Re: Introduction, I'm new to the board

March 16, 2010

Which vaccines did he get? Do you have any dental amalgams (w/ mercury) or did you eat a lot of fish when pregnant? Could he have had exposure o other toxic metals like lead, merucy, arsenic etc.?

Subject: Introduction, I'm new to the boardTo: mb12 valtrex Date: Tuesday, March 16, 2010, 11:01 AM

Hi!I am new to the board. I have a 7 yr old recovered from a chronic multifocal tic disorder through anti-fungal treatments and strict IgG avoidance diet. He developed symptoms at 3 1/2. I currently have an almost 4 year old with a similar onset as the oldest boy. He has only had 3 vaccines in his life and two were given in infancy. The third was given last September. Five days later he developed mild ticcing. I treated him with N-acetyl Cysteine for two weeks and they waned. Our family has a gluten free, corn free, only fermented dairy household. Until about a month ago we were not limiting natural sugars. My 3 1/2 year old had a preschool party on Feb 11 and came home with a huge bag of conventional candy (we do not allow artificials here). I took it away but he and his brother found it and devoured the entire bag. He began constant ticcing after that. We did a CBC, CMP, ASO-titer, urine and stool test. The blood test showed a low count, but

otherwise his levels looked good. The ASO was negative for strep, the urine showed high levels of two compounds often present when there is a severe fungal infection (he was at the high end of high). At the onset this February I noticed he was pooping undigested food. We began Trienza, Candex, and a high dose of probiotics (50 billion). We also do B-complex with B12, magnesium, omega 3 (flax or fish oil), raw coconut juice, and a no sugar diet based on Doug Kaufmann's phase one diet (more strict than SCD-- no honey is allowed for 30 days, only stevia). My son currently has HUGE lymph nodes in his neck. I mean they are so huge it looks like mumps. I am almost out of the Candex and am seeing the doctor TODAY to discuss his progress and whether or not to prescribe an antifungal drug for him. He weighs 38 lbs. He does not have autism but has emotional outbursts and is easy to upset. He is socially and developmentally on target for his age. He tends to

cry a lot about little things at home. Needs to sit in a certain seat in the car, needs things a certain way or will get upset. Sleep patterns are good.I have been reading the board and resources all day long. I am suspecting he is having a regressive healing effect from the antifungal treatment and diet? He did consume a lot of sugars in hindsight. Here are the recent symptoms:Headache on Saturdayswollen glands (not huge yet)little red ring around the anus notedlack of appetitedeveloped red 'rashy' looking spots on a couple places on his faceis complaining of being cold a lot (has cold hands a lot, cold feetHis stool is better but sometimes loose.Any advice would be greatly appreciated. He does not have any herpes symptoms-- no mouth ulcers or cold sores. Has never had any. He might run a very low grade fever from time to time but it is not severe. Most the time when I check him he feels normal. He does not have

lethargy and does not 'act' sick.

March 16, 2010

The oldest had hair analysis and was negative for metals (except

copper, but he was low in iron and so that led to celiac dx. We gave

the DTaP to youngest. Middle child seems fine and is vaxes almost

fully. I have many amalgums. Youngest was born at 39 weeks and was the

smallest of the three. Was fungal at birth with spot on top of scalp

that took a long time to go away. (didn't know what it was for a long

time.) I have a long history of antibiotic use from early childhood.

We eat fish maybe once a week. I try to buy wild caught and chunk

light tuna.

If something jumps out please let me know.

Sent from my iPhone

March 16, 2010

confused copper has nothing to do with celiac, how did they jump from one to the other

Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

March 16, 2010

i would do a throat culture and would still suspect strep. ASO's take 4-6 weeks to spike AFTER symptoms like ticing appear. you will get a faster answer from a culture. sounds like yeast may also be bad, but you can up probiotics up alot more as well, add in some biotin, probiotics can be up near 250 billion range. GSE can help, as can caprilic acid to get through it more.

