Guest guest Posted May 4, 1999 Report Share Posted May 4, 1999 I also tried acupuncture at a point when all else was failing. As acupuncture can bring your body into total balance in order that all your organs, systems, etc. function most efficiently, I feel it was helpful in bringing me to where I am today. I feel that the combination of Biaxin/plaquenil AND acupuncture AND supplements and vitamens AND rest when needed , all helped. I have been symptomless for a year TODAY ) after fighting this thing since 1993. I think the acupuncture was helpful in bringing my immune system to a point where it was functioning at its peak, thus allowing my body to utilize the medication and fight these spiros the very best it could. Mona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 At 11:49 PM 5/4/99 EDT, you wrote: >From: Prinny328@... > >Hi everyone, >I have a few questions... Has anyone tried an herblists or acupucherist? > > Herbs and/or acupunctures may help you to feel better, but they will not kill the spirochetes. Colby Van Atta > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Hi , I did try and acupuncturist twice, the first visit was great, the second so-so, plus it was too expensive for me at the time. I know when I mentioned it to my doctor, he encouraged me to continue, he said that often this can help with Lyme symptoms. I am sorry you were not able to keep the herbs down, I wonder if the capsule form would be better? If you recall what herbs were given to you, I would be very curious to know. Hugs, Marta - >From: Prinny328@... > >Hi everyone, >I have a few questions... Has anyone tried an herblists or acupucherist? I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 In a message dated 5/5/1999 9:36:31 AM Eastern Daylight Time, mlmccoy@... writes: << Happy Anniversary Mona >> Thank you so much.......I feel like I have been given another chance at life.........I wish and pray every day that it can happen to every one ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Prinny328@... writes: > I have a few questions... Has anyone tried an herbalists or Acupuncturist? > went to someone in Philly that does both. He is supposed to by great!!! My > Uncle had a client who had Lyme Disease (Wheelchair bound) and she swears > that he got her better!!! Hi everyone, That's a mighty big claim! Both my husband and I use an excellent Acupuncturist and Chiropractor. She does both and she uses Chinese herbs (if you want them .... she doesn't push them if it's not for you) Here is her new site: http://www.bcmedicine.com/ I've been there twice this last few week as I knocked out my back -- really, really bad! I got so well (from the IV treatment) that I went back to my regular life. One of those parts was being dragged around by my beautiful 121 LB Akita Boo-Boo for grooming and we attending the Petsmart Adoptathon together over the weekend. Dr. Kate Belko has never been able to MAKE me or Jerry better from Lyme, nor has she ever promised she could. She HAS made the pain bearable, she has given me Chinese herbs for a nasty yeast infection that didn't get cured from the regular methods of prescriptions. She has made me feel better when I was in so much pain ,,, not so very long ago ,,, that I just laid on her table with tears running down my face and cried during the whole treatment. She is expensive and does NOT take insurance --- but that proves to me just how good she is. Why would Jerry and I write her out checks from our limited funds UNLESS we found improvement? Not everyone is as good as she is --- and we jokingly say " We pass her around like a joint! " <g> I would be interested to know who this man in Philadelphia is and I would suggest that anyone give it a few tries but not looking for cures, just improvement. What we really like about Kate is she does NOT keep you sick. I've known family members who go a Chiro 3 x a week for 6 months with little improvement but say but he takes my insurance! If it doesn't work what good does it do to use your insurance? We seldom have to go back to Kate more then twice per incident. Then we can go months without having to go. My best to everyone, Marleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 I think that herbs are a good thing to try,but be wary. Some of them are actually dangerous and because they are not recognized by the FDA, we never know exactly what we are getting. I still think it is worth a shot. Have you ever heard Jurnigan Nutracudicals and their protocol containing that herbal mixture borrelegen. It may be another protocol to look into. I would definately try alternatives though. Give it at least a month if you are tolerating well and see what happens. By the way are you planning on staying on abx while doing the alternatives. I don't know if they will interfere. Let me know what you think about that because i never know if taking both at the same time will screw one up. Wishing you much luck and health with whatever treatment -Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Hi Mona, Would you mind giving me a list of the most important supplements you take. Continue to stay healthy-Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Martha, He gave me so many herbs. I don't even know what he gave me. He is very reasonable only $45.00 a office visit and that includes the herbs and ancupuntiure. He was also sooo nice and compassanaite. There were articles written about him all over his office. He also comes from 5 generations of herblist/acpuntists doctors. I'm calling him today to see if he can give me a pill instead of tea. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 In a message dated 5/5/99 10:55:49 AM Eastern Daylight Time, ValP74@... writes: << h a shot. Have you ever heard Jurnigan Nutracudicals and their protocol containing that herbal mixture borrelegen. It may be another protocol to look into. I would definately try alternatives though. Give it at least a month if you are tolerating well and see what happens. By the way are you planning on staying on abx while doing the alternatives. I don't know if they will interfere. Let me know what you think about that because i never know if taking both at the same time will screw one up. Wishing you much luck and health with whatever treatment -Val >> Val, That's a good point. I'm definatyly staying on my antibotics. I would Never give them up. I'm too scared to. Feel better, Chrisitne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 1999 Report Share Posted May 5, 1999 Happy Anniversary Mona, One full year of wellness, that's terrific. Wishing many more to follow. Best to you, Marta >From: WISHXXX@... > >I also tried acupuncture at a point when all else was failing. As >acupuncture can bring your body into total balance in order that all your >organs, systems, etc. function most efficiently, I feel it was helpful in >bringing me to where I am today. I feel that the combination of >Biaxin/plaquenil AND acupuncture AND supplements and vitamens AND rest when >needed , all helped. I have been symptomless for a year TODAY ) after >fighting this thing since 1993. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 1999 Report Share Posted August 14, 1999 you might want to look at boswellia, circumin, feverfew, ginger as just a few possibilities. Fish Oil (Omega 3's) and MSM are other possibilities. Some people will swear these work for them, others find no relief. I've taken them all - can't say I know if they help me or not - You can see what I currently take below. Mark http://members.tripod.com/~Mark_Holmes RA 4/98 AP 7/98 Minocycline (Lederle generic) 100mg 2x/day MWF;Zithromax 500 mg T,Sa; Lodine 400mg 3x/daily;Zone Diet;Olive Leaf;Slippery Elm;Fish Oil(9 caps/day);Milk Thistle;bromelain;circumin;glucosamine;Exercise - 2-3 mile walks-5 days/week(when I'm not in a big flare) RA Chat - http://members.tripod.com/~Mark_Holmes/RA/ra.html ICQ 18123139 rheumatic herbs > From: Magee <bondan@...> > > Hi Gang > Just wondering if anyone has info on what herbs or combination of herbs to > take for RA inflamation? I had stopped taking the celebrex for one day and > I seized up so I started back on it again. I don't know if it's power of > thought or what but the swelling of my ankles and knees have eased up. > Anyway would appreciate the info on herbs,I would like to ween myself off > the celebrex if possible. > Bonnie > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 Check out the section on controlling pain in Dr. 's protocol on http://www.rheumatic.org Ethel Magee wrote: > > From: Magee <bondan@...> > > Hi Gang > Just wondering if anyone has info on what herbs or combination of herbs to > take for RA inflamation? I had stopped taking the celebrex for one day and > I seized up so I started back on it again. I don't know if it's power of > thought or what but the swelling of my ankles and knees have eased up. > Anyway would appreciate the info on herbs,I would like to ween myself off > the celebrex if possible. > Bonnie > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 I make it a point to witness to the fact that plantlife is full of healing properties pertaining to specific ailments. When I was pregnant 1981 and had high alkaline test for the bladder, the naturopath/midwife gave me instructions; brew juniper berries into a jug of 1 gallon and mix with cranberry concentrate (costly) for 1 week. Ew! The sour concentrate and that odor of juniper berries---but it worked. It worked! Imagine if we grew up knowing this information how many people who have bladder troubles would be spared. I still remember the taste of those two together. By the way, please watch where you pick up your plants/herbs because of carbon dioxide from cars. I didn't believe it until I ate a punch of blackberries along a road and became nauseous. Eileen " elh " <el-@...> wrote: original article:hyperthyroidism/?start=36 16 > Herbal diuretics-the best ones I know grow wild around my house. > Dandelions, juniper berries, plantain and cornsilk. The wonderful thing is > these also cleanse the blood of poisions, infections (and micoplasmas) if we > have any and also remove impurities from the kidneys. I make a homemade > vitamin from the dandelions, plantain, and dried green and yellow vegetables > from my garden. I add a little oregano to the mix and it clears my chronic > sinus congestion as well. (I breath better than I did since I was a little > child). The only one to use with caution on this list is juniper berry. It > is very strong and nasty tasting and can only be used for 1 month on and 1 > month off. I've used it very effectively with my daughter who gets kidney > infections but gets serious drug fevers from most any antibiotic. I suspect > these would minimize bloating from the kidneys. > > To remove bloating from the liver, I suggest burdock (also a weed that grows > wild at my house) and milk thistle. Burdock and Dandelions are also natural > sources of copper, calcium and a whole lot of other vitamins and minerals. > Plant sources of these things are more absorbable and your body can use them > easily and thus doesn't need as much. I'm a bit wary of using rock forms of > minerals, though at this point many of the herbs I used for my calcium > sources also have Iodine in them-Nettle and Horsetail (Also a great source > of silica). So I may have to go with some Calcium and Magnesium from some > other sources until I build up my copper. My