Re: for those with recovered kids or nearly recovered...

[Guest guest]

Now that I know what ileitis is,now that I know that I have these defects in folate metabolism,and I know that I have megaloblastic/pernicious anemia,I think this is the cause of many of my GI,and other medical problems,so yes i do think they are permanent.

To: mb12 valtrex Sent: Mon, March 29, 2010 1:03:42 PMSubject: Re: for those with recovered kids or nearly recovered...

Hey , I always find your input helpful. Why do you think that? The reason I ask -- My sister has Crohns disease, and the diet and supps have done her wonders -- as she is off all her pharma-meds, and she has more energy. SHe's going for a colonoscopy again, as her Dr. isn't convinced she shouldn't be on meds. (My sister doesn't want to do meds as they make her feel like she's run down)I guess what I am saying/asking is: In your opinion, will she always have this GI disorder without any hope in sight of a full GI recovery? And if this is the case, what do you think the root of the problem is when it comes to GI disorders/disease?laura> >> > > > >> > > >> >> > > >> >> > > > this means you haven't found a source of what is keeping him there. what> >> > > > testing have you done? what changes have you made? what things are you> >> > > > doing?> >> > > >> >> > > >> >> > > > * for those with recovered kids or nearly> >> > > > recovered...> >> > > >> >> > > >> >> > > >> >> > > > been doing this 2 months without seeing any change --> >> > > > how long had you been doing biomed before you started to see real changes?> >> > > > what were the most influential parts of your protocols that you think> >> > > > affected real change?> >> > > >> >> > > > thanks,> >> > > > leah> >> > > >> >> > > > > >> > >

>> >> > >> >> >> >>> >> >> > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.>

[Guest guest]

Now that I know what ileitis is,now that I know that I have these defects in folate metabolism,and I know that I have megaloblastic/pernicious anemia,I think this is the cause of many of my GI,and other medical problems,so yes i do think they are permanent.

To: mb12 valtrex Sent: Mon, March 29, 2010 1:03:42 PMSubject: Re: for those with recovered kids or nearly recovered...

Hey , I always find your input helpful. Why do you think that? The reason I ask -- My sister has Crohns disease, and the diet and supps have done her wonders -- as she is off all her pharma-meds, and she has more energy. SHe's going for a colonoscopy again, as her Dr. isn't convinced she shouldn't be on meds. (My sister doesn't want to do meds as they make her feel like she's run down)I guess what I am saying/asking is: In your opinion, will she always have this GI disorder without any hope in sight of a full GI recovery? And if this is the case, what do you think the root of the problem is when it comes to GI disorders/disease?laura> >> > > > >> > > >> >> > > >> >> > > > this means you haven't found a source of what is keeping him there. what> >> > > > testing have you done? what changes have you made? what things are you> >> > > > doing?> >> > > >> >> > > >> >> > > > * for those with recovered kids or nearly> >> > > > recovered...> >> > > >> >> > > >> >> > > >> >> > > > been doing this 2 months without seeing any change --> >> > > > how long had you been doing biomed before you started to see real changes?> >> > > > what were the most influential parts of your protocols that you think> >> > > > affected real change?> >> > > >> >> > > > thanks,> >> > > > leah> >> > > >> >> > > > > >> > >

>> >> > >> >> >> >>> >> >> > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.>

[Guest guest]

I guess that applies to casein as well.

To: "mb12 valtrex " <mb12 valtrex >Sent: Wed, March 24, 2010 3:50:00 PMSubject: Re: for those with recovered kids or nearly recovered...

gluten can take 6 months to completely leave the system.Sent from my iPhone

On Mar 24, 2010, at 5:43 PM, Leah Korenstein <vitaltalim18@ gmail.com> wrote:

we did the urine porphryn (sp.?) test, doctor's data stool test and metametric pediatric ion profile test...

