Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 --- duglas79 wrote: > My doctor has suggested that I be tested for iodine > deficiency as my > drug (thyroxine or synthetic t4) is not working and > he thinks that it > might be because it needs iodine to work properly > which I believe. MY > question is is there sufficient iodine in porcine > gland extract or may > I need to supplement with iodine with that as well? > I don't know about iodine deficiency and how it relates to how your medication works, but being tested for it probably can't hurt anything but your wallet. ) Sorry I can't be of help. Kathy >^,,^< KitzCat146@... http://www.chaytongroup.com/modernbill/order/index.php?aid=ka081104 http://www.heartwarmers4u.com/members/?kitzcat kitzcat2001 on Yahoo Messenger kitzcat on MSN Messenger In a cat's eyes, all things belong to cats. - English Proverb Discover Yahoo! Stay in touch with email, IM, photo sharing and more. Check it out! http://discover.yahoo.com/stayintouch.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 --- duglas79 wrote: > My doctor has suggested that I be tested for iodine > deficiency as my > drug (thyroxine or synthetic t4) is not working and > he thinks that it > might be because it needs iodine to work properly > which I believe. MY > question is is there sufficient iodine in porcine > gland extract or may > I need to supplement with iodine with that as well? > I don't know about iodine deficiency and how it relates to how your medication works, but being tested for it probably can't hurt anything but your wallet. ) Sorry I can't be of help. Kathy >^,,^< KitzCat146@... http://www.chaytongroup.com/modernbill/order/index.php?aid=ka081104 http://www.heartwarmers4u.com/members/?kitzcat kitzcat2001 on Yahoo Messenger kitzcat on MSN Messenger In a cat's eyes, all things belong to cats. - English Proverb Discover Yahoo! Stay in touch with email, IM, photo sharing and more. Check it out! http://discover.yahoo.com/stayintouch.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Thyroid hormone is made with iodine. T4 has four iodine molecules in it, T3 has three and so on. You are being given a T4 only synthetic. T4 is the thyroid storage hormone. It is distributed throughout your body and stored in the cells. As the body needs thyroid hormone to use for it's daily function that T4 hormone is CONVERTED to T3, the active thyroid hormone. Conversion is a process that involves the removal of an iodine molecule from the T4 molecule leaving a T3 molecule... T3 is what our bodies use to function. The iodine molecule that has been removed can either be passed from the body or, more likely, filtered by the thyroid gland, captured, to be used to make more thyroid hormone. One of the very visible symptoms of iodine deficiency is Goiter. Goiter is an enlargement of the thyroid gland as it increases it's physical size to be able to extract as much iodine from the blood as it can. If you are iodine deficient and take iodine it will make ZERO difference with the medication. What it will do, IF you are deficient, is make more iodine available for your thyroid to produce hormone on it's own. If you have Hashi's, the addition of iodine to your diet may make it worse. So.. questions here, to narrow this down. What was your diagnosis? Why are you hypo/what caused you to be given Thyroxine? How much are you taking? If you are not taking enough, the amount hat is correct for YOUR body, it won't work. How are you taking it.... with water... on an empty stomach? Taking it with food, will decrease the acid levels in the stomach. Sufficient levels of acid are required to remove the sodium molecule that is used during the manufacturing process of the synthetics. If the sodium is not removed, your body can not use what you are being given. Which tests have they been taking, can you show us the results with the lab's ranges? Knowing what they have been testing, and the values will help us to determine if the dose that you are taking is correct for you AND how well your body is converting. Since you are on a T4 only medication you are TOTALLY dependant on your body's conversion rate to get the hormone that you need (T3) to function. Are you avoiding goitrogens (the foods that bind with thyroid hormone making it unusable by our bodies, the two most common are soy, and high fructose corn syrup)? Are you using iodized salt? You're doc is a bit off in saying that iodine is needed for the Thyroxine to work. If you'd like, we can take a closer look with you and see if adjustments are needed to help you feel better. Topper () On Fri, 06 May 2005 06:44:59 -0000 "duglas79" writes: My doctor has suggested that I be tested for iodine deficiency as mydrug (thyroxine or synthetic t4) is not working and he thinks that itmight be because it needs iodine to work properly which I believe. MYquestion is is there sufficient iodine in porcine gland extract or mayI need to supplement with iodine with that as well? