty!!!!

(they charge the full amount of a child's meal, althought he can't

eat the french fries, bun, cheese, ketchup, icecream and soda!!!)

Coral

[Guest guest]

Jody:

It said the site was not available. No, I don't know what this is.

Penny

Re: cashew butter concern and a RANT!

http://www.nichcy.org/stateshe/mt.htm

Penny,

You may already know of all of these places, but I thought I would

send the list just in case.

Jody

mom to -5 and -7

SCD 15 months

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Jody:

It said the site was not available. No, I don't know what this is.

Penny

Re: cashew butter concern and a RANT!

http://www.nichcy.org/stateshe/mt.htm

Penny,

You may already know of all of these places, but I thought I would

send the list just in case.

Jody

mom to -5 and -7

SCD 15 months

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Jody:

It said the site was not available. No, I don't know what this is.

Penny

Re: cashew butter concern and a RANT!

http://www.nichcy.org/stateshe/mt.htm

Penny,

You may already know of all of these places, but I thought I would

send the list just in case.

Jody

mom to -5 and -7

SCD 15 months

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Penny,

You can try the link again. I just clicked right to the info.

But in case it still won't work for you, I copied and pasted the

whole page into an e-mail and just sent it to you privately.

Jody

mom to -5 and -7

SCD 15 months

[Guest guest]

It sounds like what may be hard for her kids and family is not really

just going out and finding something to eat but all the other food

around as well . (?) Maybe some of these suggestions would work if

your whole family ate/ordered SCD(if you dont already)and asked them

to not bring bread and not sit too close to other tables (to see

whats on their table)

We go out too and just pack a lunch box every time. Alas, he's not

hounding us for " regular " food...so its not too hard.

Good luck.

mom to baxter ASD, SCD almost 3 months

[Guest guest]

We don't go out - so I have to agree with Penny on that one. It's just not

really possible and not worth the effort, IMO. I don't trust them to REALLY

make Luke's food LEGAL and " plain " .

in NC, USA

mom to Luke, 5, Asperger's/low-salicylate;

, 3;,22 mos;

SCD going since 1/26/04

[Guest guest]

Well...

When I started this diet I thought I would try for a month... I saw

enough improvement that I have made the commitment to keep it for 1

year... When I have a " down moment " , like last Easter, I think we are

doing this effort to BE ABLE IN THE FUTURE TO EAT OTHER FOODS... I

think of that every day. I don't think I would go back to the

spaghetti, potato, rice diet we once had, as he eats all sorts of

vegetables now, but yes, I with we could eat a donut, or a quick

cheese sandwitch for lunch, or pop a frozen pizza in the oven for

dinner.

So, I think of this of an investment. I am investing a lot of time in

the kitchen right now, but it will yield health in the future. I am

investing more money in food, but I hope I will save it off

medications when I am older... My hands are rough from washing so

many dishes a day, but it is kind of fun to try and make up new

recipes that are SCD for the whole family!!! We seem not to have a

social life anymore, but my son has lost 5 pounds, has less stool in

his intestine, and he is reading " every word " now (not skipping words

like before)...

H A P P Y M O T H E R's D A Y!!!!!

Coral

SCD (almost 6 weeks)

[Guest guest]

Hi Penny, I have been using the Marantha Cashew butter every single day

with no problems. We can't do it all or it may kill us eventually. SCD was

devised for adults with crohn's and colitis and there is no data on our

kids. I am with you on this because I have actually seen the best results

so far from low salicylate but not necessarily SCD. The constant cooking is

totally stressing and running my life. Thank God I was able to go see my

mom this weekend for two days and relax and not worry about anything. I am

still doing SCD but am adding some things back in as well but not often. I

do the best I can and so do you. Abby is bruising easy and looks thin and a

little sickly so I feel she needs some other nutrients other than what is

offered on SCD. It is just too limiting and stressful for us to be 100%. I

just can't stress about every single thing!!!!!!!!!!!!!!!!!!!

Kathy

Abby- 9, ASD, UC, SCD for 11 weeks

cashew butter concern and a RANT!

> I looked in the section under allowable nuts. It doesn't say what roasted

nuts may do to you. It says that roasted peanuts may be tried cautiously

after six months. I have been avoiding peanut butter for quite some time

because of the mold. I have been using cashew or almond butter for quite a

while and I don't see a problem.

>

> I'm not looking for a loop hold but doing this diet with a very low

functioning child that simply doesn't understand any of it, is completely

different than an adult with some bowel disorder. I don't see Kenzie as one

of those kids that will be recovered no matter what I do. Those of you that

know me know that I have tried about everything. Don't get mad now but I

truly hate this diet sometimes. I love knowing that he's eating well and

that his stools are somewhat better. But, there is no life outside of it.

