Re: this video is tough to watch- but I'd love your thoughts

[Guest guest]

Luz,

My son would go through these painful screaming bouts as

well. The first time it manifested our chiro told us to do cranial sacral

therapy on him. The CS therapist thought that he might be going through a

growth spurt and his cranial bones were not adjusting to it. This brought

substantial relief within 2 weeks. Then we moved out of state and the new

D.O. gave us Petadolex which relaxes blood vessels in the head. You can

get this over the counter in health food stores. Note that it doesn’t

heal the pain as it’s happening, but it works toward relaxing the vessels

in order to not get the pain to begin with.

If it is TMJ, I will send you a file I have on that

separately.

Hope this helps.

Carmen

Carmen

F. Goldman, Esq.

[Guest guest]

Luz,

My son would go through these painful screaming bouts as

well. The first time it manifested our chiro told us to do cranial sacral

therapy on him. The CS therapist thought that he might be going through a

growth spurt and his cranial bones were not adjusting to it. This brought

substantial relief within 2 weeks. Then we moved out of state and the new

D.O. gave us Petadolex which relaxes blood vessels in the head. You can

get this over the counter in health food stores. Note that it doesn’t

heal the pain as it’s happening, but it works toward relaxing the vessels

in order to not get the pain to begin with.

If it is TMJ, I will send you a file I have on that

separately.

Hope this helps.

Carmen

Carmen

F. Goldman, Esq.

[Guest guest]

I would also recommend having a dentist check her teeth and gums. It seems like something hurts when she bites and/or when she swallows. About seeing an ENT too? This was really hard to watch

Subject: Re: this video is tough to watch- but I'd love your thoughtsTo: mb12 valtrex Date: Monday, November 23, 2009, 7:53 AM

Poor thing, have you had her evaluated with a dentist? I remember reading of a mom who was having trouble getting her child off of a nipple off a bottle. The child would hold it in their mouth all day. Well, she came to learn that because of the child's poor nutrition because it was a horrible eater(like many of our kids), it's teeth were rotting out. Keeping the nipple in the child's mouth kept the air off the teeth when it breathed and the air would cause considerable pain. So it could be pain during eating or even at other times too. Does your daughter have a stuffed nose and then has to breath through her mouth? Have you looked into homeopathy? We are using Homeopathy Center of Houston and they have ways to get rid of the metals without it being so harsh on the system. Good luck to you, that video breaks my heart.

[Guest guest]

No offense, but I think you are barking up the wrong tree with this dental

thing.

>

>

>

> Subject: Re: this video is tough to watch- but I'd love your

thoughts

> To: mb12 valtrex

> Date: Monday, November 23, 2009, 7:53 AM

>

>

>  

>

>

>

>

> Poor thing, have you had her evaluated with a dentist? I remember reading of a

mom who was having trouble getting her child off of a nipple off a bottle. The

child would hold it in their mouth all day. Well, she came to learn that because

of the child's poor nutrition because it was a horrible eater(like many of our

kids), it's teeth were rotting out. Keeping the nipple in the child's mouth kept

the air off the teeth when it breathed and the air would cause considerable

pain. So it could be pain during eating or even at other times too. Does your

daughter have a stuffed nose and then has to breath through her mouth?  Have

you looked into homeopathy? We are using Homeopathy Center of Houston and they

have ways to get rid of the metals without it being so harsh on the system. Good

luck to you, that video breaks my heart.

>

[Guest guest]

Oh so Liz, you must have the right answer to this. Good, you solved the problem

Subject: Re: this video is tough to watch- but I'd love your thoughtsTo: mb12 valtrex Date: Monday, November 23, 2009, 9:28 PM

No offense, but I think you are barking up the wrong tree with this dental thing. > > > > Subject: Re: this video is tough to watch- but I'd love your thoughts> To: mb12 valtrex@ yahoogroups. com> Date: Monday, November 23, 2009, 7:53 AM> > >  > > > > > Poor thing, have you had her evaluated with a dentist? I remember reading of a mom who was having trouble getting her child off of a nipple off a bottle. The child would hold it in their mouth all day. Well, she came to learn that because of the child's poor nutrition because it was a horrible eater(like many of our kids), it's teeth were rotting out. Keeping the nipple in the child's mouth kept the air off the teeth when it breathed and the air would cause considerable pain. So it could be pain during eating or even at other times too. Does your daughter have a stuffed nose and then has to breath through her mouth?  Have you looked into homeopathy? We are using Homeopathy Center of Houston and they have ways to get rid of the metals

without it being so harsh on the system. Good luck to you, that video breaks my heart. >

[Guest guest]

I know you are getting lots of different views on this which is fustrating, but

did she have some eye rolling in the first part of clip?,if so she could need an

eeg to rule out seizure type activity .Seizures can present in many different

ways, and may account for her upset behaviour.I hope you get your answer

quickly..

