Re: thanks and Hope-For Kathy

[Guest guest]

Hi Kathy,

You have handled so much already that you definitely can handle

the yeast die-off/regression at the 12 to 13 week point. I am

seeing less verbal stimming today and the grunting has toned down

also. So we have had 8 days of really stimmy behavior but today it

is definitely better (in case you were wondering about a time

frame). We have only added some echinacea during this time period

so he still gets the Kirkman DMG (2 at each meal), MSM (500mg at

each meal), Nature's Life Milk-Free Acidophilus (4 X/day), and the

echinacea (3 X/day) and the miconazole on his lips to prevent the

yeast rash around his lips. He is still constipated, but I'm giving

him steamed asparagus again for the next few days to see if it

softens the stool again. Someone on another list mentioned that

beta glucan helps kill the yeast and also helps with the

constipation......I wonder if it is SCD legal!! I wish I could be

more encouraging but I'm just a few weeks ahead of you and going

through the same doldrums....I'm hoping for better things to come.

How did the No Fenol work for Abby? Is it having any effect with

the tomato juice? Hang in there and take care, Becky in Chesapeake,

VA with 10 yr old on SCD 13+ weeks

[Guest guest]

Hi Becky, I know, I won't quit because I do see good effects from this but

when they are so BAD you say, " why am I doing this! "

So maybe we are at the 3 month point a little early............it does say

in BTVC at around 2-3 months. How does your son handle the DMG? Our new DAN

doctor, Dr. Mumper, mentioned it but I told her early on it made her hyper.

She is wondering why Abby can't handle that as well as all of the B vitamins

as well. That is why we are doing the Metabolic Analysis Profile. She

thinks there may be a neurotransmitter problem as well and her constipation

is definitely more motility than true constipation. She really wants to be

able to start B-12 with Abby too after we get this testing back. I haven't

really been using the no-fenol. I guess I am afraid of the hyperactivity

and problems I saw with the banana but for some reason she handles the

tomato juice and does not pick her nails or anything with it. I was more

afraid of accumulation issue with it. Thanks for all the

encouragement!!!!!!

Kathy

Re: thanks and Hope-For Kathy

> Hi Kathy,

> You have handled so much already that you definitely can handle

> the yeast die-off/regression at the 12 to 13 week point. I am

> seeing less verbal stimming today and the grunting has toned down

> also. So we have had 8 days of really stimmy behavior but today it

> is definitely better (in case you were wondering about a time

> frame). We have only added some echinacea during this time period

> so he still gets the Kirkman DMG (2 at each meal), MSM (500mg at

> each meal), Nature's Life Milk-Free Acidophilus (4 X/day), and the

> echinacea (3 X/day) and the miconazole on his lips to prevent the

> yeast rash around his lips. He is still constipated, but I'm giving

> him steamed asparagus again for the next few days to see if it

> softens the stool again. Someone on another list mentioned that

> beta glucan helps kill the yeast and also helps with the

> constipation......I wonder if it is SCD legal!! I wish I could be

> more encouraging but I'm just a few weeks ahead of you and going

> through the same doldrums....I'm hoping for better things to come.

> How did the No Fenol work for Abby? Is it having any effect with

> the tomato juice? Hang in there and take care, Becky in Chesapeake,

> VA with 10 yr old on SCD 13+ weeks

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Hi Kathy,

Yes, I know what you mean ( " why am I doing this! " ), especially

after spending 75% of your day in the kitchen!! My son does

wonderful on DMG and has been the only thing that we have seen a big

change in him as far as language and calmness. You need to give

your daughter Folinic Acid (Kirkman has a legal brand, 800mcg/day)

with the DMG to counteract the hyperactivity. But if your daughter

didn't do well with the DMG, then try the TMG because some do better

with that than the DMG. It has to do with the methylation issue

which the DAN researchers are getting closer to figuring out on our

kids. The only problem is that it's not a one size fit all

treatment solution. So what works for one child, doesn't

necessarily work for another child. That's the way it is with DMG

and TMG. I want to try the TMG because it adds one more methyl

group to his biochemical pathways but I'm not sure if he would do

well on that since he does so well on DMG. I will probably buy a

sample bottle from Kirkman's and see how he does on that.

As for the motility problem, I wonder if bethanecol with Cod Liver

Oil or creatine would work for Abby. Did Dr. Mumper go to the DAN

conference last month (sheesh, can you believe it's May)? They

mentioned Creatine which according to my Murray book is: " ...used

in muscle tissue for the production of phosphocreatine, an important

factor in the formation of ATP, which is the source of energy for

muscle contraction and many other functions in the body. " So maybe

it could help with the motility in her intestines. I think

bethanecol has to do with the neurotransmitter in the gut, but I

never understood the principle (Dr.Megson's theory) and it didn't

work for our son. In fact the Cod Liver oil actually made my son

have visual stims which stopped when we deleted the cod liver to do

the SCD.....very interesting. Anyways, just some thoughts.

As for the No-Fenol, it didn't help us either but our son doesn't

have a big Phenol issue although we do have a tendency to minimize

phenols in his diet just as a precaution. By the way, he had a huge

log today which were the balls all stuck together....maybe the

asparagus helps with the constipation also....we shall see. By the

way, remember I mentioned that the grunting and verbal stimming went

down yesterday....well it occured to me this morning that I gave him

one capsule of folinic acid yesterday....could that have been the

reason the stimming went down? Maybe!!! I am going on with legal

supplements and chelation and sticking to the diet as much as I

can. I just can't wait anymore to resolve the constipation,

especially when there are no gains in language or behavior. Take

care, Becky in Chesapeake, VA with 10 yr old on SCD 13+ weeks

> Hi Becky, I know, I won't quit because I do see good effects from

this but

> when they are so BAD you say, " why am I doing this! "

> So maybe we are at the 3 month point a little early............it

does say

> in BTVC at around 2-3 months. How does your son handle the DMG?

Our new DAN

> doctor, Dr. Mumper, mentioned it but I told her early on it made

her hyper.

> She is wondering why Abby can't handle that as well as all of the

B vitamins

> as well. That is why we are doing the Metabolic Analysis

Profile. She

> thinks there may be a neurotransmitter problem as well and her

constipation

> is definitely more motility than true constipation. She really

wants to be

> able to start B-12 with Abby too after we get this testing back.

I haven't

> really been using the no-fenol. I guess I am afraid of the

hyperactivity

> and problems I saw with the banana but for some reason she handles

the

> tomato juice and does not pick her nails or anything with it. I

was more

> afraid of accumulation issue with it. Thanks for all the

> encouragement!!!!!!

> Kathy