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Hi Mark,

It does become harder to be as diligent in work as your function declines.

My job has been impacted as of late too. Fortunately for me, my company is

owned by an M.D., so he has been very understanding with me even though my

performance has also declined.

I am honest with them when it is hard, and for a good part of 2003, I had to

cut down to half time. I am back to full time now, but I am not so sure that

was such a good idea...but tuition bills for my daughter's college dictates

otherwise :-)

I'm sorry it is getting hard on you. I don't have any good suggestions,

unfortunately, and can only offer understanding.

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Mark, what's your kidney function again? I forget.

I started feeling like that a couple of years before I started dialysis, as

I've said before. No flank pain though, but I sure was dragging myself. I

managed to do the job, but I didn't feel I was performing at my usual level.

When my contract expired, they didn't renew it, as they had many times

before. So I found myself first on medical benefits from unemployment

insurance, then on welfare until my disability payments started. There isn't

much call for a 50 year old ex-army officer with kidney failure. It was

pretty tough during that time, and it's only getting tougher as the

disability benefits don't increase every time the cost of electricity, gas,

groceries or whatever goes up. That's why I often suggest to people that

they do whatever they can to maintain some kind of private disability

insurance, in case they eventually need it. I sure wish I had. By the time I

realised this, it was already too late to get any. Big mistake, but, I can't

undo the past.

The only thing I can suggest is to talk to your doctor about it. If it was

me, I would see my family doctor first. Maybe you could some medical time

off on disability or something. The only other option is to continue to work

as best you can. Perhaps your employer is more sympathetic than you think.

If dialysis is anywhere close in your future, like five years or less, I

don't think performance issues now will make any difference to you then

anyway, so don't overdo it. Whichever way you look at it, having kidney

failure plays havoc with any career plans. I spent years trying to be the

most cracker-jack logistics officer they ever saw, but it all came to naught

anyway. The only consolation I have about it is that I enjoyed the time I

was doing it, so I don't see it as a total loss.

Why am I talking about myself when you're the one having the problem? Well,

I've always found it helps to hear about others' similar problems. Again,

talk to your doctor about it.

Pierre

Finding it hard to work

> Hello all,

>

> Forgive me if this is a repeat but does anyone else on the list who

> suffers from the chronic Flank pain and/or Fatigue find it hard to

> work?

>

> For the last couple of months I have. My performance hasn't been 100%

> and I don't know what to do. I am way over in sick days and have

> tried explaining my sitution with my employer however it has been

> officially noted my health has prohibited my perfromance. What does

> one do when your health starts to effect your career?

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Mark, what's your kidney function again? I forget.

I started feeling like that a couple of years before I started dialysis, as

I've said before. No flank pain though, but I sure was dragging myself. I

managed to do the job, but I didn't feel I was performing at my usual level.

When my contract expired, they didn't renew it, as they had many times

before. So I found myself first on medical benefits from unemployment

insurance, then on welfare until my disability payments started. There isn't

much call for a 50 year old ex-army officer with kidney failure. It was

pretty tough during that time, and it's only getting tougher as the

disability benefits don't increase every time the cost of electricity, gas,

groceries or whatever goes up. That's why I often suggest to people that

they do whatever they can to maintain some kind of private disability

insurance, in case they eventually need it. I sure wish I had. By the time I

realised this, it was already too late to get any. Big mistake, but, I can't

undo the past.

The only thing I can suggest is to talk to your doctor about it. If it was

me, I would see my family doctor first. Maybe you could some medical time

off on disability or something. The only other option is to continue to work

as best you can. Perhaps your employer is more sympathetic than you think.

If dialysis is anywhere close in your future, like five years or less, I

don't think performance issues now will make any difference to you then

anyway, so don't overdo it. Whichever way you look at it, having kidney

failure plays havoc with any career plans. I spent years trying to be the

most cracker-jack logistics officer they ever saw, but it all came to naught

anyway. The only consolation I have about it is that I enjoyed the time I

was doing it, so I don't see it as a total loss.

Why am I talking about myself when you're the one having the problem? Well,

I've always found it helps to hear about others' similar problems. Again,

talk to your doctor about it.