There are no loopholes. We can never go out to eat, not that we can afford

it. We can't go to anyone's house because every time I've tried it's been a

nightmare. Kenzie is like a hound sniffing out food and getting into

everything. I can't put the world on SCD so consequently we live like

hermits. That's real fair to my other children.

>

> Every week I have to travel 100 miles one way to do my shopping. It is

pure hell every week for our lunch. I pack Kenzie's lunch and the girls try

to get something out of the grocery store but it's awful. We're gone at

least ten hours each trip and eating something while you're walking through

the grocery store is no fun. I mean how much damage can one order of fries

do him every week. That's what I hate. There's no room for anything.

You've got to follow it by the letter of the law or you're not going to get

that recovery.

>

> Sorry guys I just had to vent. I mean, now he can't have the cashew

cookies. Screw it! I don't have time to grind nuts all day. We are opening

our business for the season in just a few days. I can't believe I'm even

taking time to read posts. We will be open every day from now until

Thanksgiving. There's no time for my husband to baby-sit so the girls and I

can take a ten hour day to do our shopping. So, I know you all might

say... " move " . Not an option. I just have so much else going on. Why does

this diet have to be so hard!!!

>

> Penny

> Kenzie ASD

> SCD 8 months

>

>

[Guest guest]

Sweet Kathy, I have to tell you, I'm concerned with your conclusion here for

Abby. I have been VERY concerned for Abby as you've described her of late, and

DO AGREE that she needs some things added back into her diet. I am also just

ECSTATIC that going low salicyalte has changed things for her, that is

wonderful! I know what that change can mean and it is HUGE. But my concern is

that, without the healing of SCD, you will have to keep her low salicylate

forever. Does that make sense? That is why I'm so motivated to keep SCD 100%,

as someone wrote earlier today (I forget who) that it is like an investment for

the future, if we can truly heal him, then he CAN eat more things in the future.

I want him to be able to eat an orange one day, or strawberries, or ketchup!

I'm not even talking about donuts or french fries, here.

As you look over Abby's situation and the idea that something HAS to give and

you HAVE to add in some more variety, I hope you'll consider keeping SCD legal!

I wish I knew how to advise you on the other things, I so wish all these kids

could tolerate yogurt and eggs and nut butters and the low-sal fruits and of

course the meat and veggies - all those things offer all they need, they really

do, for a very HEALTHY diet.

I'm praying for you and Abby, and for us all, as always!!

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3; and , 23 mos

All SCD since 1/26/04

[Guest guest]

Sweet Kathy, I have to tell you, I'm concerned with your conclusion here for

Abby. I have been VERY concerned for Abby as you've described her of late, and

DO AGREE that she needs some things added back into her diet. I am also just

ECSTATIC that going low salicyalte has changed things for her, that is

wonderful! I know what that change can mean and it is HUGE. But my concern is

that, without the healing of SCD, you will have to keep her low salicylate

forever. Does that make sense? That is why I'm so motivated to keep SCD 100%,

as someone wrote earlier today (I forget who) that it is like an investment for

the future, if we can truly heal him, then he CAN eat more things in the future.

I want him to be able to eat an orange one day, or strawberries, or ketchup!

I'm not even talking about donuts or french fries, here.

As you look over Abby's situation and the idea that something HAS to give and

you HAVE to add in some more variety, I hope you'll consider keeping SCD legal!

I wish I knew how to advise you on the other things, I so wish all these kids

could tolerate yogurt and eggs and nut butters and the low-sal fruits and of

course the meat and veggies - all those things offer all they need, they really

do, for a very HEALTHY diet.

I'm praying for you and Abby, and for us all, as always!!

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3; and , 23 mos

All SCD since 1/26/04

[Guest guest]

Sweet Kathy, I have to tell you, I'm concerned with your conclusion here for

Abby. I have been VERY concerned for Abby as you've described her of late, and

DO AGREE that she needs some things added back into her diet. I am also just

ECSTATIC that going low salicyalte has changed things for her, that is

wonderful! I know what that change can mean and it is HUGE. But my concern is

that, without the healing of SCD, you will have to keep her low salicylate

forever. Does that make sense? That is why I'm so motivated to keep SCD 100%,

as someone wrote earlier today (I forget who) that it is like an investment for

the future, if we can truly heal him, then he CAN eat more things in the future.

I want him to be able to eat an orange one day, or strawberries, or ketchup!

I'm not even talking about donuts or french fries, here.

As you look over Abby's situation and the idea that something HAS to give and

you HAVE to add in some more variety, I hope you'll consider keeping SCD legal!

