Re: Confusion - help from parents

[Guest guest]

Hi Geeta,

Well firstly I felt very sad when I read your post, and did not know what to

say. then I realised you said you have been implementing these

interventions for only 6 months. This is not very long you know. Also

implementing all of them within 6 months, you will not know which if any may

be a problem for your child, and which if any may be good for your child...

It is a good idea to start with one at a time, monitor results and then

introduce the next.

Also, something like yeast? have you addressed that? could possibly be

masking any advances that may be happening. I am sure there are other

things which could impede progress, these are just my initial thoughts.

There are people much more experienced on list.

BW

Celia

[ ] Confusion - help from parents

> Hi Listmates,

> Our son who is 4.9year old can request objects by the correct label

> using 'i want water etc..etc'. He has very limited knowledge. We have

> done about 20 rounds of chelation, diet, enzymes, supplements,

> probiotics, AIT, fgf2 etc. But, unfortunately there is no improvement

> in our son. We started with lots of hope all the treatments about 6

> months back. He has regressed after the treatments. Can anybody

> relate to this?

> Though, he can label many objects, he is not able to show who is

> mommy, daddy and himself. If i ask him, who are you? - he will

> answer 'mommy'.

>

> Is there any supplement or anything i can do to help him?

>

> Thanks!

> Geeta

>

>

>

> =======================================================

>

[Guest guest]

> Hi Listmates,

> Our son who is 4.9year old can request objects by the correct label

> using 'i want water etc..etc'. He has very limited knowledge. We

have

> done about 20 rounds of chelation, diet, enzymes, supplements,

> probiotics, AIT, fgf2 etc. But, unfortunately there is no

improvement

> in our son. We started with lots of hope all the treatments about 6

> months back. He has regressed after the treatments. Can anybody

> relate to this?

> Though, he can label many objects, he is not able to show who is

> mommy, daddy and himself. If i ask him, who are you? - he will

> answer 'mommy'.

>

> Is there any supplement or anything i can do to help him?

>

> Thanks!

> Geeta

Hello Geeta,

If I remember correctly (?not sure?) your son's tests

did not indicate mercury toxicity, but DID indicate high

copper. High copper is very toxic. I believe zinc is the

recommended way to lower it, although there may be other

ways.

There may be other issues, I'm commenting on this one because

I recall the high copper issue. Copper toxicity acts a lot

like mercury toxicity I believe. I believe that Andy, in his

book, talks about copper tox and making sure that is not the

problem when trying to decide if mercury is a problem, since

they can look similar (in terms of symptoms).

Other than this, it would depend upon testing your son for

things. One you don't mention is a cranial exam, which you

may want to consider--- although you could just work on the

copper first.

best wishes,

Moria

[Guest guest]

Geeta,

DMSA and ALA both contain high levels of Sulphur. Our kids have

problem with sulphur detox metabolism, so I do not recommend DMSA/ALA.

Since you haven't seen any improvements from DMSA/ALA, I will suggest

you to try IP6.

For more info on excess iron theory

http://www.geocities.com/upadhye10/index.html

> Hi Listmates,

> Our son who is 4.9year old can request objects by the correct label

> using 'i want water etc..etc'. He has very limited knowledge. We

have

> done about 20 rounds of chelation, diet, enzymes, supplements,

> probiotics, AIT, fgf2 etc. But, unfortunately there is no

improvement

> in our son. We started with lots of hope all the treatments about 6

> months back. He has regressed after the treatments. Can anybody

> relate to this?

> Though, he can label many objects, he is not able to show who is

> mommy, daddy and himself. If i ask him, who are you? - he will

> answer 'mommy'.

>

> Is there any supplement or anything i can do to help him?

>

> Thanks!

> Geeta

[Guest guest]

> Hi Listmates,

> Our son who is 4.9year old can request objects by the correct label

> using 'i want water etc..etc'. He has very limited knowledge. We

have

> done about 20 rounds of chelation, diet, enzymes, supplements,

> probiotics, AIT, fgf2 etc. But, unfortunately there is no

improvement

> in our son. We started with lots of hope all the treatments about 6

> months back. He has regressed after the treatments. Can anybody

> relate to this?

> Though, he can label many objects, he is not able to show who is

> mommy, daddy and himself. If i ask him, who are you? - he will

> answer 'mommy'.

>

> Is there any supplement or anything i can do to help him?

Have you had him evaluated by a mainstream neurologist or

neuropsychologist? This kind of confusion is ofen diagnostic for

which specific brain structure is involved and knowing that you can

often figure out what supplement or other intervention to use even if

the mainstream guys don't have anything to prescribe that helps.

This kind of very specific cognitive defect is often quite diagnostic

once you get in front of the proper person.

Andy . . . . . .. .

[Guest guest]

Geeta,

Why don't you try sitting next to him in front of a mirror and pointing

to yourself and then to him for him to identify who is who. Also, show

pictures of family members with the name written underneath (or without)

and have him receptively and then expressively identify each family

member. My son did the same thing with greetings as he would say " hello

Evan " instead of the other person's name. These ideas helped him.

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[Guest guest]

Hi Geeta,

You have not mentioned trying Applied Behavior Analysis. ABA has greater

research support than all of the various therapies mentioned put together.

Perhaps it's time to try a quality, ABA based teaching program. Having

supervised ABA programs in preschools as well as privately in home based

programs for several years, I have now seen literally hundreds of children

make remarkable gains through the use of ABA.

Jay

[Guest guest]

Two replies:

> > Hi Listmates,

> > Our son who is 4.9year old can request objects by the correct

label

> > using 'i want water etc..etc'. He has very limited knowledge. We

> have

> > done about 20 rounds of chelation, diet, enzymes, supplements,

> > probiotics, AIT, fgf2 etc. But, unfortunately there is no

> improvement

> > in our son.

My son tolerates basically no supplements, even with enzymes, so you

might consider removing supplements and see if that helps.

Also consider ABA.

We started with lots of hope all the treatments about

6

> > months back. He has regressed after the treatments.

Yeast caused my son to regress after chelation, you might need a more

potent yeast treatment than just probiotics.

http://www.autismchannel.net/dana/yeast.htm

Dana

[Guest guest]

Greeta,

Along the same lines - I would sit across from , put my hand on

my chest and say I'm mommy, then put my hand on his chest and say

you're . Then I would put his hand on his chest and say I'm

then take his hand and put it on my chest and say you're mommy. He

knew who each of us was, he just had trouble with the point of view.

's Mom

> Geeta,

>

> Why don't you try sitting next to him in front of a mirror and

pointing

> to yourself and then to him for him to identify who is who. Also,

show

> pictures of family members with the name written underneath (or

without)

> and have him receptively and then expressively identify each family

> member. My son did the same thing with greetings as he would

say " hello

> Evan " instead of the other person's name. These ideas helped him.

>

>

>