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 You've answered one of my questions. Taking 200 mcg, depending on your body weight, is a pretty decent dose (the more you weigh, the less thyroid function you have, the more medication you need, it has to do with saturation). So we're back to how you are taking it, your diet, your conversion... Check my other response to you... and run through my questions, when you have some time, and we'll have a better idea of what is going on. Some folks do much better with natural thyroid, it has to do with the molecules being natural, more easily used by the body, that involves the conversion of the T4 in the natural (it's mostly T4) and the great plus is that it also contains the other thyroid hormones as well, giving the body a bit of an extra treat in that it has hormones available to use right from the get go, no waiting for the T4 to be distributed throughout the body, no waiting for conversion to take place. A couple extra comments on conversion. If you are skipping meals, going for more than 4 hours between meals, you won't have sufficient energy levels for conversion to take place. In this case, switching to smaller, more frequent meals (mini meals) will maintain a more consistent blood energy level and allow better conversion rates. Also. There is a mineral that is used during conversion, Selenium. This conversion process involves a Selenium molecule binding with an iodine molecule on the thyroid hormone. It then pulls that iodine molecule off. Thus, a T4 becomes a T3. A T3 becomes a T2. A T2 becomes a T1. So, two things are required for conversion, sufficient energy for the chemical process and Selenium. Even with those two things in place, some folks, like myself and many others here, are still not able to convert sufficient amounts of hormone for healthy function. For us we need Armour, and for some, the addition of T3 to our regime to be healthy. Topper () On Fri, 06 May 2005 07:29:52 -0000 "duglas79" writes: I am taking 200 mcg thyroxine but it is not working well. My doctorsays it may be because I need sufficient iodine for the drug to workwell and I believe that. I want to try natural thyroid extract andwant to know does this need sufficient iodine to work as well? Isthere sufficient iodine in natural thyroid extract? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 You've answered one of my questions. Taking 200 mcg, depending on your body weight, is a pretty decent dose (the more you weigh, the less thyroid function you have, the more medication you need, it has to do with saturation). So we're back to how you are taking it, your diet, your conversion... Check my other response to you... and run through my questions, when you have some time, and we'll have a better idea of what is going on. Some folks do much better with natural thyroid, it has to do with the molecules being natural, more easily used by the body, that involves the conversion of the T4 in the natural (it's mostly T4) and the great plus is that it also contains the other thyroid hormones as well, giving the body a bit of an extra treat in that it has hormones available to use right from the get go, no waiting for the T4 to be distributed throughout the body, no waiting for conversion to take place. A couple extra comments on conversion. If you are skipping meals, going for more than 4 hours between meals, you won't have sufficient energy levels for conversion to take place. In this case, switching to smaller, more frequent meals (mini meals) will maintain a more consistent blood energy level and allow better conversion rates. Also. There is a mineral that is used during conversion, Selenium. This conversion process involves a Selenium molecule binding with an iodine molecule on the thyroid hormone. It then pulls that iodine molecule off. Thus, a T4 becomes a T3. A T3 becomes a T2. A T2 becomes a T1. So, two things are required for conversion, sufficient energy for the chemical process and Selenium. Even with those two things in place, some folks, like myself and many others here, are still not able to convert sufficient amounts of hormone for healthy function. For us we need Armour, and for some, the addition of T3 to our regime to be healthy. Topper () On Fri, 06 May 2005 07:29:52 -0000 "duglas79" writes: I am taking 200 mcg thyroxine but it is not working well. My doctorsays it may be because I need sufficient iodine for the drug to workwell and I believe that. I want to try natural thyroid extract andwant to know does this need sufficient iodine to work as well? Isthere sufficient iodine in natural thyroid extract? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 How does adding iodine to your diet make it worse if you have Hashi's? And how much iodine will do this? And does this include the amounts of iodine in iodized salt, etc. And if SO, since we don't know for sure if has Hashi's or NOT, what should one do in THAT situation? Speaking of Hashi's . . . if a person has an antibodies lab value of <1.5, that still means there IS the presence of the antibodies, so wouldn't that still mean he's likely got Hashi's? I mean, you'd think if he DIDN'T, then there would be NO antibodies, rather than having less than 1.5. Or am I thinking wrong? Ami Re: iodine deficiency Thyroid hormone is made with iodine. T4 has four iodine molecules in it, T3 has three and so on. You are being given a T4 only synthetic. T4 is the thyroid storage hormone. It is distributed throughout your body and stored in the cells. As the body needs thyroid hormone to use for it's daily function that T4 hormone is CONVERTED to T3, the active thyroid hormone. Conversion is a process that involves the removal of an iodine molecule from the T4 molecule leaving a T3 molecule... T3 is what our bodies use to