Re: for those with recovered kids or nearly recovered...

March 25, 2010

Leah,

Um, hell no. I didn't pay anyone that kind of money! A " little " high? more

like highway robbery. I had no idea that they charged that kind of money. I

have no idea if it's a scam or not. Which organization did you call? The

Bright Steps or Therapies 4 kids? I am very curious as to what the heck costs

$12k per month?

I have literally used items available to me thru my DAN and the internet. I

have not paid anyone (except for my DAN) to help me w/my son and brother. No, I

did not use Dr. Moulden to recover my child. I used my own research and

knowledge gained thru my own hard work -- and of others in my similar situation.

However, I think this guy is legit. I do. And I do believe that the people in

charge do not want this information to get out. It took me a long time to

realize that not every organization, Fed gov't program, or dept, is necessarily

on my side or even cares about my or the overall needs of the many.

That being said, I will call myself tomorrow, and see if I can't find out more

about it. It sounds a little disconcerting.

> > > > >

> > > > > >

> > > > > > this means you haven't found a source of what is keeping him there.

> > what

> > > > > > testing have you done? what changes have you made? what things are

> > you

> > > > > > doing?

> > > > > >

> > > > > > * for those with recovered kids or nearly

> > > > > > recovered...

> > > > > >

> > > > > > been doing this 2 months without seeing any change --

> > > > > > how long had you been doing biomed before you started to see real

> > changes?

> > > > > > what were the most influential parts of your protocols that you

> > think

> > > > > > affected real change?

> > > > > >

> > > > > > thanks,

> > > > > > leah

> > > > > >

> > > > >

> > > >

> > >

> >

>

March 25, 2010

Called Therapies for kids but I think that they're the same organization because I think I got to the therapies 4 kids site through the Bright Steps site... please let me know if it's not actually that expensive because the program sounds incredible... like I thought I could heal my son in 1 month incredible...

probably impossible, I know.Leah

Leah,

Um, hell no. I didn't pay anyone that kind of money! A " little " high? more like highway robbery. I had no idea that they charged that kind of money. I have no idea if it's a scam or not. Which organization did you call? The Bright Steps or Therapies 4 kids? I am very curious as to what the heck costs $12k per month?

I have literally used items available to me thru my DAN and the internet. I have not paid anyone (except for my DAN) to help me w/my son and brother. No, I did not use Dr. Moulden to recover my child. I used my own research and knowledge gained thru my own hard work -- and of others in my similar situation.

However, I think this guy is legit. I do. And I do believe that the people in charge do not want this information to get out. It took me a long time to realize that not every organization, Fed gov't program, or dept, is necessarily on my side or even cares about my or the overall needs of the many.

That being said, I will call myself tomorrow, and see if I can't find out more about it. It sounds a little disconcerting.

> > > > >

> > > > > >

> > > > > > this means you haven't found a source of what is keeping him there.

> > what

> > > > > > testing have you done? what changes have you made? what things are

> > you

> > > > > > doing?

> > > > > >

> > > > > > * for those with recovered kids or nearly

> > > > > > recovered...

> > > > > >

> > > > > > been doing this 2 months without seeing any change --

> > > > > > how long had you been doing biomed before you started to see real

> > changes?

> > > > > > what were the most influential parts of your protocols that you

> > think

> > > > > > affected real change?

> > > > > >

> > > > > > thanks,

> > > > > > leah

> > > > > >

> > > > >

> > > >

> > >

> >

>

March 25, 2010

Called Therapies for kids but I think that they're the same organization because I think I got to the therapies 4 kids site through the Bright Steps site... please let me know if it's not actually that expensive because the program sounds incredible... like I thought I could heal my son in 1 month incredible...

probably impossible, I know.Leah

Leah,

Um, hell no. I didn't pay anyone that kind of money! A " little " high? more like highway robbery. I had no idea that they charged that kind of money. I have no idea if it's a scam or not. Which organization did you call? The Bright Steps or Therapies 4 kids? I am very curious as to what the heck costs $12k per month?

I have literally used items available to me thru my DAN and the internet. I have not paid anyone (except for my DAN) to help me w/my son and brother. No, I did not use Dr. Moulden to recover my child. I used my own research and knowledge gained thru my own hard work -- and of others in my similar situation.

However, I think this guy is legit. I do. And I do believe that the people in charge do not want this information to get out. It took me a long time to realize that not every organization, Fed gov't program, or dept, is necessarily on my side or even cares about my or the overall needs of the many.

That being said, I will call myself tomorrow, and see if I can't find out more about it. It sounds a little disconcerting.

> > > > >

> > > > > >

> > > > > > this means you haven't found a source of what is keeping him there.

> > what

> > > > > > testing have you done? what changes have you made? what things are

> > you

> > > > > > doing?

> > > > > >

> > > > > > * for those with recovered kids or nearly

> > > > > > recovered...

> > > > > >

> > > > > > been doing this 2 months without seeing any change --

> > > > > > how long had you been doing biomed before you started to see real

> > changes?

> > > > > > what were the most influential parts of your protocols that you

> > think

> > > > > > affected real change?