iron has always been very > high, probably why my copper is probably low. We have well water that is > full of iron. I'm now filtering it with a home-made (very affordable, but > very effective) filter because I suspect pesticides in our water > contributing to our " family " immune problems, so now I suspect that it > tastes so wonderful that I won't be getting all this iron anymore. These > herbs you can make into a tea or grind them in your blender into a powder > and encapsulate them. You can also make them into a tincture by using vodka > or vinegar and the herbs will last indefinitely. I beieve these may also > reverse and heal some kidney damage. I 'm amazed at how effective our > Creator has made herbs for healing. They are a gift from him, not to be > worshiped but to point us to the Creator who is worthy of all our praise. I > see this disease as a good thing for myself. I have learned to be more > dependent on Him and less dependent on myself. If my outward appearance > gets " ugly " as it appears to be starting, then I will be forced to work on > the inner beauty which is something eternal and will never fade away. The > one thing I know is that I can easy obsess about all this especially when > the symptoms get bad. After 24 hours with only twilight sleep I decided to > simply forget about my self and praise the different qualities I know about > God. I continued to do this everytime I woke up " perky " in the middle of > the night and would you believe I fell back asleep (something I haven't been > able to do in a long time without heavy herbal sedatives). I woke up > refreshed, etc. So I've decided to allow myself 1 hour a day to research > and figure out my plan for treating this and refuse to think of it any more > in the day. Hopefully once I get on a regime I can reduce this to about 15 > minutes a day! > > Liver sources of bloating-I believe every one of us would benefit from milk > thistle. I plan to grow a whole lot of it here this year. It is the best > liver detoxifier I know and I recommended it to a man in our church who had > liver cancer and most of his liver cut out, who's liver enzymes were > climbing and dangerously high. After about 6 months on the milk thistle the > Dr. couldn't understand why his liver enzymes were dropping, but the man > decided the Dr. wouldn't believe him if he told him anyway, so he just > shrugged his shoulders. He's a happy customer! I was told after my 2nd > miscarriage that my liver is probably involved and I'd take the milk thistle > on and off. However, now I am realizing that I really do have a serious > problem and should get serious about taking the milk thistle. I think it > would also remove any mercury from our body as well, if fillings are the > problem. You can buy it bulk, encapsulate a 1 month supply at a time and > get the most effective form available. What you get encapsulated in the > stores could have been there a long time. It's expensive and loses some of > it's potency after 1 month. I have just begun doing this as a " side > business " but until I am growing enough of everything, I will have to > purchase my herbs bulk. If anyone is interested in doing this themselves, I > have sources for cheap gelatin capsules and affordable and high quality > herbs or would appreciate a little help encapsulating them, let me know. > I'm cheaper than any sources I know because I see this more as a ministry > than a business. Just write me personally at elh@... . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Can't help you Marinda. Never tried the herbs you mention. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 linda can u gv me a website whr i can research sum herbs? >From: ljohnson@... >Reply- > >Subject: [ ] Herbs >Date: Fri, 28 Sep 2001 09:55:47 -0000 > >Sue, >What herbs were you taking specifically? I know my gastro did not >recommend taking some at GNC for the immune system. Since our immune >system is in overdrive we need something to calm it down. My mom >is sending me some info from Canada about liver-detox stuff. I will >have to do some research to see exactly what is what on this. There >are some sites on the internet for herbs which give basic adverse >reactions etc. and persons who should not take them. It has been >helpful to me so far. >LC AIH (0701) > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I want to just throw in my two cents worth regarding herbs. While we were waiting and going through the evaluation we were cautioned not to take any drug, over the counter medicine or herbs without checking with the tx team first. They told us that herbs specifically are not regulated and the anethesiologist told me they have more and more complications with people who have been taking herbs and then need to be anesthesized. Some of these herbs are residual for 30 days in your body. They can cause serious complications to both your liver and your health if you should get the call for the gift of life and have been taking them. As with all things during this time, I would check with my tx team before beginning any type of regime not prescribed by them. This also shows non compliance in their eyes. JMHO..... Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 What exactly is a tx team? Just wondering...never have heard that term before. debby Re: [ ] Herbs I want to just throw in my two cents worth regarding herbs. While we were waiting and going through the evaluation we were cautioned not to take any drug, over the counter medicine or herbs without checking with the tx team first. They told us that herbs specifically are not regulated and the anethesiologist told me they have more and more complications with people who have been taking herbs and then need to be anesthesized. Some of these herbs are residual for 30 days in your body. They can cause serious complications to both your liver and your health if you should get the call for the gift of life and have been taking them. As with all things during this time, I would check with my tx team before beginning any type of regime not prescribed by them. This also shows non compliance in their eyes. JMHO..... Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 tx team = transplant team This team is made up of everyone you saw during the evaluation and who will monitor you as you come closer to a transplant and after. Usually the surgeon, the transplant coordinator nurse, the social worker, psyche doctor, aneth. doctor, hepatologist, bioethics doctor, and anyone else depending on your certain set of circumstances. All of these people play an important role in your care. Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hi -- I was taking milk thistle which I know has been discussed before -- and vitamins, magnesium, and calcium, BUT, in big doses. In addition to that she had me taking two herbs (Sorry, I can't find the name) to build up my immune system, again in mega doses. She (the accupuncturist) thought it was faulty thinking that my immune system didn't need building up and I think that is where I got into trouble. Anyway, I have backed way off. I still take a general vitamin, plus magnesium and calcium and these all have the blessing of my gastro. I hope this helps. Sue (Oregon) [ ] Herbs Sue, What herbs were you taking specifically? I know my gastro did not recommend taking some at GNC for the immune system. Since our immune system is in overdrive we need something to calm it down. My mom is sending me some info from Canada about liver-detox stuff. I will have to do some research to see exactly what is what on this. There are some sites on the internet for herbs which give basic adverse reactions etc. and persons who should not take them. It has been helpful to me so far. LC AIH (0701) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Hi Everyone, I was told by my dr. (internal specialist is the one who finally diagnosed me right) that he thought it would be a good idea to take milk thistle, but that was the only one he thought would be okay to take. I think stress has been a factor for me and getting better. I tried alot of different things over the last 3 years but recently I made the decision to quit my job, I was coming off prednisone and having a pretty tuff time. But I came off prednisone and am still in remission so I know I made the right decision. I am still concerned that I may not stay in remission though. Thanks for the ear. peady _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 In a message dated 10/5/01 4:46:29 PM Pacific Daylight Time, pattyeady@... writes: But I came off prednisone and am still in remission so I know I made the right decision. I am still concerned that I may not stay in remission though. My doctor says he generally has about a dozen AIH patients, and he's never had anyone who quit prednisone and was able to stay in remission permanently. However, statistics show that some people are lucky and succeed at it! Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Ohhhh I am so happy for you! I hope that one day I too will be in remission! Thanks for the encouragement...hey, if one person can do it, then others can too! debby [ ] re:herbs Hi Everyone, I was told by my dr. (internal specialist is the one who finally diagnosed me right) that he thought it would be a good idea to take milk thistle, but that was the only one he thought would be okay to take. I think stress has been a factor for me and getting better. I tried alot of different things over the last 3 years but recently I made the decision to quit my job, I was coming off prednisone and having a pretty tuff time. But I came off prednisone and am still in remission so I know I made the right decision. I am still concerned that I may not stay in remission though. Thanks for the ear.peady_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Dear Harper, Our tx team say AIH patients stay on prednisone after transplant -- the reason, the AIH is not removed when the transplant is done. It can reoccur and since they know going in that you have it, they keep you on the preventative to help keep it in remission. Every person we have spoken with or chatted with that had AIH and came completely off prednisone had a flare up within a year. Not worth the risk to us -- Randy takes 5/mg a day. They may lower it a bit in another year or so but he will always be taking it. Just our 2 cents worth... Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Question for all: Would taking the Prednisone (alone) help the AIH? The Imuran has to many side effects for a 87 year old. Just searching...ALL opinions welcome. If you'd rather not post openly email me at JudieV@... Thanks for being here! Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 In a message dated 10/6/01 12:31:07 PM Pacific Daylight Time, JudieV@... writes: Would taking the Prednisone (alone) help the AIH? The Imuran has to many side effects for a 87 year old. Just searching...ALL opinions welcome. If you'd rather not post openly email me at JudieV@... Thanks for being here! Judie You certainly don't HAVE to take both Prednisone and Imuran. Imuran makes it possible to lower the dose of Prednisone, as I understand it, and Imuran lessens some of Prednisone's side effects (osteoporosis, glaucoma, cataracts, emotional disturbances, etc.) Harper Quote Link to comment Share on other sites More sharing options...
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