Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 OMG. What a nightmare! Interesting that my doc recommends Benefiber as a source of fiber, which is guar gum. Is it too much fiber for you????? SAMMIE --- topper2@... wrote: > You think requesting low salt when you eat out is > rough... try my little > 'allergy' > > If I eat carageenan and guar gum (both are used as > thickeners in many > dairy type products) I get explosive diarrhea and > projectile vomiting in > less than five minutes after eating it.... > > This last winter I found out that if I had guar gum > in a product in the > morning and then had carageenan in a product in the > afternoon I have > about five minutes to get to the bathroom before > completing a total > intestinal purge. I had two mild cramps warning... I > ran, I just knew > what was about to happen. > > What do I mean by that? Well, by the time my poor > body got finished > expelling I saw the remains of the piece of pumpkin > pie that I'd just > eaten.. I had not vomited. That's when I went to > look at the ingredient > list on the pie.... carageenan.... I knew I'd had > the guar gum that > morning... it was in the cheese spread that I'd > had.. but I sure didn't > think that they used that stuff in the pie. > > Now... imagine asking if those two items are in ANY > of the menu items.. > they do this screwed up face thing and say huh? > > That's one of the reasons that I pretty much eat > only my own scratch > foods .... > > If I eat anything I've not made I must check the > ingredient list. I have > to check the contents of any of the products that I > use. Like my cheese > spread. I buy it cuz it's cheap and I'm poor. About > three months after > switching to that brand they'd started adding guar > gum. But it's more > than a dollar a pound more to buy the next > cheapest..... > > Hey.. now that I think about it... carageenan is > derived from seaweed... > Not sure about guar gum. > > Topper () *who much prefers not having to keep > a bucket in the > bathroom anymore, to accommodate multiple orifice > participation* > > On Fri, 6 May 2005 15:21:22 -0700 (PDT) Sammie Baker > > writes: > I also have Grave's and heavy salt will make my > heart > race. Very sensitive to a lot of it. I don't add > seasalt to anything though. I'm trying to live with > a > low salt diet, but makes going out to dinner > difficult. > > SAMMIE Discover Yahoo! Get on-the-go sports scores, stock quotes, news and more. Check it out! http://discover.yahoo.com/mobile.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 OMG. What a nightmare! Interesting that my doc recommends Benefiber as a source of fiber, which is guar gum. Is it too much fiber for you????? SAMMIE --- topper2@... wrote: > You think requesting low salt when you eat out is > rough... try my little > 'allergy' > > If I eat carageenan and guar gum (both are used as > thickeners in many > dairy type products) I get explosive diarrhea and > projectile vomiting in > less than five minutes after eating it.... > > This last winter I found out that if I had guar gum > in a product in the > morning and then had carageenan in a product in the > afternoon I have > about five minutes to get to the bathroom before > completing a total > intestinal purge. I had two mild cramps warning... I > ran, I just knew > what was about to happen. > > What do I mean by that? Well, by the time my poor > body got finished > expelling I saw the remains of the piece of pumpkin > pie that I'd just > eaten.. I had not vomited. That's when I went to > look at the ingredient > list on the pie.... carageenan.... I knew I'd had > the guar gum that > morning... it was in the cheese spread that I'd > had.. but I sure didn't > think that they used that stuff in the pie. > > Now... imagine asking if those two items are in ANY > of the menu items.. > they do this screwed up face thing and say huh? > > That's one of the reasons that I pretty much eat > only my own scratch > foods .... > > If I eat anything I've not made I must check the > ingredient list. I have > to check the contents of any of the products that I > use. Like my cheese > spread. I buy it cuz it's cheap and I'm poor. About > three months after > switching to that brand they'd started adding guar > gum. But it's more > than a dollar a pound more to buy the next > cheapest..... > > Hey.. now that I think about it... carageenan is > derived from seaweed... > Not sure about guar gum. > > Topper () *who much prefers not having to keep > a bucket in the > bathroom anymore, to accommodate multiple orifice > participation* > > On Fri, 6 May 2005 15:21:22 -0700 (PDT) Sammie Baker > > writes: > I also have Grave's and heavy salt will make my > heart > race. Very sensitive to a lot of it. I don't add > seasalt to anything though. I'm trying to live with > a > low salt diet, but makes going out to dinner > difficult. > > SAMMIE Discover Yahoo! Get on-the-go sports scores, stock quotes, news and more. Check it out! http://discover.yahoo.com/mobile.