Guest guest Posted December 19, 2007 Report Share Posted December 19, 2007 You might want to visit the site below and scroll down to Peripheral Neuropathy for further information. There are some very well informed people on this site. There are a few of us on there who had implants or various types of medical devices made from silicone and who have peripheral neuropathy. You may want to do a search for implants, as there have been some postings on this. I hope you are able to get a Neurologist who specializes in Peripheral Neuropathy, someone who will take your symptoms seriously. So many doctors are like people we know casually-they look at you and think because you look OK, you are OK.. And woe is me, if you look OK and your labs are normal... Then you are REALLY not sick... The other thing I wanted to mention is that I am on conventional medication. I wish I had been able to get along using various supplements, but had much trouble with various types in the beginning, along with strange reactions to medication I never had a problem with before. My condition has only responded to Prednisone, Klonopin, IVIGG's and conventional pain medication for the most part, much to my dismay. I am not recommening this, only mentioning it because there are those who may have to rely on prescription medication and you should not feel bad about this, if you happen to fall in that category. Usually, physicians who treat autoimmune disorders will begin with medications that are less strong, like non-steroidal anti-inflammatories along with maybe an anti-depressant and then watch for a positive response. If this is not effective, they might move on to Plaquenil, or Methotrexate and maybe Neurontin for pain. There are newer drugs that are available like Enbrel, but I am not familiar with their mode of action, so cannot recommend one over the other. Some of the newer medications used for pain (Cymbalta, Lyrica, etc.) I have tried with no response. Lastly, one thing that is a tremendous help for burning pain, if anyone has this... ColPak, by Chattanooga Ice Paks. You can order them off of the Internet, get 2-3 and keep them in your freezer. Wrap in a doubled hand towel and move around to where you hurt. I think the size I have is 11 x 14 or 11 x 17. I sleep with them, moving them or replacing them with fresh ones as needed and don't know what I would do without them... http://neurotalk.psychcentral.com/index.php Please let me know if I can help anyone. I did not mean to write a book here... Cathie In a message dated 12/17/07 6:35:27 PM, nnnttwilliams@... writes: thanks for the info. I am in so much pain right now it is like living in hell. I have tried a few things for pain. The lowest dosages, and ALL made me sick and threw up. The cymbalta took away the pain within an hour, it was so strange to not have pain, then I got sick from it. My family dr has really tried. I just don't tolerate any of them for some reason. I would eat dirt at this point! I am so hoping the neurologist will be good, for me most of them have been horrible, saying I have emotional problems and stress. And I have a cervical spine MRI tomorrow, which I am sure will show nothing. I can't remember how I got the idea of peripheral neuropathy, but it sounds like I should explore it. Thanks! Nan **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
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