[Guest guest]

May not be. My son is tube fed, now, due to dental pain.

CGF

> >

> >

> > From: Darin and <odies4@>

> > Subject: Re: this video is tough to watch- but I'd love your

thoughts

> > To: mb12 valtrex

> > Date: Monday, November 23, 2009, 7:53 AM

> >

> >

> >  

> >

> >

> >

> >

> > Poor thing, have you had her evaluated with a dentist? I remember reading of

a mom who was having trouble getting her child off of a nipple off a bottle. The

child would hold it in their mouth all day. Well, she came to learn that because

of the child's poor nutrition because it was a horrible eater(like many of our

kids), it's teeth were rotting out. Keeping the nipple in the child's mouth kept

the air off the teeth when it breathed and the air would cause considerable

pain. So it could be pain during eating or even at other times too. Does your

daughter have a stuffed nose and then has to breath through her mouth?  Have

you looked into homeopathy? We are using Homeopathy Center of Houston and they

have ways to get rid of the metals without it being so harsh on the system. Good

luck to you, that video breaks my heart.

> >

>

[Guest guest]

May not be. My son is tube fed, now, due to dental pain.

CGF

> >

> >

> > From: Darin and <odies4@>

> > Subject: Re: this video is tough to watch- but I'd love your

thoughts

> > To: mb12 valtrex

> > Date: Monday, November 23, 2009, 7:53 AM

> >

> >

> >  

> >

> >

> >

> >

> > Poor thing, have you had her evaluated with a dentist? I remember reading of

a mom who was having trouble getting her child off of a nipple off a bottle. The

child would hold it in their mouth all day. Well, she came to learn that because

of the child's poor nutrition because it was a horrible eater(like many of our

kids), it's teeth were rotting out. Keeping the nipple in the child's mouth kept

the air off the teeth when it breathed and the air would cause considerable

pain. So it could be pain during eating or even at other times too. Does your

daughter have a stuffed nose and then has to breath through her mouth?  Have

you looked into homeopathy? We are using Homeopathy Center of Houston and they

have ways to get rid of the metals without it being so harsh on the system. Good

luck to you, that video breaks my heart.

> >

>

[Guest guest]

I agree. I had a good friend whose son with autism was having a major melt downs and even some behavioral problems. His mom took him to the dentist and a cap or something had come loose and his teeth were uneven and causing some MAJOR pain. He was nonverbal and couldn't tell her what was wrong. But the dentist fixed the problem and he is back to his happy self again.

Dental issues can cause major pain.

Subject: Re: this video is tough to watch- but I'd love your thoughtsTo: mb12 valtrex Date: Tuesday, November 24, 2009, 12:26 PM

May not be. My son is tube fed, now, due to dental pain.CGF> > > > > > From: Darin and <odies4@>> > Subject: Re: this video is tough to watch- but I'd love your thoughts> > To: mb12 valtrex@ yahoogroups. com> > Date: Monday, November 23, 2009, 7:53 AM> > > > > > Â > > > > > > > > > > Poor thing, have you had her evaluated with a dentist? I remember reading of a mom who was having trouble getting her child off of a nipple off a bottle. The child would hold it in their mouth all day. Well, she came to learn that because of the child's poor nutrition because it was a horrible eater(like many of our kids), it's teeth were rotting out. Keeping the nipple in the

child's mouth kept the air off the teeth when it breathed and the air would cause considerable pain. So it could be pain during eating or even at other times too. Does your daughter have a stuffed nose and then has to breath through her mouth?  Have you looked into homeopathy? We are using Homeopathy Center of Houston and they have ways to get rid of the metals without it being so harsh on the system. Good luck to you, that video breaks my heart. > >>

[Guest guest]

I think if it were pain in her mouth, that she would have her hands in her

mouth, maybe biting on them...also drooling maybe? The mom said it was pain

inside her head. I'm sorry I came across rude.

