Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Hi Mark, It does become harder to be as diligent in work as your function declines. My job has been impacted as of late too. Fortunately for me, my company is owned by an M.D., so he has been very understanding with me even though my performance has also declined. I am honest with them when it is hard, and for a good part of 2003, I had to cut down to half time. I am back to full time now, but I am not so sure that was such a good idea...but tuition bills for my daughter's college dictates otherwise :-) I'm sorry it is getting hard on you. I don't have any good suggestions, unfortunately, and can only offer understanding. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Mark, what's your kidney function again? I forget. I started feeling like that a couple of years before I started dialysis, as I've said before. No flank pain though, but I sure was dragging myself. I managed to do the job, but I didn't feel I was performing at my usual level. When my contract expired, they didn't renew it, as they had many times before. So I found myself first on medical benefits from unemployment insurance, then on welfare until my disability payments started. There isn't much call for a 50 year old ex-army officer with kidney failure. It was pretty tough during that time, and it's only getting tougher as the disability benefits don't increase every time the cost of electricity, gas, groceries or whatever goes up. That's why I often suggest to people that they do whatever they can to maintain some kind of private disability insurance, in case they eventually need it. I sure wish I had. By the time I realised this, it was already too late to get any. Big mistake, but, I can't undo the past. The only thing I can suggest is to talk to your doctor about it. If it was me, I would see my family doctor first. Maybe you could some medical time off on disability or something. The only other option is to continue to work as best you can. Perhaps your employer is more sympathetic than you think. If dialysis is anywhere close in your future, like five years or less, I don't think performance issues now will make any difference to you then anyway, so don't overdo it. Whichever way you look at it, having kidney failure plays havoc with any career plans. I spent years trying to be the most cracker-jack logistics officer they ever saw, but it all came to naught anyway. The only consolation I have about it is that I enjoyed the time I was doing it, so I don't see it as a total loss. Why am I talking about myself when you're the one having the problem? Well, I've always found it helps to hear about others' similar problems. Again, talk to your doctor about it. Pierre Finding it hard to work > Hello all, > > Forgive me if this is a repeat but does anyone else on the list who > suffers from the chronic Flank pain and/or Fatigue find it hard to > work? > > For the last couple of months I have. My performance hasn't been 100% > and I don't know what to do. I am way over in sick days and have > tried explaining my sitution with my employer however it has been > officially noted my health has prohibited my perfromance. What does > one do when your health starts to effect your career? > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Mark, what's your kidney function again? I forget. I started feeling like that a couple of years before I started dialysis, as I've said before. No flank pain though, but I sure was dragging myself. I managed to do the job, but I didn't feel I was performing at my usual level. When my contract expired, they didn't renew it, as they had many times before. So I found myself first on medical benefits from unemployment insurance, then on welfare until my disability payments started. There isn't much call for a 50 year old ex-army officer with kidney failure. It was pretty tough during that time, and it's only getting tougher as the disability benefits don't increase every time the cost of electricity, gas, groceries or whatever goes up. That's why I often suggest to people that they do whatever they can to maintain some kind of private disability insurance, in case they eventually need it. I sure wish I had. By the time I realised this, it was already too late to get any. Big mistake, but, I can't undo the past. The only thing I can suggest is to talk to your doctor about it. If it was me, I would see my family doctor first. Maybe you could some medical time off on disability or something. The only other option is to continue to work as best you can. Perhaps your employer is more sympathetic than you think. If dialysis is anywhere close in your future, like five years or less, I don't think performance issues now will make any difference to you then anyway, so don't overdo it. Whichever way you look at it, having kidney failure plays havoc with any career plans. I spent years trying to be the most cracker-jack logistics officer they ever saw, but it all came to naught anyway. The only consolation I have about it is that I enjoyed the time