> > > > > >

> > > > > > thanks,

> > > > > > leah

> > > > > >

> > > > >

> > > >

> > >

> >

>

March 25, 2010

Called Therapies for kids but I think that they're the same organization because I think I got to the therapies 4 kids site through the Bright Steps site... please let me know if it's not actually that expensive because the program sounds incredible... like I thought I could heal my son in 1 month incredible...

probably impossible, I know.Leah

Leah,

Um, hell no. I didn't pay anyone that kind of money! A " little " high? more like highway robbery. I had no idea that they charged that kind of money. I have no idea if it's a scam or not. Which organization did you call? The Bright Steps or Therapies 4 kids? I am very curious as to what the heck costs $12k per month?

I have literally used items available to me thru my DAN and the internet. I have not paid anyone (except for my DAN) to help me w/my son and brother. No, I did not use Dr. Moulden to recover my child. I used my own research and knowledge gained thru my own hard work -- and of others in my similar situation.

However, I think this guy is legit. I do. And I do believe that the people in charge do not want this information to get out. It took me a long time to realize that not every organization, Fed gov't program, or dept, is necessarily on my side or even cares about my or the overall needs of the many.

That being said, I will call myself tomorrow, and see if I can't find out more about it. It sounds a little disconcerting.

> > > > >

> > > > > >

> > > > > > this means you haven't found a source of what is keeping him there.

> > what

> > > > > > testing have you done? what changes have you made? what things are

> > you

> > > > > > doing?

> > > > > >

> > > > > > * for those with recovered kids or nearly

> > > > > > recovered...

> > > > > >

> > > > > > been doing this 2 months without seeing any change --

> > > > > > how long had you been doing biomed before you started to see real

> > changes?

> > > > > > what were the most influential parts of your protocols that you

> > think

> > > > > > affected real change?

> > > > > >

> > > > > > thanks,

> > > > > > leah

> > > > > >

> > > > >

> > > >

> > >

> >

>

March 25, 2010

Krassi,

I would love to share. I have to apologize in advance, this is a REALLY LONG

POST.

Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about

3 hours. Looking back, there were signs of distress, however, he had made most

of his milestones by 18 mo. had about 20-30 words we understood clearly, and

essentially was a happy go lucky kid. (Very pleasant, very sweet child)

Jimmy was a great eater (would eat anything) until about 13 months of age. Then

he started to just drink milk only, and occasionally would eat pasta, toast,

strawberries and bananas. ANd that was it. I thought this was odd, and

consulted our ped about it, around the same time Jimmy came down with a really

bad cold that ended up being croup, and that turned into an even worse sickness

that lasted 4 months. I was told it was " just a cold " -- but a woman told me

that unmistakably my son had the whooping cough. I took him to the Dr. and he

tested positive, however, they said it could be because he was recently

vaccinated. This made NO sense to me.

At the end of 4 months, a friend (she's 67) told me that when her kids got sick

she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I

was relieved) However he developed this rash on his cheeks that never went

away. (He still has it, although, it's only noticeable when it's extremely cold

or hot) At this time of him getting better it was the end of April.

It was then I started to notice that Jimmy would stare (for a long time) at

fans, he got really clumsy, and he would zone out for extremely long periods of

time. I brought this up to my friends who had kids, and no one seemed really

bothered by it. I also noticed while Jimmy was getting new words. They were

only one syllable and if it was 2 syllables he just " dropped " the end of the

word. So, " button " was " but. " He also started taking extraordinary long naps.

He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk.

By the time he turned two, I had read about 20 parenting books (as I was told I

wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had

tried to get him to sleep thru the night, gain some weight, (as he was in the

25th percentile for height, and about 5th for weight) -- and I was having no

luck whatsoever.

After this uncontrollable tantrum he woke up and had (In Jan. after turning 2),

6 days later, he was non-verbal. He pointed and gestured, but refused to talk.

He would bang his head (hard) on any and every wall in the house. I took him

for all sorts of tests, and to 6 different doctors -- all of whom were

uninterested, told me it was a parenting problem, or would say " wait and see " ,

or some really unhelpful thing. I explained the rash on his face, and I was

told it's eczema, and that he would just have to live with it. I was told his

hearing was fine that I needed to change my style of communication. I was told

that his tantrums were a result of poor parenting and his non-verbal nature was

because he was testing me.

A woman at the grocery store asked me if he was autistic, as her son was too. I

was so angry (and in denial) that I was like " no, he's not autistic. he's fine. "

Then around June (he is about 2.5 now) during dinner he slid under the table,

held his ears and cried uncontrollably for the next few hours. I was

devastated, as it brought me back to when I was 16 watching my brother do the

same thing, day in and day out, every night at dinner. My brother (Autistic)

shared a lot of the same issues. Drooling uncontrollably (my son did this), his

cheeks always red and flushed, staring at fans, staring thru people, a general

disconnect from everyone.

I got a grip. And I went on line. I found a site that said if your child is

having behavior problems, then remove dairy and wheat (gluten and casein).

Jimmy at the time was sitting on the couch watching TV and I ripped the milk

bottle out of his mouth, and threw it away. That was the last time he had milk

or a bottle. (except for the one infraction!)

For the next 4 days he drank juice. Any juice. He was a mess. He threw

tantrums I had never seen before. It was like he was the exorcist. I had found

Stan's site, and he said it could go on this diet for 60 days. I thought,

" well, crap, he only drinks milk, I guess juice for the next 58 days won't kill

em. " It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He

was happy. He was himself as I remembered him. Didn't bang his head on

anything. He still zoned, stared at fans, but it was less in duration. I felt

that I had been given this great gift.