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 We have to have a giggle now and again... I got the giggles just working through how to phrase that for the best result... descriptive without being totally graphic and smile inspiring! hehehehe Topper () On Fri, 6 May 2005 17:15:06 -0700 (PDT) Blazing Krimson writes: <<<multiple orifice participation >>> OK, forgive me for giggling, but as I type, I'm in the THROES of a bad bout with IBS and this just made me laugh so hard and so loud that I scared my poor cat. I can relate...I can sooooooo relate. ...who has decided that the IBS wins and will never eat anything she really likes ever again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 No, I have not been on the Grave's group yet. I am confused now about what I have. But, I'll check out the group. I now have quite a few questions for the doctors to see exactly what I have. Thanks. F.Sammie Baker wrote: No, no, no.RAI will render you immediately HypoT. I'm certainshe needs thyroid meds. No one goes on Anti-thyroidmeds after RAI because it kills your thyroidimmediately. In fact, people that have RAI will needmore thyroid meds than anyone, because even peoplethat suffer from a low thyroid, still have a thyroid. People who have had RAI do not, similar to people whohave had the surgery.RAI causes a lot of side effect and problems and manydo better on Armour, than anything else. have you been the grave's group yet? The listowner had RAI and is on 5 grains of Armour, that's howpotent RAI is.SAMMIE--- Ward wrote:> See. This is why I have been directed to this> group. I only know what I was told years ago and> the doctors I have been seeing our the last 10 years> have never discussed it with me. Now I am worried. > My next appointment with the endo and my GP is in> July. I will make it a point to ask. So, what> should I need if not more thyroid hormone? I also> had RAI in 1978.> > F.> > topper2@... wrote:> You're sure that you have Grave's?> > You have me scratching my head right now... with> Grave's and no blockers... you shouldn't need more> thyroid hormone.. you should have an excess.....> > Topper ()> > On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward> writes:> I only take Levoxyl.> > f.> > > ---------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 No, I have not been on the Grave's group yet. I am confused now about what I have. But, I'll check out the group. I now have quite a few questions for the doctors to see exactly what I have. Thanks. F.Sammie Baker wrote: No, no, no.RAI will render you immediately HypoT. I'm certainshe needs thyroid meds. No one goes on Anti-thyroidmeds after RAI because it kills your thyroidimmediately. In fact, people that have RAI will needmore thyroid meds than anyone, because even peoplethat suffer from a low thyroid, still have a thyroid. People who have had RAI do not, similar to people whohave had the surgery.RAI causes a lot of side effect and problems and manydo better on Armour, than anything else. have you been the grave's group yet? The listowner had RAI and is on 5 grains of Armour, that's howpotent RAI is.SAMMIE--- Ward wrote:> See. This is why I have been directed to this> group. I only know what I was told years ago and> the doctors I have been seeing our the last 10 years> have never discussed it with me. Now I am worried. > My next appointment with the endo and my GP is in> July. I will make it a point to ask. So, what> should I need if not more thyroid hormone? I also> had RAI in 1978.> > F.> > topper2@... wrote:> You're sure that you have Grave's?> > You have me scratching my head right now... with> Grave's and no blockers... you shouldn't need more> thyroid hormone.. you should have an excess.....> > Topper ()> > On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward> writes:> I only take Levoxyl.> > f.> > > ---------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Unfortunately, I cannot remember what was exactly told to me back in 1978. It all started with me have tremendous energy. I also had the "stare" with the bulging eyes, body temperature was hot all of the time, extremely heavy periods and only that I needed to hace this done. All that I can remeber is that I believe that I took the test twice and I was on tapazole for a while. Then at some point I had a thyroid storm and ended up in the hospital. After all of these years, I am just realizing that I was never really informed about this disease. F.topper2@... wrote: Ahh... now I get it.... you got nuked so you still have Grave's antibodies but are hypo and need replacement.... With less living thyroid tissue the iodine will have less affect. Did they tell you what percentage of the thyroid was destroyed by the RAI? They got 100 percent of mine. I went into storm because of a genetic defect. My TSH receptors don't work right. So my thyroid never got the signals to increase or decrease production. Mine decided to keep increasing and over a 20 plus year period I got more and more hyper and it finally sent me into thyroid storm. Topper () On Fri, 6 May 2005 15:13:07 -0700 (PDT) Ward writes: Yes, it is. I also found out that the minerals in the celtic seasalt help to regulate our bodies. The white salt is stripped of everything and chemicals are added to make it look white. It is also very bad for our bodies. I forgot to mention earlier that I also had RAI and was never sure about iodine. Plus, I use the celtic seasalt or Redmond's because a lot of so-called seasalts on the shelves are stripped also, eventhough they are labeled as such, and may be harmful to some of us. mF. Discover Yahoo! Have fun online with music videos, cool games, IM more. Check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Thanks for this info. As you see, I have so much work to do. I will bring all of this up on my next visits. I wish I had spoken up about this in January, I was having a lot of pain from my waist down to the bottom of my feet and had test that showed low vitamin D and now I am taking 50,000 IU's once a week of the vitamin. Now I am wondering about what else I am deficient in. F.topper2@... wrote: You already explained this for me.... you had RAI to reduce thyroid function and the Grave's affect on over production.. that's why you aren't using blockers and are using the replacement hormone. If you are going in for testing it wouldnt' be a bad idea to make sure that they are taking the tests that you need. You'll want TSH, Free T4, Free T3 and the antibodies. Testing the antibodies will tell you the current level, if there is something that needs to be monitored, it will also tell you if you've developed Hashi's... it's possible to have both. Knowing either of those numbers probably won't affect your current treatment, it's the Frees that will tell you that. But I think it's a good thing to know what is going on. IMHO of course. It wouldn't be a bad idea, since you've been on synthetics for so long and have lost part (if not all) of your thyroid, to get a bone scan, tell them you want a base line so that you'll know if there are problems down the road... If the RAI dose was sufficient it may have also damaged the parathyroid glands, they produce most of the Calcitonin. Remember Synthetics don't have Calcitonin, natural does. Though, to be fair, Calcitonin, I have heard, is also available as a nasal spray. Oh, Calcitonin is the hormone that allows our bodies to take calcium from our blood and put it back into our bones to keep them healthy. Without it we lose bone mass. Another test that's not a bad idea to get is Ferritin - storage iron, to let you know how you are doing in that respect, many hypos seem to be low in it Topper () On Fri, 6 May 2005 15:21:55 -0700 (PDT) Ward writes: See. This is why I have been directed to this group. I only know what I was told years ago and the doctors I have been seeing our the last 10 years have never discussed it with me. Now I am worried. My next appointment with the endo and my GP is in July. I will make it a point to ask. So, what should I need if not more thyroid hormone? I also had RAI in 1978. F.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Thanks for this info. As you see, I have so much work to do. I will bring all of this up on my next visits. I wish I had spoken up about this in January, I was having a lot of pain from my waist down to the bottom of my feet and had test that showed low vitamin D and now I am taking 50,000 IU's once a week of the vitamin. Now I am wondering about what else I am deficient in. F.topper2@... wrote: You already explained this for me.... you had RAI to reduce thyroid function and the Grave's affect on over production.. that's why you aren't using blockers and are using the replacement hormone. If you are going in for testing it wouldnt' be a bad idea to make sure that they are taking the tests that you need. You'll want TSH, Free T4, Free T3 and the antibodies. Testing the antibodies will tell you the current level, if there is something that needs to be monitored, it will also tell you if you've developed Hashi's... it's possible to have both. Knowing either of those numbers probably won't affect your current treatment, it's the Frees that will tell you that. But I think it's a good thing to know what is going on. IMHO of course. It wouldn't be a bad idea, since you've been on synthetics for so long and have lost part (if not all) of your thyroid, to get a bone scan, tell them you want a base line so that you'll know if there are problems down the road... If the RAI dose was sufficient it may have also damaged the parathyroid glands, they produce most of the Calcitonin. Remember Synthetics don't have Calcitonin, natural does. Though, to be fair, Calcitonin, I have heard, is also available as a nasal spray. Oh, Calcitonin is the hormone that allows our bodies to take calcium from our blood and put it back into our bones to keep them healthy. Without it we lose bone mass. Another test that's not a bad idea to get is Ferritin - storage iron, to let you know how you are doing in that respect, many hypos seem to be low in it Topper () On Fri, 6 May 2005 15:21:55 -0700 (PDT) Ward writes: See. This is why I have been directed to this group. I only know what I was told years ago and the doctors I have been seeing our the last 10 years have never discussed it with me. Now I am worried. My next appointment with the endo and my GP is in July. I will make it a point to ask. So, what should I need if not more thyroid hormone? I also had RAI in 1978. F.