function. The iodine molecule that has been removed can either be passed from the body or, more likely, filtered by the thyroid gland, captured, to be used to make more thyroid hormone. One of the very visible symptoms of iodine deficiency is Goiter. Goiter is an enlargement of the thyroid gland as it increases it's physical size to be able to extract as much iodine from the blood as it can. If you are iodine deficient and take iodine it will make ZERO difference with the medication. What it will do, IF you are deficient, is make more iodine available for your thyroid to produce hormone on it's own. If you have Hashi's, the addition of iodine to your diet may make it worse. So.. questions here, to narrow this down. What was your diagnosis? Why are you hypo/what caused you to be given Thyroxine? How much are you taking? If you are not taking enough, the amount hat is correct for YOUR body, it won't work. How are you taking it.... with water... on an empty stomach? Taking it with food, will decrease the acid levels in the stomach. Sufficient levels of acid are required to remove the sodium molecule that is used during the manufacturing process of the synthetics. If the sodium is not removed, your body can not use what you are being given. Which tests have they been taking, can you show us the results with the lab's ranges? Knowing what they have been testing, and the values will help us to determine if the dose that you are taking is correct for you AND how well your body is converting. Since you are on a T4 only medication you are TOTALLY dependant on your body's conversion rate to get the hormone that you need (T3) to function. Are you avoiding goitrogens (the foods that bind with thyroid hormone making it unusable by our bodies, the two most common are soy, and high fructose corn syrup)? Are you using iodized salt? You're doc is a bit off in saying that iodine is needed for the Thyroxine to work. If you'd like, we can take a closer look with you and see if adjustments are needed to help you feel better. Topper () Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 How does adding iodine to your diet make it worse if you have Hashi's? And how much iodine will do this? And does this include the amounts of iodine in iodized salt, etc. And if SO, since we don't know for sure if has Hashi's or NOT, what should one do in THAT situation? Speaking of Hashi's . . . if a person has an antibodies lab value of <1.5, that still means there IS the presence of the antibodies, so wouldn't that still mean he's likely got Hashi's? I mean, you'd think if he DIDN'T, then there would be NO antibodies, rather than having less than 1.5. Or am I thinking wrong? Ami Re: iodine deficiency Thyroid hormone is made with iodine. T4 has four iodine molecules in it, T3 has three and so on. You are being given a T4 only synthetic. T4 is the thyroid storage hormone. It is distributed throughout your body and stored in the cells. As the body needs thyroid hormone to use for it's daily function that T4 hormone is CONVERTED to T3, the active thyroid hormone. Conversion is a process that involves the removal of an iodine molecule from the T4 molecule leaving a T3 molecule... T3 is what our bodies use to function. The iodine molecule that has been removed can either be passed from the body or, more likely, filtered by the thyroid gland, captured, to be used to make more thyroid hormone. One of the very visible symptoms of iodine deficiency is Goiter. Goiter is an enlargement of the thyroid gland as it increases it's physical size to be able to extract as much iodine from the blood as it can. If you are iodine deficient and take iodine it will make ZERO difference with the medication. What it will do, IF you are deficient, is make more iodine available for your thyroid to produce hormone on it's own. If you have Hashi's, the addition of iodine to your diet may make it worse. So.. questions here, to narrow this down. What was your diagnosis? Why are you hypo/what caused you to be given Thyroxine? How much are you taking? If you are not taking enough, the amount hat is correct for YOUR body, it won't work. How are you taking it.... with water... on an empty stomach? Taking it with food, will decrease the acid levels in the stomach. Sufficient levels of acid are required to remove the sodium molecule that is used during the manufacturing process of the synthetics. If the sodium is not removed, your body can not use what you are being given. Which tests have they been taking, can you show us the results with the lab's ranges? Knowing what they have been testing, and the values will help us to determine if the dose that you are taking is correct for you AND how well your body is converting. Since you are on a T4 only medication you are TOTALLY dependant on your body's conversion rate to get the hormone that you need (T3) to function. Are you avoiding goitrogens (the foods that bind with thyroid hormone making it unusable by our bodies, the two most common are soy, and high fructose corn syrup)? Are you using iodized salt? You're doc is a bit off in saying that iodine is needed for the Thyroxine to work. If you'd like, we can take a closer look with you and see if adjustments are needed to help you feel better. Topper () Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 <<<Are you avoiding goitrogens (the foods that bind with thyroid hormone making it unusable by our bodies, the two most common are soy, and high fructose corn syrup)?