I wish I knew how to advise you on the other things, I so wish all these kids

could tolerate yogurt and eggs and nut butters and the low-sal fruits and of

course the meat and veggies - all those things offer all they need, they really

do, for a very HEALTHY diet.

I'm praying for you and Abby, and for us all, as always!!

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3; and , 23 mos

All SCD since 1/26/04

[Guest guest]

Oh Kathy, you made me feel so much better. This is just so hard. If I had a

guarantee that after a year or so Kenzie would have no problems, then every

stressful moment would be worth it. But of course, that's not going to happen.

I'm pretty proud of what we've done so far. How many parents can say their kids

eat as healthy as ours???

Penny

cashew butter concern and a RANT!

> I looked in the section under allowable nuts. It doesn't say what roasted

nuts may do to you. It says that roasted peanuts may be tried cautiously

after six months. I have been avoiding peanut butter for quite some time

because of the mold. I have been using cashew or almond butter for quite a

while and I don't see a problem.

>

> I'm not looking for a loop hold but doing this diet with a very low

functioning child that simply doesn't understand any of it, is completely

different than an adult with some bowel disorder. I don't see Kenzie as one

of those kids that will be recovered no matter what I do. Those of you that

know me know that I have tried about everything. Don't get mad now but I

truly hate this diet sometimes. I love knowing that he's eating well and

that his stools are somewhat better. But, there is no life outside of it.

There are no loopholes. We can never go out to eat, not that we can afford

it. We can't go to anyone's house because every time I've tried it's been a

nightmare. Kenzie is like a hound sniffing out food and getting into

everything. I can't put the world on SCD so consequently we live like

hermits. That's real fair to my other children.

>

> Every week I have to travel 100 miles one way to do my shopping. It is

pure hell every week for our lunch. I pack Kenzie's lunch and the girls try

to get something out of the grocery store but it's awful. We're gone at

least ten hours each trip and eating something while you're walking through

the grocery store is no fun. I mean how much damage can one order of fries

do him every week. That's what I hate. There's no room for anything.

You've got to follow it by the letter of the law or you're not going to get

that recovery.

>

> Sorry guys I just had to vent. I mean, now he can't have the cashew

cookies. Screw it! I don't have time to grind nuts all day. We are opening

our business for the season in just a few days. I can't believe I'm even

taking time to read posts. We will be open every day from now until

Thanksgiving. There's no time for my husband to baby-sit so the girls and I

can take a ten hour day to do our shopping. So, I know you all might

say... " move " . Not an option. I just have so much else going on. Why does

this diet have to be so hard!!!

>

> Penny

> Kenzie ASD

> SCD 8 months

>

>

[Guest guest]

Oh Kathy, you made me feel so much better. This is just so hard. If I had a

guarantee that after a year or so Kenzie would have no problems, then every

stressful moment would be worth it. But of course, that's not going to happen.

I'm pretty proud of what we've done so far. How many parents can say their kids

eat as healthy as ours???

Penny

cashew butter concern and a RANT!

> I looked in the section under allowable nuts. It doesn't say what roasted

nuts may do to you. It says that roasted peanuts may be tried cautiously

after six months. I have been avoiding peanut butter for quite some time

because of the mold. I have been using cashew or almond butter for quite a

while and I don't see a problem.

>

> I'm not looking for a loop hold but doing this diet with a very low

functioning child that simply doesn't understand any of it, is completely

different than an adult with some bowel disorder. I don't see Kenzie as one

of those kids that will be recovered no matter what I do. Those of you that

know me know that I have tried about everything. Don't get mad now but I

truly hate this diet sometimes. I love knowing that he's eating well and

that his stools are somewhat better. But, there is no life outside of it.

There are no loopholes. We can never go out to eat, not that we can afford

it. We can't go to anyone's house because every time I've tried it's been a

nightmare. Kenzie is like a hound sniffing out food and getting into

everything. I can't put the world on SCD so consequently we live like

hermits. That's real fair to my other children.

>

> Every week I have to travel 100 miles one way to do my shopping. It is

pure hell every week for our lunch. I pack Kenzie's lunch and the girls try

to get something out of the grocery store but it's awful. We're gone at

least ten hours each trip and eating something while you're walking through

the grocery store is no fun. I mean how much damage can one order of fries

do him every week. That's what I hate. There's no room for anything.

You've got to follow it by the letter of the law or you're not going to get

that recovery.