symptoms --

stims out of control bouncing on couches mostly and some visual stims as well

verbal apraxia

cognitive fuzziness

tantrumming

recently (since starting SCD) darker frequent stools but previously lighter and lots of undigested foods

didn't seem to respond to gf/cf/sf/cf at all after 4 months

On Wed, Mar 24, 2010 at 5:31 PM, Christel King <christelking1@ myfairpoint. net> wrote:

WHAT tests were run, and what are his symptoms?

for those with recovered kids or nearly recovered...

been doing this 2 months without seeing any change --

how long had you been doing biomed before you started to see real changes? what were the most influential parts of your protocols that you think affected real change?

thanks,

leah

[Guest guest]

I guess that applies to casein as well.

To: "mb12 valtrex " <mb12 valtrex >Sent: Wed, March 24, 2010 3:50:00 PMSubject: Re: for those with recovered kids or nearly recovered...

gluten can take 6 months to completely leave the system.Sent from my iPhone

On Mar 24, 2010, at 5:43 PM, Leah Korenstein <vitaltalim18@ gmail.com> wrote:

we did the urine porphryn (sp.?) test, doctor's data stool test and metametric pediatric ion profile test...

symptoms --

stims out of control bouncing on couches mostly and some visual stims as well

verbal apraxia

cognitive fuzziness

tantrumming

recently (since starting SCD) darker frequent stools but previously lighter and lots of undigested foods

didn't seem to respond to gf/cf/sf/cf at all after 4 months

On Wed, Mar 24, 2010 at 5:31 PM, Christel King <christelking1@ myfairpoint. net> wrote:

WHAT tests were run, and what are his symptoms?

for those with recovered kids or nearly recovered...

been doing this 2 months without seeing any change --

how long had you been doing biomed before you started to see real changes? what were the most influential parts of your protocols that you think affected real change?

thanks,

leah

[Guest guest]

I guess that applies to casein as well.

To: "mb12 valtrex " <mb12 valtrex >Sent: Wed, March 24, 2010 3:50:00 PMSubject: Re: for those with recovered kids or nearly recovered...

gluten can take 6 months to completely leave the system.Sent from my iPhone

On Mar 24, 2010, at 5:43 PM, Leah Korenstein <vitaltalim18@ gmail.com> wrote:

we did the urine porphryn (sp.?) test, doctor's data stool test and metametric pediatric ion profile test...

symptoms --

stims out of control bouncing on couches mostly and some visual stims as well

verbal apraxia

cognitive fuzziness

tantrumming

recently (since starting SCD) darker frequent stools but previously lighter and lots of undigested foods

didn't seem to respond to gf/cf/sf/cf at all after 4 months

On Wed, Mar 24, 2010 at 5:31 PM, Christel King <christelking1@ myfairpoint. net> wrote:

WHAT tests were run, and what are his symptoms?

for those with recovered kids or nearly recovered...

been doing this 2 months without seeing any change --

how long had you been doing biomed before you started to see real changes? what were the most influential parts of your protocols that you think affected real change?

thanks,

leah

[Guest guest]

Actually casein should be out of your system totally in up to 3 weeks, usually 3

days!

> >>>

> >>> 

> >>>>this means you haven't found a source of what is keeping him there. what

testing have you done?  what changes have you made?  what things are you

doing?

> >>>>

> >>>>

> >>>> for those with recovered kids or nearly

recovered...

> >>>>>

> >>>>> 

> >>>>>been doing this 2 months without seeing any change -- 

> >>>>>how long had you been doing biomed before you started to see real

changes?

> >>>>>what were the most influential parts of your protocols that you think

affected real change?

> >>>>>

> >>>>>

> >>>>>thanks,

> >>>>>leah

> >>>

> >

>

[Guest guest]

Actually casein should be out of your system totally in up to 3 weeks, usually 3

days!

> >>>

> >>> 

> >>>>this means you haven't found a source of what is keeping him there. what

testing have you done?  what changes have you made?  what things are you

doing?

> >>>>

> >>>>

> >>>> for those with recovered kids or nearly

recovered...