During this time, I had him evaluated for speech. It came back that he was

" slightly mentally retarded. " We were devastated and in disbelief. I never for

a minute believed this. Here was a kid that walked at 10 months, and made every

milestone until he was about 18 months which was when we saw the biggest

decline. During the evaluation he banged his head on the floor, was drooling,

and wouldn't even engage the therapist. He was like a wild animal. I had to be

in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at

9 months (because when he was supposed to be vaccinated again, he was sick and I

refused the MMR.)

Within 6 days on the GF/CF diet, Jimmy said " Mommy " for the first time since he

had lost his speech. I was in awe, I cried, I scared the crap out of him. This

was a " wow " for me. A few days later, he said " Daddy. " My husband cried. (I

can't handle seeing grown men cry, so I cried too, scaring the crap out of our

son again)

At that point, I started giving him all sorts of supplements (from Stan's

protocol) -- this was a disaster. By month #2, I decided to throw out

everything, and add one thing per week. I started juicing for him daily. (all

organic, all fruit and 1 veg.) I figured his diet was the most important thing,

as it got rid of the head banging, the tantrums, and most of the zoning - and a

great bonus, he slept thru the night, no more every 3 hour wakeups. Which was

huge for me. So, I mainly focused on getting him to try to eat good food, and

work on meal preparation.

Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned

his sandpaper skin to baby soft.

week #3, I put him on nordic berries. (he ate them, it was a good thing.)

Then it was OLE, (this was a challenge of trying to get him to take), so I

skipped a week of new stuff, but I started using coconut oil to cook his food.

And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my

new yogurt maker) w/strawberries.

I noticed he got really crazy (crying and some tantrums) some days. And then he

got this weird rash like thing on the side of his neck. (I took a picture) It

was huge and it stayed there for a while - it looked like it was eating his

skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I

said I would bring him back in two days if it didn't go away. It was gone in 3

days. When it left, he started saying words. Almost all the words he lost, he

had back within a couple of days. (that was a wow for me.)

I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and

cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy

metals)

At that time, we went back to the speech therapist (this was mid August), and

Jimmy was like this new little boy. He engaged the therapist, and when we went

over the evaluation, they were dumbfounded at this child sitting before them

(was not the same child) -- and they removed the " slightly mentally retarded "

and " drooling excessively " -- as he no longer drooled, and they rewrote the

paperwork for the insurance company.

At the same time all this was happening, I flew my brother down to TX (from NY)

to live with me. I took him to a DAN Dr. and had a lot of tests done. His

tests were lit up like Vegas, and I thought, " this is it. Two for the price of

one. " Since Rob's diet was much more restrictive, I used his IGg tests to

figure out what to feed the family. We came up with meat, veg, and some

starches.

Jimmy went/goes to speech two times per week since the middle of Aug. 08. He

also was in Kindermusik, and Little Gym. He was always off on his own, doing

his own thing.

After this, I made my own Kim-Chi. This everyone seemed to like, and I started

Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim

Chi or the probiotics, but he started talking more, and engaging more. He was

-- at the time -- going once a week to a Mother's day out program -- but he

still wouldn't engage other children. ALthough, he stopped hand flapping

completely.

In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain

small advances, and overall, more vocabulary. He still only ate his 5

substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and

bananas. We traveled and he got a milk infraction, and started hitting himself

in the head and banging his head on his carseat. This lasted about 3 hours. He

couldn't communicate and was very frustrated and cried a lot. I also started

epsom salt baths w/drops of lavender.

In Oct, I added MB-12 (Revita-pops), Vira-stop, Culturelle (Lactobacillus GG),

Colloidal Silver. He got two small rashes that came and went, and he continued

to say more words, increase his vocabulary, and was more affectionate. When we

sneezed, he said " you okay? " He started coloring and eye contact was really good

now.

In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of

water for each pound of body weight, Celtic salt to his egg whites (which he

really took to, and started eating them consistently), garlic (also in his egg

whites) and OoO. OoO was really hard on his stomach, so I scaled back to two

drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with

me (a lot of books), and while his vocabulary was increasing, his sentence

structure still suffered. At this time he became really obsessed with

trains, and since he was learning the names of the engines, if he accomplished

something, I bought him a train. He learned all the letters of the alphabet,

learned to count to 12, and learned 4 colors. He also learned to ride a bike

(w/training wheels) I was very impressed.

In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily.

While he made small advances, he seemed to really slow down in terms of speech,

and he seemed more aware of others, but had a difficult time engaging. I was

worried -- so I made an appointment to see my DAN and during that visit, I got a

script for a bio-available multi, bio-available zinc, and Therabiotic for

infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum

levels, and zinc levels.

In Jan. I got the results of some tests and I had started the new multi-vitamin,

zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot

more speech as a result. Longer sentences, better sentence structure, and he

was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was

more interesting questions, better and more thoughtful sentences, and just

awesome in everything. His understanding of how this worked, routines, and he

self potty trained (just pee so far)himself. Which was like " where the hell did

that come from!! " His speech therapist commented how much he had improved in

just a short week, and I was getting reports from Mother's Day out that Jimmy

was trying to communicate with the other children and engaging them. (Finally!!)

He also decided to eat veg. for the first time. I decided I would add a new veg

every week to see if he could get a more varied diet.