> >

> >

> > From: Darin and <odies4@>

> > Subject: Re: this video is tough to watch- but I'd love your

thoughts

> > To: mb12 valtrex@ yahoogroups. com

> > Date: Monday, November 23, 2009, 7:53 AM

> >

> >

> >  

> >

> >

> >

> >

> > Poor thing, have you had her evaluated with a dentist? I remember reading of

a mom who was having trouble getting her child off of a nipple off a bottle. The

child would hold it in their mouth all day. Well, she came to learn that because

of the child's poor nutrition because it was a horrible eater(like many of our

kids), it's teeth were rotting out. Keeping the nipple in the child's mouth kept

the air off the teeth when it breathed and the air would cause considerable

pain. So it could be pain during eating or even at other times too. Does your

daughter have a stuffed nose and then has to breath through her mouth?

 Have you looked into homeopathy? We are using Homeopathy Center of Houston

and they have ways to get rid of the metals without it being so harsh on the

system. Good luck to you, that video breaks my heart.

> >

>

[Guest guest]

I agree. My son had tantrums, meltdowns, rages, and episodes

that looked like Pain…….. turned out to be seizures.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of jcbgalvin

Sent: Tuesday, November 24, 2009 5:28 AM

To: mb12 valtrex

Subject: Re: this video is tough to watch- but I'd love

your thoughts

I know you are getting lots of different views

on this which is fustrating, but did she have some eye rolling in the first

part of clip?,if so she could need an eeg to rule out seizure type activity

..Seizures can present in many different ways, and may account for her upset

behaviour.I hope you get your answer quickly..

[Guest guest]

I have a gut feeling that most of the nonverbal kids are experiencing seizures.

Quite awhile ago when I was new on the Autism-Mercury board, I had asked the

group about my son learning words and then forgetting them and then learning

other words. I was frustrated because I thought my son was getting more

language, but apparently, he was just getting different language. Andy Cutler

suggested that he might be having seizures, and if you think about it, it makes

sense.

If you think about the inability of some children to say anything, it makes even

more sense. You need a properly working memory - messages sent back and forth -

to be able to learn to speak. I think it is related to demyelination and I

think Vitamin A helps, but I am not sure why.

>

> I agree. My son had tantrums, meltdowns, rages, and episodes that looked

> like Pain.... turned out to be seizures.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex [mailto:mb12 valtrex ] On

> Behalf Of jcbgalvin

> Sent: Tuesday, November 24, 2009 5:28 AM

> To: mb12 valtrex

> Subject: Re: this video is tough to watch- but I'd love your

> thoughts

>

>

>

>

>

> I know you are getting lots of different views on this which is fustrating,

> but did she have some eye rolling in the first part of clip?,if so she could

> need an eeg to rule out seizure type activity .Seizures can present in many

> different ways, and may account for her upset behaviour.I hope you get your

> answer quickly..

>

[Guest guest]

Liz- If she has tooth pain, why would she bite her hands? Wouldn't that make it

worse? I think it would be an easy thing to rule out. Did you have any tests to

see if your child is indeed having seizures?

> > >

> > >

> > > From: Darin and <odies4@>

> > > Subject: Re: this video is tough to watch- but I'd love your

thoughts

> > > To: mb12 valtrex@ yahoogroups. com

> > > Date: Monday, November 23, 2009, 7:53 AM

> > >

> > >

> > >  

> > >

> > >

> > >

> > >

> > > Poor thing, have you had her evaluated with a dentist? I remember reading

of a mom who was having trouble getting her child off of a nipple off a bottle.

The child would hold it in their mouth all day. Well, she came to learn that

because of the child's poor nutrition because it was a horrible eater(like many

of our kids), it's teeth were rotting out. Keeping the nipple in the child's

mouth kept the air off the teeth when it breathed and the air would cause

considerable pain. So it could be pain during eating or even at other times too.

Does your daughter have a stuffed nose and then has to breath through her

mouth?  Have you looked into homeopathy? We are using Homeopathy Center of

Houston and they have ways to get rid of the metals without it being so harsh on

the system. Good luck to you, that video breaks my heart.