> >>>>>

> >>>>> 

> >>>>>been doing this 2 months without seeing any change -- 

> >>>>>how long had you been doing biomed before you started to see real

changes?

> >>>>>what were the most influential parts of your protocols that you think

affected real change?

> >>>>>

> >>>>>

> >>>>>thanks,

> >>>>>leah

> >>>

> >

>

[Guest guest]

Actually casein should be out of your system totally in up to 3 weeks, usually 3

days!

> >>>

> >>> 

> >>>>this means you haven't found a source of what is keeping him there. what

testing have you done?  what changes have you made?  what things are you

doing?

> >>>>

> >>>>

> >>>> for those with recovered kids or nearly

recovered...

> >>>>>

> >>>>> 

> >>>>>been doing this 2 months without seeing any change -- 

> >>>>>how long had you been doing biomed before you started to see real

changes?

> >>>>>what were the most influential parts of your protocols that you think

affected real change?

> >>>>>

> >>>>>

> >>>>>thanks,

> >>>>>leah

> >>>

> >

>

[Guest guest]

What is considered a high dose? Subject: Re: Re: for those with recovered kids or nearly recovered...To: mb12 valtrex Date: Monday, March 29, 2010, 12:43 PM

I have said a number of times here in the past couple of years that high dose omega 3 brought me out of one of the worst,most prolonged regressions of my life.If you spend some time with Google,you will see numerous studies showing it has been proven to produce "miracles" not only in autism,but in schizophrenia, bioplar disorder,psychotic disorders,you name it,anything involving the brain. Why they only market it for heart disease is beyond me.But it didn't work for me until I used it in really high doses,something I learned from watching a talk given by Dr.Tim Buie,who said you need high doses if there is serious malabsorption problems.It is the first thing you need to do before you add anything else.

You are lucky your son went off dairy on his own,casein withdrawl is not a pretty thing.Mine lasted almost two months.I didn't get any eye contact until several months on MB12,and folinic acid,AND going off dairy.I think that was the big thing there.My eloping stopped right after I started on the MB12,and folinic acid.The head banging took almost a year to go away,and I can't point to anything that stopped it as such.

I am tempted to go back to the neuropsychologist who diagnosed me.

From: laurargoddin <laurargoddin@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Thu, March 25, 2010 11:52:51 PMSubject: Re: for those with recovered kids or nearly recovered...

Krassi, I would love to share. I have to apologize in advance, this is a REALLY LONG POST.Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he

tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me. At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April. It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long

naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever. After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his

hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me. A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone. I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then

remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!) For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift. During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in

disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again) At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month

#2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation. Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.week #3, I put him on nordic berries. (he ate them, it was a good thing.)Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries. I noticed he got really crazy

(crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the

"slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company. At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches. Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the

time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was

really good now.In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he

seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels. In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech

therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to

detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress. This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my

sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes. Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good

playtime/running time.)I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order. I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of. My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing

well, but is far from recovery -- however, making amazing progress.> > > > > > >> > > >> > > > this means you haven't found a source of what is keeping him there. what> > > > testing have you done? what changes have you made? what things are you> > > > doing?> > > >> > > >> > > > * for those with recovered kids or nearly> > > > recovered...> > > >> > > >> > > >> > > > been doing this 2 months without seeing any change --> > > > how long had you been doing biomed before you started to see real changes?> > > > what were the most influential parts of your protocols that you think> > > > affected real change?> > > >> > > > thanks,> > > > leah> > > >> > > > > > > >> > >> >>

[Guest guest]

What is considered a high dose? Subject: Re: Re: for those with recovered kids or nearly recovered...To: mb12 valtrex Date: Monday, March 29, 2010, 12:43 PM

I have said a number of times here in the past couple of years that high dose omega 3 brought me out of one of the worst,most prolonged regressions of my life.If you spend some time with Google,you will see numerous studies showing it has been proven to produce "miracles" not only in autism,but in schizophrenia, bioplar disorder,psychotic disorders,you name it,anything involving the brain. Why they only market it for heart disease is beyond me.But it didn't work for me until I used it in really high doses,something I learned from watching a talk given by Dr.Tim Buie,who said you need high doses if there is serious malabsorption problems.It is the first thing you need to do before you add anything else.

