- Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??

[Guest guest]

I have some of the same stuff with my daughter--hands over the ears and hums---I am treating with Olive Leaf Extract and seeing healing regression like when on valtrex--aggression and hard to get attention--I thought it was the yeast--because had yeast and been on Diflucan and azithro 5 days on 5 days off for three cycles---also have seen a lot of social regression----all after strep throat--any advise--Bill

To: mb12 valtrex Sent: Thu, September 30, 2010 12:27:53 PMSubject: Re: Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??

Hi,Can someone tell me what OLE is?Thanks!Trixie

Subject: Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??To: mb12 valtrex Date: Thursday, September 30, 2010, 10:54 AM

My son has been on zithro for a couple of years now for lyme, but to chase away OCD he needs OLE. The good thing with OLE is that you can just keep increasing the dose until you see improvement. We find the liquids to be more effective in my son -- the caps don't do much.> > > > Subject:

Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??> To: mb12 valtrex > Date: Wednesday, September 29, 2010, 1:07 PM> > > Â > > > > I started my 5 and 2 year old boys on OLE (first 250mg, then 500mg 3 times a day). I do believe it is helping pandas, but in my very speech delayed, gross motor delayed 2yo I am seeing quite a leap in speech and overall interaction/affection. > > I am also seeing a fine, raised rash, first on his thigh, then on his torso. Some days it goes away and some days it comes back. I am also treating him with things like OoO and GSE to combat yeast.> > Behaviorally, he is very fussy and even a little aggressive. He is hitting me (although still responds to discipline) and he also has a little sound sensitivity. I have to say that I almost wonder if his clostridia has come back, but

I am wondering if this is more of a viral die-off thing. Any feedback would be greatly appreciated.>

[Guest guest]

I have some of the same stuff with my daughter--hands over the ears and hums---I am treating with Olive Leaf Extract and seeing healing regression like when on valtrex--aggression and hard to get attention--I thought it was the yeast--because had yeast and been on Diflucan and azithro 5 days on 5 days off for three cycles---also have seen a lot of social regression----all after strep throat--any advise--Bill

To: mb12 valtrex Sent: Thu, September 30, 2010 12:27:53 PMSubject: Re: Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??

Hi,Can someone tell me what OLE is?Thanks!Trixie

Subject: Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??To: mb12 valtrex Date: Thursday, September 30, 2010, 10:54 AM

My son has been on zithro for a couple of years now for lyme, but to chase away OCD he needs OLE. The good thing with OLE is that you can just keep increasing the dose until you see improvement. We find the liquids to be more effective in my son -- the caps don't do much.> > > > Subject:

Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??> To: mb12 valtrex > Date: Wednesday, September 29, 2010, 1:07 PM> > > Â > > > > I started my 5 and 2 year old boys on OLE (first 250mg, then 500mg 3 times a day). I do believe it is helping pandas, but in my very speech delayed, gross motor delayed 2yo I am seeing quite a leap in speech and overall interaction/affection. > > I am also seeing a fine, raised rash, first on his thigh, then on his torso. Some days it goes away and some days it comes back. I am also treating him with things like OoO and GSE to combat yeast.> > Behaviorally, he is very fussy and even a little aggressive. He is hitting me (although still responds to discipline) and he also has a little sound sensitivity. I have to say that I almost wonder if his clostridia has come back, but

I am wondering if this is more of a viral die-off thing. Any feedback would be greatly appreciated.>

[Guest guest]

Azithromycin is the most recommended antibiotic for PANDAS. The best source of info is www.pamdasnetwork.org You need to stay on the antibiotic for several months (1 X day of zithro) and then slowly taper down to 1 X week (or 1 X 5 days) until the kids get past puberty......age 18 to 21. PANDAS is serious as the antibodies attack the brain. Also, IVIG is being used.

Subject: Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??To: mb12 valtrex Date: Thursday, September 30, 2010, 10:54 AM

My son has been on zithro for a couple of years now for lyme, but to chase away OCD he needs OLE. The good thing with OLE is that you can just keep increasing the dose until you see improvement. We find the liquids to be more effective in my son -- the caps don't do much.> > > > Subject:

Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??> To: mb12 valtrex > Date: Wednesday, September 29, 2010, 1:07 PM> > > Â > > > > I started my 5 and 2 year old boys on OLE (first 250mg, then 500mg 3 times a day). I do believe it is helping pandas, but in my very speech delayed, gross motor delayed 2yo I am seeing quite a leap in speech and overall interaction/affection. > > I am also seeing a fine, raised rash, first on his thigh, then on his torso. Some days it goes away and some days it comes back. I am also treating him with things like OoO and GSE to combat yeast.> > Behaviorally, he is very fussy and even a little aggressive. He is hitting me (although still responds to discipline) and he also has a little sound sensitivity. I have to say that I almost wonder if his clostridia has

come back, but I am wondering if this is more of a viral die-off thing. Any feedback would be greatly appreciated.>

[Guest guest]

Azithromycin is the most recommended antibiotic for PANDAS. The best source of info is www.pamdasnetwork.org You need to stay on the antibiotic for several months (1 X day of zithro) and then slowly taper down to 1 X week (or 1 X 5 days) until the kids get past puberty......age 18 to 21. PANDAS is serious as the antibodies attack the brain. Also, IVIG is being used.

Subject: Re: Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??To: mb12 valtrex Date: Thursday, September 30, 2010, 10:54 AM

My son has been on zithro for a couple of years now for lyme, but to chase away OCD he needs OLE. The good thing with OLE is that you can just keep increasing the dose until you see improvement. We find the liquids to be more effective in my son -- the caps don't do much.> > > > Subject:

Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??> To: mb12 valtrex > Date: Wednesday, September 29, 2010, 1:07 PM> > > Â > > > > I started my 5 and 2 year old boys on OLE (first 250mg, then 500mg 3 times a day). I do believe it is helping pandas, but in my very speech delayed, gross motor delayed 2yo I am seeing quite a leap in speech and overall interaction/affection. > > I am also seeing a fine, raised rash, first on his thigh, then on his torso. Some days it goes away and some days it comes back. I am also treating him with things like OoO and GSE to combat yeast.> > Behaviorally, he is very fussy and even a little aggressive. He is hitting me (although still responds to discipline) and he also has a little sound sensitivity. I have to say that I almost wonder if his clostridia has

come back, but I am wondering if this is more of a viral die-off thing. Any feedback would be greatly appreciated.>

[Guest guest]



sounds like yeast. we ONLY see ear covering with yeast and the aggresssion adn atnnetion suggest it as well

Started OLE for PANDAS, but seeing some major gains elsewhere...some feedback??> To: mb12 valtrex > Date: Wednesday, September 29, 2010, 1:07 PM> > > Â > > > > I started my 5 and 2 year old boys on OLE (first 250mg, then 500mg 3 times a day). I do believe it is helping pandas, but in my very speech delayed, gross motor delayed 2yo I am seeing quite a leap in speech and overall interaction/affection. > > I am also seeing a fine, raised rash, first on his thigh, then on his torso. Some days it goes away and some days it comes back. I am also treating him with things like OoO and GSE to combat yeast.> > Behaviorally, he is very fussy and even a little aggressive. He is hitting me (although still responds to discipline) and he also has a little sound sensitivity. I have to say that I almost wonder if his clostridia has come back, but I am wondering if this is more of a viral die-off thing. Any feedback would be greatly appreciated.>

[Guest guest]

Bill that does sound like my sons yeast symptoms for sure. OLE can definitely

cause yeast issues, as well as phenol issues.

> > >>

> > >>

> > >> From: stephanieweeks@ <stephanieweeks@>

> > >> Subject: Started OLE for PANDAS, but seeing some major

gains

> > >>elsewhere...some feedback??

> > >> To: mb12 valtrex

> > >> Date: Wednesday, September 29, 2010, 1:07 PM

> > >>

> > >>

> > >> Â

> > >>

> > >>

> > >>

> > >> I started my 5 and 2 year old boys on OLE (first 250mg, then 500mg 3

times a

> > >>day). I do believe it is helping pandas, but in my very speech delayed,

gross

> > >>motor delayed 2yo I am seeing quite a leap in speech and overall

> > >>interaction/affection.

> > >>

> > >>

> > >> I am also seeing a fine, raised rash, first on his thigh, then on his

torso.

> > >>Some days it goes away and some days it comes back. I am also treating him

with

> > >>things like OoO and GSE to combat yeast.

> > >>

> > >> Behaviorally, he is very fussy and even a little aggressive. He is

hitting me

> > >>(although still responds to discipline) and he also has a little sound

> > >>sensitivity. I have to say that I almost wonder if his clostridia has come

back,

> > >>but I am wondering if this is more of a viral die-off thing. Any feedback

would

> > >>be greatly appreciated.

> > >>

> > >

> > >

> >

>