Pierre

Finding it hard to work

> Hello all,

>

> Forgive me if this is a repeat but does anyone else on the list who

> suffers from the chronic Flank pain and/or Fatigue find it hard to

> work?

>

> For the last couple of months I have. My performance hasn't been 100%

> and I don't know what to do. I am way over in sick days and have

> tried explaining my sitution with my employer however it has been

> officially noted my health has prohibited my perfromance. What does

> one do when your health starts to effect your career?

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Mark, what's your kidney function again? I forget.

I started feeling like that a couple of years before I started dialysis, as

I've said before. No flank pain though, but I sure was dragging myself. I

managed to do the job, but I didn't feel I was performing at my usual level.

When my contract expired, they didn't renew it, as they had many times

before. So I found myself first on medical benefits from unemployment

insurance, then on welfare until my disability payments started. There isn't

much call for a 50 year old ex-army officer with kidney failure. It was

pretty tough during that time, and it's only getting tougher as the

disability benefits don't increase every time the cost of electricity, gas,

groceries or whatever goes up. That's why I often suggest to people that

they do whatever they can to maintain some kind of private disability

insurance, in case they eventually need it. I sure wish I had. By the time I

realised this, it was already too late to get any. Big mistake, but, I can't

undo the past.

The only thing I can suggest is to talk to your doctor about it. If it was

me, I would see my family doctor first. Maybe you could some medical time

off on disability or something. The only other option is to continue to work

as best you can. Perhaps your employer is more sympathetic than you think.

If dialysis is anywhere close in your future, like five years or less, I

don't think performance issues now will make any difference to you then

anyway, so don't overdo it. Whichever way you look at it, having kidney

failure plays havoc with any career plans. I spent years trying to be the

most cracker-jack logistics officer they ever saw, but it all came to naught

anyway. The only consolation I have about it is that I enjoyed the time I

was doing it, so I don't see it as a total loss.

Why am I talking about myself when you're the one having the problem? Well,

I've always found it helps to hear about others' similar problems. Again,

talk to your doctor about it.

Pierre

Finding it hard to work

> Hello all,

>

> Forgive me if this is a repeat but does anyone else on the list who

> suffers from the chronic Flank pain and/or Fatigue find it hard to

> work?

>

> For the last couple of months I have. My performance hasn't been 100%

> and I don't know what to do. I am way over in sick days and have

> tried explaining my sitution with my employer however it has been

> officially noted my health has prohibited my perfromance. What does

> one do when your health starts to effect your career?

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Mark,

Are you on any pain meds?I would not be able to perform my job

duties effeciently without the help of pain meds.I still have pain

with the meds but they do help me keep going and reduce fatigue.

Pain meds are not for everyone and they do affect people differently.

If it effects your job you should qualify for disability.

http://www.ssa.gov/disability/

Check out this site and see!

> Hello all,

>

> Forgive me if this is a repeat but does anyone else on the list

who

> suffers from the chronic Flank pain and/or Fatigue find it hard to

> work?

>

> For the last couple of months I have. My performance hasn't been

100%

> and I don't know what to do. I am way over in sick days and have

> tried explaining my sitution with my employer however it has been

> officially noted my health has prohibited my perfromance. What

does

> one do when your health starts to effect your career?

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Mark,

Are you on any pain meds?I would not be able to perform my job

duties effeciently without the help of pain meds.I still have pain

with the meds but they do help me keep going and reduce fatigue.

Pain meds are not for everyone and they do affect people differently.

If it effects your job you should qualify for disability.

http://www.ssa.gov/disability/

Check out this site and see!

> Hello all,

>

> Forgive me if this is a repeat but does anyone else on the list

who

> suffers from the chronic Flank pain and/or Fatigue find it hard to

> work?

>

> For the last couple of months I have. My performance hasn't been

100%

> and I don't know what to do. I am way over in sick days and have

> tried explaining my sitution with my employer however it has been

> officially noted my health has prohibited my perfromance. What

does

> one do when your health starts to effect your career?

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>>>>>>>>Why am I talking about myself when you're the one having the

problem? Well,

I've always found it helps to hear about others' similar problems. Again,

talk to your doctor about it.