> > >

> >

>

[Guest guest]

OK-1. We see a dentist every four months- her teeth are in good shape, and so are her gums;2. Yes, have tried homeopathy-- mixed bag, not the one deep healing remedy yet-- what would you suggest?2. Ongoing NAETWhat I do wonder about is seizures and nerve inflammation; we're treating the inflammation with Enhansa though I'm checking on Bradstreet's findings-Thanks all. Luckily this is not what she's like most often... LuzLiz- If she has tooth pain, why would she bite her hands? Wouldn't that make it worse? I think it would be an easy thing to rule out. Did you have any tests to see if your child is indeed having seizures? > > > > > > > > > From: Darin and <odies4@>> > > Subject: Re: this video is tough to watch- but I'd love your thoughts> > > To: mb12 valtrex@ yahoogroups. com> > > Date: Monday, November 23, 2009, 7:53 AM> > > > > > > > >  > > > > > > > > > > > > > > > Poor thing, have you had her evaluated with a dentist? I remember reading of a mom who was having trouble getting her child off of a nipple off a bottle. The child would hold it in their mouth all day. Well, she came to learn that because of the child's poor nutrition because it was a horrible eater(like many of our kids), it's teeth were rotting out. Keeping the nipple in the child's mouth kept the air off the teeth when it breathed and the air would cause considerable pain. So it could be pain during eating or even at other times too. Does your daughter have a stuffed nose and then has to breath through her mouth?  Have you looked into homeopathy? We are using Homeopathy Center of Houston and they have ways to get rid of the metals without it being so harsh on the system. Good luck to you, that video breaks my heart. > > >> >> Luz Arevalo & Ed Zabinzabin.luzed@...Directly from the Red Barn. No Viruses Attached. Go Green! Resist the temptation to Print this Message.

[Guest guest]

Based on my experience last year,and the year before,with similar episodes.it is probably related to inflammation.Yes I was very weak,and sick,often with a high fever after these went away.

The neuro I saw had no idea what they were.I had never heard of other people having such episodes before,but Martha Herbert touched upon it in her Mainne CDC lecture,and she was where I got the glial inflammation theory.

Subject: RE: Re: this video is tough to watch- but I'd love your thoughtsTo: mb12 valtrex Date: Monday, November 23, 2009, 4:31 PM

Our son has the same thing. We have been to regular doc, immunologist, DAN, allergist, ENT, and neurologist. It started off sporadic, one every month or two and then eventually we were up to 4 or so of these episodes a week. He would push right in the middle of his forhead with our hand or his as he screamed like someone was trying to kill him. It is heartbreaking. He would almost always end up vomiting and would be clammy and lethargic for a few hours afterwards. It's horrible and completely takes him out of commission for a while. This frequency went on for almost a year. We did find out he has partial complex seizures and he is now on Topomax to control seizure activity, but nothing had really helped with the episodes. Then all of a sudden I realized a few weeks into last summer

that he had only had one since school had gotten out. We went the whole summer with only 2 episodes. Since school started back up in the fall, he gets about one a month. No one has any answers. At first the neuro. said they were related to his seizures and then he keeps changing his mind. I can relate, as we have watched my son go through one of these while trying to eat too.

Nickie

Re: Re: this video is tough to watch- but I'd love your thoughts

Luz,

How long has she been doing this?

Re: this video is tough to watch- but I'd love your thoughts

Ok, how long have you been treating her? Did you start the supplements one by one? mb12 shots make things worse for my son, but are a miracle supplement for others. Treating for yeast? Probiotics? Minerals?>> but it shows our girl during one of her episodes when she really looks > like she's having piercing pain inside her head. She's trying to eat > her GCF pancakes here-- sorry about the side view!> > http://www.youtube. com/watch? v=nBMDxmtGCQY> > We are: chelating (EDTA IV/3 weeks); supplementing- vitamins, OSR, > Enhansa, Naltrexone,

Singulair (inflammation) , and MB12 spray (shots > had no effect; soft chamber hyperb did little to nothing).> She's got lead (negligible by FAD standards!!, aluminum, and others).> Also doing NAET-- little green in her diet still.> > Thanks!!> > > > > Luz Arevalo & Ed Zabin> zabin.luzed@ ...> > Directly from the Red Barn. No Viruses Attached.> Go Green! Resist the temptation to Print this Message.>

[Guest guest]

Luz, given that it takes some time for you to figure out exactly what is causing

this, maybe it would be beneficial to visit an acupuncturist (not just anyone,

someone who is highly recommended), to see if there are some pressure points you

can use to relieve this pain when it happens. My son comes up to me and wants

me to squeeze his index finger when he has had a food that he is intolerant of

and it is causing pain. For some reason, it provides relief. So that is one

suggestion.

Also, you said she hasn't always done this. Think back to when it started, did

it correspond to any new diet or supplement, the chelation? I think I would cut

out the Enhansa at this point as well because phenols can cause bad reactions

for some kids too - you don't want anything in her supplements or diet that will

aggravate things or confuse your ability to figure this out.