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 TSI antibody test confirms Grave's. TPO anitbody test confirms Hashi's. Have your doc run those to see where you are now. It's possible to jump from one to the other. SAMMIE --- Ward wrote: > No, I have not been on the Grave's group yet. I am > confused now about what I have. But, I'll check out > the group. I now have quite a few questions for the > doctors to see exactly what I have. Thanks. > > F. > > Sammie Baker wrote: > No, no, no. > > RAI will render you immediately HypoT. I'm certain > she needs thyroid meds. No one goes on Anti-thyroid > meds after RAI because it kills your thyroid > immediately. In fact, people that have RAI will > need > more thyroid meds than anyone, because even people > that suffer from a low thyroid, still have a > thyroid. > People who have had RAI do not, similar to people > who > have had the surgery. > > RAI causes a lot of side effect and problems and > many > do better on Armour, than anything else. > > have you been the grave's group yet? The list > owner had RAI and is on 5 grains of Armour, that's > how > potent RAI is. > > > SAMMIE > > --- Ward wrote: > > > See. This is why I have been directed to this > > group. I only know what I was told years ago and > > the doctors I have been seeing our the last 10 > years > > have never discussed it with me. Now I am > worried. > > My next appointment with the endo and my GP is in > > July. I will make it a point to ask. So, what > > should I need if not more thyroid hormone? I also > > had RAI in 1978. > > > > F. > > > > topper2@... wrote: > > You're sure that you have Grave's? > > > > You have me scratching my head right now... with > > Grave's and no blockers... you shouldn't need more > > thyroid hormone.. you should have an excess..... > > > > Topper () > > > > On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward > > writes: > > I only take Levoxyl. > > > > f. > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Thanks, I'll do that. F.Sammie Baker wrote: TSI antibody test confirms Grave's.TPO anitbody test confirms Hashi's.Have your doc run those to see where you are now. It's possible to jump from one to the other.SAMMIE--- Ward wrote:> No, I have not been on the Grave's group yet. I am> confused now about what I have. But, I'll check out> the group. I now have quite a few questions for the> doctors to see exactly what I have. Thanks.> > F.> > Sammie Baker wrote:> No, no, no.> > RAI will render you immediately HypoT. I'm certain> she needs thyroid meds. No one goes on Anti-thyroid> meds after RAI because it kills your thyroid> immediately. In fact, people that have RAI will> need> more thyroid meds than anyone, because even people> that suffer from a low thyroid, still have a> thyroid. > People who have had RAI do not, similar to people> who> have had the surgery.> > RAI causes a lot of side effect and problems and> many> do better on Armour, than anything else. > > have you been the grave's group yet? The list> owner had RAI and is on 5 grains of Armour, that's> how> potent RAI is.> > > SAMMIE> > --- Ward wrote:> > > See. This is why I have been directed to this> > group. I only know what I was told years ago and> > the doctors I have been seeing our the last 10> years> > have never discussed it with me. Now I am> worried. > > My next appointment with the endo and my GP is in> > July. I will make it a point to ask. So, what> > should I need if not more thyroid hormone? I also> > had RAI in 1978.> > > > F.> > > > topper2@... wrote:> > You're sure that you have Grave's?> > > > You have me scratching my head right now... with> > Grave's and no blockers... you shouldn't need more> > thyroid hormone.. you should have an excess.....> > > > Topper ()> > > > On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward> > writes:> > I only take Levoxyl.> > > > f.> > > > > > ---------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 That low vitamin D may be the dead giveaway to the RAI possibly damaging your parathyroids. However, there are many people out here who have low vitamin D without having that kind of damage at all. What is your calcium level like at this time? Re: iodine deficiency Thanks for this info. As you see, I have so much work to do. I will bring all of this up on my next visits. I wish I had spoken up about this in January, I was having a lot of pain from my waist down to the bottom of my feet and had test that showed low vitamin D and now I am taking 50,000 IU's once a week of the vitamin. Now I am wondering about what else I am deficient in. F. Quote Link to comment Share on other sites More sharing options...
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