>

> Sorry guys I just had to vent. I mean, now he can't have the cashew

cookies. Screw it! I don't have time to grind nuts all day. We are opening

our business for the season in just a few days. I can't believe I'm even

taking time to read posts. We will be open every day from now until

Thanksgiving. There's no time for my husband to baby-sit so the girls and I

can take a ten hour day to do our shopping. So, I know you all might

say... " move " . Not an option. I just have so much else going on. Why does

this diet have to be so hard!!!

>

> Penny

> Kenzie ASD

> SCD 8 months

>

>

[Guest guest]

, I really do appreciate your advice and concern. And I know your

points are valid. It's just that my mom's gut instinct is that she needs

more. I am sending off her metabolic analysis today so maybe that will tell

us what's going on. It's just that I am so WORRIED about her. I know the

600 mg of sulfasalazine three times a day takes it's toll on her and I feel

like she is eating the same things over and over and she's not eating that

great. She's had two bad illness's from the die off with high fevers and

was sick for a whole week. For now until we get some test results back I am

doing low salicylate, no foods that she showed up allergic to in the SAGE

testing, no casein, no gluten, mostly SCD but just am giving her some

additional carbs and some soy yogurt. I could be totally wrong in this but

just have to do it for now. Your so caring and nice to pray for

us............

Kathy

Re: cashew butter concern and a RANT!

> Sweet Kathy, I have to tell you, I'm concerned with your conclusion here

for Abby. I have been VERY concerned for Abby as you've described her of

late, and DO AGREE that she needs some things added back into her diet. I

am also just ECSTATIC that going low salicyalte has changed things for her,

that is wonderful! I know what that change can mean and it is HUGE. But my

concern is that, without the healing of SCD, you will have to keep her low

salicylate forever. Does that make sense? That is why I'm so motivated to

keep SCD 100%, as someone wrote earlier today (I forget who) that it is like

an investment for the future, if we can truly heal him, then he CAN eat more

things in the future. I want him to be able to eat an orange one day, or

strawberries, or ketchup! I'm not even talking about donuts or french

fries, here.

>

> As you look over Abby's situation and the idea that something HAS to give

and you HAVE to add in some more variety, I hope you'll consider keeping SCD

legal! I wish I knew how to advise you on the other things, I so wish all

these kids could tolerate yogurt and eggs and nut butters and the low-sal

fruits and of course the meat and veggies - all those things offer all they

need, they really do, for a very HEALTHY diet.

>

> I'm praying for you and Abby, and for us all, as always!!

> in NC

> Mom of Luke, age 5, Asperger's/low-salicylate;

> , age 3; and , 23 mos

> All SCD since 1/26/04

>

>

>

>

[Guest guest]

, I really do appreciate your advice and concern. And I know your

points are valid. It's just that my mom's gut instinct is that she needs

more. I am sending off her metabolic analysis today so maybe that will tell

us what's going on. It's just that I am so WORRIED about her. I know the

600 mg of sulfasalazine three times a day takes it's toll on her and I feel

like she is eating the same things over and over and she's not eating that

great. She's had two bad illness's from the die off with high fevers and

was sick for a whole week. For now until we get some test results back I am

doing low salicylate, no foods that she showed up allergic to in the SAGE

testing, no casein, no gluten, mostly SCD but just am giving her some

additional carbs and some soy yogurt. I could be totally wrong in this but

just have to do it for now. Your so caring and nice to pray for

us............

Kathy

Re: cashew butter concern and a RANT!

> Sweet Kathy, I have to tell you, I'm concerned with your conclusion here

for Abby. I have been VERY concerned for Abby as you've described her of

late, and DO AGREE that she needs some things added back into her diet. I

am also just ECSTATIC that going low salicyalte has changed things for her,

that is wonderful! I know what that change can mean and it is HUGE. But my

concern is that, without the healing of SCD, you will have to keep her low

salicylate forever. Does that make sense? That is why I'm so motivated to

keep SCD 100%, as someone wrote earlier today (I forget who) that it is like

an investment for the future, if we can truly heal him, then he CAN eat more

things in the future. I want him to be able to eat an orange one day, or

strawberries, or ketchup! I'm not even talking about donuts or french

fries, here.

>

> As you look over Abby's situation and the idea that something HAS to give

and you HAVE to add in some more variety, I hope you'll consider keeping SCD

legal! I wish I knew how to advise you on the other things, I so wish all

these kids could tolerate yogurt and eggs and nut butters and the low-sal

fruits and of course the meat and veggies - all those things offer all they

need, they really do, for a very HEALTHY diet.

>

> I'm praying for you and Abby, and for us all, as always!!

> in NC

> Mom of Luke, age 5, Asperger's/low-salicylate;

> , age 3; and , 23 mos

> All SCD since 1/26/04

>

>

>

>