Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 I've never had joint pain myself. Pierre Re: I'm Back.... > Hi , > Glad to know you are doing well. No joint pain here > except for an occasional pain in the knee from an old > swimming injury. > > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Welcome back! Glad your computer is cooperating again! I forgot to mention it on my story that I posted earlier, but YES, I do get joint pain. When I have a flare up it is especially bad. At those times, I say everything hurts but my hair :-) For me it is a result of the vasculitis that accompanies HSP, but fortunately, I am only really bothered by it when I am having a flare-up, not all the time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Welcome back! Glad your computer is cooperating again! I forgot to mention it on my story that I posted earlier, but YES, I do get joint pain. When I have a flare up it is especially bad. At those times, I say everything hurts but my hair :-) For me it is a result of the vasculitis that accompanies HSP, but fortunately, I am only really bothered by it when I am having a flare-up, not all the time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Welcome back! Glad your computer is cooperating again! I forgot to mention it on my story that I posted earlier, but YES, I do get joint pain. When I have a flare up it is especially bad. At those times, I say everything hurts but my hair :-) For me it is a result of the vasculitis that accompanies HSP, but fortunately, I am only really bothered by it when I am having a flare-up, not all the time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Hi , I have had proteinurea for about 10 years and last August was diagnosed after a biopsy with IgA. What caused me to go to the kidney doctor was intense joint pain, especially in the knees and ankles..but some in wrists and elbows. After consultng my doctor, I changed my diet--I take no animal protein (all protein from plants), lots of vegetables, fruit, less coffee and alcohol (almost none), no snacks (becuse of salt and junk they are made of). Within a few days I felt completely different. Before, being on a plane would drive me crazy because of the pain to my knees...now there is no problem. I am able to do exercise and physically feel pretty good....hope this helps, PS. I am a lot older than 32....which by the way is way too young for joint pain > Well, after experiencing technical difficulties which tempted me to > test the aerodynamics of my computer, I'm back online. A quick > update on my IgA... The meds seem to be working. My neph has been > decreasing the dosage on the prednisone and the immuran. YAY. One > thing I've been wondering about though, does anyone else experience > joint pain? I feel like an old man. Then again, it could just be > all the stupid stuff I did as a kid catching up to me (I turn 32 > this Sunday). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Hi , I have had proteinurea for about 10 years and last August was diagnosed after a biopsy with IgA. What caused me to go to the kidney doctor was intense joint pain, especially in the knees and ankles..but some in wrists and elbows. After consultng my doctor, I changed my diet--I take no animal protein (all protein from plants), lots of vegetables, fruit, less coffee and alcohol (almost none), no snacks (becuse of salt and junk they are made of). Within a few days I felt completely different. Before, being on a plane would drive me crazy because of the pain to my knees...now there is no problem. I am able to do exercise and physically feel pretty good....hope this helps, PS. I am a lot older than 32....which by the way is way too young for joint pain > Well, after experiencing technical difficulties which tempted me to > test the aerodynamics of my computer, I'm back online. A quick > update on my IgA... The meds seem to be working. My neph has been > decreasing the dosage on the prednisone and the immuran. YAY. One > thing I've been wondering about though, does anyone else experience > joint pain? I feel like an old man. Then again, it could just be > all the stupid stuff I did as a kid catching up to me (I turn 32 > this Sunday). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Hi , I have had proteinurea for about 10 years and last August was diagnosed after a biopsy with IgA. What caused me to go to the kidney doctor was intense joint pain, especially in the knees and ankles..but some in wrists and elbows. After consultng my doctor, I changed my diet--I take no animal protein (all protein from plants), lots of vegetables, fruit, less coffee and alcohol (almost none), no snacks (becuse of salt and junk they are made of). Within a few days I felt completely different. Before, being on a plane would drive me crazy because of the pain to my knees...now there is no problem. I am able to do exercise and physically feel pretty good....hope this helps, PS. I am a lot older than 32....which by the way is way too young for joint pain > Well, after experiencing technical difficulties which tempted me to > test the aerodynamics of my computer, I'm back online. A quick > update on my IgA... The meds seem to be working. My neph has been > decreasing the dosage on the prednisone and the immuran. YAY. One > thing I've been wondering about though, does anyone else experience > joint pain? I feel like an old man. Then again, it could just be > all the stupid stuff I did as a kid catching up to me (I turn 32 > this Sunday). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Happy Birthday ! Glad that you're back with us. I bet when you were a kid you hated your Birthday being this close to Christmas. Good job on the decrease in prednisone. Keep up the positive numbers. Connie I'm Back.... Well, after experiencing technical difficulties which tempted me to test the aerodynamics of my computer, I'm back online. A quick update on my IgA... The meds seem to be working. My neph has been decreasing the dosage on the prednisone and the immuran. YAY. One thing I've been wondering about though, does anyone else experience joint pain? I feel like an old man. Then again, it could just be all the stupid stuff I did as a kid catching up to me (I turn 32 this Sunday). To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
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