My son has lead too, BTW, and this started getting worse shortly after a DMSA

challenge, so it could be lead moving around in the central nervous system too.

Lots of antioxidants, magnesium, EFAs, and epsom salt baths would help if that

were the case. Maybe selenium and Vit E too. Hope she gets better soon, poor

sweetie

> > >

> > > but it shows our girl during one of her episodes when she really

> > looks

> > > like she's having piercing pain inside her head. She's trying to eat

> > > her GCF pancakes here-- sorry about the side view!

> > >

> > > http://www.youtube.com/watch?v=nBMDxmtGCQY

> > >

> > > We are: chelating (EDTA IV/3 weeks); supplementing- vitamins, OSR,

> > > Enhansa, Naltrexone, Singulair (inflammation), and MB12 spray (shots

> > > had no effect; soft chamber hyperb did little to nothing).

> > > She's got lead (negligible by FAD standards!!, aluminum, and

> > others).

> > > Also doing NAET-- little green in her diet still.

> > >

> > > Thanks!!

> > >

> > >

> > >

> > >

> > > Luz Arevalo & Ed Zabin

> > > zabin.luzed@

> > >

> > > Directly from the Red Barn. No Viruses Attached.

> > > Go Green! Resist the temptation to Print this Message.

> > >

> >

> >

> >

>

> Luz Arevalo & Ed Zabin

> zabin.luzed@...

>

> Directly from the Red Barn. No Viruses Attached.

> Go Green! Resist the temptation to Print this Message.

>

[Guest guest]

Luz, given that it takes some time for you to figure out exactly what is causing

this, maybe it would be beneficial to visit an acupuncturist (not just anyone,

someone who is highly recommended), to see if there are some pressure points you

can use to relieve this pain when it happens. My son comes up to me and wants

me to squeeze his index finger when he has had a food that he is intolerant of

and it is causing pain. For some reason, it provides relief. So that is one

suggestion.

Also, you said she hasn't always done this. Think back to when it started, did

it correspond to any new diet or supplement, the chelation? I think I would cut

out the Enhansa at this point as well because phenols can cause bad reactions

for some kids too - you don't want anything in her supplements or diet that will

aggravate things or confuse your ability to figure this out.

My son has lead too, BTW, and this started getting worse shortly after a DMSA

challenge, so it could be lead moving around in the central nervous system too.

Lots of antioxidants, magnesium, EFAs, and epsom salt baths would help if that

were the case. Maybe selenium and Vit E too. Hope she gets better soon, poor

sweetie

> > >

> > > but it shows our girl during one of her episodes when she really

> > looks

> > > like she's having piercing pain inside her head. She's trying to eat

> > > her GCF pancakes here-- sorry about the side view!

> > >

> > > http://www.youtube.com/watch?v=nBMDxmtGCQY

> > >

> > > We are: chelating (EDTA IV/3 weeks); supplementing- vitamins, OSR,

> > > Enhansa, Naltrexone, Singulair (inflammation), and MB12 spray (shots

> > > had no effect; soft chamber hyperb did little to nothing).

> > > She's got lead (negligible by FAD standards!!, aluminum, and

> > others).

> > > Also doing NAET-- little green in her diet still.

> > >

> > > Thanks!!

> > >

> > >

> > >

> > >

> > > Luz Arevalo & Ed Zabin

> > > zabin.luzed@

> > >

> > > Directly from the Red Barn. No Viruses Attached.

> > > Go Green! Resist the temptation to Print this Message.

> > >

> >

> >

> >

>

> Luz Arevalo & Ed Zabin

> zabin.luzed@...

>

> Directly from the Red Barn. No Viruses Attached.

> Go Green! Resist the temptation to Print this Message.

>

[Guest guest]

Somewhat OT,but would episodes of eloping with no idea where you are,and what you are doing,and then coming around hours later be seizure related ?