You are lucky your son went off dairy on his own,casein withdrawl is not a pretty thing.Mine lasted almost two months.I didn't get any eye contact until several months on MB12,and folinic acid,AND going off dairy.I think that was the big thing there.My eloping stopped right after I started on the MB12,and folinic acid.The head banging took almost a year to go away,and I can't point to anything that stopped it as such.

I am tempted to go back to the neuropsychologist who diagnosed me.

From: laurargoddin <laurargoddin@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Thu, March 25, 2010 11:52:51 PMSubject: Re: for those with recovered kids or nearly recovered...

Krassi, I would love to share. I have to apologize in advance, this is a REALLY LONG POST.Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he

tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me. At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April. It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long

naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever. After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his

hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me. A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone. I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then

remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!) For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift. During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in

disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again) At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month

#2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation. Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.week #3, I put him on nordic berries. (he ate them, it was a good thing.)Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries. I noticed he got really crazy

(crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the

"slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company. At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches. Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the

time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was

really good now.In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he

seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels. In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech

therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to

detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress. This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my

sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes. Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good

playtime/running time.)I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order. I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of. My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing

well, but is far from recovery -- however, making amazing progress.> > > > > > >> > > >> > > > this means you haven't found a source of what is keeping him there. what> > > > testing have you done? what changes have you made? what things are you> > > > doing?> > > >> > > >> > > > * for those with recovered kids or nearly> > > > recovered...> > > >> > > >> > > >> > > > been doing this 2 months without seeing any change --> > > > how long had you been doing biomed before you started to see real changes?> > > > what were the most influential parts of your protocols that you think> > > > affected real change?> > > >> > > > thanks,> > > > leah> > > >> > > > > > > >> > >> >>

[Guest guest]

What is considered a high dose? Subject: Re: Re: for those with recovered kids or nearly recovered...To: mb12 valtrex Date: Monday, March 29, 2010, 12:43 PM

I have said a number of times here in the past couple of years that high dose omega 3 brought me out of one of the worst,most prolonged regressions of my life.If you spend some time with Google,you will see numerous studies showing it has been proven to produce "miracles" not only in autism,but in schizophrenia, bioplar disorder,psychotic disorders,you name it,anything involving the brain. Why they only market it for heart disease is beyond me.But it didn't work for me until I used it in really high doses,something I learned from watching a talk given by Dr.Tim Buie,who said you need high doses if there is serious malabsorption problems.It is the first thing you need to do before you add anything else.

You are lucky your son went off dairy on his own,casein withdrawl is not a pretty thing.Mine lasted almost two months.I didn't get any eye contact until several months on MB12,and folinic acid,AND going off dairy.I think that was the big thing there.My eloping stopped right after I started on the MB12,and folinic acid.The head banging took almost a year to go away,and I can't point to anything that stopped it as such.

I am tempted to go back to the neuropsychologist who diagnosed me.

From: laurargoddin <laurargoddin@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Thu, March 25, 2010 11:52:51 PMSubject: Re: for those with recovered kids or nearly recovered...