>>> Well I'll be darned. I always knew that soy was to be avoided, but HFCS too? I'm stunned because HFCS is one of the things which can give people with IBS some real bad symptoms. Luckily, it doens't bother my IBS as much as it does some, but I guess now it's best to avoid it anyway. I learn something new every day here. Thanks! -- Re: iodine deficiency Thyroid hormone is made with iodine. T4 has four iodine molecules in it, T3 has three and so on. You are being given a T4 only synthetic. T4 is the thyroid storage hormone. It is distributed throughout your body and stored in the cells. As the body needs thyroid hormone to use for it's daily function that T4 hormone is CONVERTED to T3, the active thyroid hormone. Conversion is a process that involves the removal of an iodine molecule from the T4 molecule leaving a T3 molecule... T3 is what our bodies use to function. The iodine molecule that has been removed can either be passed from the body or, more likely, filtered by the thyroid gland, captured, to be used to make more thyroid hormone. One of the very visible symptoms of iodine deficiency is Goiter. Goiter is an enlargement of the thyroid gland as it increases it's physical size to be able to extract as much iodine from the blood as it can. If you are iodine deficient and take iodine it will make ZERO difference with the medication. What it will do, IF you are deficient, is make more iodine available for your thyroid to produce hormone on it's own. If you have Hashi's, the addition of iodine to your diet may make it worse. So.. questions here, to narrow this down. What was your diagnosis? Why are you hypo/what caused you to be given Thyroxine? How much are you taking? If you are not taking enough, the amount hat is correct for YOUR body, it won't work. How are you taking it.... with water... on an empty stomach? Taking it with food, will decrease the acid levels in the stomach. Sufficient levels of acid are required to remove the sodium molecule that is used during the manufacturing process of the synthetics. If the sodium is not removed, your body can not use what you are being given. Which tests have they been taking, can you show us the results with the lab's ranges? Knowing what they have been testing, and the values will help us to determine if the dose that you are taking is correct for you AND how well your body is converting. Since you are on a T4 only medication you are TOTALLY dependant on your body's conversion rate to get the hormone that you need (T3) to function. Are you avoiding goitrogens (the foods that bind with thyroid hormone making it unusable by our bodies, the two most common are soy, and high fructose corn syrup)? Are you using iodized salt? You're doc is a bit off in saying that iodine is needed for the Thyroxine to work. If you'd like, we can take a closer look with you and see if adjustments are needed to help you feel better. Topper () On Fri, 06 May 2005 06:44:59 -0000 "duglas79" writes: My doctor has suggested that I be tested for iodine deficiency as mydrug (thyroxine or synthetic t4) is not working and he thinks that itmight be because it needs iodine to work properly which I believe. MYquestion is is there sufficient iodine in porcine gland extract or mayI need to supplement with iodine with that as well? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 The HFCS molecules screw up thyroid hormone conversion.... Another reason to have Free T3 checked ESPECIALLY for those on T4 only meds. You find HFCS in soo many foods cuz it's such an inexpensive sweetener. I just found out that it's in Kellogg's corn flakes. A friend gave me a box and I got all excited. See, back in the days when I had money, I bought corn flake crumbs to make my special turkey burger schnitzel. So I sat down one evening and ground up that whole box of cereal to make crumbs and the next day I splurged on this very special treat (for me). Well, as the afternoon wore on I wasn't feeling so terrific. I was all sluggish and sleepy..... I went and dug the box out of the trash... guess what was in it? I was soooo pissed. I'm not throwing it away. I'll just being having MUCH smaller portions of that special treat and not very often. I'll keep it for treats and special occasions.... We don't have to absolutely avoid this stuff.. just use it with the knowledge of what it is doing to our systems and act accordingly. Our thyroid challenged bodies need our help, looking after them and adjusting things to make it easier on them.... if we are good to them, they are good to us, right? Topper () On Fri, 6 May 2005 08:33:36 -0700 (PDT) Blazing Krimson writes: <<<Are you avoiding goitrogens (the foods that bind with thyroid hormone making it unusable by our bodies, the two most common are soy, and high fructose corn syrup)?>>> Well I'll be darned. I always knew that soy was to be avoided, but HFCS too? I'm stunned because HFCS is one of the things which can give people with IBS some real bad symptoms. Luckily, it doens't bother my IBS as much as it does some, but I guess now it's best to avoid it anyway. I learn something new every day here. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Increasing iodine intake can stimulate the thyroid. More so if the person is mildly iodine deficient in the first place. Stimulating the thyroid and increasing it's production is what stimulates the antibodies into attacking the gland. Each attack of the gland destroys more tissue and causes more stress to the rest of the body. That's why more and more folks with Hashi's seem to prefer to suppress thyroid function with adequate doses of replacement hormone. That reduces the fluctuations in levels by reducing the ebb and flow of thyroid function during antibody attacks and the recovery period that follows. As far as iodized salt goes. If you don't need it, I was told not to use it. Since my body has no use for the iodine (my thyroid was completely destroyed by RAI) it's essentially a waste product for me. So, when I buy my own salt, I buy regular, otherwise I use whats available. I use much less salt then most folks.... Salt that is used commercially, as an additive in the foods that you buy, etc, is not iodized. It's the table salt that you buy at the store that has "Iodized" written on the label. Topper () On Fri, 6 May 2005 08:10:59 -0500 "Foxes" writes: How does adding iodine to your diet make it worse if you have Hashi's? And how much iodine will do this? And does this include the amounts of iodine in iodized salt, etc. And if SO, since we don't know for sure if has Hashi's or NOT, what should one do in THAT situation? Speaking of Hashi's . . . if a person has an antibodies lab value of <1.5, that still means there IS the presence of the antibodies, so wouldn't that still mean he's likely got Hashi's? I mean, you'd think if he DIDN'T, then there would be NO antibodies, rather than having less than 1.5. Or am I thinking wrong? Ami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 The more iodine that you have available for the thyroid to use to make hormone, the more hormone your thyroid will produce. Taking it won't affect the meds (thyroid hormone replacement) you take. You don't have to be concerned with that causing problems and making the Graves worse by affecting the meds... are you using antithyroid (block) and levoxyl (replace) to control your Graves? Topper () On Fri, 6 May 2005 06:21:35 -0700 (PDT) Ward writes: How does iodine effect one with Grave's taking Levoxyl? Also, I am listing my results taken in January below. T4, Free: 1.24 ng/dl T3, Total: 0.72 ng/dl TSH: 0.52 ulU/ml F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 I only take Levoxyl. f.topper2@... wrote: The more iodine that you have available for the thyroid to use to make hormone, the more hormone your thyroid will produce. Taking it won't affect the meds (thyroid hormone replacement) you take. You don't have to be concerned with that causing problems and making the Graves worse by affecting the meds... are you using antithyroid (block) and levoxyl (replace) to control your Graves? Topper () On Fri, 6 May 2005 06:21:35 -0700 (PDT) Ward writes: How does iodine effect one with Grave's taking Levoxyl? Also, I am listing my results taken in January below. T4, Free: 1.24 ng/dl T3, Total: 0.72 ng/dl TSH: 0.52 ulU/ml F.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 It is interesting.... wonder what is in it that your body needs..... I went through a few years when regular salt shot my BP way up too.... ... anybody else had issues with BP and regular salt? Topper () On Fri, 6 May 2005 11:43:18 -0700 (PDT) Ward writes: This is interesting. I have Grave's and I use a celtic seasalt that has our about 80 minerals in it including iodine. Regular salt gives me problems, i.e, elevates my blood pressure. I noticed that when I changed the type of salt I used, my blood presure is lower than it has been in about 5 years. F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 You're sure that you have Grave's? You have me scratching my head right now... with Grave's and no blockers... you shouldn't need more thyroid hormone.. you should have an excess..... Topper () On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward writes: I only take Levoxyl. f. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Yes, it is. I also found out that the minerals in the celtic seasalt help to regulate our bodies. The white salt is stripped of everything and chemicals are added to make it look white. It is also very bad for our bodies. I forgot to mention earlier that I also had RAI and was never sure about iodine. Plus, I use the celtic seasalt or Redmond's because a lot of so-called seasalts on the shelves are stripped also, eventhough they are labeled as such, and may be harmful to some of us. mF.topper2@... wrote: It is interesting.... wonder what is in it that your body needs..... I went through a few years when regular salt shot my BP way up too.... ... anybody else had issues with BP and regular salt? Topper () On Fri, 6 May 2005 11:43:18 -0700 (PDT) Ward writes: This is interesting. I have Grave's and I use a celtic seasalt that has our about 80 minerals in it including iodine. Regular salt gives me problems, i.e, elevates my blood pressure. I noticed that when I changed the type of salt I used, my blood presure is lower than it has been in about 5 years. F. Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 See. This is why I have been directed to this group. I only know what I was told years ago and the doctors I have been seeing our the last 10 years have never discussed it with me. Now I am worried. My next appointment with the endo and my GP is in July. I will make it a point to ask. So, what should I need if not more thyroid hormone? I also had RAI in 1978. F.topper2@... wrote: You're sure that you have Grave's? You have me scratching my head right now... with Grave's and no blockers... you shouldn't need more thyroid hormone.. you should have an excess..... Topper () On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward writes: I only take Levoxyl. f. Yahoo! Mail Stay connected, organized, and protected. Take the tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 No, no, no. RAI will render you immediately HypoT. I'm certain she needs thyroid meds. No one goes on Anti-thyroid meds after RAI because it kills your thyroid immediately. In fact, people that have RAI will need more thyroid meds than anyone, because even people that suffer from a low thyroid, still have a thyroid. People who have had RAI do not, similar to people who have had the surgery. RAI causes a lot of side effect and problems and many do better on Armour, than anything else. have you been the grave's group yet? The list owner had RAI and is on 5 grains of Armour, that's how potent RAI is. SAMMIE --- Ward wrote: > See. This is why I have been directed to this > group. I only know what I was told years ago and > the doctors I have been seeing our the last 10 years > have never discussed it with me. Now I am worried. > My next appointment with the endo and my GP is in > July. I will make it a point to ask. So, what > should I need if not more thyroid hormone? I also > had RAI in 1978. > > F. > > topper2@... wrote: > You're sure that you have Grave's? > > You have me scratching my head right now... with > Grave's and no blockers... you shouldn't need more > thyroid hormone.. you should have an excess..... > > Topper () > > On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward > writes: > I only take Levoxyl. > > f. > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 No, no, no. RAI will render you immediately HypoT. I'm certain she needs thyroid meds. No one goes on Anti-thyroid meds after RAI because it kills your thyroid immediately. In fact, people that have RAI will need more thyroid meds than anyone, because even people that suffer from a low thyroid, still have a thyroid. People who have had RAI do not, similar to people who have had the surgery. RAI causes a lot of side effect and problems and many do better on Armour, than anything else. have you been the grave's group yet? The list owner had RAI and is on 5 grains of Armour, that's how potent RAI is. SAMMIE --- Ward wrote: > See. This is why I have been directed to this > group. I only know what I was told years ago and > the doctors I have been seeing our the last 10 years > have never discussed it with me. Now I am worried. > My next appointment with the endo and my GP is in > July. I will make it a point to ask. So, what > should I need if not more thyroid hormone? I also > had RAI in 1978. > > F. > > topper2@... wrote: > You're sure that you have Grave's? > > You have me scratching my head right now... with > Grave's and no blockers... you shouldn't need more > thyroid hormone.. you should have an excess..... > > Topper () > > On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward > writes: > I only take Levoxyl. > > f. > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 wonder with that Free T4 and Total T3, if possible Hashimoto's and was dxed in a hyper swing? Re: iodine deficiency You're sure that you have Grave's? You have me scratching my head right now... with Grave's and no blockers... you shouldn't need more thyroid hormone.. you should have an excess..... Topper () On Fri, 6 May 2005 11:45:09 -0700 (PDT) Ward writes: I only take Levoxyl. f. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Ahh... now I get it.... you got nuked so you still have Grave's antibodies but are hypo and need replacement.... With less living thyroid tissue the iodine will have less affect. Did they tell you what percentage of the thyroid was destroyed by the RAI? They got 100 percent of mine. I went into storm because of a genetic defect. My TSH receptors don't work right. So my thyroid never got the signals to increase or decrease production. Mine decided to keep increasing and over a 20 plus year period I got more and more hyper and it finally sent me into thyroid storm. Topper () On Fri, 6 May 2005 15:13:07 -0700 (PDT) Ward writes: Yes, it is. I also found out that the minerals in the celtic seasalt help to regulate our bodies. The white salt is stripped of everything and chemicals are added to make it look white. It is also very bad for our bodies. I forgot to mention earlier that I also had RAI and was never sure about iodine. Plus, I use the celtic seasalt or Redmond's because a lot of so-called seasalts on the shelves are stripped also, eventhough they are labeled as such, and may be harmful to some of us. mF. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 You already explained this for me.... you had RAI to reduce thyroid function and the Grave's affect on over production.. that's why you aren't using blockers and are using the replacement hormone. If you are going in for testing it wouldnt' be a bad idea to make sure that they are taking the tests that you need. You'll want TSH, Free T4, Free T3 and the antibodies. Testing the antibodies will tell you the current level, if there is something that needs to be monitored, it will also tell you if you've developed Hashi's... it's possible to have both. Knowing either of those numbers probably won't affect your current treatment, it's the Frees that will tell you that. But I think it's a good thing to know what is going on. IMHO of course. It wouldn't be a bad idea, since you've been on synthetics for so long and have lost part (if not all) of your thyroid, to get a bone scan, tell them you want a base line so that you'll know if there are problems down the road... If the RAI dose was sufficient it may have also damaged the parathyroid glands, they produce most of the Calcitonin. Remember Synthetics don't have Calcitonin, natural does. Though, to be fair, Calcitonin, I have heard, is also available as a nasal spray. Oh, Calcitonin is the hormone that allows our bodies to take calcium from our blood and put it back into our bones to keep them healthy. Without it we lose bone mass. Another test that's not a bad idea to get is Ferritin - storage iron, to let you know how you are doing in that respect, many hypos seem to be low in it Topper () On Fri, 6 May 2005 15:21:55 -0700 (PDT) Ward writes: See. This is why I have been directed to this group. I only know what I was told years ago and the doctors I have been seeing our the last 10 years have never discussed it with me. Now I am worried. My next appointment with the endo and my GP is in July. I will make it a point to ask. So, what should I need if not more thyroid hormone? I also had RAI in 1978. F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 You think requesting low salt when you eat out is rough... try my little 'allergy' If I eat carageenan and guar gum (both are used as thickeners in many dairy type products) I get explosive diarrhea and projectile vomiting in less than five minutes after eating it.... This last winter I found out that if I had guar gum in a product in the morning and then had carageenan in a product in the afternoon I have about five minutes to get to the bathroom before completing a total intestinal purge. I had two mild cramps warning... I ran, I just knew what was about to happen. What do I mean by that? Well, by the time my poor body got finished expelling I saw the remains of the piece of pumpkin pie that I'd just eaten.. I had not vomited. That's when I went to look at the ingredient list on the pie.... carageenan.... I knew I'd had the guar gum that morning... it was in the cheese spread that I'd had.. but I sure didn't think that they used that stuff in the pie. Now... imagine asking if those two items are in ANY of the menu items.. they do this screwed up face thing and say huh? That's one of the reasons that I pretty much eat only my own scratch foods .... If I eat anything I've not made I must check the ingredient list. I have to check the contents of any of the products that I use. Like my cheese spread. I buy it cuz it's cheap and I'm poor. About three months after switching to that brand they'd started adding guar gum. But it's more than a dollar a pound more to buy the next cheapest..... Hey.. now that I think about it... carageenan is derived from seaweed... Not sure about guar gum. Topper () *who much prefers not having to keep a bucket in the bathroom anymore, to accommodate multiple orifice participation* On Fri, 6 May 2005 15:21:22 -0700 (PDT) Sammie Baker writes: I also have Grave's and heavy salt will make my heartrace. Very sensitive to a lot of it. I don't addseasalt to anything though. I'm trying to live with alow salt diet, but makes going out to dinnerdifficult.SAMMIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 You think requesting low salt when you eat out is rough... try my little 'allergy' If I eat carageenan and guar gum (both are used as thickeners in many dairy type products) I get explosive diarrhea and projectile vomiting in less than five minutes after eating it.... This last winter I found out that if I had guar gum in a product in the morning and then had carageenan in a product in the afternoon I have about five minutes to get to the bathroom before completing a total intestinal purge. I had two mild cramps warning... I ran, I just knew what was about to happen. What do I mean by that? Well, by the time my poor body got finished expelling I saw the remains of the piece of pumpkin pie that I'd just eaten.. I had not vomited. That's when I went to look at the ingredient list on the pie.... carageenan.... I knew I'd had the guar gum that morning... it was in the cheese spread that I'd had.. but I sure didn't think that they used that stuff in the pie. Now... imagine asking if those two items are in ANY of the menu items.. they do this screwed up face thing and say huh? That's one of the reasons that I pretty much eat only my own scratch foods .... If I eat anything I've not made I must check the ingredient list. I have to check the contents of any of the products that I use. Like my cheese spread. I buy it cuz it's cheap and I'm poor. About three months after switching to that brand they'd started adding guar gum. But it's more than a dollar a pound more to buy the next cheapest..... Hey.. now that I think about it... carageenan is derived from seaweed... Not sure about guar gum. Topper () *who much prefers not having to keep a bucket in the bathroom anymore, to accommodate multiple orifice