Subject: Re: this video is tough to watch- but I'd love your thoughtsTo: mb12 valtrex Date: Tuesday, November 24, 2009, 6:54 PM

I have a gut feeling that most of the nonverbal kids are experiencing seizures. Quite awhile ago when I was new on the Autism-Mercury board, I had asked the group about my son learning words and then forgetting them and then learning other words. I was frustrated because I thought my son was getting more language, but apparently, he was just getting different language. Andy Cutler suggested that he might be having seizures, and if you think about it, it makes sense. If you think about the inability of some children to say anything, it makes even more sense. You need a properly working memory - messages sent back and forth - to be able to learn to speak. I think it is related to demyelination and I think Vitamin A helps, but I am not sure why. >> I agree. My son had tantrums, meltdowns, rages, and episodes that looked> like Pain.... turned out to be seizures.> > > > Pamela> > > > From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex@ yahoogroups. com] On> Behalf Of jcbgalvin> Sent: Tuesday, November 24, 2009 5:28 AM> To: mb12 valtrex@ yahoogroups. com>

Subject: Re: this video is tough to watch- but I'd love your> thoughts> > > > > > I know you are getting lots of different views on this which is fustrating,> but did she have some eye rolling in the first part of clip?,if so she could> need an eeg to rule out seizure type activity .Seizures can present in many> different ways, and may account for her upset behaviour.I hope you get your> answer quickly..>

[Guest guest]

Somewhat OT,but would episodes of eloping with no idea where you are,and what you are doing,and then coming around hours later be seizure related ?

Subject: Re: this video is tough to watch- but I'd love your thoughtsTo: mb12 valtrex Date: Tuesday, November 24, 2009, 6:54 PM

I have a gut feeling that most of the nonverbal kids are experiencing seizures. Quite awhile ago when I was new on the Autism-Mercury board, I had asked the group about my son learning words and then forgetting them and then learning other words. I was frustrated because I thought my son was getting more language, but apparently, he was just getting different language. Andy Cutler suggested that he might be having seizures, and if you think about it, it makes sense. If you think about the inability of some children to say anything, it makes even more sense. You need a properly working memory - messages sent back and forth - to be able to learn to speak. I think it is related to demyelination and I think Vitamin A helps, but I am not sure why. >> I agree. My son had tantrums, meltdowns, rages, and episodes that looked> like Pain.... turned out to be seizures.> > > > Pamela> > > > From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex@ yahoogroups. com] On> Behalf Of jcbgalvin> Sent: Tuesday, November 24, 2009 5:28 AM> To: mb12 valtrex@ yahoogroups. com>

Subject: Re: this video is tough to watch- but I'd love your> thoughts> > > > > > I know you are getting lots of different views on this which is fustrating,> but did she have some eye rolling in the first part of clip?,if so she could> need an eeg to rule out seizure type activity .Seizures can present in many> different ways, and may account for her upset behaviour.I hope you get your> answer quickly..>

[Guest guest]

Yes

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Kulp

Sent: Wednesday, November 25, 2009 2:16 PM

To: mb12 valtrex

Subject: Re: Re: this video is tough to watch- but I'd

love your thoughts

Somewhat OT,but would episodes of eloping with no idea

where you are,and what you are doing,and then coming around hours later be

seizure related ?

Subject: Re: this video is tough to watch- but I'd love your

thoughts

To: mb12 valtrex

Date: Tuesday, November 24, 2009, 6:54 PM

I have a gut feeling that

most of the nonverbal kids are experiencing seizures. Quite awhile ago when I

was new on the Autism-Mercury board, I had asked the group about my son

learning words and then forgetting them and then learning other words. I was

frustrated because I thought my son was getting more language, but

apparently, he was just getting different language. Andy Cutler suggested

that he might be having seizures, and if you think about it, it makes sense.

If you think about the inability of some children to say anything, it makes

even more sense. You need a properly working memory - messages sent back and

forth - to be able to learn to speak. I think it is related to demyelination

and I think Vitamin A helps, but I am not sure why.

>

> I agree. My son had tantrums, meltdowns, rages, and episodes that looked

> like Pain.... turned out to be seizures.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex@ yahoogroups. com] On

> Behalf Of jcbgalvin

> Sent: Tuesday, November 24, 2009 5:28 AM

> To: mb12 valtrex@ yahoogroups. com

> Subject: Re: this video is tough to watch- but I'd love

your

> thoughts

>

>

>

>

>

> I know you are getting lots of different views on this which is

fustrating,

> but did she have some eye rolling in the first part of clip?,if so she

could

> need an eeg to rule out seizure type activity .Seizures can present in

many

> different ways, and may account for her upset behaviour.I hope you get

your

> answer quickly..

>

[Guest guest]

Yes

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Kulp

Sent: Wednesday, November 25, 2009 2:16 PM

To: mb12 valtrex

Subject: Re: Re: this video is tough to watch- but I'd

love your thoughts

Somewhat OT,but would episodes of eloping with no idea

where you are,and what you are doing,and then coming around hours later be

seizure related ?