Krassi, I would love to share. I have to apologize in advance, this is a REALLY LONG POST.Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he

tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me. At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April. It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long

naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever. After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his

hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me. A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone. I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then

remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!) For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift. During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in

disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again) At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month

#2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation. Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.week #3, I put him on nordic berries. (he ate them, it was a good thing.)Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries. I noticed he got really crazy

(crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the

"slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company. At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches. Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the

time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was

really good now.In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he

seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels. In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech

therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to

detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress. This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my

sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes. Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good

playtime/running time.)I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order. I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of. My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing

well, but is far from recovery -- however, making amazing progress.> > > > > > >> > > >> > > > this means you haven't found a source of what is keeping him there. what> > > > testing have you done? what changes have you made? what things are you> > > > doing?> > > >> > > >> > > > * for those with recovered kids or nearly> > > > recovered...> > > >> > > >> > > >> > > > been doing this 2 months without seeing any change --> > > > how long had you been doing biomed before you started to see real changes?> > > > what were the most influential parts of your protocols that you think> > > > affected real change?> > > >> > > > thanks,> > > > leah> > > >> > > > > > > >> > >> >>

[Guest guest]

What dose did you need to take?

Re: for those with recovered kids or nearly recovered...

Krassi,

I would love to share. I have to apologize in advance, this is a REALLY LONG POST.

Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)

Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me.

At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April.

It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever.

After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me.

A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."

Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone.

I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!)

For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift.

During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)

Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again)

At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month #2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation.

Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.

week #3, I put him on nordic berries. (he ate them, it was a good thing.)

Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries.

I noticed he got really crazy (crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)

I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)

At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the "slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company.

At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches.

Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.

After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.

In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.

In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was really good now.

In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.

In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels.

In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.

In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress.

This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes.

Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.

Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.

I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good playtime/running time.)

I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.

Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order.

I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of.

My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing well, but is far from recovery -- however, making amazing progress.

> > >

> > > >

> > > >

> > > > this means you haven't found a source of what is keeping him there. what

> > > > testing have you done? what changes have you made? what things are you

> > > > doing?

> > > >

> > > >

> > > > * for those with recovered kids or nearly

> > > > recovered...

> > > >

> > > >

> > > >

> > > > been doing this 2 months without seeing any change --

> > > > how long had you been doing biomed before you started to see real changes?

> > > > what were the most influential parts of your protocols that you think

> > > > affected real change?

> > > >

> > > > thanks,

> > > > leah

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

What dose did you need to take?

Re: for those with recovered kids or nearly recovered...

Krassi,

I would love to share. I have to apologize in advance, this is a REALLY LONG POST.

Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)

Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me.

At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April.

It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever.

After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me.

A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."

Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone.

I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!)

For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift.

During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)

Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again)

At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month #2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation.

Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.

week #3, I put him on nordic berries. (he ate them, it was a good thing.)

Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries.

I noticed he got really crazy (crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)

I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)

At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the "slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company.

At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches.

Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.

After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.

In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.

In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was really good now.

In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.

In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels.

In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.

In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress.

This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes.

Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.

Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.

I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good playtime/running time.)

I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.

Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order.

I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of.

My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing well, but is far from recovery -- however, making amazing progress.

> > >

> > > >

> > > >

> > > > this means you haven't found a source of what is keeping him there. what

> > > > testing have you done? what changes have you made? what things are you

> > > > doing?

> > > >

> > > >

> > > > * for those with recovered kids or nearly

> > > > recovered...

> > > >

> > > >

> > > >

> > > > been doing this 2 months without seeing any change --

> > > > how long had you been doing biomed before you started to see real changes?

> > > > what were the most influential parts of your protocols that you think

> > > > affected real change?

> > > >

> > > > thanks,

> > > > leah

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

What dose did you need to take?

Re: for those with recovered kids or nearly recovered...

Krassi,

I would love to share. I have to apologize in advance, this is a REALLY LONG POST.

Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)

Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me.

At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April.

It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever.

After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me.

A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."

Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone.

I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!)

For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift.

During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)

Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again)

At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month #2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation.

Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.

week #3, I put him on nordic berries. (he ate them, it was a good thing.)

Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries.

I noticed he got really crazy (crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)

I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)

At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the "slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company.

At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches.

Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.

After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.

In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.

In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was really good now.

In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.

In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels.

In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.

In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress.

This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes.

Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.

Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.

I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good playtime/running time.)

I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.

Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order.

I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of.

