Advise please

[Guest guest]

I don't know if I believe the watch the urine test until the levels are low

and then add the ALA theory. I used the rule of thumb 8-10 round of DMSA

only then add the ALA. It worked out fine for us- we continued to see

improvement without side effects. I think the concern is that with ALA the

metals can move both ways across the blood brain barrier. They will move

from high concentration to lower concentration areas. My thoughts have

always been that the concentration is higher in the brain anyway so you won't

be " pushing " the metals into the brain. Anyway your giving DMSA at the same

time so your binding the stuff in the body as well. Somebody in the group

might know better that me but that's my 2cents.

My son was 2 weeks shy of his 4th birthday when we started and is now in his

11 month. We follow Andy's protocal as well.

Holly

[Guest guest]

Thanks for your reply.....makes sense to me. These tests are expensive so

maybe I'll skip it and try the ALA. How have you kept yeast/bacteria under

control during these 11 months? I am seeing gains as well, but they are

often followed by " gut bug " symptoms. Did you notice more improvement after

you added the ALA?

Re: [ ] advise please

> I don't know if I believe the watch the urine test until the levels are

low

> and then add the ALA theory. I used the rule of thumb 8-10 round of DMSA

> only then add the ALA. It worked out fine for us- we continued to see

> improvement without side effects. I think the concern is that with ALA

the

> metals can move both ways across the blood brain barrier. They will move

> from high concentration to lower concentration areas. My thoughts have

> always been that the concentration is higher in the brain anyway so you

won't

> be " pushing " the metals into the brain. Anyway your giving DMSA at the

same

> time so your binding the stuff in the body as well. Somebody in the group

> might know better that me but that's my 2cents.

>

> My son was 2 weeks shy of his 4th birthday when we started and is now in

his

> 11 month. We follow Andy's protocal as well.

>

> Holly

>

>

>

[Guest guest]

I have got an appointment Thursday with my Dr.

My problem is what to tell her, if I say too much it

will just confuse her again (and I will end up being told its all in my head)

I want to address this dizziness and the lump in my

throat.

I am also going to ask for a hormone blood test to

see if I am in menopause.

The dizziness is driving me nuts, I know that the NHS

will be reluctant to give me an MRI as it’s so expensive, how can I

convince her I need my brain looking at?

Thanks Sue.

This may sound a little weird but if you knew what I

have had to put up with my Dr you would understand.

I just want to come across as believable.

[Guest guest]

When I was having facial paralysis, they did a brain MRI on me. I wasn't experiencing the actual paralysis during the MRI because it would come and go, but they said the MRI should be able to show why I was getting it (it didn't).

So you can tell her you're experiencing that. Also, I just told an ear doctor last week that I've had ear pain for 17 years. He was going to give me a brain MRI until he found out I just had one a few years ago. So either of those reasons might work to get your brain MRI'ed.

Advise please

I have got an appointment Thursday with my Dr.

My problem is what to tell her, if I say too much it will just confuse her again (and I will end up being told its all in my head)

I want to address this dizziness and the lump in my throat.

I am also going to ask for a hormone blood test to see if I am in menopause.

The dizziness is driving me nuts, I know that the NHS will be reluctant to give me an MRI as it¢s so expensive, how can I convince her I need my brain looking at?

Thanks Sue.

This may sound a little weird but if you knew what I have had to put up with my Dr you would understand.

I just want to come across as believable.

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[Guest guest]

Sue,I'd avoid mentioning breast implants. . . but flatter the doctor!Describe your symptoms . . . Ask what could cause them. . . Then ask what ELSE could cause that . . . Resist telling the doctor what to do . . . Instead ask, for example, if an MRI would show ****** . . ., If it could be found with a ******, What if *****.You have to be ready to ask the hard questions . . . don't let them dismiss you quickly. If you see a conflict in what they're saying, tell them to explain again - that you're confused and want to understand. You are too young for these kinds of problems. . . You need some answers . . . Your husband needs his wife, your kids their mother . . . and you need a

life!Insist that they give you some answers. . . or send you to someone who knows. Love,Rogene Re: Advise please

Hi Sue,This is what I do. I just give the main symptoms and look really sad. I never give too much info. Just a thought.Love TraciSue Gibbens <susan.gibbens@ virgin.net> wrote: I have got an appointment Thursday with my Dr. My problem is

what to tell her, if I say too much it will just confuse her again (and I will end up being told its all in my head) I want to address this dizziness and the lump in my throat. I am also going to ask for a hormone blood test to see if I am in menopause. The dizziness is driving me nuts, I know that the NHS will be reluctant to give me an MRI as it’s so expensive, how can I convince her I need my brain

looking at? Thanks Sue. This may sound a little weird but if you knew what I have had to put up with my Dr you would understand. I just want to come across as believable. No hour of life is wasted that is spent in the saddle. ~Winston Churchill Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

I really liked your response, Rose.

