Re: Beloved group members asks for support & guidance ...

[Guest guest]

OMG! All I could do while reading this is pray. I pray for this woman to make it through. Bless her heart. My aunt had Sjogren's syndrome and I know she went through alot of those other things as well. I wish there was some advice I could give, but all I can say is that I will pray for her. Has she tried any alternative therapies AT ALL? A naturopathic Dr or anything? I can't begin to imagine what she is going through, but I will pray my heart out for her. Love Ilena Rose <ilena.rose@...> wrote: Here is a message from a longtime support system .. in a desperate situation. She asked me not to name her ... so I told her I would forward any emails to her. Here are her last 2 emails. Love from Ilenawww.BreastImplantAwareness.org/ ~~~~~~~~~~~~~~~~~~` What I'm writing about is what's happened to me. The lupus has gotten bad and my neuro contacted my rheumatologist due to the emg being real

bad, my reflexes are next to nil, and the MRI showed the lupus hit my CNS, and now there's blockages in my heart. The heart dr wanted to admit to the hospital the next day to do the cardiac cath because he said there's blockages and they don't know where they are until they do it via my wrist and my valves are leaking....I contacted my cardiac dr who said "no way via the wrist', has to be done via the groin. I'm scared because I've been getting infections after infections, lungs. However, the rheumatologist wants to start chemo, cytoxen, and there was another thing she wanted to do, but I don't remember what she said....however, I'm scared stiff and I've declined dramatically the past yr. I haven't had the spinal tap done due to a

reaction to spinal anesthesia when I was 13, and the neuro said that's the only way they can prove I have MS also, which is BS..I read that Hopkins Hospital said they don't need to do a spinal tap to prove MS w/ a spinal tap...the plaques in my brain are there, and I'm on a ton of meds for all the diseases, including Neurontin that they use for MS also. I hope you can advise me on this please. What do you suggest I do because things aren't good...My Igg's were high, the sjogren's test was OFF the scale, the drs never saw anything like that before and wanted to do studies on me which I declined because I don't want to be used for a guinea pig because I'm going through so much...I have a lot of other autoimmune problems acting up and I know I had to write you for your opinion on what to do because I'm scared. Who and what do I do? They didn't expect me to go downhill as fast as I have, my hands--I'm getting rips in the skin and hurt so bad..am filling w/ fluid, and weak, tired, and am a walking time you know what..Who should I see and what to do? Please keep this quiet because I know things aren't good...if only you could see my face, the mask is awful..people look at me as soon as I go anywhere because of the red mask...embarrassing..everything is shot to hell on me. ~~~~~~~~ If you want to ask the group, go ahead, but please don't mention my name and let me know what's they're saying because I'm listed as critical... I'm scared stiff, don't know what to do, and am taking it day/day because they said I can have a heart attack and die...plus I had the strokes..I'm trying to make it through the holidays then go have things done but I want to make sure they're doing the right things because I'm BI person...and, this was the 1st yr ever that I got the flu shot and got pain under my arms, and someone from a group that sent emails to entire group wrote that she has the same problem about 2 wks ago--might be something in the shot...plus, I sent you that article that the airports are now giving the flu shots that have mercury and formaldehyde in them.....am scared shitless of this too...something's not right..

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