Pierre<<<<<<<<

Hello Mark,

I agree with Pierre's comment above and for what its worth,

I do sympathise with you,very much.

..

I'm not near end stage but have had extreme fatigue for

the last 16 years and it has progressively effected my ability

to work full time......I worked with my husband running our own

small business, so not many safety nets for us.

At the beginning of last year we made the decision to make drastic

changes, to try and ease up on the work load for me to improve my

quality of life. My husband is working full time for someone else now and

I'm continuing our business in a much smaller capacity tailored around

being more home based. My fatigue eased up for a bit and I was

lulled into thinking that it was improving, but a couple of bugs and I'm

back in familiar territory. BUT, the big thing is it has helped me to be

a bit more up beat and fun again and mentally more robust. Without the

stresses of constantly trying to 'keep up' and struggling, I find I'm able

to enjoy life more and cope with the work that I do better.

I suppose I am lucky in that I have a husband who is able to work and

support

us.......but I do think that we all face different challenges in life and

ours

happens to be our health.I tried looking at these changes as an unplanned

opportunity and readjusted my horizons.OK I haven't succeeded in the way I

thought

but so what. Being more home based has definitely worked for me.

As they say, 'life is not a rehearsal this is it!'

Good luck

Sally UK

Finding it hard to work

Hello all,

Forgive me if this is a repeat but does anyone else on the list who

suffers from the chronic Flank pain and/or Fatigue find it hard to

work?

For the last couple of months I have. My performance hasn't been 100%

and I don't know what to do. I am way over in sick days and have

tried explaining my sitution with my employer however it has been

officially noted my health has prohibited my perfromance. What does

one do when your health starts to effect your career?

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

----------------------------------------------------------------------------

--

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Sally,

What an inspiring email! I loved the " we all face different challenges in

life and

ours happens to be our health. I tried looking at these changes as an

unplanned

opportunity. " That uplifting and positive attitude will carry you very far!

Thanks for sharing your wisdom with us!

In a message dated 1/16/2004 2:47:16 AM Pacific Standard Time,

sweatshirts@... writes:

> Without the

> stresses of constantly trying to 'keep up' and struggling, I find I'm able

> to enjoy life more and cope with the work that I do better.

>

> I suppose I am lucky in that I have a husband who is able to work and

> support

> us.......but I do think that we all face different challenges in life and

> ours

> happens to be our health.I tried looking at these changes as an unplanned

> opportunity and readjusted my horizons.OK I haven't succeeded in the way I

> thought

> but so what. Being more home based has definitely worked for me.

> As they say, 'life is not a rehearsal this is it!'

>

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Sally,

What an inspiring email! I loved the " we all face different challenges in

life and

ours happens to be our health. I tried looking at these changes as an

unplanned

opportunity. " That uplifting and positive attitude will carry you very far!

Thanks for sharing your wisdom with us!

In a message dated 1/16/2004 2:47:16 AM Pacific Standard Time,

sweatshirts@... writes:

> Without the

> stresses of constantly trying to 'keep up' and struggling, I find I'm able

> to enjoy life more and cope with the work that I do better.

>

> I suppose I am lucky in that I have a husband who is able to work and

> support

> us.......but I do think that we all face different challenges in life and

> ours

> happens to be our health.I tried looking at these changes as an unplanned

> opportunity and readjusted my horizons.OK I haven't succeeded in the way I

> thought

> but so what. Being more home based has definitely worked for me.

> As they say, 'life is not a rehearsal this is it!'

>

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,

Yes I am on Pain Meds and they keep on increasing the dosage which

then takes a few days to get used to.

Thanks for the info... I am Canadian so I am trying to find this type

of stuff on the Canadian Gov't websites but a lot to go through.

- MT

> > Hello all,

> >

> > Forgive me if this is a repeat but does anyone else on the list

> who

> > suffers from the chronic Flank pain and/or Fatigue find it hard

to

> > work?

> >

> > For the last couple of months I have. My performance hasn't been

> 100%

> > and I don't know what to do. I am way over in sick days and have

> > tried explaining my sitution with my employer however it has been

> > officially noted my health has prohibited my perfromance. What

> does

> > one do when your health starts to effect your career?

