Re:immunologist recommendation

[Guest guest]

Chet,

I don’t know where you are located,

but Dr in Port Arkansas, Texas or also visits New York autism clinic

several times a year, or Dr. Goldberg in Tarzana, CA will help more than a

typical immunologist. They are specialists in the field. Dr.

Goldberg is the reason my son is recovered today. Only another parent understands what it is like to live with autism day

in and day out. The isolation and loneliness this diagnosis brings can be

overwhelming. The hardest part is to continue to get up every day, and

not give up on our kids. I want them all to recover and have a chance at

life that my son has.

My son,

, was diagnosed when he was four years old. A psychiatrist who was

the leading authority on autism said would never be okay. According

to this expert, my son was going to end up in an institution or group home.

Now at 22, the only institution attends is the university where he

studies mechanical engineering on a merit scholarship. Today, he does all

the things the professionals said would never happen. excels

academically and is a member of the Engineering Honor Society (top 10% GPA).

He is a member of Sigma Chi Fraternity and was president of the Jewish

Student Association. But most importantly has friends and is

happy. He is a typical college student who drinks an occasional beer,

goes on dates, stays out too late with friends and then sleeps through eight

o’clock classes. I couldn’t be more proud.

When

was little, I never imagined these things were possible.

Unbelievable as it seems, this is the same child who wanted to spend

every day all day long plugging in a portable radio into each outlet in the

house. ’s recovery was a direct result of treatment by a doctor

who believed that our children can get better if the problems with their immune

systems are addressed medically.

I

recently recommended Dr. Goldberg to a mom who lives in Singapore. She

called me and I was quite concerned that she was traveling halfway across the

world on my recommendation. To be honest, this scared the hell out of

me. What if Dr. G couldn’t help her son? I asked this mom if

there was anyone near her to do this. She came anyway and her son who has

been in treatment for only five months is improving leaps and bounds. We

both cried when she called me to tell me her son called her “mama”

for the first time ever. Her son loves music and in this short time of

just five months he has learned over twenty songs to sing. His mom

practices the best piece of advice I was ever given about the behavioral and

educational component we must do after our kids get better. “Use

what they love to motivate and teach them.” This mom from Singapore

does this beautifully. She works tirelessly with her child. Now

her son is able to learn the things he missed after Dr. G helped his immune

system improve.

In her

last email this is what she told me about her son’s progress:

“Marcia, Five months ago I brought Jedi to SF park, my

heart did cry when I saw him he actually did not know how to play in the

playground such as climbing up the rope, ladder, walking and balancing on the

balancing bar, see saw, swing, etc. What he knew was

slides..................... Literally, this little guy had problem performing

any obstacles physically. One week ago, I brought him to the park which is more

challenging than The SF Park. Suddenly he knows how to climb ropes, walls,

ladder, walking on the balancing bar, etc without being taught. I am impressed.

Marcia, you can share my testimony to the rest of the mums

that you know. Jedi has been on the treatment for only 5 months. Look at him,

He does things which you never expected it. Feel free to share mine. “

This

story is just one of many.

When I read things like this, I don’t feel so guilty that

mine is better when so many kids are still suffering. I

still question why is the accepted form of treatment mostly behavioral and

psychiatric in nature? It should be common knowledge and accepted by all

doctors is that autism is caused in most part by an immune system that is not

working properly and viruses taking advantage of a dysfunctional immune

system. It is up to us as parents to lead the

charge. We must shout from the rooftops that these kids can

recover if they are treated medically. We must create a world where

parents can take their children to any doctor, in any city, in any country

where the doctor says I know what this is; recognize that it is an immune

mediated medical condition, and knows what to do about it. All doctors need to use the

words, “this

is my plan to help your child” rather than “I don’t

know.” Only then will proper research, funding

and answers come for children with Autism.

It is starting

to happen, but not fast enough. I hope the new research by

the Whittemore Institute (in collaboration with the Cleveland Clinic

and the National Cancer Institute) moves things faster. Their work has

tremendous implications for any family dealing with " Autism. " Studies

currently conducted hope to prove a subset of those diagnosed with

“Autism” has blood work that contains the newly discovered XMRV

virus. This

latest research backs up what my son’s doctor has known for years; the

fact that for many, autism is caused by viruses. The medical community,

the pharmaceutical companies and the world need to wake up and realize Autism

is a medical disease and diseases are treatable!!! That is

the only way to change the outcome for all children affected by autism.