Subject: Re: this video is tough to watch- but I'd love your

thoughts

To: mb12 valtrex

Date: Tuesday, November 24, 2009, 6:54 PM

I have a gut feeling that

most of the nonverbal kids are experiencing seizures. Quite awhile ago when I

was new on the Autism-Mercury board, I had asked the group about my son

learning words and then forgetting them and then learning other words. I was

frustrated because I thought my son was getting more language, but

apparently, he was just getting different language. Andy Cutler suggested

that he might be having seizures, and if you think about it, it makes sense.

If you think about the inability of some children to say anything, it makes

even more sense. You need a properly working memory - messages sent back and

forth - to be able to learn to speak. I think it is related to demyelination

and I think Vitamin A helps, but I am not sure why.

>

> I agree. My son had tantrums, meltdowns, rages, and episodes that looked

> like Pain.... turned out to be seizures.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex@ yahoogroups. com] On

> Behalf Of jcbgalvin

> Sent: Tuesday, November 24, 2009 5:28 AM

> To: mb12 valtrex@ yahoogroups. com

> Subject: Re: this video is tough to watch- but I'd love

your

> thoughts

>

>

>

>

>

> I know you are getting lots of different views on this which is

fustrating,

> but did she have some eye rolling in the first part of clip?,if so she

could

> need an eeg to rule out seizure type activity .Seizures can present in

many

> different ways, and may account for her upset behaviour.I hope you get

your

> answer quickly..

>

[Guest guest]

Luz-Glad to hear you can rule out a dental issue. As far as the homeopathy goes,

I would try a sequential homeopath. We tried the classical route too and in my

opinion it is too difficult to try and nail down one true remedy when there are

so many things going on with our children. My son is non-verbal and that makes

it even more difficult to get a true symptom picture. We are in our fourth month

with Homeopathy center of Houston. What they do is work backward in your childs

history clearing the assaults of vaccines, toxins, medications, etc. They

address supporting detox and healing throughout as well. Currently for monthly

support between clearings, we are on droppers for mito function, strep and ocd,

yeast, detox, gut, thyroid, thymus, lymphatic drainage, bateria, viruses, etc,

etc.

They address quite a lot at one time. Hopefully next month we will start on

something for parasites too. So far, we are only 4 months in, we have improved

eye contact, a lot more social interaction, much improved potty training(he

actually pees by himself now) less intense ocd behaviors, and for the very first

time he can now blow a whistle and stick his tongue out, more imitation in

general. We are very happy with the progress and we have only just begun.

Houston is quite expensive but I know that there are other homeopaths out there

that do a similar thing and probably aren't as expensive. Just something to look

into. I'm wanting to get a hair test done on my son to see what all he is

dumping sometime in the near future. Good luck to you.

> > > > >

> > > > >

> > > > > From: Darin and <odies4@>

> > > > > Subject: Re: this video is tough to watch- but

> > I'd love your thoughts

> > > > > To: mb12 valtrex@ yahoogroups. com

> > > > > Date: Monday, November 23, 2009, 7:53 AM

> > > > >

> > > > >

> > > > > ÂÂ

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Poor thing, have you had her evaluated with a dentist? I

> > remember reading of a mom who was having trouble getting her child

> > off of a nipple off a bottle. The child would hold it in their mouth

> > all day. Well, she came to learn that because of the child's poor

> > nutrition because it was a horrible eater(like many of our kids),

> > it's teeth were rotting out. Keeping the nipple in the child's mouth

> > kept the air off the teeth when it breathed and the air would cause

> > considerable pain. So it could be pain during eating or even at

> > other times too. Does your daughter have a stuffed nose and then has

> > to breath through her mouth?  Have you looked into homeopathy?

> > We are using Homeopathy Center of Houston and they have ways to get

> > rid of the metals without it being so harsh on the system. Good luck

> > to you, that video breaks my heart.

> > > > >

> > > >

> > >

> >

> >

> >

>

> Luz Arevalo & Ed Zabin

> zabin.luzed@...

>

> Directly from the Red Barn. No Viruses Attached.

> Go Green! Resist the temptation to Print this Message.