In Feb. I added Oxypowder, and that was it. It was like everything was coming

together at this point. His DAN has seen him the first week, and commented how

affectionate and engaging he was. I noticed less cheek rash, and I also noticed

that he was becoming a restless sleeper. He woke up w/nightmares around the end

of Feb. I stopped giving him his multi, called his DAN, and we got a new one

w/o B6. This let him have peaceful nights again. At this time, we also got

script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure

about side affects or other items in these drugs that I would have to detox.

However, his stool tests came back w/high yeast still, clostridia, klebsiella,

strep and low vitamin D. HOwever, he was making progress.

This month, I finally got the scripts filled, however, he still hasn't taken

them yet. (They are in the frig.) I got a report from his speech therapist

that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be

in speech much longer, as he is making very large leaps and strides. She stated

that Jimmy is highly intelligent for his age, understands concepts that is way

beyond his age, but still struggles with using some areas of speech that he

should have mastered, but still struggles some with. Mother's day out has worked

with Jimmy (as he is just so wonderfully pleasant and helpful!) and

communication with the other kids, that they all engage and he has a couple of

friends that he likes to hang with. The month isn't over yet, but today he

self corrected his speech on the phone with my sister, and I thought that was a

" WOW! " too. He even asked to talk to his cousin, Noah. And chatted with him

for a few minutes.

Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.)

He even eats salad... He still can't sit at the dinner table for more than 5

minutes, but when he does, I congratulate him. He gets 3 square meals a day, and

2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also

removed strawberries and bananas too, to introduce other fruit. He doesn't miss

them.

Today he was talking to " Dora " on the TV, and said " I'm Jimmy! " and it was nice

to see him answering questions and engaging. He plays with his sister a lot

now, and likes to beat her up a little, but she takes it in stride.

I found that adding one thing at a time for a week really helped me implement

good habits. (drinking water, eating healthy meals, and snacks, making sure he

gets two hours a day of good playtime/running time.)

I am currently thinking about using MMS for Jimmy's yeast issues instead of the

prescription drugs. I have my brother on it, and the thing I like about it most

is that there isn't anything for him to detox when he takes it. The MMS uses

oxygen (like the oxypowder!) and changes to to salt when used up. Which the

body understands and can remove.

Sorry for the extra long post, but I tried to get the highlights. I also might

have gotten a few of the dates wrong, because I was flipping so much, but I

think it's mostly here and in order.

I think that because I stopped vaccinating at 9 months, we are in the place we

are in. I also believe that juicing has made a huge difference, as I can add

things like ginger, other things he wouldn't necessarily eat, but gets the

benefit of.

My stuff I have done with my brother is similiar, but I have done more in terms

of supplements and prescriptions. He is also doing well, but is far from

recovery -- however, making amazing progress.

> > >

> > > >

> > > > this means you haven't found a source of what is keeping him there. what

> > > > testing have you done? what changes have you made? what things are you

> > > > doing?

> > > >

> > > > * for those with recovered kids or nearly

> > > > recovered...

> > > >

> > > > been doing this 2 months without seeing any change --

> > > > how long had you been doing biomed before you started to see real

changes?

> > > > what were the most influential parts of your protocols that you think

> > > > affected real change?

> > > >

> > > > thanks,

> > > > leah

> > > >

> > >

> >

>

March 26, 2010

No need to apologize for a long post, specially one that documents recovery. Congratulations on not giving in, giving up and keepin on. Your reward is your boy. wow!nancy jSubject: Re: for those with recovered kids or nearly recovered...To: mb12 valtrex Date: Thursday, March 25, 2010, 10:52 PM

Krassi,

I would love to share. I have to apologize in advance, this is a REALLY LONG POST.

Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)

Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me.

At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April.

It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever.

After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me.

A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."

Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone.

I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!)

For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift.

During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)

Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again)

At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month #2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation.

Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.

week #3, I put him on nordic berries. (he ate them, it was a good thing.)

Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries.

I noticed he got really crazy (crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)

I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)

At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the "slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company.

At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches.

Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.

After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.

In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.

In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was really good now.

In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.

In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels.

In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.

In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress.

This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes.

Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.

Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.

I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good playtime/running time.)

I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.

Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order.

I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of.

My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing well, but is far from recovery -- however, making amazing progress.

> > >

> > > >

> > > > this means you haven't found a source of what is keeping him there. what

> > > > testing have you done? what changes have you made? what things are you

> > > > doing?

> > > >

> > > > * for those with recovered kids or nearly

> > > > recovered...

> > > >

> > > > been doing this 2 months without seeing any change --

> > > > how long had you been doing biomed before you started to see real changes?

> > > > what were the most influential parts of your protocols that you think

> > > > affected real change?

> > > >

> > > > thanks,

> > > > leah

> > > >

> > >

> >

>

March 26, 2010

,Thank you for sharing that. Do you have a blog?I am in the process of trying to take all the stuff I've written in the last 5 years (!!!!) and copying it into a blog so maybe some things will make sense. You know, where I can have video/pics and emails/web posts all together so maybe I can make some sense of the whole picture of what was going on at the time, with my daughter. (I have posted on a message board since 2003 and she was born 2005... my whole fertility journey and pregnancy, her milestones, everything on that message board!)