Introduction, I'm new to the board

Hi!I am new to the board. I have a 7 yr old recovered from a chronic multifocal tic disorder through anti-fungal treatments and strict IgG avoidance diet. He developed symptoms at 3 1/2. I currently have an almost 4 year old with a similar onset as the oldest boy. He has only had 3 vaccines in his life and two were given in infancy. The third was given last September. Five days later he developed mild ticcing. I treated him with N-acetyl Cysteine for two weeks and they waned. Our family has a gluten free, corn free, only fermented dairy household. Until about a month ago we were not limiting natural sugars. My 3 1/2 year old had a preschool party on Feb 11 and came home with a huge bag of conventional candy (we do not allow artificials here). I took it away but he and his brother found it and devoured the entire bag. He began constant ticcing after that. We did a CBC, CMP, ASO-titer, urine and stool test. The blood test showed a low count, but otherwise his levels looked good. The ASO was negative for strep, the urine showed high levels of two compounds often present when there is a severe fungal infection (he was at the high end of high). At the onset this February I noticed he was pooping undigested food. We began Trienza, Candex, and a high dose of probiotics (50 billion). We also do B-complex with B12, magnesium, omega 3 (flax or fish oil), raw coconut juice, and a no sugar diet based on Doug Kaufmann's phase one diet (more strict than SCD-- no honey is allowed for 30 days, only stevia). My son currently has HUGE lymph nodes in his neck. I mean they are so huge it looks like mumps. I am almost out of the Candex and am seeing the doctor TODAY to discuss his progress and whether or not to prescribe an antifungal drug for him. He weighs 38 lbs. He does not have autism but has emotional outbursts and is easy to upset. He is socially and developmentally on target for his age. He tends to cry a lot about little things at home. Needs to sit in a certain seat in the car, needs things a certain way or will get upset. Sleep patterns are good.I have been reading the board and resources all day long. I am suspecting he is having a regressive healing effect from the antifungal treatment and diet? He did consume a lot of sugars in hindsight. Here are the recent symptoms:Headache on Saturdayswollen glands (not huge yet)little red ring around the anus notedlack of appetitedeveloped red 'rashy' looking spots on a couple places on his faceis complaining of being cold a lot (has cold hands a lot, cold feetHis stool is better but sometimes loose.Any advice would be greatly appreciated. He does not have any herpes symptoms-- no mouth ulcers or cold sores. Has never had any. He might run a very low grade fever from time to time but it is not severe. Most the time when I check him he feels normal. He does not have lethargy and does not 'act' sick.

March 16, 2010

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

To: "mb12 valtrex " <mb12 valtrex >Sent: Tue, March 16, 2010 10:00:58 AMSubject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

March 16, 2010

,Thanks for posting that. Kind of has me in tears though. I had so many fillings growing up, and I still have 8 in my mouth (I think, maybe it's 7) But I did eat albacore weekly while pregnant and had my flu shots. (Ate the white tuna before I knew it was worse for you mercury-wise)

Considering the fillings I have and other mercury exposures... I guess we are lucky to not conform to the results of the study, with an asperger's dx.:-(

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

To: " mb12 valtrex " <mb12 valtrex >

Sent: Tue, March 16, 2010 10:00:58 AMSubject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost

fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long

time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 16, 2010

,Thanks for posting that. Kind of has me in tears though. I had so many fillings growing up, and I still have 8 in my mouth (I think, maybe it's 7) But I did eat albacore weekly while pregnant and had my flu shots. (Ate the white tuna before I knew it was worse for you mercury-wise)

Considering the fillings I have and other mercury exposures... I guess we are lucky to not conform to the results of the study, with an asperger's dx.:-(

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

To: " mb12 valtrex " <mb12 valtrex >

Sent: Tue, March 16, 2010 10:00:58 AMSubject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost

fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long

time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 18, 2010

My mother had lots of fillings,too.She eventually had all sorts of problems related to amalgam illness,and lost most of her teeth.

To: mb12 valtrex Sent: Tue, March 16, 2010 6:58:24 PMSubject: Re: Introduction, I'm new to the board

, Thanks for posting that. Kind of has me in tears though. I had so many fillings growing up, and I still have 8 in my mouth (I think, maybe it's 7) But I did eat albacore weekly while pregnant and had my flu shots. (Ate the white tuna before I knew it was worse for you mercury-wise)

Considering the fillings I have and other mercury exposures...

I guess we are lucky to not conform to the results of the study, with an asperger's dx.

:-(

On Tue, Mar 16, 2010 at 6:10 PM, Kulp <thorenstd124@ yahoo.com> wrote:

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

From: Caryn Talty <ctalty15gmail (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Tue, March 16, 2010 10:00:58 AM Subject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except

copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 18, 2010

My mother had lots of fillings,too.She eventually had all sorts of problems related to amalgam illness,and lost most of her teeth.

To: mb12 valtrex Sent: Tue, March 16, 2010 6:58:24 PMSubject: Re: Introduction, I'm new to the board

, Thanks for posting that. Kind of has me in tears though. I had so many fillings growing up, and I still have 8 in my mouth (I think, maybe it's 7) But I did eat albacore weekly while pregnant and had my flu shots. (Ate the white tuna before I knew it was worse for you mercury-wise)

Considering the fillings I have and other mercury exposures...

I guess we are lucky to not conform to the results of the study, with an asperger's dx.

:-(

On Tue, Mar 16, 2010 at 6:10 PM, Kulp <thorenstd124@ yahoo.com> wrote:

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

From: Caryn Talty <ctalty15gmail (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Tue, March 16, 2010 10:00:58 AM Subject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except

copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 18, 2010

My mother had lots of fillings,too.She eventually had all sorts of problems related to amalgam illness,and lost most of her teeth.

To: mb12 valtrex Sent: Tue, March 16, 2010 6:58:24 PMSubject: Re: Introduction, I'm new to the board

, Thanks for posting that. Kind of has me in tears though. I had so many fillings growing up, and I still have 8 in my mouth (I think, maybe it's 7) But I did eat albacore weekly while pregnant and had my flu shots. (Ate the white tuna before I knew it was worse for you mercury-wise)

Considering the fillings I have and other mercury exposures...