I agree with you too. At 2-yrs-old, trying meds seems a bit premature, in my opinion. My son would also have frequent meltdowns at that age and I know it's really tough to deal with, but I would hold off on medicating a toddler.

I started giving my son the lowest dose of ADHD medication available when he was 5 and in Kindergarten. But we also enrolled him in behavioral therapy at the same time (he continued with it for 3 years) and he only took the meds when he was school (no evenings, weekends, holidays, summers, etc...) Just Monday-Friday from 7am-3pm during the school year. I felt better about this b/c it helped him focus more in school and he wasn't as disruptive in class (but it was still a struggle), but he had time when he was off so his growth could catch up and he didn't constantly have these power medications in his system. Made it harder for me as his mom but I know we made the right decision for our family. Dylan is doing so good in 6th grade too. He is a very conscientous and well-mannered child. He still has social struggles, but I

didn't think in a million years we'd be where we are right now. Didn't think it was possible, at least not so soon.

At 2 years of age, it just seems too early. One thing I can say for sure...make sure you're taking care of yourself as best as you can and taking time for yourself whenever possible. This is especially important when your son is so young. It will help give you the physical and emotional strength you need when you are around your son. I was a single mom until my son was 4, then became a single mom again when he was 9. My parents would take Dylan one night a week, sometimes more, when he was a baby/toddler. It helped me be able to relax and get ready for when he was back home w/ me.

Take care,

Re: ( ) advise please

,

I think your question with meds has to be a personal choice. You will find many people on this site that have many opinions about meds. Some, thank God for Meds, helped the behaviors, some are so against them, while some are too quick to try meds. then there are some that tried meds and their child's behaviors got worse - because of the wrong dose or wrong meds.

When my son was younger, he was very aggressive, I was the parent that doesn't like the psych meds so instead (he was already DXed) I got a private therapist, and lots of interventions. I was consistent with working with improving his aggressive behaviors. this was a very slow process. I explained my concerns to his ped. Dr. and he said he can write a prescription without even offering strategies. Amazing ! I said I thought you would suggest some type of social skills or something else. The doctor said, when you had enough, give me a call and I'll write the prescription. instead, I continued therapy and being consistent with working with his anger & aggression. when his speech got better, his aggression and anger got less. Now, with all that said: I don't know if I were to give him the psych Meds if things would of got to that 'better' point - faster? but we did get there

without meds.

IMO - your son is 2, and at 2 years old, you got the wanting to be"Independent" the lack of being able to explain/ask for things or help, exploring and being told no, (for safety) etc... and you got the terrible 2's. Which all together can have an impact on him..and with all this, that's when you get those behaviors. I think you have a great idea to take him for that appointment and see what they have to say to you. ask for strategies to help him along.

well, that's my opinion, we were there too. best wishes for you and your child. Please keep us posted.

Hugs

Rose

noilef2000 <noilef2000 (DOT) com> wrote:

Yeah im sorta new to this thought that my child may possibly haveasperger. I had to bring it up to his Dr. because we were noticing oddbehavior. To me he seemed like the average 2yr old but then he woulddo these unusuall things. Before he was one he lined up cars which hestill does, but if they are not face all one way one in front of theother, he freaks. Then the whole time he plays with them he isoblivious to his surroundings. Then he also does this weird thing with his sippy cup. When i put inhis pediasure he likes helping pour the last bit in but he HAS to diphis finger in the sippy cup when its all in. I never told my mom hestarted to do this and she called me when she had him one day. Sheasked if there was something wrong because he didnt stop crying, hewas in full out fit mode kicking, hitting, throwing. I asked her whathappened and she said nothing i gave him his sippy about 20 mins.