She was 2.5 before I started thinking something was wrong with her, and finally at 5 she was dx'd!!! Anyway, your story is both heartbreaking and encouraging. I love all the crazy, light-bulb moments.... CLO cleared his pertussis almost immediately, throwing out milk brought about drastic changes!!! Awesome awesome awesome!!!

A " funny " thing I remember when I was getting my daughter's pics taken one day. She was being fussy and weird, tantruming, typical for her, and I said to someone she was " a drama queen, ya know, artistic! " And they said " ooooh, autistic! " And I said " NOOOO! I said ARTistic! " and just really annoyed that this person could think anything was wrong with my daughter!

But after 2.5-3 years now of studying all this " stuff, " all sorts of things are making sense... behaviors that we've seen in my dad, my brother, myself... and now my daughter (and son with his seizures...)

I am starting to feel like we could cure every disease and end war if everyone had their diet adjusted LOL

Krassi,

I would love to share. I have to apologize in advance, this is a REALLY LONG POST.

Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)

Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was " just a cold " -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me.

At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April.

It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just " dropped " the end of the word. So, " button " was " but. " He also started taking extraordinary long naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever.

After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say " wait and see " , or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me.

A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like " no, he's not autistic. he's fine. "

Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone.

I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!)

For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, " well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em. " It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift.

During this time, I had him evaluated for speech. It came back that he was " slightly mentally retarded. " We were devastated and in disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)

Within 6 days on the GF/CF diet, Jimmy said " Mommy " for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a " wow " for me. A few days later, he said " Daddy. " My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again)

At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month #2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation.

Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.

week #3, I put him on nordic berries. (he ate them, it was a good thing.)

Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries.

I noticed he got really crazy (crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)

I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)

At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the " slightly mentally retarded " and " drooling excessively " -- as he no longer drooled, and they rewrote the paperwork for the insurance company.

At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, " this is it. Two for the price of one. " Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches.

Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.

After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.

In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.

In Oct, I added MB-12 (Revita-pops), Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said " you okay? " He started coloring and eye contact was really good now.

In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently), garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.

In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels.

In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like " where the hell did that come from!! " His speech therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.

In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress.

This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my sister, and I thought that was a " WOW! " too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes.

Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.

Today he was talking to " Dora " on the TV, and said " I'm Jimmy! " and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.

I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good playtime/running time.)

I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.

Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order.

I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of.

My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing well, but is far from recovery -- however, making amazing progress.

> > >

> > > >

> > > > this means you haven't found a source of what is keeping him there. what

> > > > testing have you done? what changes have you made? what things are you

> > > > doing?

> > > >

> > > > * for those with recovered kids or nearly

> > > > recovered...

> > > >

> > > > been doing this 2 months without seeing any change --

> > > > how long had you been doing biomed before you started to see real changes?

> > > > what were the most influential parts of your protocols that you think

> > > > affected real change?

> > > >

> > > > thanks,

> > > > leah

> > > >

> > >

> >

>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 26, 2010

,

Thank you for sharing with us, and you do not need to apologize. you are not a great mum but a great sister too. God will bless your heart.

All the best for you.

Ju

To: mb12 valtrex Sent: Fri, March 26, 2010 3:04:55 PMSubject: Re: Re: for those with recovered kids or nearly recovered...

, Thank you for sharing that. Do you have a blog?

I am in the process of trying to take all the stuff I've written in the last 5 years (!!!!) and copying it into a blog so maybe some things will make sense. You know, where I can have video/pics and emails/web posts all together so maybe I can make some sense of the whole picture of what was going on at the time, with my daughter. (I have posted on a message board since 2003 and she was born 2005... my whole fertility journey and pregnancy, her milestones, everything on that message board!)

She was 2.5 before I started thinking something was wrong with her, and finally at 5 she was dx'd!!!

Anyway, your story is both heartbreaking and encouraging. I love all the crazy, light-bulb moments.... CLO cleared his pertussis almost immediately, throwing out milk brought about drastic changes!!! Awesome awesome awesome!!!

A "funny" thing I remember when I was getting my daughter's pics taken one day. She was being fussy and weird, tantruming, typical for her, and I said to someone she was "a drama queen, ya know, artistic!" And they said "ooooh, autistic!" And I said "NOOOO! I said ARTistic!" and just really annoyed that this person could think anything was wrong with my daughter!

But after 2.5-3 years now of studying all this "stuff," all sorts of things are making sense... behaviors that we've seen in my dad, my brother, myself... and now my daughter (and son with his seizures...)

I am starting to feel like we could cure every disease and end war if everyone had their diet adjusted LOL

On Fri, Mar 26, 2010 at 1:52 AM, laurargoddin <laurargoddin@ yahoo.com> wrote:

Krassi, I would love to share. I have to apologize in advance, this is a REALLY LONG POST.Jimmy (at the time he had just turned 2) woke up crying uncontrollably for about 3 hours. Looking back, there were signs of distress, however, he had made most of his milestones by 18 mo. had about 20-30 words we understood clearly, and essentially was a happy go lucky kid. (Very pleasant, very sweet child)Jimmy was a great eater (would eat anything) until about 13 months of age. Then he started to just drink milk only, and occasionally would eat pasta, toast, strawberries and bananas. ANd that was it. I thought this was odd, and consulted our ped about it, around the same time Jimmy came down with a really bad cold that ended up being croup, and that turned into an even worse sickness that lasted 4 months. I was told it was "just a cold" -- but a woman told me that unmistakably my son had the whooping cough. I took him to the Dr. and he

tested positive, however, they said it could be because he was recently vaccinated. This made NO sense to me. At the end of 4 months, a friend (she's 67) told me that when her kids got sick she gave them Cod Liver Oil. I did this, and Jimmy was better in two weeks. (I was relieved) However he developed this rash on his cheeks that never went away. (He still has it, although, it's only noticeable when it's extremely cold or hot) At this time of him getting better it was the end of April. It was then I started to notice that Jimmy would stare (for a long time) at fans, he got really clumsy, and he would zone out for extremely long periods of time. I brought this up to my friends who had kids, and no one seemed really bothered by it. I also noticed while Jimmy was getting new words. They were only one syllable and if it was 2 syllables he just "dropped" the end of the word. So, "button" was "but." He also started taking extraordinary long

naps. He wouldn't sleep thru the night -- and he woke every 3 hours for 8 oz of milk. By the time he turned two, I had read about 20 parenting books (as I was told I wasn't doing a great job in this dept. by Dr.'s, my sibilings, etc.) and had tried to get him to sleep thru the night, gain some weight, (as he was in the 25th percentile for height, and about 5th for weight) -- and I was having no luck whatsoever. After this uncontrollable tantrum he woke up and had (In Jan. after turning 2), 6 days later, he was non-verbal. He pointed and gestured, but refused to talk. He would bang his head (hard) on any and every wall in the house. I took him for all sorts of tests, and to 6 different doctors -- all of whom were uninterested, told me it was a parenting problem, or would say "wait and see", or some really unhelpful thing. I explained the rash on his face, and I was told it's eczema, and that he would just have to live with it. I was told his

hearing was fine that I needed to change my style of communication. I was told that his tantrums were a result of poor parenting and his non-verbal nature was because he was testing me. A woman at the grocery store asked me if he was autistic, as her son was too. I was so angry (and in denial) that I was like "no, he's not autistic. he's fine."Then around June (he is about 2.5 now) during dinner he slid under the table, held his ears and cried uncontrollably for the next few hours. I was devastated, as it brought me back to when I was 16 watching my brother do the same thing, day in and day out, every night at dinner. My brother (Autistic) shared a lot of the same issues. Drooling uncontrollably (my son did this), his cheeks always red and flushed, staring at fans, staring thru people, a general disconnect from everyone. I got a grip. And I went on line. I found a site that said if your child is having behavior problems, then

remove dairy and wheat (gluten and casein). Jimmy at the time was sitting on the couch watching TV and I ripped the milk bottle out of his mouth, and threw it away. That was the last time he had milk or a bottle. (except for the one infraction!) For the next 4 days he drank juice. Any juice. He was a mess. He threw tantrums I had never seen before. It was like he was the exorcist. I had found Stan's site, and he said it could go on this diet for 60 days. I thought, "well, crap, he only drinks milk, I guess juice for the next 58 days won't kill em." It took 4 days. He woke up happy. No tantrums. NONE. He was easy. He was happy. He was himself as I remembered him. Didn't bang his head on anything. He still zoned, stared at fans, but it was less in duration. I felt that I had been given this great gift. During this time, I had him evaluated for speech. It came back that he was "slightly mentally retarded." We were devastated and in

disbelief. I never for a minute believed this. Here was a kid that walked at 10 months, and made every milestone until he was about 18 months which was when we saw the biggest decline. During the evaluation he banged his head on the floor, was drooling, and wouldn't even engage the therapist. He was like a wild animal. I had to be in the room as Jimmy wouldn't leave me. Keep in mind, I stopped vaccinating at 9 months (because when he was supposed to be vaccinated again, he was sick and I refused the MMR.)Within 6 days on the GF/CF diet, Jimmy said "Mommy" for the first time since he had lost his speech. I was in awe, I cried, I scared the crap out of him. This was a "wow" for me. A few days later, he said "Daddy." My husband cried. (I can't handle seeing grown men cry, so I cried too, scaring the crap out of our son again) At that point, I started giving him all sorts of supplements (from Stan's protocol) -- this was a disaster. By month

#2, I decided to throw out everything, and add one thing per week. I started juicing for him daily. (all organic, all fruit and 1 veg.) I figured his diet was the most important thing, as it got rid of the head banging, the tantrums, and most of the zoning - and a great bonus, he slept thru the night, no more every 3 hour wakeups. Which was huge for me. So, I mainly focused on getting him to try to eat good food, and work on meal preparation. Month #2, week 2, I put him on CLO. This helped his eye contact. It also turned his sandpaper skin to baby soft.week #3, I put him on nordic berries. (he ate them, it was a good thing.)Then it was OLE, (this was a challenge of trying to get him to take), so I skipped a week of new stuff, but I started using coconut oil to cook his food. And I used coconut milk to make him smoothies. I also made coconut yogurt (w/my new yogurt maker) w/strawberries. I noticed he got really crazy

(crying and some tantrums) some days. And then he got this weird rash like thing on the side of his neck. (I took a picture) It was huge and it stayed there for a while - it looked like it was eating his skin. So I took him to the Dr. and they wanted to prescribe anti-biotics, but I said I would bring him back in two days if it didn't go away. It was gone in 3 days. When it left, he started saying words. Almost all the words he lost, he had back within a couple of days. (that was a wow for me.)I also added Chlorophyll, fiber (psyllium husks/apple pectin) to his drinks, and cilantro/parsley to his juicing drinks, along with flax oil. (to help w/heavy metals)At that time, we went back to the speech therapist (this was mid August), and Jimmy was like this new little boy. He engaged the therapist, and when we went over the evaluation, they were dumbfounded at this child sitting before them (was not the same child) -- and they removed the