I was doing it, so I don't see it as a total loss. Why am I talking about myself when you're the one having the problem? Well, I've always found it helps to hear about others' similar problems. Again, talk to your doctor about it. Pierre Finding it hard to work > Hello all, > > Forgive me if this is a repeat but does anyone else on the list who > suffers from the chronic Flank pain and/or Fatigue find it hard to > work? > > For the last couple of months I have. My performance hasn't been 100% > and I don't know what to do. I am way over in sick days and have > tried explaining my sitution with my employer however it has been > officially noted my health has prohibited my perfromance. What does > one do when your health starts to effect your career? > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Mark, what's your kidney function again? I forget. I started feeling like that a couple of years before I started dialysis, as I've said before. No flank pain though, but I sure was dragging myself. I managed to do the job, but I didn't feel I was performing at my usual level. When my contract expired, they didn't renew it, as they had many times before. So I found myself first on medical benefits from unemployment insurance, then on welfare until my disability payments started. There isn't much call for a 50 year old ex-army officer with kidney failure. It was pretty tough during that time, and it's only getting tougher as the disability benefits don't increase every time the cost of electricity, gas, groceries or whatever goes up. That's why I often suggest to people that they do whatever they can to maintain some kind of private disability insurance, in case they eventually need it. I sure wish I had. By the time I realised this, it was already too late to get any. Big mistake, but, I can't undo the past. The only thing I can suggest is to talk to your doctor about it. If it was me, I would see my family doctor first. Maybe you could some medical time off on disability or something. The only other option is to continue to work as best you can. Perhaps your employer is more sympathetic than you think. If dialysis is anywhere close in your future, like five years or less, I don't think performance issues now will make any difference to you then anyway, so don't overdo it. Whichever way you look at it, having kidney failure plays havoc with any career plans. I spent years trying to be the most cracker-jack logistics officer they ever saw, but it all came to naught anyway. The only consolation I have about it is that I enjoyed the time I was doing it, so I don't see it as a total loss. Why am I talking about myself when you're the one having the problem? Well, I've always found it helps to hear about others' similar problems. Again, talk to your doctor about it. Pierre Finding it hard to work > Hello all, > > Forgive me if this is a repeat but does anyone else on the list who > suffers from the chronic Flank pain and/or Fatigue find it hard to > work? > > For the last couple of months I have. My performance hasn't been 100% > and I don't know what to do. I am way over in sick days and have > tried explaining my sitution with my employer however it has been > officially noted my health has prohibited my perfromance. What does > one do when your health starts to effect your career? > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Mark, Are you on any pain meds?I would not be able to perform my job duties effeciently without the help of pain meds.I still have pain with the meds but they do help me keep going and reduce fatigue. Pain meds are not for everyone and they do affect people differently. If it effects your job you should qualify for disability. http://www.ssa.gov/disability/ Check out this site and see! > Hello all, > > Forgive me if this is a repeat but does anyone else on the list who > suffers from the chronic Flank pain and/or Fatigue find it hard to > work? > > For the last couple of months I have. My performance hasn't been 100% > and I don't know what to do. I am way over in sick days and have > tried explaining my sitution with my employer however it has been > officially noted my health has prohibited my perfromance. What does > one do when your health starts to effect your career? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Mark, Are you on any pain meds?I would not be able to perform my job duties effeciently without the help of pain meds.I still have pain with the meds but they do help me keep going and reduce fatigue. Pain meds are not for everyone and they do affect people differently. If it effects your job you should qualify for disability. http://www.ssa.gov/disability/ Check out this site and see! > Hello all, > > Forgive me if this is a repeat but does anyone else on the list who > suffers from the chronic Flank pain and/or Fatigue find it hard to > work? > > For the last couple of months I have. My performance hasn't been 100% > and I don't know what to do. I am way over in sick days and have > tried explaining my sitution with my employer however it has been > officially noted my health has prohibited my perfromance. What does > one do when your health starts to effect your career? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 >>>>>>>>Why am I talking about myself when you're the one having the problem? Well, I've always found it helps to hear about others' similar problems. Again, talk to your doctor about it. Pierre<<<<<<<< Hello Mark, I agree with Pierre's comment above and for what its worth, I do sympathise with you,very much. .. I'm not near end stage but have had extreme fatigue for the last 16 years and it has progressively effected my ability to work full time......I worked with my husband running our own small business, so not many safety nets for us. At the beginning of last year we made the decision to make drastic changes, to try and ease up on the work load for me to improve my quality of life. My husband is working full time for someone else now and I'm continuing our business in a much smaller capacity tailored around being more home based. My fatigue eased up for a bit and I was lulled into thinking that it was improving, but a couple of bugs and I'm back in familiar territory. BUT, the big thing is it has helped me to be a bit more up beat and fun again and mentally more robust. Without the stresses of constantly trying to 'keep up' and struggling, I find I'm able to enjoy life more and cope with the work that I do better. I suppose I am lucky in that I have a husband who is able to work and support us.......but I do think that we all face different challenges in life and ours happens to be our health.I tried looking at these changes as an unplanned opportunity and readjusted my horizons.OK I haven't succeeded in the way I thought but so what. Being more home based has definitely worked for me. As they say, 'life is not a rehearsal this is it!' Good luck Sally UK Finding it hard to work Hello all, Forgive me if this is a repeat but does anyone else on the list who suffers from the chronic Flank pain and/or Fatigue find it hard to work? For the last couple of months I have. My performance hasn't been 100% and I don't know what to do. I am way over in sick days and have tried explaining my sitution with my employer however it has been officially noted my health has prohibited my perfromance. What does one do when your health starts to effect your career? To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you ---------------------------------------------------------------------------- -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Sally, What an inspiring email! I loved the " we all face different challenges in life and ours happens to be our health. I tried looking at these changes as an unplanned opportunity. " That uplifting and positive attitude will carry you very far! Thanks for sharing your wisdom with us! In a message dated 1/16/2004 2:47:16 AM Pacific Standard Time, sweatshirts@... writes: > Without the > stresses of constantly trying to 'keep up' and struggling, I find I'm able > to enjoy life more and cope with the work that I do better. > > I suppose I am lucky in that I have a husband who is able to work and > support > us.......but I do think that we all face different challenges in life and > ours > happens to be our health.I tried looking at these changes as an unplanned > opportunity and readjusted my horizons.OK I haven't succeeded in the way I > thought > but so what. Being more home based has definitely worked for me. > As they say, 'life is not a rehearsal this is it!' > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Sally, What an inspiring email! I loved the " we all face different challenges in life and ours happens to be our health. I tried looking at these changes as an unplanned opportunity. " That uplifting and positive attitude will carry you very far! Thanks for sharing your wisdom with us! In a message dated 1/16/2004 2:47:16 AM Pacific Standard Time, sweatshirts@... writes: > Without the > stresses of constantly trying to 'keep up' and struggling, I find I'm able > to enjoy life more and cope with the work that I do better. > > I suppose I am lucky in that I have a husband who is able to work and > support > us.......but I do think that we all face different challenges in life and > ours > happens to be our health.I tried looking at these changes as an unplanned > opportunity and readjusted my horizons.OK I haven't succeeded in the way I > thought > but so what. Being more home based has definitely worked for me. > As they say, 'life is not a rehearsal this is it!' > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 , Yes I am on Pain Meds and they keep on increasing the dosage which then takes a few days to get used to. Thanks for the info... I am Canadian so I am trying to find this type of stuff on the Canadian Gov't websites but a lot to go through. - MT > > Hello all, > > > > Forgive me if this is a repeat but does anyone else on the list > who > > suffers from the chronic Flank pain and/or Fatigue find it hard to > > work? > > > > For the last couple of months I have. My performance hasn't been > 100% > > and I don't know what to do. I am way over in sick days and have > > tried explaining my sitution with my employer however it has been > > officially noted my health has prohibited my perfromance. What > does > > one do when your health starts to effect your career? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 , Yes I am on Pain Meds and they keep on increasing the dosage which then takes a few days to get used to. Thanks for the info... I am Canadian so I am trying to find this type of stuff on the Canadian Gov't websites but a lot to go through. - MT > > Hello all, > > > > Forgive me if this is a repeat but does anyone else on the list > who > > suffers from the chronic Flank pain and/or Fatigue find it hard to > > work? > > > > For the last couple of months I have. My performance hasn't been > 100% > > and I don't know what to do. I am way over in sick days and have > > tried explaining my sitution with my employer however it has been > > officially noted my health has prohibited my perfromance. What > does > > one do when your health starts to effect your career? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 , Yes I am on Pain Meds and they keep on increasing the dosage which then takes a few days to get used to. Thanks for the info... I am Canadian so I am trying to find this type of stuff on the Canadian Gov't websites but a lot to go through. - MT > > Hello all, > > > > Forgive me if this is a repeat but does anyone else on the list > who > > suffers from the chronic Flank pain and/or Fatigue find it hard to > > work? > > > > For the last couple of months I have. My performance hasn't been > 100% > > and I don't know what to do. I am way over in sick days and have > > tried explaining my sitution with my employer however it has been > > officially noted my health has prohibited my perfromance. What > does > > one do when your health starts to effect your career? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 Thanks everyone (Pierre, , Ken, , Salley, et al... it does help that we are not alone at this... Just want to add that my Kidney function is good and is stable... its the Flank Pain and Fatigue which are my major griefs. I am sure the 7 different medications I am on, maybe helping one symptom and adding to another. > >>>>>>>>Why am I talking about myself when you're the one having the > problem? Well, > I've always found it helps to hear about others' similar problems. Again, > talk to your doctor about it. > > Pierre<<<<<<<< > > > Hello Mark, > > I agree with Pierre's comment above and for what its worth, > I do sympathise with you,very much. > . > I'm not near end stage but have had extreme fatigue for > the last 16 years and it has progressively effected my ability > to work full time......I worked with my husband running our own > small business, so not many safety nets for us. > > At the beginning of last year we made the decision to make drastic > changes, to try and ease up on the work load for me to improve my > quality of life. My husband is working full time for someone else now and > I'm continuing our business in a much smaller capacity tailored around > being more home based. My fatigue eased up for a bit and I was > lulled into thinking that it was improving, but a couple of bugs and I'm > back in familiar territory. BUT, the big thing is it has helped me to be > a bit more up beat and fun again and mentally more robust. Without the > stresses of constantly trying to 'keep up' and struggling, I find I'm able > to enjoy life more and cope with the work that I do better. > > I suppose I am lucky in that I have a husband who is able to work and > support > us.......but I do think that we all face different challenges in life and > ours > happens to be our health.I tried looking at these changes as an unplanned > opportunity and readjusted my horizons.OK I haven't succeeded in the way I > thought > but so what. Being more home based has definitely worked for me. > As they say, 'life is not a rehearsal this is it!' > > > Good luck > Sally UK > > > > > Finding it hard to work > > > Hello all, > > Forgive me if this is a repeat but does anyone else on the list who > suffers from the chronic Flank pain and/or Fatigue find it hard to > work? > > For the last couple of months I have. My performance hasn't been 100% > and I don't know what to do. I am way over in sick days and have > tried explaining my sitution with my employer however it has been > officially noted my health has prohibited my perfromance. What does > one do when your health starts to effect your career? > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > > -------------------------------------------------------------------- -------- > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 Thanks everyone (Pierre, , Ken, , Salley, et al... it does help that we are not alone at this... Just want to add that my Kidney function is good and is stable... its the Flank Pain and Fatigue which are my major griefs. I am sure