My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing well, but is far from recovery -- however, making amazing progress.

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> > > >

> > > > this means you haven't found a source of what is keeping him there. what

> > > > testing have you done? what changes have you made? what things are you

> > > > doing?

> > > >

> > > >

> > > > * for those with recovered kids or nearly

> > > > recovered...

> > > >

> > > >

> > > >

> > > > been doing this 2 months without seeing any change --

> > > > how long had you been doing biomed before you started to see real changes?

> > > > what were the most influential parts of your protocols that you think

> > > > affected real change?

> > > >

> > > > thanks,

> > > > leah

> > > >

> > > >

> > > >

> > >

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[Guest guest]



gluten 8 months with out infractions milk in 2 weeks. that is their life cycle of effect. it's not that it takes that long for it to LEAVE the body it takes that long for the body to stop reacting and heal the damages from it. and antibodies return to normal

for those with recovered kids or nearly recovered...

been doing this 2 months without seeing any change --

how long had you been doing biomed before you started to see real changes? what were the most influential parts of your protocols that you think affected real change?

thanks,

leah

[Guest guest]



gluten 8 months with out infractions milk in 2 weeks. that is their life cycle of effect. it's not that it takes that long for it to LEAVE the body it takes that long for the body to stop reacting and heal the damages from it. and antibodies return to normal

for those with recovered kids or nearly recovered...

been doing this 2 months without seeing any change --

how long had you been doing biomed before you started to see real changes? what were the most influential parts of your protocols that you think affected real change?

thanks,

leah

[Guest guest]



gluten 8 months with out infractions milk in 2 weeks. that is their life cycle of effect. it's not that it takes that long for it to LEAVE the body it takes that long for the body to stop reacting and heal the damages from it. and antibodies return to normal

for those with recovered kids or nearly recovered...

been doing this 2 months without seeing any change --

how long had you been doing biomed before you started to see real changes? what were the most influential parts of your protocols that you think affected real change?

thanks,

leah

[Guest guest]

Thanks so much .Mimoza

 

Mimoza! You are just a doll...

I would LOVE to say I've got 2 recoveries under my belt. A book? I think there are far better people who could do a much better job at writing than I.

I would LOVe to tell you how I make Kim-Chi and my yogurt. First, I got my Kim-Chi recipe from a book called " Wild Fermentation " by Sandor Ellix Katz. The guy who wrote the book is really a big hippy..so if you're not a fan of hippies, you probably won't like his writing style, but I find this " crackpot " totally interesting. The recipe is on page 47. I know the library carries it, but I purchased it, as I thought it contained good information.

I also purchased a " fermentation crock. " -- however, if you aren't sure you are going to do this a lot, you can do it without (and no, you don't need to bury it in the ground for good results) - My sister uses canning jars and gets good results. (So don't go crazy - I do, and it drives my husband crazy.)

Yogurt. I used the recipe in the box (that the yogurt maker came in) --HOWEVER-- When I made the coconut milk yogurt, I used the blender and blended it for about 3 minutes, (because the coconut fat/oil, rises to the top and makes it hard on top -- and that was unpleasant. and then I stirred in some PB8 along with the yogurt culture starter. I am also thinking about getting some Kefir grains. (I haven't yet, as my kitchen is starting to look like a serious science experiment!)

laura

> > > > >

> > > > > >

> > > > > >

> > > > > > this means you haven't found a source of what is keeping him there.

> > what

> > > > > > testing have you done? what changes have you made? what things are

> > you

> > > > > > doing?

> > > > > >

> > > > > >

> > > > > > * for those with recovered kids or nearly

> > > > > > recovered...

> > > > > >

> > > > > >

> > > > > >

> > > > > > been doing this 2 months without seeing any change --

> > > > > > how long had you been doing biomed before you started to see real

> > changes?

> > > > > > what were the most influential parts of your protocols that you

> > think

> > > > > > affected real change?

> > > > > >

> > > > > > thanks,

> > > > > > leah

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

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