"slightly mentally retarded" and "drooling excessively" -- as he no longer drooled, and they rewrote the paperwork for the insurance company. At the same time all this was happening, I flew my brother down to TX (from NY) to live with me. I took him to a DAN Dr. and had a lot of tests done. His tests were lit up like Vegas, and I thought, "this is it. Two for the price of one." Since Rob's diet was much more restrictive, I used his IGg tests to figure out what to feed the family. We came up with meat, veg, and some starches. Jimmy went/goes to speech two times per week since the middle of Aug. 08. He also was in Kindermusik, and Little Gym. He was always off on his own, doing his own thing.After this, I made my own Kim-Chi. This everyone seemed to like, and I started Jimmy on probiotics. S. Boulardii, and PB8. I am not sure if it was the Kim Chi or the probiotics, but he started talking more, and engaging more. He was -- at the

time -- going once a week to a Mother's day out program -- but he still wouldn't engage other children. ALthough, he stopped hand flapping completely.In Sept, I added zinc, calcium, iron, and Lauridicin. He continued to gain small advances, and overall, more vocabulary. He still only ate his 5 substitute things. Juice, Almond Milk, muffins, Rice Pasta, strawberries and bananas. We traveled and he got a milk infraction, and started hitting himself in the head and banging his head on his carseat. This lasted about 3 hours. He couldn't communicate and was very frustrated and cried a lot. I also started epsom salt baths w/drops of lavender.In Oct, I added MB-12 (Revita-pops) , Vira-stop, Culturelle (Lactobacillus GG), Colloidal Silver. He got two small rashes that came and went, and he continued to say more words, increase his vocabulary, and was more affectionate. When we sneezed, he said "you okay?" He started coloring and eye contact was

really good now.In Nov, I added digestive enzymes at every meal to increase bm's., .5 ounces of water for each pound of body weight, Celtic salt to his egg whites (which he really took to, and started eating them consistently) , garlic (also in his egg whites) and OoO. OoO was really hard on his stomach, so I scaled back to two drops in 4 oz of juice. I noticed he could do puzzles, would sit and read with me (a lot of books), and while his vocabulary was increasing, his sentence structure still suffered. At this time he became really obsessed with trains, and since he was learning the names of the engines, if he accomplished something, I bought him a train. He learned all the letters of the alphabet, learned to count to 12, and learned 4 colors. He also learned to ride a bike (w/training wheels) I was very impressed.In Dec, I changed up his multi-vitamin, zinc and added MB-12 sublinquals daily. While he made small advances, he

seemed to really slow down in terms of speech, and he seemed more aware of others, but had a difficult time engaging. I was worried -- so I made an appointment to see my DAN and during that visit, I got a script for a bio-available multi, bio-available zinc, and Therabiotic for infants. I also got Jimmy tested for yeast (stool), IGg, Vitamin D serum levels, and zinc levels. In Jan. I got the results of some tests and I had started the new multi-vitamin, zinc and I changed his probiotic to Threelac and then to Fivelac. We got a lot more speech as a result. Longer sentences, better sentence structure, and he was engaging with other children. I also added PCA-Rx and Ng-Rx and that too was more interesting questions, better and more thoughtful sentences, and just awesome in everything. His understanding of how this worked, routines, and he self potty trained (just pee so far)himself. Which was like "where the hell did that come from!!" His speech

therapist commented how much he had improved in just a short week, and I was getting reports from Mother's Day out that Jimmy was trying to communicate with the other children and engaging them. (Finally!!) He also decided to eat veg. for the first time. I decided I would add a new veg every week to see if he could get a more varied diet.In Feb. I added Oxypowder, and that was it. It was like everything was coming together at this point. His DAN has seen him the first week, and commented how affectionate and engaging he was. I noticed less cheek rash, and I also noticed that he was becoming a restless sleeper. He woke up w/nightmares around the end of Feb. I stopped giving him his multi, called his DAN, and we got a new one w/o B6. This let him have peaceful nights again. At this time, we also got script for Diflucan and Flagyl. I didn't get them filled, because I wasn't sure about side affects or other items in these drugs that I would have to

detox. However, his stool tests came back w/high yeast still, clostridia, klebsiella, strep and low vitamin D. HOwever, he was making progress. This month, I finally got the scripts filled, however, he still hasn't taken them yet. (They are in the frig.) I got a report from his speech therapist that Jimmy is only deficient in 3 areas of speech. Most likely, he will not be in speech much longer, as he is making very large leaps and strides. She stated that Jimmy is highly intelligent for his age, understands concepts that is way beyond his age, but still struggles with using some areas of speech that he should have mastered, but still struggles some with. Mother's day out has worked with Jimmy (as he is just so wonderfully pleasant and helpful!) and communication with the other kids, that they all engage and he has a couple of friends that he likes to hang with. The month isn't over yet, but today he self corrected his speech on the phone with my