the 7 different medications I am on, maybe helping one symptom and adding to another. > >>>>>>>>Why am I talking about myself when you're the one having the > problem? Well, > I've always found it helps to hear about others' similar problems. Again, > talk to your doctor about it. > > Pierre<<<<<<<< > > > Hello Mark, > > I agree with Pierre's comment above and for what its worth, > I do sympathise with you,very much. > . > I'm not near end stage but have had extreme fatigue for > the last 16 years and it has progressively effected my ability > to work full time......I worked with my husband running our own > small business, so not many safety nets for us. > > At the beginning of last year we made the decision to make drastic > changes, to try and ease up on the work load for me to improve my > quality of life. My husband is working full time for someone else now and > I'm continuing our business in a much smaller capacity tailored around > being more home based. My fatigue eased up for a bit and I was > lulled into thinking that it was improving, but a couple of bugs and I'm > back in familiar territory. BUT, the big thing is it has helped me to be > a bit more up beat and fun again and mentally more robust. Without the > stresses of constantly trying to 'keep up' and struggling, I find I'm able > to enjoy life more and cope with the work that I do better. > > I suppose I am lucky in that I have a husband who is able to work and > support > us.......but I do think that we all face different challenges in life and > ours > happens to be our health.I tried looking at these changes as an unplanned > opportunity and readjusted my horizons.OK I haven't succeeded in the way I > thought > but so what. Being more home based has definitely worked for me. > As they say, 'life is not a rehearsal this is it!' > > > Good luck > Sally UK > > > > > Finding it hard to work > > > Hello all, > > Forgive me if this is a repeat but does anyone else on the list who > suffers from the chronic Flank pain and/or Fatigue find it hard to > work? > > For the last couple of months I have. My performance hasn't been 100% > and I don't know what to do. I am way over in sick days and have > tried explaining my sitution with my employer however it has been > officially noted my health has prohibited my perfromance. What does > one do when your health starts to effect your career? > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > > -------------------------------------------------------------------- -------- > -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 I'm am pretty sure that you won't be able to get disability time based on your kidney function alone. It would have to be based on other, unrelated issues. I suspect it would be difficult for chronic pain and fatigue. Maybe it's worth a try - but I wouldn't get my hopes up. Pierre Finding it hard to work > > > > > > Hello all, > > > > Forgive me if this is a repeat but does anyone else on the list > who > > suffers from the chronic Flank pain and/or Fatigue find it hard to > > work? > > > > For the last couple of months I have. My performance hasn't been > 100% > > and I don't know what to do. I am way over in sick days and have > > tried explaining my sitution with my employer however it has been > > officially noted my health has prohibited my perfromance. What > does > > one do when your health starts to effect your career? > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > > > -------------------------------------------------------------------- > -------- > > -- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 One thing I've generally found from my own experience and talking to others is that an application for disability is *almost* universally rejected at first. I guess they test you to see if you're really serious. If you are, they expect you to appeal the first decision. Pierre P.S. That doesn't apply to dialysis though Re: Re: Finding it hard to work > Mark, > > Ralph had to fight the U.S. disability system for 2 > 1/2 yrs to get disability. I believe but am not > positive that the pain and fatigue played a major role > in his getting it. He does have other issues also and > has been diagnosed with Loin Pain Hematuria Syndrome. > His specialist in the LPHS gave us a report on LPHS > and had written a letter to family doctor stating that > because of the pain and fatigue that he could not work > and was totally disabled. > > When U.S. Social Security judge finally oked his > getting disabiltiy, he said that Ralph should have > never been denied in the first place. > > We did a diary on what Ralph did for a week or 2 to > show that he needed to take such frequent rest breaks > that he would not be employable. > > I also wrote statements about how quality of life have > changed and scheduling everything around whether Ralph > is able to participate. > > Don't know if this will help but it might. > > Connie and Ralph Quote Link to comment Share on other sites More sharing options...
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