Iasked what she put in it, she said pediasure. I told her to take thelid off and when she did he dipped his finger in and then he was fine.The odd thing is it only happens when he has his pediasure.All i did was ask the doctor about this behavior he said he has neverseen this behavior in a 2 yr old, usually more often when they are 4yrs old and older. He said make an appointment so he can start him onmeds. I asked him for an alternative way cause my point of view is whyshould he be put on meds for something that is abnormal?I decided to take him over to BHR and make an appointment for him tobe evaluated first before meds are even discussed. I know a couple ofother older kids who have aspergers and they only got meds when theywere about 7 yrs old to help with the hyperness.Was it wrong for the doctor to just want my son to be thrown on medsbefore hand? Even though i've had 2 doctors plus what i read

think itis asperger's, will my son be as normal as the average child? I know 2other kids with this, one is smart and hyper, and the other is smartbut so far off in his own world.Im so confused.~maria

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[Guest guest]

, I believe you made the right choice by having your child evaluated first. If a person is feeling sick, they will often go see a doctor first and then be prescribed a medicine. It's that way with our kids. Medications should never be given based on "guess work". I also agree that there may be other interventions that will work for your child. All options are worth exploring. I hope all goes well. Sandy

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[Guest guest]

I agree with you. I would not jump right in and start meds. Based on what you wrote, that seems like a knee-jerk reaction. You have a good idea to have further evaluation and to check out other options. I'm not anti - medication. There is definitely a need for that with some children. I think I'd like to try other options and get other info first. Good luck. Mimsnoilef2000 <noilef2000@...> wrote: Yeah im sorta new to this thought that

my child may possibly haveasperger. I had to bring it up to his Dr. because we were noticing oddbehavior. To me he seemed like the average 2yr old but then he woulddo these unusuall things. Before he was one he lined up cars which hestill does, but if they are not face all one way one in front of theother, he freaks. Then the whole time he plays with them he isoblivious to his surroundings. Then he also does this weird thing with his sippy cup. When i put inhis pediasure he likes helping pour the last bit in but he HAS to diphis finger in the sippy cup when its all in. I never told my mom hestarted to do this and she called me when she had him one day. Sheasked if there was something wrong because he didnt stop crying, hewas in full out fit mode kicking, hitting, throwing. I asked her whathappened and she said nothing i gave him his sippy about 20 mins. Iasked what she put in it, she said pediasure. I told her to take

thelid off and when she did he dipped his finger in and then he was fine.The odd thing is it only happens when he has his pediasure.All i did was ask the doctor about this behavior he said he has neverseen this behavior in a 2 yr old, usually more often when they are 4yrs old and older. He said make an appointment so he can start him onmeds. I asked him for an alternative way cause my point of view is whyshould he be put on meds for something that is abnormal?I decided to take him over to BHR and make an appointment for him tobe evaluated first before meds are even discussed. I know a couple ofother older kids who have aspergers and they only got meds when theywere about 7 yrs old to help with the hyperness.Was it wrong for the doctor to just want my son to be thrown on medsbefore hand? Even though i've had 2 doctors plus what i read think itis asperger's, will my son be as normal as the average child? I know

2other kids with this, one is smart and hyper, and the other is smartbut so far off in his own world.Im so confused.~maria

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[Guest guest]

I wouldn't like having a doc suggest meds before even doing a full evaluation to find out what the problem is! I agree with you! We also had our younger ds who lined up cars. I would sit there and move them out of order and he would go ballistic. We kinda knew then that this was a big problem.

RoxannaAutism Happens

( ) advise please

Yeah im sorta new to this thought that my child may possibly haveasperger. I had to bring it up to his Dr. because we were noticing oddbehavior. To me he seemed like the average 2yr old but then he woulddo these unusuall things. Before he was one he lined up cars which hestill does, but if they are not face all one way one in front of theother, he freaks. Then the whole time he plays with them he isoblivious to his surroundings. Then he also does this weird thing with his sippy cup. When i put inhis pediasure he likes helping pour the last bit in but he HAS to diphis finger in the sippy cup when its all in. I never told my mom hestarted to do this and she called me when she had him one day. Sheasked if there was something wrong because he didnt stop crying, hewas in full out fit mode kicking, hitting, throwing. I asked her whathappened and she said nothing i gave him his sippy about 20 mins. Iasked what she put in it, she said pediasure. I told her to take thelid off and when she did he dipped his finger in and then he was fine.The odd thing is it only happens when he has his pediasure.All i did was ask the doctor about this behavior he said he has neverseen this behavior in a 2 yr old, usually more often when they are 4yrs old and older. He said make an appointment so he can start him onmeds. I asked him for an alternative way cause my point of view is whyshould he be put on meds for something that is abnormal?I decided to take him over to BHR and make an appointment for him tobe evaluated first before meds are even discussed. I know a couple ofother older kids who have aspergers and they only got meds when theywere about 7 yrs old to help with the hyperness.Was it wrong for the doctor to just want my son to be thrown on medsbefore hand? Even though i've had 2 doctors plus what i read think itis asperger's, will my son be as normal as the average child? I know 2other kids with this, one is smart and hyper, and the other is smartbut so far off in his own world.Im so confused.~maria