sister, and I thought that was a "WOW!" too. He even asked to talk to his cousin, Noah. And chatted with him for a few minutes. Jimmy is up to 12 vegetables that he will eat. (a miracle in and of itself.) He even eats salad... He still can't sit at the dinner table for more than 5 minutes, but when he does, I congratulate him. He gets 3 square meals a day, and 2 snacks. I do not limit drinks. If he wants juice, he gets juice. I also removed strawberries and bananas too, to introduce other fruit. He doesn't miss them.Today he was talking to "Dora" on the TV, and said "I'm Jimmy!" and it was nice to see him answering questions and engaging. He plays with his sister a lot now, and likes to beat her up a little, but she takes it in stride.I found that adding one thing at a time for a week really helped me implement good habits. (drinking water, eating healthy meals, and snacks, making sure he gets two hours a day of good

playtime/running time.)I am currently thinking about using MMS for Jimmy's yeast issues instead of the prescription drugs. I have my brother on it, and the thing I like about it most is that there isn't anything for him to detox when he takes it. The MMS uses oxygen (like the oxypowder!) and changes to to salt when used up. Which the body understands and can remove.Sorry for the extra long post, but I tried to get the highlights. I also might have gotten a few of the dates wrong, because I was flipping so much, but I think it's mostly here and in order. I think that because I stopped vaccinating at 9 months, we are in the place we are in. I also believe that juicing has made a huge difference, as I can add things like ginger, other things he wouldn't necessarily eat, but gets the benefit of. My stuff I have done with my brother is similiar, but I have done more in terms of supplements and prescriptions. He is also doing

well, but is far from recovery -- however, making amazing progress.

> > > > > > >> > > >> > > > this means you haven't found a source of what is keeping him there. what> > > > testing have you done? what changes have you made? what things are you> > > > doing?> > > >> > > >> > > > * for those with recovered kids or nearly> > > > recovered...> > > >> > > >> > > >> > > > been doing this 2 months without seeing any change --> > > > how long had you been doing biomed before you started to see real changes?> > > > what were the most influential parts of your protocols that you think> > > > affected real change?> > > >> > > > thanks,> > > > leah> > > >> > > > > > > >> > >> >>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 26, 2010

,

I just wanted to say that I think your fabulous for everything your doing. It's

draining enough juggling everything with our children but you also do it for

your brother too. So in case you don't hear it enough, your a wonderful person.

Things like this should be said more as it's not easy keeping up with the diet

and all of the supps. We all need as much support as possible.

> > > >

> > > > >

> > > > > this means you haven't found a source of what is keeping him there.

what

> > > > > testing have you done? what changes have you made? what things are

you

> > > > > doing?

> > > > >

> > > > > * for those with recovered kids or nearly

> > > > > recovered...

> > > > >

> > > > > been doing this 2 months without seeing any change --

> > > > > how long had you been doing biomed before you started to see real

changes?

> > > > > what were the most influential parts of your protocols that you think

> > > > > affected real change?

> > > > >

> > > > > thanks,

> > > > > leah

> > > > >

> > > >

> > >

> >

>

March 26, 2010

,

I just wanted to say that I think your fabulous for everything your doing. It's

draining enough juggling everything with our children but you also do it for

your brother too. So in case you don't hear it enough, your a wonderful person.

Things like this should be said more as it's not easy keeping up with the diet

and all of the supps. We all need as much support as possible.

> > > >

> > > > >

> > > > > this means you haven't found a source of what is keeping him there.

what

> > > > > testing have you done? what changes have you made? what things are

you

> > > > > doing?

> > > > >

> > > > > * for those with recovered kids or nearly

> > > > > recovered...

> > > > >

> > > > > been doing this 2 months without seeing any change --

> > > > > how long had you been doing biomed before you started to see real

changes?

> > > > > what were the most influential parts of your protocols that you think

> > > > > affected real change?

> > > > >

> > > > > thanks,

> > > > > leah

> > > > >

> > > >

> > >

> >

>

March 26, 2010

,

I just wanted to say that I think your fabulous for everything your doing. It's

draining enough juggling everything with our children but you also do it for

your brother too. So in case you don't hear it enough, your a wonderful person.

Things like this should be said more as it's not easy keeping up with the diet

and all of the supps. We all need as much support as possible.

> > > >

> > > > >

> > > > > this means you haven't found a source of what is keeping him there.

what

> > > > > testing have you done? what changes have you made? what things are

you

> > > > > doing?

> > > > >

> > > > > * for those with recovered kids or nearly

> > > > > recovered...

> > > > >

> > > > > been doing this 2 months without seeing any change --

> > > > > how long had you been doing biomed before you started to see real

changes?

> > > > > what were the most influential parts of your protocols that you think

> > > > > affected real change?

> > > > >

> > > > > thanks,

> > > > > leah

> > > > >

> > > >

> > >

> >

>

March 26, 2010

Sorry laura for the typing error, what I mean is you are not only a great mum but a great sister too.

To: mb12 valtrex Sent: Fri, March 26, 2010 4:57:39 PMSubject: Re: Re: for those with recovered kids or nearly recovered...

,

Thank you for sharing with us, and you do not need to apologize. you are not a great mum but a great sister too. God will bless your heart.

All the best for you.

Ju

From: Toni Marie Lombardo <bellbabygmail (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Fri, March 26, 2010 3:04:55 PMSubject: Re: Re: for those with recovered kids or nearly recovered...