I guess we are lucky to not conform to the results of the study, with an asperger's dx.

:-(

On Tue, Mar 16, 2010 at 6:10 PM, Kulp <thorenstd124@ yahoo.com> wrote:

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

From: Caryn Talty <ctalty15gmail (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Tue, March 16, 2010 10:00:58 AM Subject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except

copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 18, 2010

I am really feeling like this + the flu shots when I was pregnant - combined with the MTFHR - is our problem. ( " Our " meaning we all have issues, my daughter's is the only one dx'd.) See, we never had any regression and she always met her milestones, and has speech... but she has been flapping and having sensory issues from as long as I can remember. Toe-walker from day one. I recently watched a video of her at maybe 6 months and she was flapping then. I just didn't know what flapping was back then. She was my first, I thought she was doing normal baby stuff.

My mother had lots of fillings,too.She eventually had all sorts of problems related to amalgam illness,and lost most of her teeth.

To: mb12 valtrex

Sent: Tue, March 16, 2010 6:58:24 PMSubject: Re: Introduction, I'm new to the board

, Thanks for posting that. Kind of has me in tears though. I had so many fillings growing up, and I still have 8 in my mouth (I think, maybe it's 7) But I did eat albacore weekly while pregnant and had my flu shots. (Ate the white tuna before I knew it was worse for you mercury-wise)

Considering the fillings I have and other mercury exposures...

I guess we are lucky to not conform to the results of the study, with an asperger's dx.

:-(

On Tue, Mar 16, 2010 at 6:10 PM, Kulp <thorenstd124@ yahoo.com> wrote:

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

From: Caryn Talty <ctalty15gmail (DOT) com>To: " mb12 valtrex@ yahoogroups. com " <mb12 valtrex@ yahoogroups. com>

Sent: Tue, March 16, 2010 10:00:58 AM Subject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except

copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost fully. I have many amalgums. Youngest was born at 39 weeks and was the

smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long time.) I have a long history of antibiotic use from early childhood.

We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 18, 2010

I know MTHFR mutations are maternally inherited,like mitochondrial ones.My mother may not have autism,but she has had a LOT of the same medical issues I do.Dr.Jill ,of The University of Arkansas has said she has done studies on both the mothers,and the maternal grandmothers of some autistic children,with these mutations,and in her opinion,the mothers should be considered the initial genetic studies,and not the children.

http://autism.com/danwebcast/pro_videomp4.asp?mp4=dallas_2009_35_qanda & h=480 & w=640 & VID=38

To: mb12 valtrex Sent: Thu, March 18, 2010 12:06:22 PMSubject: Re: Introduction, I'm new to the board

I am really feeling like this + the flu shots when I was pregnant - combined with the MTFHR - is our problem. ("Our" meaning we all have issues, my daughter's is the only one dx'd.) See, we never had any regression and she always met her milestones, and has speech... but she has been flapping and having sensory issues from as long as I can remember. Toe-walker from day one. I recently watched a video of her at maybe 6 months and she was flapping then. I just didn't know what flapping was back then. She was my first, I thought she was doing normal baby stuff.

On Thu, Mar 18, 2010 at 1:51 PM, Kulp <thorenstd124@ yahoo.com> wrote:

My mother had lots of fillings,too. She eventually had all sorts of problems related to amalgam illness,and lost most of her teeth.

From: Toni Marie Lombardo <bellbabygmail (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Tue, March 16, 2010 6:58:24 PM Subject: Re: Introduction, I'm new to the board

, Thanks for posting that. Kind of has me in tears though. I had so many fillings growing up, and I still have 8 in my mouth (I think, maybe it's 7) But I did eat albacore weekly while pregnant and had my flu shots. (Ate the white tuna before I knew it was worse for you mercury-wise)

Considering the fillings I have and other mercury exposures...

I guess we are lucky to not conform to the results of the study, with an asperger's dx.

:-(

On Tue, Mar 16, 2010 at 6:10 PM, Kulp <thorenstd124@ yahoo.com> wrote:

You might want to read this

http://www.foodsmatter.com/asd_autism/autism_causes/research/maternal_amalgam_fillings.html

From: Caryn Talty <ctalty15gmail (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Tue, March 16, 2010 10:00:58 AM Subject: Re: Introduction, I'm new to the board

The oldest had hair analysis and was negative for metals (except

copper, but he was low in iron and so that led to celiac dx. We gave the DTaP to youngest. Middle child seems fine and is vaxes almost fully. I have many amalgums. Youngest was born at 39 weeks and was the smallest of the three. Was fungal at birth with spot on top of scalp that took a long time to go away. (didn't know what it was for a long time.) I have a long history of antibiotic use from early childhood. We eat fish maybe once a week. I try to buy wild caught and chunk light tuna.If something jumps out please let me know.Sent from my iPhone

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

March 18, 2010