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,

Yes I am on Pain Meds and they keep on increasing the dosage which

then takes a few days to get used to.

Thanks for the info... I am Canadian so I am trying to find this type

of stuff on the Canadian Gov't websites but a lot to go through.

- MT

> > Hello all,

> >

> > Forgive me if this is a repeat but does anyone else on the list

> who

> > suffers from the chronic Flank pain and/or Fatigue find it hard

to

> > work?

> >

> > For the last couple of months I have. My performance hasn't been

> 100%

> > and I don't know what to do. I am way over in sick days and have

> > tried explaining my sitution with my employer however it has been

> > officially noted my health has prohibited my perfromance. What

> does

> > one do when your health starts to effect your career?

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,

Yes I am on Pain Meds and they keep on increasing the dosage which

then takes a few days to get used to.

Thanks for the info... I am Canadian so I am trying to find this type

of stuff on the Canadian Gov't websites but a lot to go through.

- MT

> > Hello all,

> >

> > Forgive me if this is a repeat but does anyone else on the list

> who

> > suffers from the chronic Flank pain and/or Fatigue find it hard

to

> > work?

> >

> > For the last couple of months I have. My performance hasn't been

> 100%

> > and I don't know what to do. I am way over in sick days and have

> > tried explaining my sitution with my employer however it has been

> > officially noted my health has prohibited my perfromance. What

> does

> > one do when your health starts to effect your career?

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Thanks everyone (Pierre, , Ken, , Salley, et al... it does

help that we are not alone at this...

Just want to add that my Kidney function is good and is stable... its

the Flank Pain and Fatigue which are my major griefs. I am sure the 7

different medications I am on, maybe helping one symptom and adding

to another.

> >>>>>>>>Why am I talking about myself when you're the one having the

> problem? Well,

> I've always found it helps to hear about others' similar problems.

Again,

> talk to your doctor about it.

>

> Pierre<<<<<<<<

>

>

> Hello Mark,

>

> I agree with Pierre's comment above and for what its worth,

> I do sympathise with you,very much.

> .

> I'm not near end stage but have had extreme fatigue for

> the last 16 years and it has progressively effected my ability

> to work full time......I worked with my husband running our own

> small business, so not many safety nets for us.

>

> At the beginning of last year we made the decision to make drastic

> changes, to try and ease up on the work load for me to improve my

> quality of life. My husband is working full time for someone else

now and

> I'm continuing our business in a much smaller capacity tailored

around

> being more home based. My fatigue eased up for a bit and I was

> lulled into thinking that it was improving, but a couple of bugs

and I'm

> back in familiar territory. BUT, the big thing is it has helped me

to be

> a bit more up beat and fun again and mentally more robust. Without

the

> stresses of constantly trying to 'keep up' and struggling, I find

I'm able

> to enjoy life more and cope with the work that I do better.

>

> I suppose I am lucky in that I have a husband who is able to work

and

> support

> us.......but I do think that we all face different challenges in

life and

> ours

> happens to be our health.I tried looking at these changes as an

unplanned

> opportunity and readjusted my horizons.OK I haven't succeeded in

the way I

> thought

> but so what. Being more home based has definitely worked for me.

> As they say, 'life is not a rehearsal this is it!'

>

>

> Good luck

> Sally UK

>

>

>

>

> Finding it hard to work

>

>

> Hello all,

>

> Forgive me if this is a repeat but does anyone else on the list

who

> suffers from the chronic Flank pain and/or Fatigue find it hard to

> work?

>

> For the last couple of months I have. My performance hasn't been

100%

> and I don't know what to do. I am way over in sick days and have

> tried explaining my sitution with my employer however it has been

> officially noted my health has prohibited my perfromance. What

does

> one do when your health starts to effect your career?

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

> --------------------------------------------------------------------

--------

> --

>

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Share on other sites

Thanks everyone (Pierre, , Ken, , Salley, et al... it does

help that we are not alone at this...

Just want to add that my Kidney function is good and is stable... its

the Flank Pain and Fatigue which are my major griefs. I am sure the 7

different medications I am on, maybe helping one symptom and adding

to another.