>

[Guest guest]

Luz-Glad to hear you can rule out a dental issue. As far as the homeopathy goes,

I would try a sequential homeopath. We tried the classical route too and in my

opinion it is too difficult to try and nail down one true remedy when there are

so many things going on with our children. My son is non-verbal and that makes

it even more difficult to get a true symptom picture. We are in our fourth month

with Homeopathy center of Houston. What they do is work backward in your childs

history clearing the assaults of vaccines, toxins, medications, etc. They

address supporting detox and healing throughout as well. Currently for monthly

support between clearings, we are on droppers for mito function, strep and ocd,

yeast, detox, gut, thyroid, thymus, lymphatic drainage, bateria, viruses, etc,

etc.

They address quite a lot at one time. Hopefully next month we will start on

something for parasites too. So far, we are only 4 months in, we have improved

eye contact, a lot more social interaction, much improved potty training(he

actually pees by himself now) less intense ocd behaviors, and for the very first

time he can now blow a whistle and stick his tongue out, more imitation in

general. We are very happy with the progress and we have only just begun.

Houston is quite expensive but I know that there are other homeopaths out there

that do a similar thing and probably aren't as expensive. Just something to look

into. I'm wanting to get a hair test done on my son to see what all he is

dumping sometime in the near future. Good luck to you.

> > > > >

> > > > >

> > > > > From: Darin and <odies4@>

> > > > > Subject: Re: this video is tough to watch- but

> > I'd love your thoughts

> > > > > To: mb12 valtrex@ yahoogroups. com

> > > > > Date: Monday, November 23, 2009, 7:53 AM

> > > > >

> > > > >

> > > > > ÂÂ

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Poor thing, have you had her evaluated with a dentist? I

> > remember reading of a mom who was having trouble getting her child

> > off of a nipple off a bottle. The child would hold it in their mouth

> > all day. Well, she came to learn that because of the child's poor

> > nutrition because it was a horrible eater(like many of our kids),

> > it's teeth were rotting out. Keeping the nipple in the child's mouth

> > kept the air off the teeth when it breathed and the air would cause

> > considerable pain. So it could be pain during eating or even at

> > other times too. Does your daughter have a stuffed nose and then has

> > to breath through her mouth?  Have you looked into homeopathy?

> > We are using Homeopathy Center of Houston and they have ways to get

> > rid of the metals without it being so harsh on the system. Good luck

> > to you, that video breaks my heart.

> > > > >

> > > >

> > >

> >

> >

> >

>

> Luz Arevalo & Ed Zabin

> zabin.luzed@...

>

> Directly from the Red Barn. No Viruses Attached.

> Go Green! Resist the temptation to Print this Message.

>

[Guest guest]

I have no idea . I would guess that the answer is yes, in a way, because I

believe issues with memory are due to scrambled messages in the brain (abnormal

electrical activity). That's just my semi-educated opinion.

> >

> > I agree. My son had tantrums, meltdowns, rages, and episodes that looked

> > like Pain.... turned out to be seizures.

> >

> >

> >

> > Pamela

> >

> >

> >

> > From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex@ yahoogroups. com]

On

> > Behalf Of jcbgalvin

> > Sent: Tuesday, November 24, 2009 5:28 AM

> > To: mb12 valtrex@ yahoogroups. com

> > Subject: Re: this video is tough to watch- but I'd love your

> > thoughts

> >

> >

> >

> >

> >

> > I know you are getting lots of different views on this which is fustrating,

> > but did she have some eye rolling in the first part of clip?,if so she could

> > need an eeg to rule out seizure type activity .Seizures can present in many

> > different ways, and may account for her upset behaviour.I hope you get your

> > answer quickly..

> >

>

[Guest guest]

I have no idea . I would guess that the answer is yes, in a way, because I

believe issues with memory are due to scrambled messages in the brain (abnormal

electrical activity). That's just my semi-educated opinion.

> >

> > I agree. My son had tantrums, meltdowns, rages, and episodes that looked

> > like Pain.... turned out to be seizures.

> >

> >

> >

> > Pamela

> >

> >

> >

> > From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex@ yahoogroups. com]

On

> > Behalf Of jcbgalvin

> > Sent: Tuesday, November 24, 2009 5:28 AM

> > To: mb12 valtrex@ yahoogroups. com

> > Subject: Re: this video is tough to watch- but I'd love your

> > thoughts

> >

> >

> >

> >

> >

> > I know you are getting lots of different views on this which is fustrating,

> > but did she have some eye rolling in the first part of clip?,if so she could

> > need an eeg to rule out seizure type activity .Seizures can present in many

> > different ways, and may account for her upset behaviour.I hope you get your

> > answer quickly..

> >

>