participation* On Fri, 6 May 2005 15:21:22 -0700 (PDT) Sammie Baker writes: I also have Grave's and heavy salt will make my heartrace. Very sensitive to a lot of it. I don't addseasalt to anything though. I'm trying to live with alow salt diet, but makes going out to dinnerdifficult.SAMMIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 <<<multiple orifice participation >>> OK, forgive me for giggling, but as I type, I'm in the THROES of a bad bout with IBS and this just made me laugh so hard and so loud that I scared my poor cat. I can relate...I can sooooooo relate. ...who has decided that the IBS wins and will never eat anything she really likes ever again. -- Re: iodine deficiency You think requesting low salt when you eat out is rough... try my little 'allergy' If I eat carageenan and guar gum (both are used as thickeners in many dairy type products) I get explosive diarrhea and projectile vomiting in less than five minutes after eating it.... This last winter I found out that if I had guar gum in a product in the morning and then had carageenan in a product in the afternoon I have about five minutes to get to the bathroom before completing a total intestinal purge. I had two mild cramps warning... I ran, I just knew what was about to happen. What do I mean by that? Well, by the time my poor body got finished expelling I saw the remains of the piece of pumpkin pie that I'd just eaten.. I had not vomited. That's when I went to look at the ingredient list on the pie.... carageenan.... I knew I'd had the guar gum that morning... it was in the cheese spread that I'd had.. but I sure didn't think that they used that stuff in the pie. Now... imagine asking if those two items are in ANY of the menu items.. they do this screwed up face thing and say huh? That's one of the reasons that I pretty much eat only my own scratch foods ..... If I eat anything I've not made I must check the ingredient list. I have to check the contents of any of the products that I use. Like my cheese spread. I buy it cuz it's cheap and I'm poor. About three months after switching to that brand they'd started adding guar gum. But it's more than a dollar a pound more to buy the next cheapest..... Hey.. now that I think about it... carageenan is derived from seaweed... Not sure about guar gum. Topper () *who much prefers not having to keep a bucket in the bathroom anymore, to accommodate multiple orifice participation* On Fri, 6 May 2005 15:21:22 -0700 (PDT) Sammie Baker writes: I also have Grave's and heavy salt will make my heartrace. Very sensitive to a lot of it. I don't addseasalt to anything though. I'm trying to live with alow salt diet, but makes going out to dinnerdifficult.SAMMIE Discover Yahoo! Stay in touch with email, IM, photo sharing more. Check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 <<<multiple orifice participation >>> OK, forgive me for giggling, but as I type, I'm in the THROES of a bad bout with IBS and this just made me laugh so hard and so loud that I scared my poor cat. I can relate...I can sooooooo relate. ...who has decided that the IBS wins and will never eat anything she really likes ever again. -- Re: iodine deficiency You think requesting low salt when you eat out is rough... try my little 'allergy' If I eat carageenan and guar gum (both are used as thickeners in many dairy type products) I get explosive diarrhea and projectile vomiting in less than five minutes after eating it.... This last winter I found out that if I had guar gum in a product in the morning and then had carageenan in a product in the afternoon I have about five minutes to get to the bathroom before completing a total intestinal purge. I had two mild cramps warning... I ran, I just knew what was about to happen. What do I mean by that? Well, by the time my poor body got finished expelling I saw the remains of the piece of pumpkin pie that I'd just eaten.. I had not vomited. That's when I went to look at the ingredient list on the pie.... carageenan.... I knew I'd had the guar gum that morning... it was in the cheese spread that I'd had.. but I sure didn't think that they used that stuff in the pie. Now... imagine asking if those two items are in ANY of the menu items.. they do this screwed up face thing and say huh? That's one of the reasons that I pretty much eat only my own scratch foods ..... If I eat anything I've not made I must check the ingredient list. I have to check the contents of any of the products that I use. Like my cheese spread. I buy it cuz it's cheap and I'm poor. About three months after switching to that brand they'd started adding guar gum. But it's more than a dollar a pound more to buy the next cheapest..... Hey.. now that I think about it... carageenan is derived from seaweed... Not sure about guar gum. Topper () *who much prefers not having to keep a bucket in the bathroom anymore, to accommodate multiple orifice participation* On Fri, 6 May 2005 15:21:22 -0700 (PDT) Sammie Baker writes: I also have Grave's and heavy salt will make my heartrace. Very sensitive to a lot of it. I don't addseasalt to anything though. I'm trying to live with alow salt diet, but makes going out to dinnerdifficult.SAMMIE Discover Yahoo! Stay in touch with email, IM, photo sharing more. Check it out! Quote Link to comment Share on other sites More sharing options...
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