> >>>>>>>>Why am I talking about myself when you're the one having the

> problem? Well,

> I've always found it helps to hear about others' similar problems.

Again,

> talk to your doctor about it.

>

> Pierre<<<<<<<<

>

>

> Hello Mark,

>

> I agree with Pierre's comment above and for what its worth,

> I do sympathise with you,very much.

> .

> I'm not near end stage but have had extreme fatigue for

> the last 16 years and it has progressively effected my ability

> to work full time......I worked with my husband running our own

> small business, so not many safety nets for us.

>

> At the beginning of last year we made the decision to make drastic

> changes, to try and ease up on the work load for me to improve my

> quality of life. My husband is working full time for someone else

now and

> I'm continuing our business in a much smaller capacity tailored

around

> being more home based. My fatigue eased up for a bit and I was

> lulled into thinking that it was improving, but a couple of bugs

and I'm

> back in familiar territory. BUT, the big thing is it has helped me

to be

> a bit more up beat and fun again and mentally more robust. Without

the

> stresses of constantly trying to 'keep up' and struggling, I find

I'm able

> to enjoy life more and cope with the work that I do better.

>

> I suppose I am lucky in that I have a husband who is able to work

and

> support

> us.......but I do think that we all face different challenges in

life and

> ours

> happens to be our health.I tried looking at these changes as an

unplanned

> opportunity and readjusted my horizons.OK I haven't succeeded in

the way I

> thought

> but so what. Being more home based has definitely worked for me.

> As they say, 'life is not a rehearsal this is it!'

>

>

> Good luck

> Sally UK

>

>

>

>

> Finding it hard to work

>

>

> Hello all,

>

> Forgive me if this is a repeat but does anyone else on the list

who

> suffers from the chronic Flank pain and/or Fatigue find it hard to

> work?

>

> For the last couple of months I have. My performance hasn't been

100%

> and I don't know what to do. I am way over in sick days and have

> tried explaining my sitution with my employer however it has been

> officially noted my health has prohibited my perfromance. What

does

> one do when your health starts to effect your career?

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

> --------------------------------------------------------------------

--------

> --

>

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I'm am pretty sure that you won't be able to get disability time based on

your kidney function alone. It would have to be based on other, unrelated

issues. I suspect it would be difficult for chronic pain and fatigue. Maybe

it's worth a try - but I wouldn't get my hopes up.

Pierre

Finding it hard to work

> >

> >

> > Hello all,

> >

> > Forgive me if this is a repeat but does anyone else on the list

> who

> > suffers from the chronic Flank pain and/or Fatigue find it hard to

> > work?

> >

> > For the last couple of months I have. My performance hasn't been

> 100%

> > and I don't know what to do. I am way over in sick days and have

> > tried explaining my sitution with my employer however it has been

> > officially noted my health has prohibited my perfromance. What

> does

> > one do when your health starts to effect your career?

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

> supported

> > by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

> >

> >

> > --------------------------------------------------------------------

> --------

> > --

> >

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One thing I've generally found from my own experience and talking to others

is that an application for disability is *almost* universally rejected at

first. I guess they test you to see if you're really serious. If you are,

they expect you to appeal the first decision.

Pierre

P.S. That doesn't apply to dialysis though

Re: Re: Finding it hard to work

> Mark,

>

> Ralph had to fight the U.S. disability system for 2

> 1/2 yrs to get disability. I believe but am not

> positive that the pain and fatigue played a major role

> in his getting it. He does have other issues also and

> has been diagnosed with Loin Pain Hematuria Syndrome.

> His specialist in the LPHS gave us a report on LPHS

> and had written a letter to family doctor stating that

> because of the pain and fatigue that he could not work

> and was totally disabled.

>

> When U.S. Social Security judge finally oked his

> getting disabiltiy, he said that Ralph should have

> never been denied in the first place.

>

> We did a diary on what Ralph did for a week or 2 to

> show that he needed to take such frequent rest breaks

> that he would not be employable.

>

> I also wrote statements about how quality of life have

> changed and scheduling everything around whether Ralph

> is able to participate.

>

> Don't know if this will help but it might.

>

> Connie and Ralph

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